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  1. Kancer

    Exhaustion fron Infliximab?

    Thanks my little penguin.
  2. Kancer

    Exhaustion fron Infliximab?

    I recently got on infliximab and have had my 2nd infusion 2 weeks ago. I noticed that I am fairly exhausted/fatigue every day (more so than when I was in a flare) to the point where I am just tired despite sleeping 10-12 hours a day. Is this normal? Had anyone experienced this while on...
  3. Kancer

    Success Story yet?

    thank you. As i was not getting any stains on my gauze, I told my GI that the fistulae seem to have healed and wouldn't have another appointment for 4 weeks. I only realised it after stopping using the gauze pads that I was having transparent leakages.
  4. Kancer

    Success Story yet?

    Back in 2017, I ended up with 3 abscesses over the course of 7 months which turned into fistulae. Since then, I have been on prednisone and azathioprine while my fistula kept oozing green/yellow liquid with fevers after bowel movement. After a lot of going back-and-forth with CRS and GI...
  5. Kancer

    Is my strategy right with Remicade?

    May I ask why it had to be stopped? Was it due to side effects? To be honest, I was happy when I was informed it was approved and funded by the government after waiting nearly 3 years. But, then the paranoia came back? When I started Azathioprine, I was extremely worried. (touchwood) It's been...
  6. Kancer

    Is my strategy right with Remicade?

    Sorry, I missed this comment. I've finally got approved for Remicade after 3 years with my GI. Been living with fistulas for 3 years... how time flies! Going to go in with my CRS to see if I would need a draining seton placed (I would prefer not to) and eventually starting Remicade afterwards...
  7. Kancer

    Fistula healing after using Remicade?

    Hello. I like to check if you might have had any progress in your fistula? Thanks in advance
  8. Kancer

    What does this mean?

    Hi everyone, I like to ask a quick question regarding fistulae. My results came back that I have a fistula with no internal opening. What does this mean because I am confused as to why the fistula is leaking if there is no internal opening. Thank you in advance.
  9. Kancer

    How long have you had your fistula

    Hi @Lisa. Sorry, didn't see this earlier. I have decided to go the biologics route and will be meeting with my GI in 2 weeks. All 3 fistulas still leak green liquid after 2 years. I hope to have the ordeal behind me once i start on remicade. Did your fistulas ever come back or did it fully...
  10. Kancer

    Marriage and Crohns

    How would you feel if you were perfectly healthy and your spouse only revealed this issue after marriage? Might help with my thought process. Thanks!!
  11. Kancer

    Marriage and Crohns

    This is where I am at right now. It might either be an arranged marriage or not. Depends on a variety of things, but if it is arranged, I would not be comfortable at all to disclose this.
  12. Kancer

    Marriage and Crohns

    I like to get some advise from this community on arranged marriages. If I were to not disclose that I have Crohn's and fistulas prior to marriage, would you consider as a betrayal of trust? I am discreet about my medical conditions that only my immediate family members know and am extremely...
  13. Kancer

    How long have you had your fistula

    I am celebrating my 2nd anniversary since I first developed my fistula. Got 2 more, totaling 3 fistulas. No signs of progress. Wondering if anybody out there suffered from this for this long and what was your road to recovery? Completely worn out mentally
  14. Kancer

    Crohn's and body development

    So I would like to ask regarding body development for teenagers who suffer from Crohn's. I was diagnosed with Crohn's at 16 and am 23 now. I am a male and I happen to stand 5'7", just as tall as my mom and much shorter than my dad. I know this won't change anymore but I believe bad nutrition...
  15. Kancer

    Constipated - Need help.. Abscess? Psyllium Husk

    I have been constipated for the last 2 months, going once a week. I have talked to my GI about this but he is hesitant to offer any form of laxatives so I tried OTC ones twice. Cramps were painful so I stopped. So now, I put in quite a bit of effort trying to have bowel movement. Last weekend...
  16. Kancer

    Shortsightedness/Myopia with Steroid

    I've just recently tapered off prednisolone 10mg for 1 month. I noticed my vision is worse compared to how it was before. I just realised everytime I am on a steroid period, my vision tends to get really bad and as I taper off steroid, the vision gets better but not as good as it was before...
  17. Kancer

    Career and relationship with Crohn's

    I have just started my work life recently and just wanted to know if people can share their experience in regards to managing Crohn's and still working? I am not sure what I can expect in the future since my symptoms randomly come and go. I wish I can mostly lead a normal life with this...
  18. Kancer

    Prednisone to heal fistula?

    Has anyone had any experience having a fistula heal with Prednisone and Azathioprine? My Gi said controlling the disease should allow fistula to heal on its own. The Surgeon is refusing to do any surgery due to the recurrence and my Gi refuses to put me on Remicade until I have exhausted other...
  19. Kancer

    Enlarging Stomach

    I have been suffering from a lot of Crohn's condition for the last few years that they have become a norm for me on a day to day basis. Thanks for Azathioprine, most of my symptoms have cleared up except 1 major issue...Bloating. I notice my bloating is usually a result of gas. In specific, if...
  20. Kancer

    How to differentiate fever caused by Crohns to others?

    To all the people suffering from crohns, I would like to know how you differentiate a fever between a Crohns Flare and other infections? I am on azathioprine and was having slightly elevated temperature of 99.7D for a few days. Today, my temperature hit 101.5F after I came back home from...
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