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It always amazes me that people will stop a sick person on the street to tell them they look terrible, and then proceed to diagnose you and tell you how to fix yourself. Other people's ignorance can be so hurtful sometimes.
 
I try to have a sense of humor about the whole thing and i'm so frustrated that i'm pretty much past the point of caring what people say but I have a gross sense of humor, so I usually just joke about it. nothing left to do but smile smile smile, I guess. In a way its a perfect disease for me. (j/k of course). And if it gets me to quit smoking then maybe its a blessing in disguise. (being serious about that).

This wouldn't work for everyone, but if someone wont shutup I either just say I don't want to talk about it and I tell the person how annoying they are. Or I start getting into way too much detail about diarrhea. I love the reactions. :)
 
our secretary at work actually told me"i think i have what you have" just because she had diarrhea one morning.some people really have no idea what we all go through and how painful and frustrating it can be at times.sometimes almost depressing.
 
tsm1110 said:
our secretary at work actually told me"i think i have what you have" just because she had diarrhea one morning.some people really have no idea what we all go through and how painful and frustrating it can be at times.sometimes almost depressing.
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I've had someone tell me that. Also, the girl who sits next to me at work said one day when she a had a tummy bug 'OMG, I know how you must feel. I've been sick for three days and my stomach hurts'.

I think: 'Yeah, have you been in hospital for three months this year? No, you don't know how I feel!' Hearing about your mild and temporary illness does not make me feel better about my chronic one.
 
I've got the flip side of that. Husband did prep for colonoscopy and said "I can't believe you have had to feel like that every day for years!" I then helped him with remedies for butt burn. :)
 
723crossroads said:
Amen brother! That was for Sandy!!!:hug:
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Okay, if I don't quit "thanking" everyone that posts on here, it will be confusing to all of you whether I am truly thankful. Let me assure you that I am. This is the first time I have looked at the thread personally, but Doug has read a lot of them to me. When Doug read me this post from Teresa, it melted my little heart. All of you who handle your various situations, no matter if your situation is opposite of the next person, I applaud you. sometimes humor is all that can get us through, isn't it? Besides, it is so doggone fun!:ybiggrin:

Thank you Teresa, Angel Lady!
 
What would we do without each other girlfriend???:ghug::ghug::ghug:You always know what to say to make my day! BEE!!!!!:hug:
 
tsm1110 said:
our secretary at work actually told me"i think i have what you have" just because she had diarrhea one morning.some people really have no idea what we all go through and how painful and frustrating it can be at times.sometimes almost depressing.
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I've had that happen too! Someone I've never gotten along with messaged me out of the blue asking me about Lupus because her blood test results showed that her white blood cell count was low. Her doctor had told her it was no big deal unless it kept happening, but she (like all people these days) googled it and decided she must have lupus "like me". When I told her how a typical day was with my illness it blew her away....really people, don't assume the worst when little things like that happen. You will wish you hadn't when it actually ends up being a serious chronic illness. ~.~
 
Talking to my sister on facebook "will you ever have a normal life?"
I let it go, out of 6 kids I am the only sick one. They will never understand my life. But it still blows me away she said that
 
Hi Ashley!
Would you believe my sister told everyone in my family that I couldn't possibly have crohn's because I'd be skinny as a rail. I know many people who have crohn's who haven't lost a pound. Everyone has certainpeople in their families that have no filter. Thank God we have each other on here to support us!!!Hope you are doing great!:heart:
 
Hi Ashley!
Would you believe my sister told everyone in my family that I couldn't possibly have crohn's because I'd be skinny as a rail. I know many people who have crohn's who haven't lost a pound. Everyone has certainpeople in their families that have no filter. Thank God we have each other on here to support us!!!Hope you are doing great!:heart:
 
723crossroads said:
Hi Ashley!
Would you believe my sister told everyone in my family that I couldn't possibly have crohn's because I'd be skinny as a rail. I know many people who have crohn's who haven't lost a pound. Everyone has certainpeople in their families that have no filter. Thank God we have each other on here to support us!!!Hope you are doing great!:heart:
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OOPPSSSSS!!!!!:ywow:
 
afidz said:
Talking to my sister on facebook "will you ever have a normal life?"
I let it go, out of 6 kids I am the only sick one. They will never understand my life. But it still blows me away she said that
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Good for you, and hopefully won't feel so "blown away" in the future. As you well know, some people "get it" and others don't. There are many types of "normal" in this world and those who cannot see that are the ones I feel sorry for. Unfrotunately, it always surprises me how many of these people there are out there.
 
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723crossroads said:
Hi Ashley!
Would you believe my sister told everyone in my family that I couldn't possibly have crohn's because I'd be skinny as a rail. I know many people who have crohn's who haven't lost a pound. Everyone has certainpeople in their families that have no filter. Thank God we have each other on here to support us!!!Hope you are doing great!:heart:
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I'm somewhere around Rubenesque...I get the same thing. Hugs to you!

PS When asked what I was going to bring to a potluck, I told a co-worker (back when I was still able to work) that I was a vegan, and she said "you'd think you would be a lot skinnier eating that healthy".
 
lisakuney said:
I'm somewhere around Rubenesque...I get the same thing. Hugs to you!

PS When asked what I was going to bring to a potluck, I told a co-worker (back when I was still able to work) that I was a vegan, and she said "you'd think you would be a lot skinnier eating that healthy".
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Oh that's an easy one to deal with. Just say right back "you'd think you'd be a lot smarter with a head that big!" :D
 
My boss on the day after my diagnosis: "At least you'll stay skinny", followed by saying I should immediately cut out lactose in such a stern way it almost sounded like a bollocking. Absolutely nothing on the subject after that. Cold atmosphere in work for the rest of that day...
 
andreagillespieuk said:
...i was on pred a pretty heavy dose for about a year and i put on a tonn of weight i was really depressed about it and had lost all confidence i went to see the nurse and she asked me what condition i had i said crohns and she said 'oh i thought people with crohns were meant to be thin' ...
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There have been so many comments about how we are all suppose to be thin as a rail. I am 6'3" 245 lbs. When I last flared and dropped weight, I lost 40 lbs in 8 weeks. dropped to 200. Anyway, I thought this story would be a good one to share. Matt Light, 315 lb Offensive Tackle for the New England Patriots, who last spring retired from pro football also announced that during his entire 11 year NFL career he has struggled with Crohn's Disease.

http://espn.go.com/boston/nfl/story/_/id/7903017/matt-light-reveals-decade-long-battle-crohns
 
I've only just discovered this thread, and I can't believe some of things people say! If some of the things said in here were said to me, I think I would go crazy and break some bones! I really can't believe people are so naive!

The only thing close that someone has said to me was my boss when I first told him I had been diagnosed and he replied with, 'oh, my wife's friend died of that'.. The whole time not taking his eyes off his computer, but I know what he's like so it didn't really surprise me that he would say something so stupid!
 
Hi Furious,
Glad u joined us on this thread! It is amazing what some silly people think and say. It's like telling someone you have cancer and they say, oh well, you won't be here much longer! It feels the same way! So join us in celebrating stupidity at it's finest! LOL! Teresa
 
furiousfunker said:
I've only just discovered this thread, and I can't believe some of things people say! If some of the things said in here were said to me, I think I would go crazy and break some bones! I really can't believe people are so naive!

The only thing close that someone has said to me was my boss when I first told him I had been diagnosed and he replied with, 'oh, my wife's friend died of that'.. The whole time not taking his eyes off his computer, but I know what he's like so it didn't really surprise me that he would say something so stupid!
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OMG! My jaw hit the floor when I read that!
 
So, I have another one. My mom (who wouldn't let me go to the doctor when I said I think I have Crohn's) was diagnosed with some type of gastric reflux. I had been avoiding her because , frankly, I don't want to hear it. She isn't going to support me I am not going to support her. But I had to call her today for unrelated reasons. SO she bring it up. She starts talking about how she is changing her lifestyle to get rid of this reflux that she has, she doesn't know how I deal with my illness and I need to do what I can to fix it.
...
What the hell does that mean. I am not going to get any better than I currently am (at least as far as Crohn's goes. She sensed my frustration and clarified that she just means that I need to keep it under control. (DUH!!! thats my whole goal!!)
AND THEN to top it off, she says at the end of that part of our conversation, she says, I just don't want you to end up like me, this sucks.

And she wonders why I moved a thousand miles away
 
Ashley, you just have one of those Mom's that means well but just doesn't have a clue. You should get her a book or pamphlet discribing crohn's and mail it to her or send her a copy of your coloscopy so she can see what it is. My heart goes out to you Hun!!!!:heart:
 
723crossroads said:
Ashley, you just have one of those Mom's that means well but just doesn't have a clue. You should get her a book or pamphlet discribing crohn's and mail it to her or send her a copy of your coloscopy so she can see what it is. My heart goes out to you Hun!!!!:heart:
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Hi Ashley! 723 has some good advice- perhaps a copy of your last colonoscopy would help mom "get it". Your mom sounds a lot like mine. I do not have any kids so I'll let the parents correct me if what I say next is total crap. :D

Your mom sounds smiliar to how mine was, after I was dx in 1986 at the age of 18. My mom believed that If I just changed my diet and tried hard enough, I would make myself better. My mother saw her role as essential in changing my diet. My father was a doctor (he passed away in 1989) and told everyone that his patients all got better so there was nothing to worry about. However, when things were not improving mom would take it out on me for not trying hard enough- after all, SHE was doing everything right so I SHOULD be getting better. That type of thinking is a problem my mother still has and it seems to me, a good example of good intentions gone bad. There are probably many parents out there with that problem. Some parents act this way because they beleive it's their job- to protect you in any way they can. In my case, giving my mother more information (like a copy of my colonoscopy) would not help because 1) she already knew everything, and 2) because my dad was well known doctor, so if she needed to know annything she could just ask him- and when she did the answer was always the same: "nothing to worry about, all my patients get better". That was basically the same answer any of us got for any ailment, but that's a whole other story. ;)

It sucks, but it is what it is, and you're not going to change anybody. But you don't have to let it get you down either. Crazy family members is something I'm sure many of us deal with and I don't think anyone has ever discovered how to best deal with that. But you seem to be doing quite well given all your obstacles and people see that too. Hang in there! :hug:
 
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Thanx Hobbes for your insight. You're probably right. My Mom still questions my crohn's because I'm not real bad all the time. They go by what one preson tells them or someone they know. We are all so different how it affects us, so you can't go by anyone else ever! So true!!!:D
 
furiousfunker said:
I've only just discovered this thread, and I can't believe some of things people say! If some of the things said in here were said to me, I think I would go crazy and break some bones! I really can't believe people are so naive!

The only thing close that someone has said to me was my boss when I first told him I had been diagnosed and he replied with, 'oh, my wife's friend died of that'.. The whole time not taking his eyes off his computer, but I know what he's like so it didn't really surprise me that he would say something so stupid!
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OMG me too!!! my first day of my new job and he says 'my brothers dad died of that"
me; "oh........."
 
[Qng, "How are you? You look well."

I have had this said to me many many times! The last 'Gastropod' that used this form of approach was heartily congratulated on his powers of observation. When he uttered the inane words, I told him to look at the MIR results that he was clasping in his hand. Had he looked he would have realized that I have a substantial amount of strictures that will require surgery ,whenever I can be slotted onto the list!

Old RN's with Crohn's makes for an irascible combination!!!
Merv
 
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My aunt pulled my hubby aside this past summer, after just meeting him, and told him that he needed to get me into counselling as it was all in my head and I just needed to eat more.
 
I was soooo mad, because we were at their cottage for a week and there were 13 family members, so I honestly ate triple the amount a normal human could eat just so she would shut up. The next day I was sooo sick so I marched into the living room and told her flat out in front of everyone that this is why I eat smaller more frequent meals. Worst part is that her son in law has crohns for 18 years so she should know the disease.
 
spinnychick said:
I was soooo mad, because we were at their cottage for a week and there were 13 family members, so I honestly ate triple the amount a normal human could eat just so she would shut up. The next day I was sooo sick so I marched into the living room and told her flat out in front of everyone that this is why I eat smaller more frequent meals. Worst part is that her son in law has crohns for 18 years so she should know the disease.
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Hi Spinny, Crohns is one of those things that unless you have it you can't really relate. Now I would understand why you eat smaller meals, but even though I have Crohns I don't worry about how much I eat- I don't have pain and having the ostomy means I have control no matter what. I said "one of those things" but I misspoke- many if not most illnesses people cannot relate to unless they have it. Still, it doesn't excuse people from being a good listener! I hate having to say the same thing over and over again to people who you'd think would know better, like family. :angry-banghead:
 
Merv said:
[Qng, "How are you? You look well."
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I hate this comment, really what it means is, "I don't want to hear how you are feeling, tell me you are ok and we'll move on." i.e. I've shown interest in your illness so i can now feel better about myself!

:voodoo:
 
My list of surgeries... Complete Radical hysterectomy @ age 20 for Several Gigantic Chocolate Cysts that were of "Soft Ball size" with PID and Sepsis. My husband was then in the Navy and we had to see the Navy doctors and For Two years they let me suffer saying that the symptoms I was complaining of only happen to women in their 40's and 50's. I finally had a Grandmal seizure off base and was taken to a REAL HOSPITAL where I had emergency life saving surgery! I had always and since childhood suffered from bouts of diarrhea/constipation and acid reflux. Lived on Previcid for the last 25 years. In my mid 30's I had severe problems with erupting bleeding hemorrhoids that would not go back. Finally, I had two different surgeries for that problem. Now 47 and last year I had a serious bout with Diverticulitis ... One of the pockets had opened in my gut causing peritonitis and sepsis My Doc did a laproscopic colectomy and had to remove a very large portion of my Lg. intestine No Ostomy Bag ( yet ) Thank goodness! 5 months after my surgery I came down with C-Diff and suffered horribly with it for 59 days! until I finally got some Vancomicine in my system. My doc said it was possible Crohn's disease IBD and sent me to see a specialist GI Doc who comes to Elko, NV twice a week from Reno. I finally got my appointment and was looking forward to some real answers but this guy ( Dr. Fricky ) "The so called expert" says to me 10 minutes inside of his office, here's your problem.... " You are a middle aged, over weight, neurotic! " And that it was his expert opinion that I had " Overwhelmed " My prior doctor with my neurotic behavior! " I almost fainted!
 
I just saw a new doc in Salt Lake City last week. I had another Colonoscopy and another Endoscopy 2nd set since April of 2012. The first Set was to see what damage the C- Diff had done to my prior surgery. QUITE a BIT! This set was to determine weather or not do in fact have Crohns Disease... Still awaiting the results.
 
I actually hope for your sake you don't have Crohn's. But wow, what an unbelievable ass that Dr was!
 
Wow. You should seriously consider reporting him. To who, I don't know. But someone. I certainly would have had some choice words for him. And they aren't printable here!
 
Pkaye said:
My list of surgeries... Complete Radical hysterectomy @ age 20 for Several Gigantic Chocolate Cysts that were of "Soft Ball size" with PID and Sepsis. My husband was then in the Navy and we had to see the Navy doctors and For Two years they let me suffer saying that the symptoms I was complaining of only happen to women in their 40's and 50's. I finally had a Grandmal seizure off base and was taken to a REAL HOSPITAL where I had emergency life saving surgery! I had always and since childhood suffered from bouts of diarrhea/constipation and acid reflux. Lived on Previcid for the last 25 years. In my mid 30's I had severe problems with erupting bleeding hemorrhoids that would not go back. Finally, I had two different surgeries for that problem. Now 47 and last year I had a serious bout with Diverticulitis ... One of the pockets had opened in my gut causing peritonitis and sepsis My Doc did a laproscopic colectomy and had to remove a very large portion of my Lg. intestine No Ostomy Bag ( yet ) Thank goodness! 5 months after my surgery I came down with C-Diff and suffered horribly with it for 59 days! until I finally got some Vancomicine in my system. My doc said it was possible Crohn's disease IBD and sent me to see a specialist GI Doc who comes to Elko, NV twice a week from Reno. I finally got my appointment and was looking forward to some real answers but this guy ( Dr. Fricky ) "The so called expert" says to me 10 minutes inside of his office, here's your problem.... " You are a middle aged, over weight, neurotic! " And that it was his expert opinion that I had " Overwhelmed " My prior doctor with my neurotic behavior! " I almost fainted!
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This man definately needs reported. What he said to you goes beyond words. Plz report him!!! So sorry you had to go through that! Prayers for you hun!:kiss:
 
Pkaye said:
My list of surgeries... My Doc did a laproscopic colectomy and had to remove a very large portion of my Lg. intestine No Ostomy Bag ( yet ) Thank goodness! !
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Your situation truly sucked! But I highlighted this part to point out one thing- I'll take my ostomy bag any day over the bs you had. Besides, it's really not that bad- colons are highly overrated. :hug:
 
My mother brought round one of her stupid friends today, intervention style to attempt to tell me to hurry up and go back to work and 'get better'. (I'm waiting for surgery hopefully scheduled for late February). After grilling me over why I need to use the bathroom so often, etc.. my mother's stupid friend says: 'I'd be fine if I had your disease'. Oh really, would you? Thanks for that, that makes me feel so much better.
 
PhoenixBird said:
My mother brought round one of her stupid friends today, intervention style to attempt to tell me to hurry up and go back to work and 'get better'. (I'm waiting for surgery hopefully scheduled for late February). After grilling me over why I need to use the bathroom so often, etc.. my mother's stupid friend says: 'I'd be fine if I had your disease'. Oh really, would you? Thanks for that, that makes me feel so much better.
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Ever try Cholestyramine or Questran for Diarrhea? Ask Dr. for it, it works great at controlling it. It works great for me. It is prescription though.
 
Questran didn't even touch my diarrhea with active UC. I know it does work well for some people, though.

....of course, why would it want to touch it..I don't even want to touch it. Hahaha!
 
PhoenixBird said:
My mother brought round one of her stupid friends today, intervention style to attempt to tell me to hurry up and go back to work and 'get better'. (I'm waiting for surgery hopefully scheduled for late February). After grilling me over why I need to use the bathroom so often, etc.. my mother's stupid friend says: 'I'd be fine if I had your disease'. Oh really, would you? Thanks for that, that makes me feel so much better.
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What an a-hole. My family was like that with me. I had taken a year off from school after I graduated high school in order to get better, and they weren't happy about it one bit. But when you can't control where or when you poop, your so malnourished your hair keeps falling out, and the Pred makes your hands shake so much you have to print your name instead of sign it, it all makes me wonder just what they thought they were looking at if not a sick person. The middle ground really, really stinks! In my case, after 16 months of this my illness flared up again. I wouldn't really call it a flare up in that I wasn't ever really in remission, just that my fever came back and wouldn't go away without surgery. However, six months prior my doctor had suggested we start thinking about surgery since I wasn't getting much better. I decided against it since I didn't want to quit. Looking back I should have taken my doctor's discussion more seriously. BUT in your case, your "hopefully" scheduled for surgery so it would seem that your doctor is all in favor of it and not just discussing it as a possibility. Is mom in denial about all of this? Perhaps doc needs to explain a few things to her. Your efforts to do so will just get bounced off of deaf ears.
 
723crossroads said:
Ever try Cholestyramine or Questran for Diarrhea? Ask Dr. for it, it works great at controlling it. It works great for me. It is prescription though.
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Yep, I was prescribed Questran Lite about six months ago. Admittedly the doctor did mention that she had doubts whether it would have any beneficial effect on the frequency of diarrhoea. She also thought it might be a good idea to have coloxyl at hand in case I got clogged up! In any event , I personally found that made not one iota of difference. I am very pleased that it helped you. It guess it is the same old story; what works for one person does not mean that it will work for another!

Yours in Crohn's,
Merv
 
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Hobbes650 said:
What an a-hole. My family was like that with me. I had taken a year off from school after I graduated high school in order to get better, and they weren't happy about it one bit. But when you can't control where or when you poop, your so malnourished your hair keeps falling out, and the Pred makes your hands shake so much you have to print your name instead of sign it, it all makes me wonder just what they thought they were looking at if not a sick person. The middle ground really, really stinks! In my case, after 16 months of this my illness flared up again. I wouldn't really call it a flare up in that I wasn't ever really in remission, just that my fever came back and wouldn't go away without surgery. However, six months prior my doctor had suggested we start thinking about surgery since I wasn't getting much better. I decided against it since I didn't want to quit. Looking back I should have taken my doctor's discussion more seriously. BUT in your case, your "hopefully" scheduled for surgery so it would seem that your doctor is all in favor of it and not just discussing it as a possibility. Is mom in denial about all of this? Perhaps doc needs to explain a few things to her. Your efforts to do so will just get bounced off of deaf ears.
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I'm in a very similar situation to what you describe. I've been off work 8 months now sick. Check to pred problems, hair failling out, pain, sickness, fever, pooping issues etc... My mum still doesn't accept that it's not IBS (my initial diagnosis before my UC was confirmed a few years ago). So I predictably yell that it's not the same as IBD and that I'm so much worse than she's imagining. How about 80 days in hospital during 2012--you'd think that might indicate I was sick to her too, but no. Mind you, she only came once to visit me while I was there so I guess she never saw how sick I really was. She's hospital phobic, she called me lots but never actually saw me at my worst, so maybe that's why she just cant get her head around it. My Dad's not much better, he thinks I gave myself the disease by not eating well. I can't win. It's hard not having family who understand my disease even though there are other auto-immuners in my family.
 
PhoenixBird said:
I'm in a very similar situation to what you describe. I've been off work 8 months now sick. Check to pred problems, hair failling out, pain, sickness, fever, pooping issues etc... My mum still doesn't accept that it's not IBS (my initial diagnosis before my UC was confirmed a few years ago). So I predictably yell that it's not the same as IBD and that I'm so much worse than she's imagining. How about 80 days in hospital during 2012--you'd think that might indicate I was sick to her too, but no. Mind you, she only came once to visit me while I was there so I guess she never saw how sick I really was. She's hospital phobic, she called me lots but never actually saw me at my worst, so maybe that's why she just cant get her head around it. My Dad's not much better, he thinks I gave myself the disease by not eating well. I can't win. It's hard not having family who understand my disease even though there are other auto-immuners in my family.
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Definitely sounds like surgery is going to be a huge improvement for you! As it should. When one is stuck in that situation for a long time, as you have been, there comes a point where it seems pretty clear things will not get better without surgery, and that's a real good time to do it. Keeping a disesed colon inside when it's that bad for this long can only lead to bad things happening in the future. Surgery for UC is not just life improving, it's life saving and others need to be reminded of that sometimes. Now granted, your life isn't going to end tomorrow if you don't have surgery today, but as I had just mentioned- nothing good comes from keeping a colon inside when it wants to come out. It's much better to realize this and get it done than to wait for the "nothing good" part to happen later on. I can certainly relate to the family issues- it still seems unbelievable that family members can be so miserable but it happens. Unfortunately, even after surgery and you getting on with your life that may not make the relations with your family better, but I'll be keeping my fingers crossed they wake up and start acting in a more supportive way.
 
I am immensely sorry for those who have been 'Blessed' with unsupportive parents, family members and friends.

In my situation, I am blessed with a caring and understanding wife who on occasions has been as kind to accompany me on visits to my treating gastroenterologist. Initially, I wasn't too keen to have her come along, but grew to sincerely appreciate that she did. It can be difficult to convince some Doctors of the extent and severity of your symptoms and my wife was able to confirm the extent of my problem. She has been my rock through some testing times.

Unfortunately, other do not have this invaluable back up. I think it always is essential to recognize the impact that this disorder has upon your closest kin too.

Despite always trying to play down how I feel, there are times when I have been a pain in the butt [no pun intended]! When the going gets tough, I constantly remind myself that there are other people far worse off than me , whether it be CD or a myriad of other ailments. I count my lucky stars.

Yours in Crohn's
Merv
 
I know loads of people on here say this, but the usual; 'You look great!' or 'You look really well' comment really rattles me. I said this to a friend a while ago, and she was like; 'doesn't it make you feel better?' No can't say it does, not only does it make me feel like a faker, but actually if you took one look at me inside, or at the fistula/illeostomy or how I felt then you probably wouldn't be saying that!!
 
gracifer said:
I know loads of people on here say this, but the usual; 'You look great!' or 'You look really well' comment really rattles me. I said this to a friend a while ago, and she was like; 'doesn't it make you feel better?' No can't say it does, not only does it make me feel like a faker, but actually if you took one look at me inside, or at the fistula/illeostomy or how I felt then you probably wouldn't be saying that!!
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I completely agree. Hearing 'you look great!' makes me feel awful, because it reminds me I'm chronically ill, and that actually I'll never be 'well' in the sense that they're meaning.
 
After the prednisone helped get my diarrhea under control, I was at the grocery store with my mother. I was just finishing telling her how glad I was that I wasn't spending half my life in the bathroom when she looked at me and went "You should try prunes. They've got a lot of nutrients."

I have yet to try prunes.
 
McM17 said:
After the prednisone helped get my diarrhea under control, I was at the grocery store with my mother. I was just finishing telling her how glad I was that I wasn't spending half my life in the bathroom when she looked at me and went "You should try prunes. They've got a lot of nutrients."

I have yet to try prunes.
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:ylol: And while you're there you could try some natural laxatives!
 
McM17 said:
After the prednisone helped get my diarrhea under control, I was at the grocery store with my mother. I was just finishing telling her how glad I was that I wasn't spending half my life in the bathroom when she looked at me and went "You should try prunes. They've got a lot of nutrients."

I have yet to try prunes.
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Hi McM17,
Just to remind of what prunes are all about;

Prunes, prunes-The magical fruit.
The more you eat-The more you 'Toot'.
The more you Toot-The better you feel.
Why don't we have prunes for every meal!!!
Anon

Cheers,
Merv:biggrin:
 
McM17 said:
After the prednisone helped get my diarrhea under control, I was at the grocery store with my mother. I was just finishing telling her how glad I was that I wasn't spending half my life in the bathroom when she looked at me and went "You should try prunes. They've got a lot of nutrients."

I have yet to try prunes.
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That is something my mother in law would say.
 
McM17 said:
After the prednisone helped get my diarrhea under control, I was at the grocery store with my mother. I was just finishing telling her how glad I was that I wasn't spending half my life in the bathroom when she looked at me and went "You should try prunes. They've got a lot of nutrients."

I have yet to try prunes.
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She must've thought you needed to go!!! My Gram eats them everyday to go!:yfrown:
 
A former friend of my mothers, hence I said former..."If you went to church every Sunday and read the bible you wouldn't be sick."

My husband after my proctocolectomy, "well baby there's one less ******* in the world."
And also, "I love your body, guts hanging out and all. Your beautiful."
 
gracifer said:
I know loads of people on here say this, but the usual; 'You look great!' or 'You look really well' comment really rattles me. I said this to a friend a while ago, and she was like; 'doesn't it make you feel better?' No can't say it does, not only does it make me feel like a faker, but actually if you took one look at me inside, or at the fistula/illeostomy or how I felt then you probably wouldn't be saying that!!
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And they don't LOOK ignorant either, but they are lol
 
Oh I forgot one, I asked a friend of a friend if they knew anyone with a stoma and he says "no, none of my friends are old enough to need one."
Wth
 
I went to the see the colorectal surgeon last week with my mum (who was annoying and dismissive, but that's a different story) and the surgeon explained about the colectomy and j-pouch surgeries I have planned--finally on the waiting list!

Afterwards in the car home mum says to me, "So, do you think you'd get a JPEG or just stay with the bag?"

I laughed harder than I have in a long time! Funny, because she couldn't tell you what a JPEG is if her life depended on it!
 
It's good to laugh. This has really cheered me up.

I thought it was only me with an insensitive ex. New guy has asked questions about the disease, what meds I'm on, what does he need to do if I have a flare up. What a difference.

Thanks guys, you've made me smile.
 
My sister-in-law's sister to me, after noticing I had gained some weight
"What happened to you? You used to be built like a brick sh*t house".

Me "My waistline is off somewhere with your manners".

And they wonder why I don't want to come home for a visit.
 
After reading some of these posts I kind of feel lucky. Most of my friends and family have never heard of crohns and don't have clue as to what it is. Most of them think it's some strange type of cancer and they do their best just to avoid the subject all together.
 
When I went to the nurse at my university to try and get a referral to a GI, she looked at my height and weight, narrowed her eyes, and asked suspiciously if I needed counselling instead as I am too skinny. No, I need treatment because I can't eat without severe pain, but thanks. She still didn't believe me and tried to set me up with the counsellor!


Also, I was talking to a friend the other day about how scared I was to be on heavier meds as they have many side effects, and she said "I know how you feel, I have to take birth control for my period and it's REALLY scary, at least you don't have to take that". Pretty sure birth control is not quite as scary as Prednisone or Remicade.
 
kiik said:
When I went to the nurse at my university to try and get a referral to a GI, she looked at my height and weight, narrowed her eyes, and asked suspiciously if I needed counselling instead as I am too skinny. No, I need treatment because I can't eat without severe pain, but thanks. She still didn't believe me and tried to set me up with the counsellor!


Also, I was talking to a friend the other day about how scared I was to be on heavier meds as they have many side effects, and she said "I know how you feel, I have to take birth control for my period and it's REALLY scary, at least you don't have to take that". Pretty sure birth control is not quite as scary as Prednisone or Remicade.
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As my husband humorously says,"People, they're the worst!":D
 
My family think I'm lazy because I'm off work and too ill to do anything while I wait for my colectomy surgery. They also think that I caused UC by a poor diet. I've never had a poor diet and I've always been fit and healthy, more so than some of them. I'm the only one in my family who exercises and who isn't overweight, yet they still sit around and tell me I'm the one who needs a lifestyle adjustment. Nice, huh?

My mum told me the other day to just 'wear adult diapers every day and just get over it'.
 
723crossroads said:
As my husband humorously says,"People, they're the worst!":D
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And you husband is right on the money! There's an old northern English saying which echoes the same sentiment-'There's none so queer as folk'

Reading through all this thread, I'm staggered at the level of ignorance towards CD in the community. None of us want sympathy, just an informed acceptance of the respective challenges we face. As an established curmudgeon of considerable antiquity I do not suffer fools gladly As I have posted , I will be up front most of the time about Crohn's, but when faced with a nitwit that has no capability of understanding the basics I become somewhat peed off! Must be the old RN in me coming to the fore. Mind you, from time to time GI's have not escaped a little acidic tongue lashing either. It helps to remind them that they do not sit on the right hand of the Almighty.:wink:
 
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Merv said:
And you husband is right on the money! There's an old northern English saying which echoes the same sentiment-'There's none so queer as folk'

Reading through all this thread, I'm staggered at the level of ignorance towards CD in the community. None of us want sympathy, just an informed acceptance of the respective challenges we face. As an established curmudgeon of considerable antiquity I do not suffer fools gladly As I have posted , I will be up front most of the time about Crohn's, but when faced with a nitwit that has no capability of understanding the basics I become somewhat peed off! Must be the old RN in me coming to the fore. Mind you, from time to time GI's have not escaped a little acidic tongue lashing either. It helps to remind them that they do not sit on the right hand of the Almighty.:wink:
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Amen to that!!!!:D
 
I got this one a few days ago:

"If you meditate enough sooner or later you'll cure your Crohn's disease. It's all an illusion anyway."
 
I suppose everything is an illusion when you close your eyes to it.

It reminds me of a male friend who thought as long as he didn't acknowlege his girlfriend was pregnant, it would just go away.

Yeah....it's just an illusion.
 
I'm trying to work out if my Doctor is having a laugh or not. I live in Preston, he wants me to go to Lancaster to have an colonoscopy done. I really don't fancy going on the train or public transport, there is nobody to drive me so I said that I couldn't drive myself as I would be having sedation for the procedure. Guess what his reply was? Don't have the sedation. I'm really looking forward to this now. Not only do I get a day from hell while the stuff purges me but I can look forward to indescribable pain after a 45 minute drive from home!

Anyone else had this without any form of sedation?
 
There are others here that have had it without sedation. Some say it was uncomfortable but manageable and others say it was excruciating.

You might make a new thread in General IBD Discussion and see what others say.
 
Jan said:
I'm trying to work out if my Doctor is having a laugh or not. I live in Preston, he wants me to go to Lancaster to have an colonoscopy done. I really don't fancy going on the train or public transport, there is nobody to drive me so I said that I couldn't drive myself as I would be having sedation for the procedure. Guess what his reply was? Don't have the sedation. I'm really looking forward to this now. Not only do I get a day from hell while the stuff purges me but I can look forward to indescribable pain after a 45 minute drive from home!

Anyone else had this without any form of sedation?
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No I haven't, And between us I wouldn't. Plz call him back and just take the train. Seriously, the sedation didn't make me that whacked out at all. It is twilight they use and it wears off rather quickly. I went to a buffet with my Mom after mine as we were both starving! Why go through that if you don't have to? Screw the Dr!!!! :tongue:
 
Thanks guys. I've started another thread to see what others have done. Guess I'm nervous because this will be the first one I've been to on my own.
 
Jan said:
Thanks guys. I've started another thread to see what others have done. Guess I'm nervous because this will be the first one I've been to on my own.
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I am being 100% honest when I tell you, if you are put out, You won't fell a thing. I never remember a thing or feel anything and had no after affects even thought my GI took several biopsies.Some people say they remember hearing voices or people talking. Notme! I AM OUT!:dance:
 
I was for my first one but since then they've stopped knocking you out and you just get sedation so you are conscious for it anyway. I would prefer to be completely out and wake up with a cup of tea after it's all over.
 
My Doctor: I can give you some Prozac. In addition to all the embarrassing gas and diarrhea, I spend a long time with feces falling out of my v. before an operation. Prozac doesn't correct this!!!!!!!!!!!
 
Two surgeons told me that I have Diverticulitis when I was seeking surgery for a rectovaginal fistula at age 53. They said my poor diet caused thisl But my problems actually started at age 13 and I was ignored and labeled IBS by the medical profession. People don't get diverticulitis at age 13. So glad I can vent here. I was so upset that they found a way to blame me for my problems.
 
misunderstood said:
Two surgeons told me that I have Diverticulitis when I was seeking surgery for a rectovaginal fistula at age 53. They said my poor diet caused thisl But my problems actually started at age 13 and I was ignored and labeled IBS by the medical profession. People don't get diverticulitis at age 13. So glad I can vent here. I was so upset that they found a way to blame me for my problems.
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Makes you just want to scream! AHHHHHHHHHHHHHHH:tongue:eek:n them!!!!
 
Every doctor before I turned 18: Yeah, thing is, we don't really want to mess with a kid's GI system, so we can't do colonoscopies, endoscopies and such. Just stay off lactose and legumes. Things should clear up pretty soon...

:ymad::ymad::ymad::ymad::ymad::ymad::ymad::ymad:
 
:eek:rder::eek:rder::eek:rder::eek:rder::eek:rder::eek:rder::eek:rder::eek:rder:
ProspectorsQuartet said:
Every doctor before I turned 18: Yeah, thing is, we don't really want to mess with a kid's GI system, so we can't do colonoscopies, endoscopies and such. Just stay off lactose and legumes. Things should clear up pretty soon...

:ymad::ymad::ymad::ymad::ymad::ymad::ymad::ymad:
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Hit em in the head a few times!LOL!:lol2::eek:rder::eek:rder::eek:rder::eek:rder:
 
Whenever I try to explain to someone what my pain feels like, they don't take it seriously and act like it's a joke. Once someone said to me "Oh that doesn't sound fun!" Because yeah, it's TOTALLY fun to be in pain all the time. :ybatty:

Another person was making fun of the fact that I have to have a colonoscopy. He was making a ton of jokes about it, and how if HE had to have one, he'd be laughing the whole time.

:ymad::ymad::ymad::ymad::ymad:

Dumb comments like these put me in a terrible, TERRIBLE mood.

Someone just asked me a few minutes ago if a colon could 'grow back' if it's taken out. :ylol::ylol::ylol::ylol:

I'm laughing too hard!
 
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Everly, you know in this world there are always the ones you take with a grain of salt! They have nothing else to do but pick on other people. Maybe they think it is funny until it is they who have to endure some real difficult times in their life. Then they realize how shallow they had acted. Just ignore those who are grating on your nerves or quietly pull them aside and say,would you like me to share what you did at the Christmas party last year and let them wonder! LOL!:lol2:Hang in there ok?:ghug:
 
I'm a freshman in college and I recently switched to a single room. Well when I lived with my roommate I tried to explain to her what Crohn's is and that I was having a flare up. I missed all of my classes that week and that friday she wanted me to watch her overnight (a high school student that was checking out the school) so she could go out drinking..... I told her I still wasn't feeling good and that my doctor wanted me to go home to get hooked up to an IV because I was dehydrated... Then she said "Are you serious??? You don't even look sick. UGH Whatever."

-.-

Sometimes I hate that you don't really LOOK that sick during a flare up...
 

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