Upcoming Colostomy Surgery

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Oct 21, 2013
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Hey guys, I have finally got a date for my Colostomy + Anal closure surgery which will be at the end of March and I feel nervous as heck. Its like im waking up to a whole new life. No matter how much I know about the procedure I feel as if I will be facing many surprises afterwards. How painful was recovery for most of you? What should I expect and any tips to deal with it? Believe it or not im more scared of getting a catheter inserted in my P*** then the actual surgery lol. Any feedback would be appreciated. :)
 
Sorry to hear and you are right to mentally prep for additional challenges. Nobody can tell you what you individually may face. Definitely watch videos, study up before hand so you are familiar with the terminology, products and companies as well as possible complications.

As for recovery it was a few weeks for me and took some time for my stoma to settle and not leak through bags much. The catheter is not fun lol but you wake up with it and it doesn't really hurt when they pull it out. It's just awkward!
 
Do they place it in before you were drugged or afterwards? How many days were you needing Morphine afterwards? (seeing if the pain was unbearable). I know the rest will just need experience and getting used to but its the little things that are always a surprise.
 
You are sleeping when they put it in. I was on various painkillers for 5 days and then took more home after for another 2-3 weeks or so.
 
Hi :)

welcome to the stoma club. It is kind of like waking up to a whole new life, as there is so much to learn and new routines to create as you learn to live with it. For me, at first it felt like my ostomy and trying to process what I'd been through with my illness was all I thought about. After a while it fades into the background though... and after a couple years it felt so normal to me that it's the last thing on my mind. The beginning is hard but it does get better.

I have had 6 major surgeries and for me, I didn't need pain meds after about 10 days post-op for any of them. It took longer to regain my strength, but I didn't really have pain after that. Everyone is different though. I think I was on morphine for 5 days with my first surgery.

Ask your surgeon what he/she plans to do with your anal wound (some close it, and some leave it open to heal over time depending on your risk of infection there) and ask if you will have any drains put in during surgery. Drains are not a huge deal but I didn't even know what they were when I woke up with tubes coming out of my abdomen, and it would have been nice to expect them.

hugs to you! My mantra during my sick years was "Everything will be OK in the end. If everything is not OK, it's not the end yet." :)
 
Thank you so much it means alot. Im pretty sure my surgeon wants to close my rear end up actually. I guess no matter what I wake up to, is still better then all the years of pain combined that ive had to go through. Its almost as if I forgot how it feels to feels good or normal. Im sure it wont be as bad as my paranoid mind is picturing it. Thanks for the support!
 
I don't blame you about the catheters! I'm female, but I've found that anything in my bladder hurts an insane amount, though doctors tell me that I'm unusual in that respect and that it's not painful for others. After my ileostomy surgery, I did not have a catheter however.

I didn't get any morphine, as opiates slow the digestive tract. But I've had six surgeries, and the only really painful parts were complications that wouldn't ordinarily happen.

My ileostomy surgery was actually not that painful at all until I developed post-surgical ileus (which, I won't lie, was agony, but that doesn't normally occur and I wasn't allowed any opiates). But surgeries do vary, your experience may be better or worse than others.

If it helps to hear it, I love my ileostomy. Again, people have different experiences, but it's definitely possible for this to be a good thing! I really just learned as I went along. I found it worked better for me to just learn through practice than reading guides beforehand. I got the hang of it pretty quickly; the nurses and stoma nurses helped and after a few days I was able to empty and change my bag alone with no problem, it's not too complicated, and over the following weeks I developed and refined my own routine and techniques, experimented with a few different products and dealt with problems (of which I had very few) as they occurred. The only real problem I had was an inability to eat certain foods without blocking the stoma, but with a colostomy as oppose to an ileostomy that won't be a problem for you!
 
The catheter is not really painful it just feels like you need to pee but can't and it's a very awkward feeling. I always freak out when they want to pull it but the truth is it's not bad at all.
 
Yeah, you'll be unconscious when it goes in. From the time you wake up until the time it comes out, you'll be chock full of painkillers and won't notice a lot of things, I had tubes in me that I wasn't aware of for a couple of days. It feels weird when they pull it out, but for me it wasn't painful.
 
Thanks for info guys cant wait lol. Vonfunk I see your in Ontario too, who covers the costs of the medical supplies? How does that all work? I know they will let me know everything I just like to be ahead of the game.
 
Mine is temporary, so I had to pay for everything, technically I had insurance for most of it through work so they paid most of it. I'm getting it reversed in the near future, just waiting on a surgery date.
Yours is permanent the gov't allows you $600 a year this works out to roughly half the cost of basic supplies for the year. You can pick them up Shopper's Drugmart Home Health Care Centres (but not the regular Shoppers), Well.ca also sells them and there a few other places.
The hospital will most likely send you home with some, I got roughly a months supply, the hospitals in Toronto seem to go with Coloplast. They might also ask you if can give your info to one of the medical supply companies, if that is the case they'll most likely ship you another bunch of bags and what not.

You'll probably get at home nursing care, or at least they'll offer it to you. Mine was paid for by the OHIP, I assume yours will be too. If it's free take it. For about a month or so they come by a couple times a week to check on how things are going and they'll order supplies to leave onsite to look after your incision and ostomy. They might order more ostomy supplies for you, these will also be on OHIPs dime, if you get a nice one like mine was they might order extra. Plus, sterile saline, gauze, sponges, powders etc, my surgery was almost 3 years ago, and I still have some of the supplies my nurse ordered.

You'll get a basic "how to" set of instructions in the hospital, but the at home nurse will be the one to properly teach you if you are having issues, plus they'll be the ones to remove your staples.

Where are you in the province and where are you having surgery done?
 
Thought I'd check, I've met a fair amount of people from out of town during hospital stays, I've got a friend in North Bay that I met while staying in the hospital.
 

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