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not so much at the moment, but i have days when i'm so tired it doesn't feel like normal tiredness... more like a sedation of my mind and body - and when i get like that i also get tearful.

try and get little catnaps when you can, if you're not sleeping well at night.
 
I am absolutely exhausted but the prednisone won't let me sleep. I tapered down to 30 mg today so hopefully that helps!
 
I am absolutely exhausted but the prednisone won't let me sleep. I tapered down to 30 mg today so hopefully that helps!
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I know that feeling. Even with the pain meds and muscle relaxers, I still have a hard time. I've actually gotten my days and nights mixed up and spend most of my time holding down the couch or the bed.

I feel bad saying I'm exhausted when I haven't done anything in months and most of you are working and maintaining life. I feel so useless. Sorry to dump on your thread, Pin, just being honest.
 
I am absolutely exhausted but the prednisone won't let me sleep. I tapered down to 30 mg today so hopefully that helps!
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I know that feeling, MapleLeafGirl. Even with the pain meds and muscle relaxers, I still have a hard time. My prednisone just went from 25 to 30. He's suggesting 40, but I can't handle the side effects. I've actually gotten my days and nights mixed up and just spend most of my time holding down the couch or the bed in a slightly dazed mentallity.

I feel bad saying I'm exhausted when I haven't done anything in months and most of you are working and maintaining life. I feel so useless. Sorry to dump on your thread, Pincusion, just being honest. I hope you feeel stronger soon.
 
Hey Christina - count me in. I actually haven't even been on this forum in a month because I've been so frustrated with this fatigue.

Wish we weren't in this together... but then at least we're in this together... if that makes any sense!
 
MisB said:
I know that feeling, MapleLeafGirl. Even with the pain meds and muscle relaxers, I still have a hard time. My prednisone just went from 25 to 30. He's suggesting 40, but I can't handle the side effects. I've actually gotten my days and nights mixed up and just spend most of my time holding down the couch or the bed in a slightly dazed mentallity.

I feel bad saying I'm exhausted when I haven't done anything in months and most of you are working and maintaining life. I feel so useless. Sorry to dump on your thread, Pincusion, just being honest. I hope you feeel stronger soon.
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Hi MisB, I am sorry that you are suffering both physically and emotionally. Please try to be kind and fair to yourself. Believe me that depression can be a a real bear if not managed correctly. You should probably throw some of these concerns at your GP and advocate strongly to them that you need some level of support to help you through this stage, please do not be so hard on yourself if you can avoid it, stressing about things that may be out of your hands can have a brutally painful effect on your gut. there are likely many people who are out of work due because of what these conditions do to our body, mind & spirit connection.

I know that stressing about things like being out of work caused my pain to manifest itself in a brutal manner. Be aware that the docs do not always recall that some of the side effects from the meds can worsen our condition.
for example i was put on buspar an anti-dep and one of the side effect is body aches. you may want to find an activity you enjoy and set aside some time where you engage in your activity (reading, listening to music, etc).

I have had a hell of a time with anxiety and depression as well as the common pain in the terminal ileum area. Please feel free to email or pm me if i can help you in any way as I am just now starting to climb back up the proverbial mountain as i fell pretty hard. I have had many many test and remain undiagnosed after a year and a half of this nonsense.

I would also suggest that you reach out to family & friends for support and opportunities to keep your mind busy.

I hope you are feeling much better soon.

Jerman
 
Pincushion said:
exhausted beyond words :(

too tired to even go into the why's just thought I might find solace here
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not sleepy you mean, just tired? tired of life.

been there for sure. for a very long time i cried tears of exhaustion. someone would ask whats wrong and it was always "im so tired".
but its the kind of tired that no amount of sleep in the world can fix, sleep just makes you more able to deal with the tiredness LOL what a sentence this is....

little moments come along where you feel like itll be ok though, that one day you wont be tired. revel in those moments.

i hope you get some good sleep tonight :)
 
totally tired and exhausted too...but don't sleep well and can't seem to fall asleep easily - doesn't make sense really does it!! Having trouble keeping my eyes open now, but just can't turn off and sleep...which is why I'm here reading this forum...

But I need to try to go to sleep now as I have to get up for work tomorrow...

Night all :eek2:
 
I've been feeling pretty exhausted myself the past couple days. But we've had family visit two weeks in a row now and have been tromping all over the city in the blazng heat. So, I'm hoping it's just been a busy couple weeks and not the meds finally sucking the energy out of me.

Today I took a 3 hour nap with my husband! Haha...and he doesn't even have Crohn's! ;)
 
Kello, you got it in one :hug:

Thanks all for your support :hug: it still blows me away how a group of individuals from across the world can come together and support and care for other people they don't even know. It feels safe here :wub:

I often feel inadequate in responding to your stories as although I have had Crohn's for 10 years, I am still learning about what the disease means for other people. We are all so individual. I feel my hugs are not enough when what is really needed is advice and information. I promise you, it is not for want of trying to find the right words :hug:
 

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