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  1. A

    sibo, sifo, candida, biofilms

    This company sells saliva test kits to test oral microbiome https://www.bristlehealth.com
  2. A

    Calprotectin elevated again

    How many people have Crohn's in your family?? 😳
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    hard time to get humira for 10 weeks ahead anyone

    I thought "vacation override" would get you 3-6 months supply. This is interesting.
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    Calprotectin elevated again

    No problem! I wanted to quickly reply because I didn't want you to think that 200 is some sort of point of no return. My son also was not on any medication for a while and we did calpro every month to monitor. I can totally feel his resentment - this disease is like an invisible weightless...
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    Calprotectin elevated again

    I just want to quickly chime in here. 200 is an increase from 119 but it is not a trigger for a scope. If you want to use a hard number, calpro 250 is the cut-off that I hear the most. Anything below 250, in my personal experience with many doctors, they don't think too much of it let alone...
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    Chronic Iron Deficiency Anaemia

    This brand makes iron supplements in the liquid form. There are a few variations that they sell.
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    Daily consumption of fruit/vegetables in OECD countries and crohn's disease prevalence.

    @Maya142 During your journey of studying various diets, have you investigated or encountered the role of histamine and its impact on inflammation?
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    Looking for advice

    Putting details aside, my son was on Humira for the simple reason of the convenience. As you already know by now, we embark on a trial-and-error journey in terms of treatment options when we are chosen by Crohn's. Humira and Remicade were both offered: Humira was going to be every 2 weeks...
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    Looking for advice

    Mt Sinai can now get Skyrizi approved with no problem from the insurance. Many of their peds on Stelara switched over. We were offered the option just last month but jointly decided to wait. @Pangolin
  10. A

    Looking for advice

    Is Stelara an option?
  11. A

    How quick stelara works?

    My son was seeing improvements in symptoms around week 3 after the initial infusion and his calpro was < 50 around week 3 too. He was on Humira prior to the switch. No mtx. I heard from quite a bit of people that Stelara can take a while. I hope it works for you soon!
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    Jaw swelling,

    Hey @Crohns dad, I am so sorry to see your post about another bad experience. :( I agree with "This IBD is so stressful." I hope you guys will have peace real soon. I left UNC and am now with an awesome pediatric doc at Duke. PM me if you would like to consider seeing her for a 2nd or 3rd...
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    Daily consumption of fruit/vegetables in OECD countries and crohn's disease prevalence.

    You are taking my words too literally. When I said "publish", I meant announce it to the world thru whatever medium that makes sense to him.
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    Daily consumption of fruit/vegetables in OECD countries and crohn's disease prevalence.

    You should publish. You will make a lot of money.
  15. A

    Lymphonodular hyperplasia

    Not symptoms but the actual plasia. I wonder if it goes away on its own.
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    Lymphonodular hyperplasia

    Does it ever go away if the trigger food is removed? My son has never had this in any of his reports before.
  17. A

    Lymphonodular hyperplasia

    Has anyone gotten "lymphonodular hyperplasia" noted in their child's pill cam report? My son's endoscopy and colonoscopy including biopsies came back normal just two months ago. This week's pill cam noted lymphonodular hyperplasia in the terminal ileum so it seems to me that he got it just from...
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    Omvoh (mirikizumab) (similar to Stelara) approved for UC but not for Crohns??

    When you said infections would be recurring, do you mean pneumonia caused by the cold?
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    Humira Fail What Next..

    Sorry to hear about the skin problem. It's very annoying when you put all hope into one medicine and it gives you something else to fix. My son got psoriasis while on Humira. His GI said that many peds have run into similar issues while on anti-tnf so her general practice is if the patient has a...
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    First JAK Inhibitor Approved by FDA for Treatment of Crohn's

    Patients in clinical trials go through much more thorough testing and receive dedicated and personalized support. Patients are seen way more often and get to talk about anything and everything that's happened to them since all symptoms (including psychological) need to be logged. They get...
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