From a Newby

[ckling]

Hi - I have no idea where to start. I have only recently been diagnosed with Crohn's and feel so lost. I feel like a burden to everyone, especially when I have to go to the ER, which I have done 3 times in the past 2 weeks. AFter reading through many posts, that seems to be a common thing - a visit to the ER. The ER is only good for managing the most god awful pain I have ever felt, but it only comes back twice fold. I keep asking my doc to please prescribe me some pain meds. Ok, they do and its for 5 days. That doesn't work. I was on 100mg of Prednisone a day, now on Entocort (OMG, that broke my pocket book) - been on that for 4 weeks, but no results yet. Still in pain, still in the potty and still missing too much work. The other night, I drove myself to the ER; afraid of waking my husband up AGAIN! With three little one's at the house, someone has to be awake enough to take care of them.

Please help; please encourage and please give me some good news.
- Christine K

 

[Cross-stitch gal]

Hi & welcome to the forum! I'm afraid that I have not spent time in the ER or the hospital. But, do understand the expense of medications & such. Please check out the sticky above which says: you are not a burden. I know that this sticky has helped me during the times I've needed it.

You have found a great place on here for support and information. Please let me know if you'd like to talk. Take care. :hug:

 

[acheallova]

Hi and welcome ckling. We are glad you found us! As someone on here has gone thru what you're going thru now. We are a wonderful community, more like family to lend an ear for venting, a shoulder for crying, advice for meds or similar situations. Just feel free to let us know.
May i ask, what dose of Entocort® you are taking? There is a possibility that if you are on an incorrect dose or have started your taper, that your body is not responding accurately.
I hope your road to remission gets easier. I would continue to communicate to your dr. the need for pain meds, as control of pain can help decrease stress and/or body defenses toward pain( in turn, causing more problems.) Good luck and stay strong! Best wishes and thoughts with you. - hugs-

 

[Adam1971]

Hi friend. I feel for you. I can say from experience...the darkness will ighten...things will get better. I will write again when I am less out of it. Please look over the forum...so much info and advice and support for you.
Best.:hug:

 

[mbishop]

Best of luck to you. My record is 3 ER visits in 48 hours. Haven't needed a visit in a few years at this point - it will get better with remission. It's frustrating to move amongst meds and not see immediate results, in addition to the side effects, but relief will find you. Hang in there!