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Crohn's Disease Forum

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  1. W

    What type of sugar can you eat?

    I have reached a "painful" reality that food that has a high sugar amount gives me bad gas and the big D! If I make something with honey I do much better. What type of sugar can you tolerate & do you have a link to any recipes? Thanks, Woops!
  2. W

    GI wants me to back to humira-anyone else done this?

    Didn't know I could check antibodies. I used Humira for about 2 years then flaired. At that time my GI changed me to methotrexate. I have been on it now almost 3 years and doing well. My GI doesn't want me to stay on it due to the side effects. He wants me to go back to Humira or to try Cimzia...
  3. W

    Remisson depression

    Crohns can control ur life even in remission. U still have to give thought to what u do. "If I eat popcorn... Might end up in hospital...so will pass" things like that. U always have to be aware even when feeling good. Who is your support ppl? Do u have some close friend or family who know u...
  4. W

    GI wants me to back to humira-anyone else done this?

    I used Humira for about 2 years. It was successful but after 2 years I flaired. Went to methotrexate, but now GI wants me to go back to Humira (long term side effects, & he worries I may want to get pregnant .... The list goes on..) Has anyone else done this twice? Just a wee bit worried that...
  5. W

    Bathroom Card

    I have not had a card, but what works for me is something like this... I have a medical condition and I need to use your bathroom .... No we don't have one for customers.... Ok, where are your cleaning supplies, because I'm going now and can't help it, you don't want that smell in your business...
  6. W

    Healthcare Workers with Crohn's/IBD Support Group

    I work 12's in a busy ER. I do like it, but sometimes the stress is just not good. The good thing is I don't have to give any explanations about crohns. The bad thing is, I always need to go to the bathroom at the worst times..... Thinking about changing, and have been looking at case...
  7. W

    If I don't laugh I'll cry!

    I posted a long time ago about the time I was swimming in the local pool and felt the awful cramp. The edge of the pool seemed to get further away, and I looked like a nut trying to swim and squish my butt cheeks together. Then when I got out of the pool the lifeguard blew his whistle and told...
  8. W

    Did I just poo myself at 31? *descriptive*

    This is one of the most frustrating things... I'm 36 years old and I crap my pants!!! Like other said, make yourself an emergency kit. I keep extra scrubs and undies in my locker at work. I keep clothes in my car and I have an old plastic bowel that I keep under the passenger seat, because...
  9. W

    What Career/Job Do You Have?

    I'm an ER nurse. I love nursing, but to be honest the ER is not really the best place for Crohns. It's kinda hard to look at the other nurses who are doing CPR and tell them I have to go to the bathroom! I plan to change to a different department eventually, way to high stress area, but I love it :(
  10. W

    New here. So glad I found this!

    Welcome to the forum. I think you will find some good advice here and people who really understand what you are going through. One of the great things about this forum is that everyone is very supportive and everyone understands that sometimes you just need to rant to people who truly know what...
  11. W

    Does any of you get Sciatica with Crohn's?

    Hummm now that you have said this, got me wondering too.... never thought they were related....
  12. W

    Fear of needles-endoscopy

    Here are my suggestions, I am a nurse so you can ask for these and hopefully your GI office can do them. 1) Ask for them to put a numbing patch on your arm where they think they may start your IV. (ask for this to be ready to go a few days before you go in, don't do it when you get there as...
  13. W

    (How) do you get used to this feeling?

    This is a hard question to answer. I think everyone deals with issues a little differently, so I can only give you my take. There may be others here who will have a better response for you. I have learned over the past 20 years or so, that I just need to let it go, laugh when I can, and just be...
  14. W

    Vit D question

    The NP has told me that the sun would not cause the level to elevate. I have done some 'Google' research on this and found this also, but it all points to taking too much Vit D supplement or eating too much Vit D food. I don't eat dairy ( I live on carbs), and don't take any supplements. Normal...
  15. W

    Just join My story

    Hi David, welcome to the forum. I took Humira for about a year. It worked so so, but that's still a year of feeling ok.. I didn't have any bad reactions or issues with Humira. Have you tried reading though the medication threads? Sometimes if you look back at what other have said you might...
  16. W

    Vit D question

    also.... anyone got any suggestions for insomnia that don't involve taking sleeping pills? Pretty open to any suggestions.... have tried sleep hygiene, herbal teas, yoga, exercise...
  17. W

    Vit D question

    Looking for any ideas here....... My recent lab work shows my Vit D to be very high. I don't take any supplements, and I don't eat dairy. Sun can not cause this, so any suggestions? My NP said she would look into this, but at this point we don't know why. Meds are - Methotrexate, Pentasa...
  18. W

    I have to try to laugh sometimes....(funny)

    Ok so here is my funny.. Was babysitting at the last min to help a friend of a friend with a family emergency. The child is special needs and does not walk. Ok so I end up clogging up the toilet in this very nice expensive home and since I am not very familiar with the family I have no idea...
  19. W

    Flares suck

    I'm sorry you are not feeling good. Your comment about baby food kinda hits home with me... Im 35 no kids, but I have a few jars in the kitchen!!! its always funny when friends come over and they go to grab a snack. I love to ask them... "you want carrots, or chicken and rice?" lol
  20. W

    The Miserable Prednisonites Club

    I have had CD for 17+yrs and have been on and off pred at times. Lately I have been having a flair and my GI gave me pred. Well!!!!! Last night I was up at 2am mopping the kitchen floor. I did get into bed, but I honestly can't tell you that I slept more than an hr. Yesterday I burnt the edges...
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