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I need to have a real rant today I'm afraid :ymad: For 18 months I have been being treated for severe crohns after 4 years of nothing happening despite the problems I have been having. I thought I was finally getting the treatment I needed and things seemed to be moving along wonderfully. I...

I was 23 and had been ill for months but my doctor kept telling me it was just IBS. Even though I was getting weaker and paler every week I kept going back and one day I saw a young trainee GP. He took one look at me and sent me straight to hospital where I stayed for over a week and...

Oh my, your daughter is so beautiful. My heart goes out to any child that has to deal with such a horrific illness. I'm sure I speak for most people when I say this is hard enough to cope with as an adult. I wish you all the love and luck in the world xxxxxxxxxxxxxxxxxxx

I would love if anyone had any information or could share your experiences with me. I have been flaring badly for the last month and after speaking to my consultant on Friday, and having a colonoscopy yesterday I've been told that surgery is probably the next thing for me. I have been on...

A good thing that used to work for me was to have peppermint tea in the mornings and afternoons. Its nothing amazing but I found it to ease the cramps I used to get and they were that bad some days they used to make me almost scream out loud and cry!

Thank you so much. It's just very shocking this first time. It's scary to not be in control of my own functions!

I have been really struggling with the crohns since 26 December and have been bleeding heavily every day every time I go to the toilet. I have such urgency but tonight I have reached an all time low. I was sat watching TV and could feel I had to go to the toilet, but as usual, I couldnt move...

I just want to have a general moan with people who understand what I'm going through! Ive been on the humira injections for a good few months and my dietician put me on an exclusion diet to start out eating very plain, very restricted things and slowly reintroduce foods to see what causes me...

I have to make my daughters dinner because my husband doesnt get home til near her bedtime, but she doesnt eat in front of me to make me feel bad, she's only 2 and just needs to be fed! My husband on the other hand knows the score but doesnt really do much about it. I'm kind of used to it with...

I am 5'8" and I weigh A LOT! I have always been a bit overweight but since I was diagnosed and was started on the pred I put on about 55 pounds and I havent been able to lose it since. I have tried so many different things and even weight watchers but I just cannot get this weight off. I do...

Thank you so much for your advice. I've realised Ive been going for a while now and I'm managing slowly so I'm getting there. The worst thing for me is that I have to cook for my daughter when she gets home from nursery because my husband isnt back from work until nearer her bedtime. I make...

Well when they started it off I had iron started for 15 minutes, then I had saline for an hour And then they carried on with the iron but it was on a very slow drip thing. I was really surprised by the length of time it took too but as long as its going To do me some good ill try most things.

Thank you for your replies everyone! I had no idea that this was something you had to have several of I genuinely thought it was just a one off thing! I dont really mind, its not something that was unpleasant but I'm glad I had my kindle with me that day or it would have been veeeeerrrrryyy...

I had my first iron infusion on Friday and I wondered if anyone else had had one and how long it took for them to notice a difference? I was really surprised at how long it took (5 hours) but I was hoping I might have started to feel a little better already.

I never experienced any sort of infection like that and I was on the pred for about 6 months or so. The main side effects for me were the joint pain, puffy face and definite weight gain because of the incredible appetite. I still havent got the weight off and that was over 4 years ago. I know...

Apparently you can't have anything at all only that and clear liquids so I've been told water and lemonade. It's really boring and I just find it hard because I love my food! I don't know why soup is a no go but my dietician says that's the rules!

Its a meal replacement drink you make up with powder and water but it contains an anti inflammatory to try and reduce the swelling in the bowel. You can't eat any food at all and at first it's really hard!

I on day 4 of the Modulen and I'm just so constantly hungry :( I'm sorry to have a moan but my husband doesnt understand, seeing as how he's just had something to eat! I would do anything for even just a piece of toast right now! Blimey, this thing is mentally as well as physically tough.

The one thing this stupid disease has made me realise is that it takes a LOT to make me embarrassed these days! Ill quite happily talk toilet habits and the like and I wont even bat an eyelid! :)

Oh you poor thing you sound like you're having an absolute nightmare. I cant imagine being anywhere but my own bedroom when I'm feeling really bad and I'm sure the stress of the situation is making things worse for you. The only thing I can suggest is to just take things as easy and you can...