Vent on drs

[porter89xxx]

So i had my appointment to see my gastro since the first time i come out of hospital where they told me i had thickening and narrowing of the small bowel and started me on 40mg of predisolone and pentasa, i am starting to feel better and my symptoms are starting to improve i just really really am so angry at my doctor right now i really dont no where i stand with the hospital, she said that in the scan the terminal ileum has thickening in it and the scan the year before previously shown on a barium meal ulcers which suggested crohns, she now wants me to wait until i see my other doctor in a hospital in London to see what they think. I am sorry but i really am just getting so frustrated with them pulling me in different directions and it is it isnt crohns, if it shown on scans and im feeling better i really dont understand what else it could be and she also said that the amount of symptoms i get i shouldnt get, how she can say this i dont no everyone is different, i am so so angry and obviously the steriods are not doing anything to help me calm down im just feeling like a bull to something red and just wanna charge at all the doctors that sit there and play with peoples lives and emotions. Sorry for the vent everyone i am just so frustrated and scared that i will stress myself out more to make myself ill again

 

[dreamintwilight]

Hey there, Porter!

Sorry to hear your diagnosis seems to be taking longer than expected to confirm. I can empathize. It took me a month after I was discharged from the hospital to finally reach a distinct answer as to what I had. Though, I know that is really lucky for me since I've heard so many stories on here about people who went years without getting a diagnosis. That can really take a toll on you with all the anxiety and stress.

It's like "Man, I just want to know already so I can work on getting better!"

Sometimes you just got to let it out and vent!!

If you find yourself getting too worked up about things, try to make a list--whether it's mental or physical--of all the positive things that have happened and your doctors have been able to improve since hospitalization. I find when I do that, my circumstances don't seem as dire and it gives me a little more patience to trudge through the muck a little longer.

And then when I get too frustrated again, I vent...and the cycle starts over, haha.

Hang in there! It sounds to me like your doctors seem to be going in the right direction. Sometimes the waiting is the toughest part.

 

[porter89xxx]

It is just so frustrating that they are keeping me hanging on, they did this to me last time treated me with steriods and then did tests which is obviously going to show nothing, i told them that i will not do that again, i really do think doctors do not understand that dealing with this illness has on the mental state and how they make you feel, I am trying to think positive that the steriods are now working and i am feeling better and that i would rather be on these than suffering any more with them still telling me its severe ibs its just so so uncomfortable waiting around because you just do not no what they will turn around and say

 

[Jenny06xx]

Your story sounds exactly like mine !!
Read my thread it's called just to top it all off.
On this forum, I've been waiting since 2003 for a diagnosis till I ended up in hospital more than 10 times in early 2010 then I spent 3 weeks having tests and was told I have crohns disease in September after ct scan.
I too was started straight on steroids before my colonoscopy . Idiots!
So now I'm having the pill cam on the 14th march to get a definate diagnosis, bcoz as of now they're only 99 percent sure it's crohns, and are leaving me suffering on just pain meds until my diagnosis

 

[porter89xxx]

Hi jenny, i also had the pill cam and because i had been on steriods it obviously masked the inflammation so it showed nothing, it was only until they took me off of everything med wise my symsptoms come back but it took over a year and a half for this mri scan to come back with thickening in my small bowel a mri scan in the small bowel last year also come back normal, i really do not think doctors think about things, they just put you on medication to treat it and think it would still be there after treating it, they are dumb and annoying, i have told my doctor i will not go through what i have been through again and i am just hoping this doctor in london confirms it as she wrote a letter to my doctor and told her they could not just outrule crohns and that i needed more tests, this was before i ended up in hospital in january with severe vommitting and pain.