What pain relief works for you?

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I've been having some cramping recently and the paracetamol and ibuprofen don't seem to be doing much.

Tonight I had 2 cocodamol which I've not had for a long time and they really have knocked the pain away. Does anyone else take this or do you use something else?
 
Hi there

Ibprophen and other NSAIDs are not recommended for use by people with IBD, this is because they encourage bleeding and ulceration in the digestive tract which we are already prone too, therefore taking them can make things much worse for us.

Codine is a good painkiller but it can be constipating so make sure that you're drinking plenty while taking it. My nurse recommends I take one cocodamol at a time and see how I go. I find as long as I'm careful I tend to be ok and it works well for my pain.
 
First off, I suggest you stop the ibuprofen. NSAIDs are generally bad for anyone with IBD. Tylenol, however, is fine. Did your doctor recommend the combination?

I've never heard of co-codamol, it but looks to me like it's just codeine and Tylenol. Is this correct?
 
Cocodamol is codine and paracetamol, it's quite a common painkiller in the UK. It would be the equivalent of codine and Tylenol.

There are varying doses, 8/500 16/500 and 30/500 with the smaller number being codine
 
Its codeine and paracetamol together so not sure if this is the same? I've never been told not to take ibuprofen which is really strange considering how long I've had crohns for!
 
There are lots of brands in the UK that contain codeine and paracetamol in combination. You can get higher doses of pure codeine only on prescription, which is what I use. It is addictive though, and you can build up a tolerance to its effects.

Also a hot water bottle can be very effective for easing stomach cramps!
 
There are lots of brands in the UK that contain codeine and paracetamol in combination. You can get higher doses of pure codeine only on prescription, which is what I use. It is addictive though, and you can build up a tolerance to its effects.

Also a hot water bottle can be very effective for easing stomach cramps!

You can get 200ml bottles of codeine linctus which is 15mg/ml of codeine for about £3-4 without prescription. A lot of pharmacies don't stock it though due to addicts but I had a word with my pharmacist and he has no qualms about ordering me a few bottles per month.
 
Ok, so like every doctor will tell you, pain meds aren't great for Crohn's. But Crohn's is a painful disease and it is necessary sometimes to take pain meds. That being said, the only oral pain med that helps me is Oxycodone, and even that isn't very helpful. Dilaudid is best for me, but is only IV.
 
Just had to take Tylenol with cifiene. I was doing so good I don't know where this pain came from . Is this what living with Crohns is going to be like? Great days then bam pain and nausea with strict diet restriction ?
 
You can get 200ml bottles of codeine linctus which is 15mg/ml of codeine for about £3-4 without prescription. A lot of pharmacies don't stock it though due to addicts but I had a word with my pharmacist and he has no qualms about ordering me a few bottles per month.

Does codeine linctus produce the same effects as codeine in pill form? It seems odd that that's being sold without prescription but pills aren't.

That being said, the only oral pain med that helps me is Oxycodone, and even that isn't very helpful. Dilaudid is best for me, but is only IV.

I had such an awful experience in hospital recently when recovering from surgery; I had oxycodone via IV. I don't recall being in terrible pain when I was on it, and my memory of those days on it are full of blank spaces, though I do remember nurses checking my pain level and my answer being: "there's no pain as long as I don't move," so I must have had some pain despite the oxycodone. But when they took the oxycodone away, the withdrawal was awful. I know I probably would have complained a lot about pain if I'd not had the oxycodone, but I honestly think I would have preferred that pain to the withdrawal. I've had other surgeries with no painkillers in the past (sometimes the surgeon didn't want me having opiates because they slow the bowel down, and he didn't want to risk that after the surgeries).

But the withdrawal from oxycodone was horrendous. I would advise anyone to be extremely wary of taking it over any length of time. I was only on it a few days, and the pain-specialist nurse told me I couldn't have got addicted in so short a time, but I know that I did.

I use codeine every day, and have a physical addiction to that, but if I go without it, the withdrawal is nowhere close to that when I came off oxycodone. For me, the benefits of codeine still outweigh the negatives. But I think people should look at non-addictive painkillers first, be careful even with codeine if you're taking it for more than a day, and use oxycodone only in very extreme circumstances.
 
Just had to take Tylenol with cifiene. I was doing so good I don't know where this pain came from . Is this what living with Crohns is going to be like? Great days then bam pain and nausea with strict diet restriction ?

Not necessarily. How long have you been sick for? It takes a while to figure out what meds, diet, etc. work for you. The disease itself fluctuates between good and bad times on its own, as well as often responding to medication (not just medication like painkillers which control symptoms, but medications that concentrate on stopping inflammation as well).
 
It's only been 4 months on any real medication plan besides prednisone and antibiotics. Pentasa has been great but I feel it's just not enough. I did just eat raw vegetables that I normally eat cooked so that probably threw me into the flare. I'm going to ask to go back on entocort if the pain persists into tomorrow. I hate this :(
 
But the withdrawal from oxycodone was horrendous. I would advise anyone to be extremely wary of taking it over any length of time. I was only on it a few days, and the pain-specialist nurse told me I couldn't have got addicted in so short a time, but I know that I did.

When I was first diagnosed, I had to be on Oxy for over a year because of multiple fistulas, abscesses, and fissures. Withdrawal from that was not fun and it took me a good 6-7 months just to taper off of it. I would so much have rather dealt with the pain, but it was too much to live with. Not a very pleasant period for me. But hey, I survived and that's what matters, yeah?
 
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