Hip And Joint pain that keeps me from sleeping.

[Aaron B]

Hello I,m Aaron and also new to post here, I have had Crohns since 11/2000 when it was found during a routine appendectomy, snd they found a softball sized mass as well as seperated bowels. My colan had ruptured. Thanks to a great surgoun he was able to keep me together and working. I have been on Humira for 5 years now along with pred from time to time.
Now i am have the most painful feeling in my hips, ankels, and shoulder all to the point that i do not sleep most nights..... Any Help will be appreciated.

 

[Angrybird]

Hello and welcome to the forum

Just to confirm do you get put on a calcium supplement when on the Pred? Have you ever had a bone density scan or your vitamin levels checked? Is your doc aware of the pain you are experiencing? Have you made any changes at all in your Humira doses recently?

AB
xx

 

[Aaron B]

I have seen a RA DR. and had bone scans and they have not found anything other than the all mighty awnser you have Crohn's this is common.:ybatty: So i am at wits end with the pain, while I'm up and moving during the day nothing bothers me to bad but once I slow down in the evening thats when my day goes down hill quickly. All my blood work has came back normal and the only vitamin that i am lacking is b12 so I give myself injections by weekly the same day as my Humira.

 

[Angrybird]

Have they ruled out the Humira itself? Is your tum completely settled at the moment?

 

[Shannypan]

Hi Aaron! I've also had crohn's for a few years now (since 2002) and within the last year my joint pain has increased substantially. I've always had sore sacroiliac joints with hip pain, but this past year the pain feels like it's everywhere! I've had the SI joint pain, hip pain, and also pain to my fingers, wrists, elbows, shoulders, knees, ankles and toes. It's hard to live life some days because of it. My MRIs are always negative for inflammation (to my back at least), which is good, but also very aggravating. It has been found that I have severe hyperflexibility which definitely contributes to the pain, but they think that a lot of it is crohn's related arthralgias. Since I cannot take any NSAIDS, I take hydrocodone. It's not ideal, but it helps a lot. I've been on it for many years and take it responsibly. If that's something you have to do, be careful with it because it's very addictive (as I'm sure you know!!). I also use topical Voltaren gel which actually works quite well. This might be an option for you? I'm going to start physical therapy tomorrow to see if I can strengthen the muscles around the affected joints-- hopefully this will get me back into pilates! Right now the pain is way too severe to even think about working out.
I know I didn't give much advice, but know that you're not alone with this one. I would say that my joint pain is the worst part of my disease...and it seems to be the hardest part to control. Good luck to you!

 

[Earnellzwifey]

I also have similar pains. I have been having them for several years in my neck, hips, shoulders, lower back, and my knees and lower legs. I do have several bad disc in my back and they found edema or swelling in my lower legs large bone the tibia. I am also going to start physical therapy after I see a specialist for my legs. I know mine is not related to my remicade because I have been having this before I started taking it. The only thing the dr. keep telling me is that I have arthritis.