CarolinAlaska
Holding It Together
- Joined
- Jan 24, 2013
- Messages
- 2,574
My daughter is undiagnosed
16yr female
Currently has HS(Hidradenitis Suppurativa)
Undiagnosed Bowel Disorder for 6 yrs
We have been back and forth and back and forth, everyone writes this off as IBS. Here's a pill and some zofran, take Imodium and you will be fine.
Well I'm sick of these answers, there is something wrong with my daughter! I took her to Childrens Hospital in Seattle last year and he basically ruled out a few things with blood work and said she has IBS.
I took her back 1 week ago due to more severe D and tummy pains. They ran more testing and did stool tests. Here's what we found so far:
NEG- Parasits
NORMAL- Liver Enzymes
NORMAL- for Celiac
NORMAL- Allergey for foods
LOW- Albumin
HIGH- CRP Inflammatory
We are still waiting for the stool to come back that shows inflammation in the colon. If that show inflammation we are moving to an endoscopy.
I just want my daughter to feel better, be able to not have to miss school , and be able to enjoy sports. We are always looking for a bathroom for Just In Case!
Please Advise!!!!!!!!!!
It was the elevated CRP that helped move us along toward the right diagnosis. Hopefully your daughter will get the scope one way or another if she has never had one. It sounds like she needs it. How is her weight?