Frustrated

[darkmuse]

I went to the emergency room on 12/23 with typical Crohn's symptoms: abdominal pain, nausea, chills, but no rectal bleeding (I rarely have that). The CT revealed inflammation in my colon and the area where I'd had a recto-vaginal fistula and abscess worked on early December of 2011.

They admitted me to the hospital and I'm still here as of 12/26/12. I'm so frustrated! Between 12/23-12/25 I was being given 120mg of solu-medrol daily. My knees, legs and feet are so swollen that it's difficult to walk (I waddle more than anything).

I thought that this would be a two-three day admission and then I'd be discharged. The only testing being done now is daily labwork. Even now, doc said I'll probably be here until Friday. This is my second admission in five months. I haven't been like this in about three-four years.

There's such a myriad of emotions flowing. I'm the only one in my family that has it. At work, there's only one other person on my floor who has it. My family tries their best to be supportive and understanding, but it's not the same. In short, right now I feel like I can't win for losing.

 

[mbishop]

Crohn's is just rare enough for people to have heard of it but not know what it's all about. It really sucks spending the holidays in the hospital, but you aren't alone out there. Many of us have spent a holiday at the hospital and have felt isolated, but there are thousands of people on this board alone that know what you are going through and wish you the best of a tough situation.

 

[lilninja]

I've only been dx a few years, but my family and friends don't understand what I'm going through. This forum and the wonderful people in it are like my second family. I go here for support and help. I don't feel so alone and I talk about things on here that I feel I can' t tell my family.

That being said I hope they can help you feel better and get you on the road to remission. Your never alone. Just look to your crohns family for support and understanding.

 

[Hope345]

Darkmuse,

You have been through more than most. I am so sorry you had to spend your holiday in the hospital. I assume they are treating you with Prednisone to lower the inflammation quickly. If not, what are your treatments?

considering where the inflammation is, can something like a corifoam be helpful? It can bring down inflammation right in the rectum without all the side effects.

You are not alone, we are all here to support you.
let us know how you are doing tomorrow
take care and since you are not feeling well, make sure you have someone there that can ask all the right questions and get you the treatment you need.