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Oh ok cool you have a great doctor now. Yeah her kids are all transferring to another doctor also at Duke. She just left this week so we are waiting to get our appts set up. We just saw her last week to say goodbye so the next follow-up will be in March.

Did you get a chance to see Dr. McGreal? She recently left to start her own so all her kids are moved to a different doctor. Not sure if you got to see her but let me know if you want to see our new doctor.

Another piece of data to add: a reputable researcher was on Remicade and MTX for 10 years. She didn't stop the combo treatment even though her care team repeatedly asked her to scale back due to the excessive immunity suppression. After all, this disease, its treatment... had become a...

Ideas come up at different times... you think by now one of the big ideas would have come to fruition 🤠

My son had elevated calpro and a normal CT as well. These tests definitely can present a contradicting picture. As long as other biomarkers and the symptom (weight loss) support the elevated calpro, I tend to ignore and not bother with the innocent test results. I hope your second opinion in...

We really just need a novel idea, just one, to be carried through completion.

Tweetorial in more detail from Lee: https://x.com/Dr_James_Lee/status/1799040690225344645

Summary: In a scientific breakthrough, researchers have revealed the biological mechanisms by which a family of proteins known as histone deacetylases (HDACs) activate immune system cells linked to inflammatory bowel disease (IBD) and other inflammatory diseases...

I find kiwi and magnesium supplement helpful for my son.

MD feels like a fine, well-balance diet choice for someone who has a healthy gut. For someone with Crohn's... all bets are off, especially when inflammation is raging. 🔥

This company sells saliva test kits to test oral microbiome https://www.bristlehealth.com

How many people have Crohn's in your family?? 😳

I thought "vacation override" would get you 3-6 months supply. This is interesting.

No problem! I wanted to quickly reply because I didn't want you to think that 200 is some sort of point of no return. My son also was not on any medication for a while and we did calpro every month to monitor. I can totally feel his resentment - this disease is like an invisible weightless...

I just want to quickly chime in here. 200 is an increase from 119 but it is not a trigger for a scope. If you want to use a hard number, calpro 250 is the cut-off that I hear the most. Anything below 250, in my personal experience with many doctors, they don't think too much of it let alone...

This brand makes iron supplements in the liquid form. There are a few variations that they sell.

@Maya142 During your journey of studying various diets, have you investigated or encountered the role of histamine and its impact on inflammation?

Putting details aside, my son was on Humira for the simple reason of the convenience. As you already know by now, we embark on a trial-and-error journey in terms of treatment options when we are chosen by Crohn's. Humira and Remicade were both offered: Humira was going to be every 2 weeks...

Mt Sinai can now get Skyrizi approved with no problem from the insurance. Many of their peds on Stelara switched over. We were offered the option just last month but jointly decided to wait. @Pangolin

Is Stelara an option?