Crohn's, Pyoderma, and HS all at once. What I know and what I have tried.

[Leonidas76]

I dont know how many have all 3 but I have gotten sepsis and mrsa thanks to it and wounds wouldnt heal. They are finally making progress after 2 years and was wanting to find more people like me to hear your experiences.

 

[my little penguin]

My oldest non ibd adult kiddo has HS .
My younger adult kiddo has crohns /arthritis/sweets syndrome .

What do they have you on for HS ?
My kiddo uses dapsone gel which oddly enough causes the lesions to heal(scar ) but heal . Even dermatologist was surprised.
He was going to go on humira since clindamycin cream was not stopping them.
Fans and lots of cooling sheets /pillows etc anything to keep the skin from touching or sweating .
There are a few hs forums .

 

[navesiZ9]

I haven't had the same exact experience, but I understand how frustrating it can be when things don't heal the way they should. It’s good to hear you're making progress now. I hope connecting with others who’ve gone through something similar helps.