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Crohn's Disease Forum

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  1. J

    Crohns question

    Hey everyone, I had to be brought to the ER yesterday by ambulance because my stomach started to swell bad and that set my anxiety thru the roof. My heart was like beating out of my chest, my arm to my fingertips go numb, I started to hyperventilating. My blood pressure and pulse rate were...
  2. J

    Is anyone on suboxone for pain control due to their crohns?

    Hello again, I have recently been taking suboxone for my pain control since after 15 surgeries since 2005 I got addicted to percocet they were prescribing me for such a long time. Taking the suboxone has given me the ability to actually live a somewhat normal life with less pain. My question is...
  3. J

    Rectum removal causing a male to become unable to have kids

    Hello everyone, Wow it's been over 4 yrs since my last login! I hope everyone is doing good. Has anybody heard or experienced not able to be able to have children after having their rectum removed? My fiance had read it somewhere on Google and we have been trying for a few months now to have a...
  4. J

    How to control gas output from stoma

    hello everyone its been awhile since i last posted anything but i need some help with a question i have. I have had my ilestomy for 5yrs now, i have always had a problem with the amount of times i need to empty my bag per day, which is somewhere around 20+ times on a good day!!!! but my...
  5. J

    HELP!....I can't LOSE weight~

    well you cant lose weight!! im sure most of us cant stop losing weight and hate it! have you tried taking the weight loss pills from GNC? i forget the name of the pills but i know they work really well and really quick! im sure if you call GNC they will beable to give you the name of what they...
  6. J

    Methotrexate

    i was on methotrexate for a few months, i wish my doctors had put me on it sooner because it worked very well for me! i was also on humeria at the same time and with both of them i went from feeling like trash to actually able to work and feel normal!
  7. J

    Puberty and Crohn's-Need Help!!!

    i was 9 when diagnosed and i dont think i had hair til i was 18, im 27 and i only shave 1 time every 2 weeks.. i was told that because of being on prednosone i was 2 years behind in growth
  8. J

    Surgeon Appt. today. I am Angry!

    wow, that truely sucks and im sure we have all gone thru something just like it so atleast i know how you feel! where are your doctors? if you ever need anything just let me/us know!! AIM s/n: jhoye23
  9. J

    Gaining Weight......

    I am sure that like myself everyone here has seen 1 or more dietitians since being diagnosed. And like myself I am sure that nothing has truly helped you gain weight! Theres websites everywhere on how to lose weight but can someone please tell me why there really isnt a site that can help us...
  10. J

    Surgical scars

    scars after my first 2 surgerys i could live with my scars, but after my emergency surgery i hate what my stomach looks like.. My scar is 4-5 inches wide and 7-8 inches long. My belly button is setoff to the right by 2inches. even if i didnt have a colostomy bag i wouldnt take my shirt off...
  11. J

    Been awhile

    Hello everyone, its been a longtime since I last posted a message so ill let everyone know whats been going on.... Iam now going on surgery #6 since September '05.. Past surgery's consist of: colon removal and bag placement, bag take down, emergency perf of intestine and bag placement, surg. to...
  12. J

    Remicade Can It Be Restarted

    i was on it for 2 yrs, then had to stop cause i lost health ins. when i went to start up again it didnt work because of my body creating antibodys...
  13. J

    Feeling very depressed Got the word last tuesday about reconnection

    Still feeling very upset about the news about not being able to be reconnected... everyone in my close circle of friends have been very supportive and helpfull, but even that hasnt snapped me out of it.. everyone makes sure that im not alone because they dont wanna give me the time to let my...
  14. J

    Feeling very depressed Got the word last tuesday about reconnection

    The call from the Surgen, the one i didnt want to recieve... .............. Well... After waiting all day, wondering what was going on, i recived the call from my surgen..... I shouldnt have been so shocked at what he had to say, just because i know that i dont have the ability to get good news...
  15. J

    G I Visit Yesterday!!

    ive had crohns from the age of 9, im 25 now. since sept of 05 ive had 3 sugerys, 2 planned and 1 that wasnt planned!! 2 bags and now setting another date to remove for a 2nd time!
  16. J

    G I Visit Yesterday!!

    well i went to see my g.i yesterday to see about reconnection, right when i walked in he said that he didnt reconise me cause i finally look normal/great!! he game me the old one finger treatment that all of us love so much..lol he said that he was very happy with the way the muscles reacted, he...
  17. J

    Were you diagnosed right first time?

    i was told i had a blockage,lol a 6 month blockage..
  18. J

    Gaining weight with Crohn's Disease

    hey everyone, i know its been alongtime since ive last posted, but i need some help! the GI had told me to go for another colonoscopy(even tho i dont have a colon!lol) and a scope in the bag.. that was 2months or more ago.. iam gaining weight like crazy and i love it!! i was 150 lastweek now im...
  19. J

    Approved for disability. Finally :)

    do to you medical illness, your landlord CANNOT evict you!! i went thru it all while waiting for SSI! you'll smile even more when you get your retro check! they sent me over 10,000 last year! the money monthly isnt even enough to survive on, so be ready cause it takes a toll on you! i get paid...
  20. J

    Talked to my GI today!

    hey everyone, i got a call from my GI today (first time i have talked to him since my surgery in feb) he asked how i was feeling, and all of the usual questions aswell, to my suprise he said to me he wants to actively pursue trying to reconnect me! i was told after my last sugery that my bag was...
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