Giving this a shot

[CD041491]

Hi..my name is Jessica and im 20 years old. I was diagnosed with Crohns 3 years ago, 2 weeks before christmas. At the time of my diagnosis, I had staff infections in my eyes, rheumatoid artheritis, and extreme abdominal and muscle pain. I had trouble breathing and could barely walk the 20 steps it took to get to the bathroom. Because of my extremem symptoms, it was decided by my family that I would be home hospitalized and receive schooling from my kitchen. I feel like thats when my life ended. MY daily routine was to wake up, NOT eat breakfast (or anything bc of nausea) take my 17 pills, do school work for an hour, then sleep. I guess you could say I became extremely depressed and secluded. This feeling of helplessness caused my to rebel, so I moved out as soon as I was 18 and didnt speak to my mother for almost 1.5 years. I slummed around the city of louisville looking for cheap thrills because i thought that would make me feel like a normal human being again. I completely stopped all my infusions and medications. School became too stressful and money became an issue, so I stopped going. I lived out of people basements and lost all respect and love for myself. In my head, it was my fault I got sick, and because of my sickness, my family fell apart. Today, im still not taking any medication and have yet to talk to anyone about the traumatic experiences i've been through and probably wouldn't know what to say anyway. I know i've let this disease get the better of me, I just don't know how to get up now. If anyone has any advice or has been through something similar, please comment. Its taken me three years to seek help about these issues, but im ready and open to making my life all it can be, with or without this dx.

Thank you for your time :heart:

 

[debbien]

Im sorry to hear you have been through a rough time but glad you are ready to get better. Do you have a Dr., that would be a very important first step because they can help with both your Crohns and any emotional problems (like depression) you are having. Also, have you ben in contact with your mom again? I think that would be a good next step for you, most parents want whats best for their kids even though they sometimes are not sure how to show it or do it..
I am glad you found the forum and I am sure you will get lots of answers and support here.

Debbie

 

[scottmyster]

HI CD, Welcome to the forum, If i were you i would move back to my parents house for awhile longer. I know you 18 but, age doesn't matter in this case. You have to see a GP and get yourself back on track again. This disease is unpredicatable and strike at anytime so medications would be my first concern and a good diet plan my second concern you have to look after yourself, crohn's is a life long commitment. Your health matters, you have to believe in yourself and say i can do this.Like Debbie said it could lead to emotional problems and depression and you don't won't that right now. So please take the appropriate steps to get yourself back on track again. best wishes. This forum is very supportive and great place to be and a safe haven so use it has a tool. best wishes.

 

[JudithC]

Welcome to the forum CD. You HAVE taken a first step by having the courage to share that much with us. It sounds like your life is unmanageable right now, but you are feeling a bit more positive about getting it back on track. This disease sucks but we all have to try to come to terms with it. Keep trying honey, you'll get to a good life, it's all your to have if you want it. Prayers are with you.

 

[Spooky1]

Welcome CD, i thinnk you have already made a good advancement in helping yourself, this forum, and i'm new too, has loads of supportive people. its just so nice not to suffer alone. i think you're on the right road now, hope all goes well with the seeking of help medically/emotionally etc. and, yes, i missed a lot of school from 12 years upwards, went back as an adult, evening classes/home study for 'A' levels, then a part-time degree online with a good university. just learn to take things slow if you can, cos crohns often demands it.

good luck
Diane

 

[CD041491]

its amazing how comfertable this forum makes people feel! You guys ahve no idea how warm my heart felt when I logged on to see that I had replies to my thread!! Thank you all for you words of support and kindness! It means the world to me.
A few questions- Has anyone seen a psychologist about anxiety? Are there any natural ways of succesfully dealing with severe anxiety?
Does anyone knw about homeopathic treatments? I was on Remicade infusions, and hated the way they made me feel. This, along with a few other reasons, is why I stopped taking my medications. I felt worse on them then off of them. Has anyone felt this before?

 

[JudithC]

I'm fairly new to this disease CD so I'm just going along right now with whatever I'm told. I'm informing myself though, because I really don't like to take a lot of medications and want to be off as soon as I can. I can't answer your question about severe anxiety but I certainly hope you can find someone or something that will help you learn how to deal with it, and hopefully without heavy meds. This is the place I've been going to to help educate myself, so keep coming here and you may find answers to your questions too.

 

[happy2balive]

Hiya, I am new to this forum too.
Be strong regarding the CD, you cant afford to let it beat you, we just have to learn how to manage it. You will have good times and bad. MOstly importantly try to remember you are not alone. I wish i had found this forum years ago myself. So proud you are seeking help.

Have you tried something sucjh as Humira rather than the infusions.

 

[CD041491]

Happy- I have heard about Humira, but cringe at the thought of giving myself a shot. But hey, if its what needs to be done, so be it. Im really looking into holistic medicine and practices at the moment, because a huge part of my problem was the healthcare industry and all the medications. I felt like they only treated the symptoms and not the actual problem. Thank you for your encouragement; it really does make a world of difference.

Judith- Congratulations for seeking help on here so early on, thats very commendable! I feel like if I had done that to cope instead of rebelling, these past few years would've turned out dramatically different. But, everything happens for a reason Please let me know if I can help you with anything or answer any questions you may have. We're all in this together!!

 

[CD041491]

So everyone, I went to a holistic doctor who specialized in homeopathic healing methods i.e., the Bach Flower Essences, energy therapy, reflexology, and aura testing. Let me know if youre interested in finding out what we found.

im not too inclined to openly post it for fear of being called a new age quack, so if you dont support alternative healing, then dont leave a comment simple, right?

 

[David]

Hi Jessica and welcome I'm sorry you've had such a rough time of it

Regarding anxiety, my best coping mechanism is the practice of yoga. Would it work for you? I have no idea. I think everyone is different and we all need to explore what works best for us.

As for the new age stuff, you're welcome to post about it anytime. We all have different methods of coping and treating. The only time we take real issue is if someone tells us that X herbal remedy is a cure for Crohn's, cancer, and will make us rich

I wish you nothing but the best going forward!

*hugs*