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Crohn's Disease Forum

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Joined
Feb 23, 2016
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After a couple of years of dealing with Crohns, I'm finally ready to start actually dealing with it. That's why I came here. I was diagnosed the same year I found out I have endometriosis and would need a hysterectomy. (I spent my 26 birthday in bed from my laparoscopic procedure)

Now I'm 28, and the reality of life is closing in on me....I can't and shouldn't eat gluten/wheat and corn anymore. For some of you this is nothing, like my daughter who has Celiac's. But for myself, I have a problem, a huge food problem, that I need to fix and grab a hold.

My Crohn's has caused ulcers in my intestines and intestinal fissures, yet I can't stop with the Zingers (which are bad for you in the first place). It's gotten so bad that my husband doesn't care anymore when I'm in pain, because I do it to myself. And rightfully so, but I truly need to stop and grow up.

So that's why I'm here to grow up and, to see how other people deal with this. Living with Crohns is no fun and it's not going away anytime soon.

So, like seriously, how do you deal with it? The pains, the meds, the constant or inconstant bowel evacuations. This "disease" is a mess.
~*~Gluten Putin ~*~
 
Welcome. I am sorry you have this disease. One of the first things I found that bothered me was caffeine. One thing that helped was prayer and also deciding that the pain wasn't worth it. Another thing I really struggled with was dairy. I found things like almond milk and cheese. Do you have someone that can keep you accountable concerning foods you shouldn't have? Best to you. Let us know how you are?
 
Dairy, red meat along with fresh acidic fruits are a no go for me, along with wheat. For the pass couple of years I've been dealing with depression because, I felt like "what is there left to eat!?" My face is horribly broken out, and like you said the pain is not worth it. Thank you for your response, best to you too!
 
It might help to see a dietician. I have gone a few times to tweak my diet. Once in a while I go off and have something I shouldn't, and pay for it the next day. You need to take charge of your health, nobody else is going to do it for you. We have a diet section here too, might want to read some of those posts. It's an awful disease to have, we just have to learn to live with it. Can you try substituting things that don't make you ill? Keep us posted.
 
Years of practice! It took me about 3 years to become serious with it. I ate whatever I wanted and suffered the consequences. No disregard for my health at least diet wise. It took me biologics to finally realize that if I was better with taking care of myself I most likely would not have to be on Remicade and paying for it. Although prescription programs help the cost they dont last for ever.
 
I take Pentasa,and next time I see my gastro I'll mention the biologics. It's cool to see I'm not the only one who has to deal with food issues!
 

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