Hi ,
My name is Ron. My family has a history of colon and digestive tract problems. My brother has been having colonoscopies and endoscopies for thirty years . His official dx is ulcerative colitis and proctitis. He is ok with it all and pred and sulphasalazine keep it in check. He is now 67.
I am 62 and did not have my first scope I was 48. It was too late for me .I was dxed with stage3c colon cancer into six lymph nodes.I had part of my transverse and descending colon removed followed by a year of chemotherapy. Unfortuntely one of the chemo agents was levamisole. It was banned for human use in the early 2ooo,s because of fatal side effects. I have stayed cancer free since. I have not had good health. I had acute pancreatitis,gall bladder removal,high cholesterol,muscle breakdown from statins,high blood pressure,severe psoriatic arthritis ,alkylysing spondolitis ,insulin resistence. and moderate to high protein-urea of the kidneys.
I have had three kidney biopsies but so far my nephrologist cannot give me a dx. He admits there is a problem but it does not conform to known kidney problems. It has been misdiagnosed twice ,once as minimal change disease and again as FSGS (scarring of the kidney filters) Unfortunately I was put on 75 mg a day of prednisone for eighteen months. it nearly killed me and has added type two diabetes to my list of ills. For the past seven years I have suffered from chronic diahorreah. Unfortunately it has been beieved to be a a result of drug interaction and the door has been closed on many options leaving only drugs like cyclosporin,cyclophosphomide ,imuran ect to be tried. I have neuropathy in both feet and legs as well as left hand.
When my gallbladder was removed I complained for years that I still had right flank pain and felt nausea not long after eating. None of my docs cared and thought I was just having a whinge. I am now convinced that I am one of the ten percent of people that do not benefit from gall bladder removal. It appears in our case when food hits the stomach the liver dumps bile. The result is constant trips too the loo soon after eating. When I had problems with statins for cholesterol I was put onto questran lite. I had major problems with it but I think it was technique rather than the questran. I have started to take it again ,I now mix it with my rolled oats of a morning and I think it is starting to help. If it works I may be able to go back on methotrexate which is the only drug so far that has helped my kidneys. I have to do something soon as my protein loss has reached over three grams a day and oedeema is getting bad . A recent chest scan was confirmed that I have pulmonary oedeema and early congestive heart failure. It is scary ,I wake at night unable to get oxygen.
Life goes on tho ,I am not considered eligible for a disability pension ,they say I am not sick. So I continue to work . Hugs to all Ron.
My name is Ron. My family has a history of colon and digestive tract problems. My brother has been having colonoscopies and endoscopies for thirty years . His official dx is ulcerative colitis and proctitis. He is ok with it all and pred and sulphasalazine keep it in check. He is now 67.
I am 62 and did not have my first scope I was 48. It was too late for me .I was dxed with stage3c colon cancer into six lymph nodes.I had part of my transverse and descending colon removed followed by a year of chemotherapy. Unfortuntely one of the chemo agents was levamisole. It was banned for human use in the early 2ooo,s because of fatal side effects. I have stayed cancer free since. I have not had good health. I had acute pancreatitis,gall bladder removal,high cholesterol,muscle breakdown from statins,high blood pressure,severe psoriatic arthritis ,alkylysing spondolitis ,insulin resistence. and moderate to high protein-urea of the kidneys.
I have had three kidney biopsies but so far my nephrologist cannot give me a dx. He admits there is a problem but it does not conform to known kidney problems. It has been misdiagnosed twice ,once as minimal change disease and again as FSGS (scarring of the kidney filters) Unfortunately I was put on 75 mg a day of prednisone for eighteen months. it nearly killed me and has added type two diabetes to my list of ills. For the past seven years I have suffered from chronic diahorreah. Unfortunately it has been beieved to be a a result of drug interaction and the door has been closed on many options leaving only drugs like cyclosporin,cyclophosphomide ,imuran ect to be tried. I have neuropathy in both feet and legs as well as left hand.
When my gallbladder was removed I complained for years that I still had right flank pain and felt nausea not long after eating. None of my docs cared and thought I was just having a whinge. I am now convinced that I am one of the ten percent of people that do not benefit from gall bladder removal. It appears in our case when food hits the stomach the liver dumps bile. The result is constant trips too the loo soon after eating. When I had problems with statins for cholesterol I was put onto questran lite. I had major problems with it but I think it was technique rather than the questran. I have started to take it again ,I now mix it with my rolled oats of a morning and I think it is starting to help. If it works I may be able to go back on methotrexate which is the only drug so far that has helped my kidneys. I have to do something soon as my protein loss has reached over three grams a day and oedeema is getting bad . A recent chest scan was confirmed that I have pulmonary oedeema and early congestive heart failure. It is scary ,I wake at night unable to get oxygen.
Life goes on tho ,I am not considered eligible for a disability pension ,they say I am not sick. So I continue to work . Hugs to all Ron.
