Upper LRQ Pain in 10 year old for over 4 weeks

[Hopefulled]

Hey, I'm new here.

I have a 10 year old girl who had sudden onset of pain just to the right of her navel area and slightly lower over 4 weeks ago. The Pain never moves.

She has had two stays in Hospital over that time for the pain, cramps that come and go, but the pain stays constant at the 6 out of 10 when not cramping and can rise to an 8 or 9. She can eat alright, and her cramps can come at anytime, but seem to be worse after a bowel motion (Not normal for most gastro things I know.).

All of my daughters blood, urine and Bowel tests have come back clear, not pointing to any inflarmation or other problems. No H-Plori, no lift to indicate CD.

In New Zealand we have a public Health system, which is great most of the time, but currently we seem to be batting our heads up against Doctors who because they can't see anything clearly, think there isn't anything there. We have had a few try and pass her off as having Functional Ado Pain, which just doesn't add up to us as it is constant and she is our happiest, and most easy going child who loves school and takes on life with great gusto most of the time. It's very sad to see her spending most of her time lying down with a wheat pack over her tummy. We have a Private appointment for the end of March for a Ped GI (The only one in the largest city in NZ, as they all work for the Hospital.).

Just wondering how many of you have had this type of experience, with nothing showing in the Blood, Urine and Stool tests.

Marie

 

[Devynnsmom]

Hello Hopefulled, welcome to the forum. My 11 year old daughter has ulcerative colitis. We went through years of symptoms before diagnosis. In that time her blood and stool tests always came back normal.
Does your daughter have any other symptoms?
I hope you get answers soon. Its horrible watching your child sick and in pain. ((((hugs))))

 

[my little penguin]

DS was very good at providing normal results here as well.
Normal blood and stool - check
Normal small bowel follow through check
Upper and lower scope - looked visually normal - only a little red
But biopsies showed chronic inflammation consistent with crohn's from his stomach to anus .
Even mre done after the scope was mostly normal .

So we follow the if he isn't acting right something must be wrong.

Functional abdominal pain is not related directly to mood etc...
It just means the Gi tract does not work the way it should for whatever reason - the main difference between Ibs and Ibd is Ibd causes damage ( sometimes severe)
Ibs - not so much.
Glad you are pushing for testing
Gi aslo suggested functional when the first scope came back visually normal.
We just happen to catch his disease very early.

 

[Crohn's Mom]

Hi Hope

Definitely quite a few here that have been/or are now going through very similar things.
My youngest son being one of them right now ~ We've been going through testing now for nearly a year and a half and most of the tests he's had have come back "almost" normal.
He is scheduled for a Pill cam this coming Thursday so we are hoping we will get some kind of answer.
Its so heartbreaking to watch our children in pain with no answers ~
and I'm sure especially when as you say, they are normally happy and outgoing, and then to be told it's "nothing".
Hang in there and keep pushing until you have an answer !
Meanwhile, while we all hope it's not IBD for your child, we will be here to support you!

Is there any history of IBD in your immediate family?