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Thanks my little penguin.

I recently got on infliximab and have had my 2nd infusion 2 weeks ago. I noticed that I am fairly exhausted/fatigue every day (more so than when I was in a flare) to the point where I am just tired despite sleeping 10-12 hours a day. Is this normal? Had anyone experienced this while on...

thank you. As i was not getting any stains on my gauze, I told my GI that the fistulae seem to have healed and wouldn't have another appointment for 4 weeks. I only realised it after stopping using the gauze pads that I was having transparent leakages.

Back in 2017, I ended up with 3 abscesses over the course of 7 months which turned into fistulae. Since then, I have been on prednisone and azathioprine while my fistula kept oozing green/yellow liquid with fevers after bowel movement. After a lot of going back-and-forth with CRS and GI...

May I ask why it had to be stopped? Was it due to side effects? To be honest, I was happy when I was informed it was approved and funded by the government after waiting nearly 3 years. But, then the paranoia came back? When I started Azathioprine, I was extremely worried. (touchwood) It's been...

Sorry, I missed this comment. I've finally got approved for Remicade after 3 years with my GI. Been living with fistulas for 3 years... how time flies! Going to go in with my CRS to see if I would need a draining seton placed (I would prefer not to) and eventually starting Remicade afterwards...

Hello. I like to check if you might have had any progress in your fistula? Thanks in advance

Hi everyone, I like to ask a quick question regarding fistulae. My results came back that I have a fistula with no internal opening. What does this mean because I am confused as to why the fistula is leaking if there is no internal opening. Thank you in advance.

Hi @Lisa. Sorry, didn't see this earlier. I have decided to go the biologics route and will be meeting with my GI in 2 weeks. All 3 fistulas still leak green liquid after 2 years. I hope to have the ordeal behind me once i start on remicade. Did your fistulas ever come back or did it fully...

How would you feel if you were perfectly healthy and your spouse only revealed this issue after marriage? Might help with my thought process. Thanks!!

This is where I am at right now. It might either be an arranged marriage or not. Depends on a variety of things, but if it is arranged, I would not be comfortable at all to disclose this.

I like to get some advise from this community on arranged marriages. If I were to not disclose that I have Crohn's and fistulas prior to marriage, would you consider as a betrayal of trust? I am discreet about my medical conditions that only my immediate family members know and am extremely...

Did you have any other treatment prior to Remicade? The surgeons here in my country wouldn't operate on it at all. Seen many surgeons who says if it isn't causing any serious issues, there's nothing to do.

I am celebrating my 2nd anniversary since I first developed my fistula. Got 2 more, totaling 3 fistulas. No signs of progress. Wondering if anybody out there suffered from this for this long and what was your road to recovery? Completely worn out mentally

So I would like to ask regarding body development for teenagers who suffer from Crohn's. I was diagnosed with Crohn's at 16 and am 23 now. I am a male and I happen to stand 5'7", just as tall as my mom and much shorter than my dad. I know this won't change anymore but I believe bad nutrition...

Just an update. Turns out I have a abscess and was prescribed some antibiotics. The abscess has shrunk and pain is completely gone. It is looking positive now and hoping for no I&D.

I don't have any obstruction. May I know what you mean by location of disease? I know my ileum is narrow than an average person (found during a colonoscopy as the tube couldn't get through).

Thanks for this. I am a bit less concerned about the pain now. Hopefully, its just hemorrhoids. I will be seeing my GI tmr. Wishing it isn't an abscess since I don't have fever but my gut is telling me it is an abscess.

I have been constipated for the last 2 months, going once a week. I have talked to my GI about this but he is hesitant to offer any form of laxatives so I tried OTC ones twice. Cramps were painful so I stopped. So now, I put in quite a bit of effort trying to have bowel movement. Last weekend...

I've just recently tapered off prednisolone 10mg for 1 month. I noticed my vision is worse compared to how it was before. I just realised everytime I am on a steroid period, my vision tends to get really bad and as I taper off steroid, the vision gets better but not as good as it was before...