What kind of pain do you get from flare?

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Sep 18, 2011
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I am new to this forum. It seems that a lot of people take pain medication. Can you describe the pain associated with this disease? Is it muscle cramsp, arthritis? or something else. How severe is the pain? Does it hinder you from walking or doing normal daily activities?
 
When I am having a bad flare I am given dilaudid as it is the only thing that will touch my pain. I have just been started on Tramadol which is helping mildly with chronic pain. I'm having a bad flare as we speak and just got off antibiotics to treat c-diff. I am given oxycodone and hydrocodone every now and then when I am doing very poorly. I rely a lot on natural remedies for relief when it comes down to it. Olive oil has been beneficial to me. Make sure to get lots of iron. I'm currently suffering really bad from joint pains and restless leg syndrome from lack of iron I would assume. I hope this forum gives all the answers you need. This question has me all scatterbrained so I will end this here.
 
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My pain is from swollen inflammed joints, that stiffen and eventually become immobile as the flare progresses. Depending on where the joints invoved are located, the pain can be completely unbearable. Tramadol will help with this pain, but nothing short of Dilaudid will knock it out.

For the bowel pain, it is an emerging tenderness on the left side of my abdomen, below the rib cage, that grows into waves of pain, with the intensity depending on how serious the flare is. It also flares in the anal/rectal area, which I usually can handle better; it starts as low back pain that radiates as it gets worse. The ulceration is excruciating no matter where it is located. Fistulas are also extremely painful no matter what size they start out; but especially so if they abcess. Dilaudid is the only medication that works for me once the bowel is involved.
 
If I am having a true flare. I am hospitalized, and I'll give you one guess what they give me........ Yep Dilaudid. I take hydrocodone for back and arthritis pain.
 

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