Crohns man dies through medical negligence

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I read this on their website earlier- so sad. Poor guy must have been in bleeding agony.
Scary how this disease continues to go undiagnosed...
 
The take-away from this, for me, is a reminder that it's always up to us to demand the care we feel we need. If you know something is wrong, do not let others tell you otherwise; the worst that can happen if you're wrong is better than the worst that can happen when they are.
 
This was exactly what happened to me, just substitute ulcers for a muscle pull. Fortunately I pressed the issue and they ended up figuring it out and doing surgery. Patients must be diligent and take control of their care if they dont feel they are getting what they need. We get lulled into a false sense of security because it was a "doctor" who told us what was wrong. They too are not infallible.
 
jesseiam2 said:
This was exactly what happened to me, just substitute ulcers for a muscle pull. Fortunately I pressed the issue and they ended up figuring it out and doing surgery. Patients must be diligent and take control of their care if they dont feel they are getting what they need. We get lulled into a false sense of security because it was a "doctor" who told us what was wrong. They too are not infallible.
Click to expand...

This is true. I suffered for months longer than I needed to (luckily it was not a medical emergency) because an ARNP thought I was having heartburn or gallbladder problems, despite being diagnosed with Crohn's! I kept saying, "Well, they know better than me..." Except they don't. Only you know your body and when something is seriously wrong.
 
I ended up losing over 100 pounds between the wrong diagnosis and the surgery (I had it to lose, lol). Had it gone much longer, there is little to no doubt it would have killed me. Please oh please, if you are reading this and are suffering, demand 2nd and 3rd opinions. Do not let months go by in pain and suffering needlessly. My misdiagnoses was from a Nurse Practitioner who thought they were qualified enough to handle my issue on their own. After a month of suffering, I demanded to see my doctor and have never gone back to that NP again. But even doctors can get it wrong. Dont delay and dont just accept it.
 
This is horrific and definitely makes me appreciate the doctor I have and confirms my belief in encouraging others to change their doctors if they are not listening to us and for us to demand attention when we need it. It is terrible that we need to demand it though. Lord knows we all pay enough when we visit the GP's. If anyone is undiagnosed and frustrated I would suggest printing the article and carrying it to the doctor if you think you have Crohns. Might make the Doctor sit up and listen a bit more.
 
Its an horrific story and unfortunatley something that is far to common in the uk with crohns disease. I remember going to my doctor whilst being very sick a week before being diagnosed and he told me i simply had oral thrush!.. thankfully it was nowhere near anything like this incident.

It really does put into question some doctors abilities. I really hate to say anything bad towards doctors but crohn's disease seems to be something that is becoming a lot more common and should be something that can be much easily diagnosed?..
 
Every red flag symptom I have reported:
Raised CRP every time for 5 years
Night attacks
Frequent mouth ulcers
Dark blood in stool, 1-3 times a week on average.

I am fobbed off every time by the Gastro department. Had all the tests except Pill Cam as the funding isn't there unless I meet one of 2 criteria. GI said to me "Go away, tell yourself Dr Idiot says all tests are normal,and you will be fine". 2/3 weeks later I had a severe attack that landed me in A&E, they gave me oral morphine within 20 mins pain was so bad and I hadn't even seen a Dr. By this time he had discharged me and written to GP saying IBS. Didn't tell me before or after.

Also 5 years ago after just a normal flexi-sig they said IBS- when I raised the issue of CRP "you probably have cystitis (guys- a lady KNOWS when she has that!). Look at the state I am in now, semi-housebound. I fully accept no-one could have forseen the state I would get into or how my symptoms would develop- but I could have had all these tests years ago when I was in much better physical shape, had they been through then.

Thankfully I have a great Rheumy who is trying to help and accepts I am very unwell. It may well turn out I don't have CD (which I feel can only be ruled out 100% with Pill Cam) but a bigger illness causing all my problems. But it is the same old story of not being listened to by Drs.

I have long been thinking, after some truly horiffic stories on here and my own experience, that there needs to be a clear set of world recognised IBD criteria- much like the Rome criteria for IBS (even that is overlooked). I'm going to do something about it too when I am better!
 
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Oh my heart breaks for him and his family! So unnecessary...what a shame. Unfortunately the only way doctors learn is by hitting them hard in the wallet.

Like StarGirrrrl, I presented with those symptoms for 10 years before getting the correct diagnosis, and was told I had everything from anorexia and hypochondia to TMJ and strep throat (when they saw the ulcerations in my mouth).

Crohn's really needs more awareness and advocacy, and doctors need to educate themselves on all forms of autoimmune illnesses so these ridiculous misdiagnoses stop.
 
Before I was diagnosed, I kept going in for bleeding and abdominal pain. The doctor kept telling me I had the flu. I told him that it wasn't fair to tell me that. People don't get the flu every few weeks. It has to be something else. He said, "life isn't fair, little girl".
Several months later I was in the hospital, very ill. He was no longer my doctor, but he walked in my room as the "rounds doctor" for the weekend.

I looked up and said, "Hmmmm. Doesn't look like the flu now, does it doc?"

He turned on his heel and left my room and didn't return all weekend. I had no doctor during that time, but I didn't care. I checked, and he didn't bill me either. I was going to refuse the bill and have the insurance company investigate if he did charge me.

I am fighting right now to find the answer to my back pain. I don't know why it is so hard to get doctors to help you when you don't fit into the perfect diagnostic criteria. I don't know how doctors can be so callous as to not help when you are obviously ill - or at least refer you elsewhere. I am so sad for him and his family. And it makes me angry all over again when I think about how he must have felt.
 
This whole thing makes me so angry. You read that poor mans story and it is so familiar - so many of us with misdiagnosis. It's like the sicker the are the harder it is to fight and you just accept whatever the doctor tells you.
 
Crohns misdiganosed

Reading about that poor guy those consultents misdiagnosed really shuck me up and made me realize how lucky I was. I was misdiagnosed in 2004 I was in terrible pain and went to my local gp he made out I had indegestion and gave me indegestion tablets for 3 weeks when in that time a abbcess was growing on my appendix through undiagnosed crohns.I went back to the gp after 3 weeks and it was then that he realized he had messed up.But that was only the beginning of the nightmare. My GP told me to go and sit in the waiting room as he was writing me a letter to take up to the hospital the queens medical centre in nottingham. The nightmare started when he put on the letter for the hospital provisional daignosos mass appendicitus the hospital to that as the gospal they gave me a urgent ultra sound xray and they told me that I had a abcess on my appendix and that they were keeping me in for a urgent operation to drain the abcess on my appendix. The letter from my gp completely fooled them they thought I had had appendercitus they were scratching their heads around my hospital bed taking blood samples etc but after 4 days they let me go home with the instructions that I should start going to the practise nurse the very next day to start packing the open wound where they had made the surgical wound to drain the abcess what a nightmare that turned out to be I was going to the practise nurse everyday for 3 months and they were coming to my flat at the weekends to pack the open wound which was in a right mess and would not heal my doctor sent me back to the hospital and I was misdiagnosed again as having a infection in the wound and I was perscribed ciprofloxin antibioctics the antibioctics did nothing and anouther 3 months went by of packing the open wound altogether a total of 6 months went by and the wound was in a right mess at this point I was in so much pain I went back to the hospital and the doctor who saw me was disgusted and ordered that I should have a urgent CT Scan and that's when they found crohns in my small bowel and the crohns had caused the abcess on my appendix I had to wait anouther 7 months for a operation to close a fistala and bowel resection but the crohns came back in the same place within 3 months of the operation I have been on methotrexate pentasa hook worm trial special diet at cambridge hospital and really nothing as worked I have just been on budonside 3mg for the last 3 years but they have softened my bone near my pelvis so I will be taken off them and go on to immune surrpresssants I have learned to dodge many foods as the years have gone on and that helps me a lot and I cope as crohns toughens you up I have been lucky as when I was misdiagnosed for so long my life was in danger I would not want that to happen to any other crohns sufferer chris
 
This really scares...like stargirrl, I am still undiagnosed, and I have been mistreated for my illness for 7 years now. My symptoms are very close to mountaingem's as well, as we have talked in the past.

Currently I am waiting on pill cam results, and since the doctor that did the procedure only did it because my previous GI made him, he is taking his sweet time to look at the pictures. Its been exactly a month since I had the test And I have lost a ton of weight while waiting...
 
Wow guys some of you have really suffered from stupid doctors. I really suggest reminding them of this poor family's plight and tell them you feel the same. The fright of this happening again might wake them up and even more so if they will be to blame. Keep fighting guys, we can do it!

Sunflower I love how you dealt with your Doc, Well bloody done!
 
After my horrible expeirances with doctors and consultants,I was in shock when that poor guy died I realized how lucky I had been. If the abcess had burst on my appendix I would have been in trouble.I am seeing my doctor on wedensday and will remind him and the consultants at the hospital that they have got to be more responsible to usd crohns patients chris
 
RIP

Some doctors can be so incompetent, he could have being easily treated with the right care, but was told it was nothing to worry about on both occasions.

So sad.
 
jesseiam2 said:
I ended up losing over 100 pounds between the wrong diagnosis and the surgery (I had it to lose, lol). Had it gone much longer, there is little to no doubt it would have killed me. Please oh please, if you are reading this and are suffering, demand 2nd and 3rd opinions. Do not let months go by in pain and suffering needlessly. My misdiagnoses was from a Nurse Practitioner who thought they were qualified enough to handle my issue on their own. After a month of suffering, I demanded to see my doctor and have never gone back to that NP again. But even doctors can get it wrong. Dont delay and dont just accept it.
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I too was misdiagnosed by a specailist nurse practitioner! despite my long history of severe and active but atypical disease (constipation), he ignored me! I was pregnant, bleeding heavily, unable to eat, losing weight and in horrendous amounts of pain. I had to beg my obstritcian to have his birth brought forward as the nurse was unwilling to support my 'claim' to illness. I had a massive rectal bleed after having my son (elective c section), and was ignored. I saw the nurse in clinic two weeks later who told me there was nothing wrong with me and to come back in four months. ten days later I was admitted emergency style with a CRP of 363, perforated bowel, in heart faliure and dying. Had to have life saving surgery and they found a fistula tracking towards my reproductive system, imagine what that could have done to my baby! :( My life will never be the same again, so please let this be a lesson to you all; Never, Never let the months go by, you know your body and if you are not happy with the medical opinion, please seek another!
 
Oh boy. How unbelieveably sad and maddening. I too almost died while waiting for proper treatment when I was first diagnosed. I actually was diagnosed the first day I went into the hospital back in 2007. They knew it was Crohns immediately. I was in such severe pain I couldn't walk. They tried treating me for 11 days with IV, steroids, morphone for the pain and gawd knows what else I don't remember much I was on such a high dose of pain killers. It was a Sunday morning about 4am when I felt the most excruciating pain in my tummy...looked at my mom and said "Mom something inside me just ripped." She alerted the nurses immediately and they called the on-call doctor. The one who had been taking care of me was away in a golf tournament that weekend. Well thank god for the new one, he came in, gave me a CT scan immediately and said "Why the F hasn't this girl gone in for surgery yet" his exact quote. My bowel had perforated and I was poisoned throughout. He gave my mom a 50% chance of me even surviving the surgery I was so sick. He also said had they waited another hour even, I would have died right there. Goes to show you, how flawed our health systems can really be. Left under the care of the wrong person can be a matter of life or death. If possible, have a patient advocate willing to fight to the death for you (my mom in my case) and never, ever, ever someone tell you you are fine when you know your body best.
 
Horrible!! I laid in my bed from March till Oct being told I had a hernia. Which indeed I do, but what was neglected was the 30cms of affected small intestine that is said now to be Crohns disease.
 
what's interesting is that i'm sure some people will turn this into a NHS is horrible thing.
it happens on both sides of the pond. if you end up with the wrong doctors, it doesn't matter what country you're in.
and you definitely have to advocate for yourself, sadly.
 
same happened to me...i almost died of dehydration 3 years ago. They told me i was anorexic, stressed out, cancer....they even tested me for the aids virus even though i have been with the same person for 16 years and have two children. I knew something was wrong with me but no one would listen. I got really lucky one day when a young doctor saw me in pain and sent me to a gastro right away...and sure enough i was quickly diagnosed with crohn's after that. The doc said a few more hours i would've died because of stupid doctors....i feel so bad for this guy's family my heart goes out to them..may he R.I.P
 

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