- Joined
- Feb 23, 2012
- Messages
- 180
Hi everyone. I hope you and your littleones are all doing well. I have learned with Crohns you maybe doing well one minute but in the drop of a hat you may not being doing well the next minute.
Kota has his good moments and his not so good. He is at least laughing more. So thats great. I love to hear him laugh and see him play. He is such a blessing to me.
We are at the hospital in one doctors office or another nearly everyday. It seems like I dont do anything but I am always busy and super tired.
All last week Ko would wake up throwing up and sick at his stomach. After he threw up and had been up for awhile he felt better. Then during the day he would be okay. I mean his stomach always hurts but he could manage it. He isnt eatting much but better then it has been for a few weeks. It takes him a while to eat lol a few bites here and a few bites there.
Had to push for them to give him promethazine for his nausea. They wanted him to take zofran which didnt help at all. Then they would only give him half a dose of promethazine. Still have no idea why the heart rate is still up. We were told they were stopping the bentyl and starting Levsin/SL for his stomach cramping. Well when I read on the medicine it said dont give if you have a history of high heart rate:ybatty: acid reflux, kidney disease. It is removed through the kidneys. Drug interactions with Amitriptyline and promethazine which he takes both UGh really!! Why cant they check these things. So they tell me to hold off on this new medicine well yeah I am going to. Nurse calls this morning and says to continue to hold off on Levsin and Bentyl both. We have appointment to see GI Monday. First time since February. And that appointment didnt go so well. Ko was just out of hospital with dx and doctor was so rude about Ko not sleeping and gaining weight. Hope this appointment goes better. Nurse said Dr was ordering a Colonoscopy an Egd for next Tuesday. Uh okay.
So I have a question for all you smart mommys and daddy. We are in the process of getting new Gi. New hospital and Gi clinic have still not recieved his records. So I called hospital he is at now yesterday and they said they were mailing them today. Should I go ahead with this Scope or wait? Will the new dr want to do it? And I am a little scared him being put to sleep with his heart rate still being so high and no one knowing why. What would you do if this was your littleone?
We went today and took urine test back to lab Cardio had Nephro order to see if they can figure out heart rate. Went and had his cast taken off and xrays today. Then we had to go see Allergy doctor. They were a bit freaked out with heart rate:ywow: It was 135 and he was sitting still.
His labs have been looking good. We went and had his Metabolite labs done Monday but dont have those results yet. So thats whats going on with Ko.
Kota has his good moments and his not so good. He is at least laughing more. So thats great. I love to hear him laugh and see him play. He is such a blessing to me.
We are at the hospital in one doctors office or another nearly everyday. It seems like I dont do anything but I am always busy and super tired.
All last week Ko would wake up throwing up and sick at his stomach. After he threw up and had been up for awhile he felt better. Then during the day he would be okay. I mean his stomach always hurts but he could manage it. He isnt eatting much but better then it has been for a few weeks. It takes him a while to eat lol a few bites here and a few bites there.
Had to push for them to give him promethazine for his nausea. They wanted him to take zofran which didnt help at all. Then they would only give him half a dose of promethazine. Still have no idea why the heart rate is still up. We were told they were stopping the bentyl and starting Levsin/SL for his stomach cramping. Well when I read on the medicine it said dont give if you have a history of high heart rate:ybatty: acid reflux, kidney disease. It is removed through the kidneys. Drug interactions with Amitriptyline and promethazine which he takes both UGh really!! Why cant they check these things. So they tell me to hold off on this new medicine well yeah I am going to. Nurse calls this morning and says to continue to hold off on Levsin and Bentyl both. We have appointment to see GI Monday. First time since February. And that appointment didnt go so well. Ko was just out of hospital with dx and doctor was so rude about Ko not sleeping and gaining weight. Hope this appointment goes better. Nurse said Dr was ordering a Colonoscopy an Egd for next Tuesday. Uh okay.
So I have a question for all you smart mommys and daddy. We are in the process of getting new Gi. New hospital and Gi clinic have still not recieved his records. So I called hospital he is at now yesterday and they said they were mailing them today. Should I go ahead with this Scope or wait? Will the new dr want to do it? And I am a little scared him being put to sleep with his heart rate still being so high and no one knowing why. What would you do if this was your littleone?
We went today and took urine test back to lab Cardio had Nephro order to see if they can figure out heart rate. Went and had his cast taken off and xrays today. Then we had to go see Allergy doctor. They were a bit freaked out with heart rate:ywow: It was 135 and he was sitting still.
His labs have been looking good. We went and had his Metabolite labs done Monday but dont have those results yet. So thats whats going on with Ko.
