Hi guys. I'm not a regular here but just thought I'd voice my opinion here, since it seems to be the only place where I can.
I am 19, a student, hence unemployed for the most part of the year, I have to look after my expenses as a young person living away from home and all that jazz, while trying not to financially burden my parents. That sounds like the life of a normal student alright, but whats my problem? Last November I was diagnosed with Crohn's, we all know what that feels like to some extent. Not only have I been put in the stressful position of trying to deal with (physically and emotionally) this new thing that has taken over me, by the powers of "fate" or "god" or whatever else you want to call it, but I also have to pay for meds, steroids, every month, which are in no way cheap, and as my doctor tells me I might have to stay on the potentially toxic pentasa for the rest of my life. Yada yada yada, we all know that stuff...
My problem here is, that when I try to "officially belong" to an organisation (like the ECCO or NACC) whose members have exactly the same diagnosis as mine, and which i should already technically belong to without any further costs, I am faced with paying another 100 quid annually, just to receive some lousy newsletter and update emails or one or 2 magazines a year. And apparently my contribution to these organisations would also go towards informing others of my condition. Well excuse me but I think this is really arrogant, and I strongly believe this should be the Govenment's job, or maybe it should be added to the list of responsibilities of the WHO. Excuse my angry and disrespectful tone but I really dont think i should be paying money just to belong to an organisation which i should readily belong to as ive been "blessed" with this condition. My point here is that these organisations should be funded by the governments or the EU, because the government should be looking after its citizens no matter how bad or good their health is! Otherwise its discrimination! For the record, I can afford to pay that registration fee, but I am not going to do it, because the principle behind it is wrong and im not going to pay any more additional money for something I did not chose to have!
Thank you for reading, I really needed that rant.
I am 19, a student, hence unemployed for the most part of the year, I have to look after my expenses as a young person living away from home and all that jazz, while trying not to financially burden my parents. That sounds like the life of a normal student alright, but whats my problem? Last November I was diagnosed with Crohn's, we all know what that feels like to some extent. Not only have I been put in the stressful position of trying to deal with (physically and emotionally) this new thing that has taken over me, by the powers of "fate" or "god" or whatever else you want to call it, but I also have to pay for meds, steroids, every month, which are in no way cheap, and as my doctor tells me I might have to stay on the potentially toxic pentasa for the rest of my life. Yada yada yada, we all know that stuff...
My problem here is, that when I try to "officially belong" to an organisation (like the ECCO or NACC) whose members have exactly the same diagnosis as mine, and which i should already technically belong to without any further costs, I am faced with paying another 100 quid annually, just to receive some lousy newsletter and update emails or one or 2 magazines a year. And apparently my contribution to these organisations would also go towards informing others of my condition. Well excuse me but I think this is really arrogant, and I strongly believe this should be the Govenment's job, or maybe it should be added to the list of responsibilities of the WHO. Excuse my angry and disrespectful tone but I really dont think i should be paying money just to belong to an organisation which i should readily belong to as ive been "blessed" with this condition. My point here is that these organisations should be funded by the governments or the EU, because the government should be looking after its citizens no matter how bad or good their health is! Otherwise its discrimination! For the record, I can afford to pay that registration fee, but I am not going to do it, because the principle behind it is wrong and im not going to pay any more additional money for something I did not chose to have!
Thank you for reading, I really needed that rant.
