Vent on drs

[porter89xxx]

So i had my appointment to see my gastro since the first time i come out of hospital where they told me i had thickening and narrowing of the small bowel and started me on 40mg of predisolone and pentasa, i am starting to feel better and my symptoms are starting to improve i just really really am so angry at my doctor right now i really dont no where i stand with the hospital, she said that in the scan the terminal ileum has thickening in it and the scan the year before previously shown on a barium meal ulcers which suggested crohns, she now wants me to wait until i see my other doctor in a hospital in London to see what they think. I am sorry but i really am just getting so frustrated with them pulling me in different directions and it is it isnt crohns, if it shown on scans and im feeling better i really dont understand what else it could be and she also said that the amount of symptoms i get i shouldnt get, how she can say this i dont no everyone is different, i am so so angry and obviously the steriods are not doing anything to help me calm down im just feeling like a bull to something red and just wanna charge at all the doctors that sit there and play with peoples lives and emotions. Sorry for the vent everyone i am just so frustrated and scared that i will stress myself out more to make myself ill again

 

[dreamintwilight]

Hey there, Porter!

Sorry to hear your diagnosis seems to be taking longer than expected to confirm. I can empathize. It took me a month after I was discharged from the hospital to finally reach a distinct answer as to what I had. Though, I know that is really lucky for me since I've heard so many stories on here about people who went years without getting a diagnosis. That can really take a toll on you with all the anxiety and stress.

It's like "Man, I just want to know already so I can work on getting better!"

Sometimes you just got to let it out and vent!!

If you find yourself getting too worked up about things, try to make a list--whether it's mental or physical--of all the positive things that have happened and your doctors have been able to improve since hospitalization. I find when I do that, my circumstances don't seem as dire and it gives me a little more patience to trudge through the muck a little longer.

And then when I get too frustrated again, I vent...and the cycle starts over, haha.

Hang in there! It sounds to me like your doctors seem to be going in the right direction. Sometimes the waiting is the toughest part.

 

[porter89xxx]

It is just so frustrating that they are keeping me hanging on, they did this to me last time treated me with steriods and then did tests which is obviously going to show nothing, i told them that i will not do that again, i really do think doctors do not understand that dealing with this illness has on the mental state and how they make you feel, I am trying to think positive that the steriods are now working and i am feeling better and that i would rather be on these than suffering any more with them still telling me its severe ibs its just so so uncomfortable waiting around because you just do not no what they will turn around and say