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Crohn's Disease Forum

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  1. valleysangel92

    Finally diagnosed with arthritis

    Hi guys, Some of you might remember me posting a while back about some persistent problems with my Joints. I have had pain in my joints as far back as I can remember, it started when I was at least 12 years old. My main points of pain are my shoulders, my back, my hips and my knees and I...
  2. valleysangel92

    Entyvio (Vedolizumab) Support Group

    Vedo is generally best for people with inflammation in the colon, which is why it works better in people with UC than it does with Crohn's patients. I think because of the mechanism of the drug, it's better for surface inflammation because it heals faster but as far as I'm aware it has been...
  3. valleysangel92

    Entyvio (Vedolizumab) Support Group

    Unfortunately no treatment works for everyone. For some people, the inflammation is just too severe for the medications to change things enough to avoid surgery or to gain complete remission. Vedo only seems to work on a very specific part of the gut, so for people with Crohns disease, it may be...
  4. valleysangel92

    HELP 17 year old son diagnosed with UC

    Hello, welcome to the forum Personally I have Crohn's not UC so my situation is slightly different but during my early diagnosis vomiting was a big problem for me, and even now nausea is a common occurrence. I have heard of some UC patients having issues with vomiting and nausea, but I think...
  5. valleysangel92

    How long before improvement with prednisone?

    Hi there Unfortunately there is no exact time frame, for some people, the improvement is almost immediate (within a day or two) for others its a couple of weeks, it really depends on how much inflammation you have and how well you respond to the steroids. For most people they notice a...
  6. valleysangel92

    Almost 30 years since Crohn's Diagnosis and no symptoms!

    Hi, welcome to the forum It is unusual but not unheard of to have periods of remission that are as long as yours has been. Fruit in general contains high amounts of fibre, and this can cause symptoms to increase in IBD, particularly if there is a narrowing somewhere in the gut which can be...
  7. valleysangel92

    I've just been diagnosed and need advice

    Hello and welcome to the forum I notice that you say you have Crohns disease and UC, but I wonder if you mean you have Crohns Colitis? It is quite common that people get mixed up and think they have both Crohns and UK when in reality what they mean is they have Crohns in the colon. Colitis is...
  8. valleysangel92

    Well, is this it?

    Hello and welcome to the forum, I'm sorry you're feeling unwell but I'm glad you've found us Your symptoms fit a number of different things, and IBD is among them, so I would say its definitely worth going to your doctor and asking about some testing to see whats going on and to see if there...
  9. valleysangel92

    Newby needing advice please

    Hello, welcome to the forum, my you have a lot on your shoulders, I'm so glad you've found us. Looking at what you've said, it is possible that you have an IBD like Crohns or UC, as generally a calprotectin score of that level is indicative of active inflammation, and therefore would mean IBS...
  10. valleysangel92

    Hello! I'm new to this whole thing.

    Hello, welcome to the forum I was diagnosed with Coeliac disease when I was 14, and started getting Crohns symptoms when I was 15 although I wasn't diagnosed until I was 19. I understand that it's hard trying to talk to people in school about these things, I had such a difficult time...
  11. valleysangel92

    How did you regain strength after a bad flare?

    Hey there, I think for me, I've learnt to rest. I used to have a really bad habit of going really over the top whenever I had a good day, I'd over work myself and then end up exhausted and back in a flare. The trick is to ease back into life, listen to your body and try to eat well if you can...
  12. valleysangel92

    Entocort/Budesonide Oral Suspension Question

    Of course not, you can ask me anything you like, you're welcome to send me a private message if you'd prefer :)
  13. valleysangel92

    Left rib?

    It could be any number of things, it could be related to your stomach (as in the organ), it could be that you've got something going on in your spleen, it could be you've got some inflammation in the upper part of your intestine or it could be referred pain from your pancreas. If it's persistent...
  14. valleysangel92

    Entocort/Budesonide Oral Suspension Question

    Hey, I've used entocort/budesonide on a few occasions for small bowel Crohns disease. I have found it really effective on each occasion and have taken it for about 6-12 months at a time depending on how bad things were. I should say that common practice is to use it for less than that, but we...
  15. valleysangel92

    Past failed preps ..one is coming ..scared

    I agree with the above, i think you need to speak to your doctors and get a clearer set of instructions, I really don't imagine that they want you to fast for 2 weeks, I think its more a case of softening up your stool and making sure there's as much cleared as possible before the scope so that...
  16. valleysangel92

    Small bowel MRI scan - glucose and water drink? + Positive stories please :)

    Hi sunflower Welcome to the forum, I'm glad you've found us and really hope you're finding it useful so far. I think the MRI contrast drinks vary depending on the country and the hospital, in my hospital, they use a bowel prep drink similar to the ones used in colonoscopies, so a lot of...
  17. valleysangel92

    Happy News

    Thankyou so much guys. The support all of you have given me since I joined the forum has really meant a lot to both of us and it makes me so happy to be able to share this with you all. <3
  18. valleysangel92

    Happy News

    Hi everyone, we all know how this disease can really impact every part of our lives and even destroy families and relationships, so I just wanted to share some good news with you all.... My lovely partner Gareth and I have been together through some really tough times, most of the hardest...
  19. valleysangel92

    New here from GA

    Hello, welcome to the forum! I'm sorry you've been diagnosed, but I'm glad you found us, I know joining a forum like this can be daunting and I understand that it feels scary as it means admitting you have an illness, but I think you've done the right thing. We are all in the same boat here...
  20. valleysangel92

    New here from GA

    Hello, welcome to the forum! I'm sorry you've been diagnosed, but I'm glad you found us, I know joining a forum like this can be daunting and I understand that it feels daunting as it means admitting you have an illness, but I think you've done the right thing. We are all in the same boat...
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