- Joined
- Aug 9, 2009
- Messages
- 153
Hey guys.
I'm 3 weeks from having a proctocolectomy and ileostomy and had to go off my humira for the op. So for some reason this time seemed like a good time to go on holiday to get away from everything? Mum has taken me to Vancouver and at first it was awesome, my crohns not too bad, but after a few days I just got sooooo bad, weak, in pain all the tme and teeeerible diareaha. We really should have thought thru this holiday as i am just bedridden i cant even go out (except for dinner - where i nibble a bit of bread and feel like im going to die.). I don't know why I thought I would be fine on holiday I find it hard going out for an hour at home ! Mum and my sister and I got very emotional last night, it's really taking a toll on them and mum is so worried and feels useless... And my sister feels bad and she has always felt left out as I get all the attention anyway I don't know what I am trying to say. I just feel so pissed off and annoyed with myself at the moment. I wanted to see stuff and go sightseeing and shopping but I am some bloody invalid who is a burden on everyone around me. I hate it.
I haven't been able to eat and started on ensure yesterday. It kinda helped but man I am feeling so hungry. I have been craving a hotdog or a nice sausage and bread. Does anyone have any food that doesn't hurt them when your crohns is super mega bad? Rice seems to be the only thing at the mo... Or lollies (but I am just feeling like salt..).
Anyway I go home on the 4th which isn't toooooo long... I just bloody miss my boyfriend and want cuddles.
Oh also... Odd question, but I keep having this horrible feeling... On my V... That is like a long paper cut. I've had it for ages on and off and the dr thinks it may be humira side effect , but I've been off it for about a month. (was on it weekly).:yrolleyes:
Anyway sorry this was probably just a jumble of words. I'm so knackered lol.
Thanks
I'm 3 weeks from having a proctocolectomy and ileostomy and had to go off my humira for the op. So for some reason this time seemed like a good time to go on holiday to get away from everything? Mum has taken me to Vancouver and at first it was awesome, my crohns not too bad, but after a few days I just got sooooo bad, weak, in pain all the tme and teeeerible diareaha. We really should have thought thru this holiday as i am just bedridden i cant even go out (except for dinner - where i nibble a bit of bread and feel like im going to die.). I don't know why I thought I would be fine on holiday I find it hard going out for an hour at home ! Mum and my sister and I got very emotional last night, it's really taking a toll on them and mum is so worried and feels useless... And my sister feels bad and she has always felt left out as I get all the attention anyway I don't know what I am trying to say. I just feel so pissed off and annoyed with myself at the moment. I wanted to see stuff and go sightseeing and shopping but I am some bloody invalid who is a burden on everyone around me. I hate it.
I haven't been able to eat and started on ensure yesterday. It kinda helped but man I am feeling so hungry. I have been craving a hotdog or a nice sausage and bread. Does anyone have any food that doesn't hurt them when your crohns is super mega bad? Rice seems to be the only thing at the mo... Or lollies (but I am just feeling like salt..).
Anyway I go home on the 4th which isn't toooooo long... I just bloody miss my boyfriend and want cuddles.
Oh also... Odd question, but I keep having this horrible feeling... On my V... That is like a long paper cut. I've had it for ages on and off and the dr thinks it may be humira side effect , but I've been off it for about a month. (was on it weekly).:yrolleyes:
Anyway sorry this was probably just a jumble of words. I'm so knackered lol.
Thanks