What meds have failed before you starred stelara?
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For me, Cimzia worked for a while and then it failed. The second time around, I had an allergic reaction to Remicade. I also had an allergic reaction to Flagyl. The same thing happened with Doxycycline. For me personally, Stelara never did anything for the Crohns Disease but everyone is different. Best to you.
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I tried humira, simponi, remicade, cimzia, methotrexate, sulfasalazine. Started stelara in April 2016 and it has been the best so far.
Good luck!
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Ronroush were you on the higher dose for Crohns 90 mg or the lower psoriasis dose 45 mg?
They have found in order to be effective for Crohns
Stelera needs to be at a much higher dose (double ) that of psoriasis patients
They have found in order to be effective for Crohns
Stelera needs to be at a much higher dose (double ) that of psoriasis patients
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I am not sure.
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I hope you have much luck with Stelara.
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Hi everyone. I started on the Biologics for Crohns /UC about 3 years ago with Humira. I had to drop that even though my stomach was awesome on it, I developed plaque psorasis.
Now I am on Remicade infusions but I have problems with it spiking my BP so we are stopping Remicade. I also take the Imuran.
Next drug is either going to be Stelara or Entyvio. Does anyone have a recommendation with positive results on either of these? Is there one that is more risky for other diseases?
Now I am on Remicade infusions but I have problems with it spiking my BP so we are stopping Remicade. I also take the Imuran.
Next drug is either going to be Stelara or Entyvio. Does anyone have a recommendation with positive results on either of these? Is there one that is more risky for other diseases?
Hello Jazzygirl52. Everyone responds differently to meds....I doctor at Mayo in Rochester MN. I was on Entyvio for a few months. Talk to your doctor and ask for the stats on Entyvio for Crohns patients. I think (if I remember correctly) 1 person responds to the medication out of 4.??? Not great results, but it may just work great for you. Didn't work at all for me. I am currently on Cimzia right now. Taking 1 injection every 10 days along with Imuran. Its not working. I have been on Imuran for 12 years always along with other meds & Biologics. I will start Stelara next month and continue with Imuran.
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I was on Pentasa for years then after colon cancer, put on Humira... allergic reaction to it in year two so switched to Remicade...not as good as Humira on my digestion and it made my BP go sky high. Now choice of Entyvio or Stelara?
I think entyvio takes longer to work. I've read Entyvio is generally more effective for people that have disease in their colon. If I had the choice I'd choose stelara as I have disease in my ileum/small bowel.
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Just saw my GI and we discussed the two options of Entyvio and Stelara. He says patients have had very good luck with Entyvio...Stelara is newly prescribed for this issue in 2016 so a lot less is known. I would rather something that is specifically targeted for the GI tract vs have an impact on lots of other parts of my body.... have a few months to figure out.... Stelara is a syringe injection that I would administer... prefer Humira type pens but we will see. Any other peeps have thoughts?
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Failed:
Remicade and Humira. No improvements whatsoever, even with pred, 6mp, ASA, etc..
Success:
Tysabri - 3 1/2 yrs asymptomatic, but tested positive for JVC virus
And
Entyvio - 3 yrs asymptomatic, flared up after c-section, no response to med after that.. darn hormones!
Now: Stelara, first treatment today. We'll see
Remicade and Humira. No improvements whatsoever, even with pred, 6mp, ASA, etc..
Success:
Tysabri - 3 1/2 yrs asymptomatic, but tested positive for JVC virus
And
Entyvio - 3 yrs asymptomatic, flared up after c-section, no response to med after that.. darn hormones!
Now: Stelara, first treatment today. We'll see
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Hum it’s great but gave me plaque psoriasis , Remicade raise my blood pressure and wasn’t great about controlling my symptoms. Went for initial dose of stelara and got one of the serious side effects pretty soon after the infusion was almost done – my tongue and throat kind of swelled up, the sides of my head felt tight. Went immediately to the ER from the infusion and was treated with 65 mg of prednisone – went home five hours later and Feel better, next day went back to get my car got dizzy again and my throat started swelling up so back to ER
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Good luck and stay at infusion to make sure you are ok
crohnsinct
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Are you switching solely because of the psoriasis? My daughter got Remicade induced psoriasis and it was awful, but we stuck with it because Remicade and Humira have the highest success rates out of al the IBD meds. Plus studies have shown that you have the best shot at responding to a biologic when you are biologic naive. My daughter lost response to Remicade and we are now trying Entyvio and having a hard time getting her to remission.
All this to say, considering the switch carefully. In our case the IBD runs the decision making process. Where is your son's psoriasis? Has he seen a dermatologist. There are topical that can help a bit. In my daughter's case she is just always a scaly itching mess but like I said her IBD is much more of a health threat when not properly controlled.
All this to say, considering the switch carefully. In our case the IBD runs the decision making process. Where is your son's psoriasis? Has he seen a dermatologist. There are topical that can help a bit. In my daughter's case she is just always a scaly itching mess but like I said her IBD is much more of a health threat when not properly controlled.
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Ds switched to Stelara after failing remicade and later humira (5 plus years on humira )
Stelara takes 6-8 months minimum to effective
The newer biologics have only been approved for crohns for a little over 1.5 year
So the jury is still out on whether it’s more effective or as effective as anti tnf
Remicade has been out for decades and humira almost as long so the data is there to pull from
Keep in mind biologics can unmask other autoimmune diseases (not cause them )
So stopping remicade May not stop the psoarsis
Stelara takes 6-8 months minimum to effective
The newer biologics have only been approved for crohns for a little over 1.5 year
So the jury is still out on whether it’s more effective or as effective as anti tnf
Remicade has been out for decades and humira almost as long so the data is there to pull from
Keep in mind biologics can unmask other autoimmune diseases (not cause them )
So stopping remicade May not stop the psoarsis
crohnsinct
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MLP is right. In studies of people who get anti tnf induced psoriasis switching the biologic cleared up the psoriasis in only 50% of cases.
Stelara dies have the best success rate with treating psoriasis so your chances might be better but you are taking a gamble on the Crohns side.
Stelara dies have the best success rate with treating psoriasis so your chances might be better but you are taking a gamble on the Crohns side.
I've been in remission with Stelara for 2 years now. I get only one injection a year of the Stelara instead of the four I should have due to the outrageous cost but the one with diet monitoring has worked. All of the meds you listed above were fails for me also. Humira worked but I had a severe reaction and broke out with blisters all over my legs every time I had the infusion.
I had terrible fissures. I had a severe reaction to Remicade so I was put in the study to approve Stelara for Crohns and my fissures completely healed.
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Interesting. Only one injection per year?!
I'm supposed to have 4 injections a year but due to the ridiculous cost per injection I can afford only one. I get it in January and I'm usually good until October and then I have to do a dose of prednisone to hold me over until January.
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@tomi2much
Stelara has a copay card from Jansen
This reduces the copay (your out of pocket costs ) to $5-$25 per shot
Easy to enroll /free
We use this for ds
https://www.janssencarepath.com/patient/stelara/cost-support
That should help
The card pays a higher amount at the beginning of the year -each year when you get a new deductible
Stelara has a copay card from Jansen
This reduces the copay (your out of pocket costs ) to $5-$25 per shot
Easy to enroll /free
We use this for ds
https://www.janssencarepath.com/patient/stelara/cost-support
That should help
The card pays a higher amount at the beginning of the year -each year when you get a new deductible
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- 14,792
I am confused
The Stelara card covers copays multiple times as needed a year until you they have paid $20,000.00
For your copays
So if your out of pocket is $3060 per shot
That over $12K per year the card is covering and you only pay $5-25 dollars each time
Unless your insurance doesn’t cover Stelara at all
If your insurance doesn’t cover Stelara you can appeal through your doc office - do a peer to peer review and if that doesn’t work you go to the state where a third party determine whether your insurance should cover it . Most of the time that can work
We had to fight for months to get Stelara approved under insurance for ds since he was under 18.
one other thing
If insurance denied Stelara in the past but you have paid out of pocket for it without insurance
Jansen has different programs to help so call
You can now show Stelara works since you purchased it and your doc can appeal on that .
The Stelara card covers copays multiple times as needed a year until you they have paid $20,000.00
For your copays
So if your out of pocket is $3060 per shot
That over $12K per year the card is covering and you only pay $5-25 dollars each time
Unless your insurance doesn’t cover Stelara at all
If your insurance doesn’t cover Stelara you can appeal through your doc office - do a peer to peer review and if that doesn’t work you go to the state where a third party determine whether your insurance should cover it . Most of the time that can work
We had to fight for months to get Stelara approved under insurance for ds since he was under 18.
one other thing
If insurance denied Stelara in the past but you have paid out of pocket for it without insurance
Jansen has different programs to help so call
You can now show Stelara works since you purchased it and your doc can appeal on that .
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