Humira Club Support Group

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

It can take a few weeks or couple of months before you notice a big difference. It was a couple of months for me, that was just a year ago now :)
 
Hi all,

I've been taking Humira since Nov. 2012. So far I think it has helped but it did cause a cold to become pneumonia. Friday I'm heading overseas and I'll have to take my next dose there. The airline and tour company assured me there wouldn't be any problem with refrigeration. I'm hoping they are right!
 
Humiria users....does anyone break out with Humiria? My husband took his 40mg Humiria a week ago...by Sunday he had small red splotches on his legs, no itching. Today he has a awful rash under his arm..only under one arm. Does anyone know if this is related to his Humiria?
 
Ssmith said:
Humiria users....does anyone break out with Humiria? My husband took his 40mg Humiria a week ago...by Sunday he had small red splotches on his legs, no itching. Today he has a awful rash under his arm..only under one arm. Does anyone know if this is related to his Humiria?
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Does it look like acne? I'd try and get Over the counter Hibiclense. It worked wonders for me with humira skin reactions and a rash post surgery.
 
Scary man, you're back!

How did it go? Was thinking about you and wondering about your recovery.

Just got home from the hospital today after my own resection with tons of complications.

Glad to see you on here!
 
My surgery went well other than a minor issue in recovery. They gave me delauded and I stopped breathing. No other complications or issues. That's the reason I went to the best in Chicago. They were honest and amazing. I had a right laproscopic hemicolectomy. Only three days of serious pain. The other days were meh in comparison.
 
Getting ready to start Humira, and I'm scared to death!! Doc. is hoping it'll help me avoid another surgery. I had surgery 14 years ago for a stricture in TI. They took 14 inches of small bowel plus 4 inches of colon. I currently have a stricture that is 10 cm, along with active inflammation. Now just waiting on insurance approval. Fingers crossed!
 
This is my first week- started on wed- and so far things seem to be going really well! i had some slight swelling and leftover stinging at the two injection sights on my legs, and now a couple bruises, but other than that it went well! (it stings really bad though!!!!)
 
I find it stings too, just make sure you take the humira out of the fridge 30 mins before you *** and ice the site of *** to help. But mine stings more when I'm tired or a bit below par
 
Ssmith said:
Humiria users....does anyone break out with Humiria? My husband took his 40mg Humiria a week ago...by Sunday he had small red splotches on his legs, no itching. Today he has a awful rash under his arm..only under one arm. Does anyone know if this is related to his Humiria?
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Yes, I get the "small red splotches", but mainly on my arms. But it's worth the dramatic improvement in gut pain (virtualy disappeared) that it has given me.
 
You really might want to try the belly fat for your injection sites if the legs are hurting too much. There's lots more to grab there.

I had a hiccough in my Humira schedule. Took my 4 loading doses 4 weeks ago, then ended up having emergency resection on June 1st. GI Doc had me take my 2 pens today and will start my maintenance doses in 2 weeks.

We were trying to do the same thing saving bowel and my stricture ended up being 5 inches long with a pin point opening only and trying to avoid hurry up surgery, but it was too late for me. Good luck with your stricture and hoping the Humira works well for you. Back on Prednisone post op with the Humira, but will start tapering this week. Hoping to end up with Humira only and in remission!

Welcome to the club! :cool2:
 
I also use the belly area, after my GI initially told me it would hurt less there as I dont have a lot of fat on my thighs. Also I leave the pen out at room temperature for 30 minutes, and ice the area I am going to use. Usually expereience very little pain, on the rare occasions that it hurts more, the pain fades away in only 30-6 seconds.
 
russem2 said:
Hey there guys and gals, I am new to the forum but not new to Crohn's. I was diagnosed in 1986 and have been on all conventional treatments and have tried Remicade, which worked fantastic for about 2 years until i became sensitized to it. I just got out of the hospital last month after i had an enteroenterostomy because i had severe stricutres that caused an obstruction. I tried Humira after remicade but i only took the loading dose and 2 more shots after that (every other week). I didn't think it was working so i quit. I went to the University of Chicago Hospital this past weekend (awesome GIs up there) and they don't think i gave Humira enough time to work. Anyone else have any information on how long it took Humira to work for them?
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Humira took at least 4 - 6 weeks to begin working noticeably for me. You need to stick with it. Some people notice an improvement in less than a week, others take longer.
 
Well, scratch that. Insurance denied Humira for me. Just a tad frustrated!! Meeting with my GI later this afternoon to see what options are left for me.
 
RippMama said:
Well, scratch that. Insurance denied Humira for me. Just a tad frustrated!! Meeting with my GI later this afternoon to see what options are left for me.
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RippMama, may I ask what reason insurance gave for the denial? My insurance denied Humira intially - said I needed to try Cimzia first - but my doctor appealed the denial and the insurance carrier approved the Humira. If possible, it might be worth an appeal. In any event, I wish you good luck!
 
They said I had to meet one of a list of criteria: fistulising crohn's (which I don't have), high dose steroids or immunomodulators prove ineffective (my doc. said high dose steroids for maintenance is malpractice and he didn't think immunomodulators would be effective enough), or a failed trial of Remicade. So basically they forced me to Remicade, which I didn't want because of the length of time for infusion and I'm not terribly excited about rat protein!! But I guess if it works then great, and if not, then I should be able to get the Humira.
 
I have 2 friends in real life that are both on Remicade and it is doing well for them. I hope it works for you.
 
After months of waiting for approval, it finally happened. Seems i wasn't bad enough and hadn't been on prednisone long enough at the start :yrolleyes: The 2 years on high doses of Budesonide didn't count :ybatty:

So had my 4 loading doses into my stomach last week and no ill effects. Though not really sure what i'm expecting as still on my Azathioprine, Allopurinol and Prednisone. Slowly tapering the pred and will be a fair while till i go off the others it seems.

Fingers crossed.
 
I think my Humira is starting to take effect:smile: Am six weeks in and has been touch and go with strictures the past couple of weeks. Am on very low residue diet and have had three partial obstructions, but fingers crossed, I think I may be seeing improvements!!!
 
It will be 6 weeks for me with this next shot on Sat. I am still waiting and hoping to see some results. Lately I have felt the tiredness, joint pain, feeling like I have a low grade temp that I had before I was diagnosed; just not the stomach pain which is great. I am currently off pred.
 
I've seen absolutely no improvement after the first six doses, but that is probably unfair since I had to have the emergent resection right in the middle of that time.

Will plan to give it some months before judging it.
 
Vonnie said:
It will be 6 weeks for me with this next shot on Sat. I am still waiting and hoping to see some results. Lately I have felt the tiredness, joint pain, feeling like I have a low grade temp that I had before I was diagnosed; just not the stomach pain which is great. I am currently off pred.
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I definately feel ultra tired for about 48 hours after a shot - and "heavy" legs- very weird! Vonnie - if the pain is less then this is positive:thumleft:
 
I'm starting Humara on July 8th and can't wait I'm having a flare up and currently on 70mg of steriods and thats not helping!!! I'm nervous I was on Imura for 4 weeks and went toxic!! Blood work was finally normal today!!!!!!!! If Humara don't work then its Remicad and Methatrax which that scares me so hoping that Humara does the trick!!!!!!!

Lisa
 
Heavy legs?

Wow, I noticed how hard it is going up stairs right now because of weakness or heaviness in legs. I wonder if this is related to Humira? Fascinating stuff...
 
Just need to give it some time. Been on it for two years now. For the least 18 months I have been in remission.
 
I've been on humira and imuran for over a year now. I was able to start working again last December. Previous ulcers are healing well now. It's made a big difference to my quality of life and the side effects are worth it as I get to work, socialise every other weekend. *** weekend I just sleep and relax and get ready for work on Monday
 
Hi, I'm new to this group. I was on Humira in 2008 but had a fistula that was getting worse due to the Humira so I was taken off. I had the fistula taken care of and then miraculously managed to remain in remission from my Crohn's symptoms until after the birth of my youngest daughter in Dec. 2010. I have since been on prednisone (off and on for nearly two years due to breast feeding), Remicade (also while breast feeding), Cimzia, after the Remicade did nothing, and then Imuran (after stopping breast feeding) because Cimzia didn't work. I had an allergic reaction to the Imuran and am now on Humira again. I'm also on Entocort. My dr felt that since I was on Humira before I could just immediately go on the every two weeks maintenance dose. I just took my second dose today. I'm praying for it to work! I have three daughters, 16, 10, and 2. I feel like I'm not being the mom they deserve because I'm always feeling bad. Abdominal pain and bloating is horrible. My husband tries to be understanding but I know he can't understand completely. He worries about me all the time. I'm just glad to have found a group where everyone knows exactly what I'm going through. :)
 
I have bumps all over my chest and back (it is worse on my back) from the Humira. They look like little zits or pimples. They don't itch, nor are they painful. They are mostly just gross. I realized it was from the Humira because I have not had this problem before and they tend to multiply after I inject. Now with it being summer around here, I am outside more and I am sweating more. Could this be a reaction or does anyone suggest any soap or lotion I could use to help get rid of them?

Thanks!
 
Jamie.

I'm looking forward to the replies you get from your post. I also have the weird rash on my back, but I just don't know if it's a Crohns rash or a Humira rash. It came about the same time as the latest flare, but also at the same time as the Humira.
 
The rash could be from Humira. Rash is listed as a common side effect from the drug. I would have a doc take a look at that.
 
I got a strange rash this weekend. It started on the outside of my right knee a couple of days ago. Now, it is on the outside of my left knee in the exact same spot! I also have it on both forearms (underside) in exactly the same spot! It is not really itchy but red and a little bumpy. I don't know if it is from Humira or methotrexate or ..... It is super hot and humid here this weekend and i was outside yesterday in the sun for about 30 minutes. Maybe a reaction from the sun?

I have also been extremely nauseous since last Monday and had to start taking metochopramide (Reglan) so that I can eat more than smoothies.

Anyone else experience this?

PS: Happy Canada Day!
 
I have been on Humira for over 2 1/2 months now and I have had 8 injections since. Just as I had my first loading dose, I had started flaring up, I went to hospital and I was put on 40mg pred.
I was told by my GI to taper as quickly as possible and carry with Humira 40mg every 2 weeks. (I was completely symptom free on steroids)

Then i came off steroids and 3 weeks later another bad flare, GI reluctant to put me on steroids again and told me to increase Humira to every week.

I hate waiting around for these meds to work, i hear people waiting months to feel difference.

Anyone switched from every 2 weeks to weekly Humira and noticed a difference? If so, how long did it take?
 
I had my injection yesterday(I have a nurse give it to me) and right after it felt a lot more sore than usual. Actually I don't recall it ever being too sore right after the shot?

Well. today there is a small but VERY red circle with a visible needle hole at the top of the circle.

I know people say they get circles around it sometimes but I thought it would only be light red and bigger, more like the size of a finger tip?

I'm hoping it's just a bruise from the needle and not some kind of reaction?
 
I usually have a red half dollar sized slightly raised area at the injection site. It is sore for 1 day. Sometimes it is worse then others. No reason for it. Hope this helps! I have been on humira since November 2012
 
Zac with no K said:
I had my injection yesterday(I have a nurse give it to me) and right after it felt a lot more sore than usual. Actually I don't recall it ever being too sore right after the shot?

Well. today there is a small but VERY red circle with a visible needle hole at the top of the circle.

I know people say they get circles around it sometimes but I thought it would only be light red and bigger, more like the size of a finger tip?

I'm hoping it's just a bruise from the needle and not some kind of reaction?
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I get the same dollar sized red hive-like spot. it is very itchy and lasts for at least a week. The faded spot is still there when I do the next injection. I have been taking Benedryl before I inject but doesn't make a difference. I have started using betamethasone cream for the itch and this helps a little. Mine seems have been getting itchier the longer I am on the Humira. Been 5 months now.
 
I get a little red dot, nothing more and it doesn't last long. Man, i've forgotten how painful bowel cramps are, had a few tonight with pain going right up to my left shoulder.
 
I had my loading doses a couple weeks back and then my next 2 a couple days ago.

Acne on my arms and shoulders seems to be worse though I was sure that all started more when I went on the prednisone. So maybe the Humira is adding to it.

I did notice my hands felt slightly swollen for the couple days after my last doses. May have eased off now. They weren't noticeably swollen though could feel it when trying to clench my hands in a fist.

This something others have had? 😶
 
:hug:Hi

Just wondering I'm going to be starting Humara on Mon. I was reading everything that came in the starter pack that if have a latex allergic to let the DR know I did but they didn't get back to me yet. It says that the prefilled needles ave a rubber tip. Does anyone else have a latex allergery and on Humara??? Also the sticker price was 8317.00 ouch I have meet my deductible for the year so I pay nothing!!!!

Thanks in advance!!!

Blessings Lisa
 
I have a latex sensitivity and talked to them about it. Evidently the needle cover has latex. They told me as long as I pull the covers off straight, and not let it slide to the side, I should be fine.

You might want to check though since you have a real allergy.
 
Ellen_M said:
I think my Humira is starting to take effect:smile: Am six weeks in and has been touch and go with strictures the past couple of weeks. Am on very low residue diet and have had three partial obstructions, but fingers crossed, I think I may be seeing improvements!!!
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I hope it continues improving for you Ellen.
 
I did start the Humara today I did fine a little rash about the injection site that my be the latex allergy or that is normal but I could see throwing 8800.00 dollars out that is not what I paid but that is what the insurance company paid I have met my deductible this year!! I have one dose left and then will witch to the prefill needles. I must say that the thigh hurts the worse so I did 3 in my stomach a little more fat there lol!!!!!!

Praying that this works I have not been having much luck with Crohn's meds!!!!!

Lisa
 
How long until you knew it was working?
DS was on 20 mg every other week for 3 shots ( 6 weeks).
His sed rate went up and still felt bad- gi switched him to 40 mg every other week.
He just had shot #3 at 40mg ( 6 weeks) and not really seeing a big difference after the shot.
not terrible but not as "good" as when he was on remicade.
 
Yes got the card it's a 5.00 copay then they bill the ins and then Humira will pick up the rest can't believe the cost. Today they said some people feel better the next day some takes a week some a month. I am having a good flare up so anxious to see if it works!!!! What happen with remedia that is my next med if this don't work!!!!

Lisa
 
I love that the company that makes Humira has a patient assistance program, because I can't get insurance through my job and can't afford to buy my own insurance. But now my prescription is out and my doctor won't automatically renew it. :( I can't afford to go see him and I already owe him $3,000 from my last hospitalization. Anyone know a loophole through this dilemma or should I suck it up and make an appointment with my GI doc?
 
I can't imagine not affording insurance. I think I would make sure the doctor understands your situation and get him to renew the prescription. If that doesn't work, then make the appointment.
 
I applied for Medicaid, they only thing they approved me for is a yearly checkup with an OB/GYN. And the $3,000 was after they approved me for financial assistance. I've been PROMISED full time status at work this year, so I can finally get insurance, but they've been acting sketchy for the past few weeks, even though I've been begging for five years to make full time. Fingers crossed that they get me my benefits by the time enrollment rolls around in September! :(
 
Hi,

I have been on Humira for four years and was wondering if anyone had symptoms of severe muscle weakness and fatigue from this drug. My doc seems to think it is from the Humira.

Kate
 
kate269 said:
Hi,

I have been on Humira for four years and was wondering if anyone had symptoms of severe muscle weakness and fatigue from this drug. My doc seems to think it is from the Humira.

Kate
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Fatigue is very common,I have been I on Humira 9 months, and only now is the fatigue thing becoming less.

2
 
I've been on it over a year now. I do get sleepy on injection weekends, and I'm weaker muscle wise. But I'm trying to work on that
 
I have been on Humira since May 26, 2013. I had fatigue before the Humira, but seem to be a little worse after the injection. I am on single injections fortnightly now.
 
Aussie Lea said:
I have been on Humira since May 26, 2013. I had fatigue before the Humira, but seem to be a little worse after the injection. I am on single injections fortnightly now.
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Hi Aussie Lea. Your history says you were on LDN a couple of years ago. I've tried to find someone in Perth who will prescribe it to Crohns patients, but no luck so far. Was this through a gastro/medical/crohns specialist, or from a drug treatment facility? And did it help?

Thanks, Gra
 
Thanks for all of the replies.
When it is at it's worst I can only walk a few feet and then I have to sit down. When I go out to run errands and I have to park way out I just want to cry because it is going to take everything I have to make it inside the store and then I have to hang on my grocery cart. I have even driven into a lot and decided I just can't make it in and drive home. The very worst was when I almost went down in the shower and had to run out and flop into a chair. I then spent almost 2 days in bed.

I am checking out energy boosters. I know this won't help the muscle weakness but maybe I can get my butt out of the chair and get something done. I just ordered one from K-Pax they have pharmaceutical grade supplements. If anyone has a favorite let me know.

Thinking about asking my Doc. for a handicap parking hang tag.

Thanks,
Kate
 
I feel like asking my doc for one too, but it's my arthritis that hurts and today is *** day so I'll be in bed most weekend :)
 
Hi Kathy, I used to be on weekly methotrexate that's when I started rewarding myself for doing the ***. It works for me as I focus on the reward. I like your idea of one disease for one person then that would make life easier.
 
One disease per person. I'd go for that. My list as of now... Central Sleep Apnea, Crohns Disease, and, official as of last week, Plaque Psoriasis. As my GI said...Humira is good for that too.
 
I'll raise you Doug, asthma, diabetics, arthritis spine and hip, reflux disease, endometriosis, over active bladder, polycyistic ovaries syndrome oh and crohns :)
 
That's good!

I figure as long as I feel this way, I should be able to
have a little fantasy in my life. Reality makes me tired right now!

Lauren
 
Aura said:
I'll raise you Doug, asthma, diabetics, arthritis spine and hip, reflux disease, endometriosis, over active bladder, polycyistic ovaries syndrome oh and crohns :)
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I left off my Essential Tremor. But even with that I think my Humira buddy has me beat.
 
Hello
I am new to the group and I am suppose to start humira next week. I am really freaked out by all the possible side effect. I am also on 20mg prednisone and 25 mg of 6mp which will be increased to 125mg.
 
Hi EPD, and everyone else freaking out about possible side effects. Don't talk yourselves into being anxious. Yes, there are many a terrible thing that can happen because you have taken a certain medication, but the odds are very much in your favor that everything will be just fine. Everyone worries, that is normal. I worried a lot too. Nothing good comes from it. Get informed and do your research, just don't let it make you stress too much, you already have enough on your mind. A positive attitude will help you so much more than being anxious and stressed. You're gonna make it through this.

That being said, I joined to Humira club yesterday. I took the meds out of the fridge 30 minutes before the time to inject and I didn't pinch the fat too tightly either. It all went well. It stung slightly as the medicine was injected but I have had allergy shots and prednisone shots hurt much worse.

FWIW, the nurse said to NOT ice the area before injection stating that you may be slightly numbing the area where the needle will be going in and helping to lessen the pain slightly, but you are also slowing the blood flow to the area and therefor making it more difficult for the medicine to be absorbed, leading to more stinging pain. I didn't use the ice and the shot sting/medicine sting wasn't bad...3 seconds at most.

I haven't had any reactions so far, thankfully. Good luck everyone!
 
^ definitely found it much more tolerable without icing first.

I'm switching to the syringes with my new prescription next month, pretty excited for that.

Had a colonoscopy a couple of weeks ago and although there are still patches of severe inflammation, I'm feeling much better than when I started on Humira a few years ago.
I've just reached my goal weight of 60kg which I never thought would happen (was about 48kg and thought I'd be lucky to get to 55kg when I started). :)
 
I vote for one disease per person
I would settle for two at this point
DS has six specialists at this point .
I used to think one was alot .
 
Dear Humira Club Support Group, You may like to know the latest about AbbVie, the maker of Humira refusing to release their clinical trial data. Please take a look at this story: http://bit.ly/12Azwrr. People are encouraged to visit rxisk.org to report side effects.
 
This video is new to youtube. It outlines one patient's fight against the side effects of Humira. http://bit.ly/1aIypLx

It might be a good idea to discuss with a physician an exit plan for the drug as well as how to treat possible infections.
 
OMG kss!

Wish I hadn't watched those videos! No, I can't say that because informed consent is always the best consent, but it scared the &^$% out of me!

I did a LOT of research before starting to take the drug. Read all the possible side effects. I'm very familiar with reading drug side effects in nursing, but seeing it on a video really brings it home.

Been on it for about 8 weeks now and think I will continue since so far very few side effects. But really, thanks for bringing this to the folks here!
 
Traumanurse, You're very very welcome! I was Remicade for years without major issues. And I had no idea of how serious the drug really was. The lack of informed consent makes me angry. You have a right to know. You have a right to see all that data that AbbVie has collected!

The founder of rxisk.org (Dr. David Healy) is ambitious with the campaign so if you have any ideas about spreading the word please let me know. I figured the Humira Support group where would be a good place to start.

Best of luck with your treatment! If you need to report side effects it looks like Rxisk is doing an excellent job of maintaining an archive: http://bit.ly/18jUeQC
 
I'm getting ready to take the last 2 injection of my loading dose!! Today is day 12 of the 1st 4 injections. The only thing that I have noticed is that the number of times I go to the bathroom in a day I still go about 13 times but that is half of what I use to. Still have the cramping and the pain in the joints today no appetite and tired and bright yellow stools is that normal?????
 
unfortunately the side effects shown in the you Tube video can also happen with ANY drug- IT is called Serum sickness for a reason
Serum sickness

Last reviewed: May 30, 2012.

Serum sickness is a reaction that is similar to an allergy. The immune system reacts to medications that contain injected proteins used to treat immune conditions. Or it can react to antiserum, the liquid part of blood that contains antibodies given to a person to help protect them against germs or poisonous substances.
See also: Immune response

Causes, incidence, and risk factors

Plasma is the clear fluid portion of blood. It does not contain blood cells. However, it does contain many proteins, including antibodies, which are formed as part of the immune response to protect against infection.

Antiserum is produced from the plasma of a person or animal that has immunity against an infection or poisonous substance. Antiserum may be used to protect a person who has been exposed to a germ he or she has not been vaccinated again.

For example, you may receive a certain type of antiserum injection if you have been exposed to tetanus or rabies. This is called passive immunization. It gives you immediate, but temporary, protection while your body develops an active immune response against the toxin or germ.

During serum sickness, the immune system falsely identifies a protein in antiserum as a potentially harmful substance (antigen). The result is an immune system response that attacks the antiserum. Immune system elements and the antiserum combine to form immune complexes, which cause the inflammation and other symptoms of serum sickness.

Certain medications (such as penicillin, cefaclor, and sulfa) can cause a similar reaction. Unlike other drug allergies, which occur very soon after receiving the medication, serum sickness develops 7 - 21 days after the first exposure to a medication.

Injected proteins such as antithymocyte globulin (used to treat organ transplant rejection) and rituximab (used to treat immune disorders and cancers) can cause serum sickness reactions.

Blood products may also cause serum sickness.
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from:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001823/

it can happen from allergy shots, abx etc...not just TNF-Alpha blockers.

IT is good to be informed but also to know the complete facts

Ds had a mild version to remicade with skin peeling and rashes, blisters and later allergic reaction to remicade during actual infusions.
 
Hi all my fellow Crohnie's. I am new to the site and started Humira on Friday. Four injections (not as bad as I thought it would be) in the stomach. So far so good, no immediate side effects and the med started working over night. I have been sleeping through the night for the first time in years, no more waking up 5 times to run to the toilet. I was scared to start the drug but the oral meds no longer work for me after 22 years so this was my final resort and I am pleasantly surprised after all the horror stories I heard about the side effects. I do believe this is the solution for me.:)
 
I was on inflixamab for 4 years and needed no other medication . i became convinced i must not have crohns or was in remission so after considerable thought and my consultant refusing to advise either way i came off the drug in June 2012. By NOv 2012 i had full blown Crohns symptoms again , i had forgotton had bad it was ..! Its taken me until May to get back on meds .. i was fearful of reactions but have now been on Humira since June and so far so good , just a few side effects , tolerable .. And injecting is nothing like as bad as i had thought it would be . So i just want to say stay positive ...
 
Hi everyone:) I am new here and I have a couple of question that maybe you can answer. I have crohns for about three years and I am finally starting on humira, since nothing else seemed to help. Since I have had crohns I can't put on any weight. I am usually at 125 pounds and I am now weighing 113 pounds, my question is after you started humira where you able to gain weigh again and if it helps with diarrhea? Sorry this is so long.
 
Hi Everyone!!
Last night I took the last 2 shots from the Starter pack. Today I'm so tired muscles aches and dizzy a little headache is this normal I didn't have it when I took the 1st 4 shots!!

Also yesterday 22 trips to the bathroom today 1 and it was semi normal which is scary lol!!!!

Is this normal??

Thanks
 
Lisa - A lot of people mention fatigue and muscle aches after taking a dose of Humira. I get migraines, which I have attributed to the Humira, although they come at random, not in any connection to when I have a shot. Sometimes I have a little fatigue, but in my case I think it's just annoyance at having to take an injection :p Anyway, what you describe doesn't sound unusual, but make sure you keep an eye on it, and when in doubt make a call. I know Humira has an 800 number, I think 24/7, you can call with questions or concerns.
 
Thanks I went to my family dr today and she said that these were common side effects or it could even be part of the Crohn's I did call the GI today and he didn't seem to alarmed about it. i just wish that I had more good days then bad.
 
lblair said:
Thanks I went to my family dr today and she said that these were common side effects or it could even be part of the Crohn's I did call the GI today and he didn't seem to alarmed about it. i just wish that I had more good days then bad.
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Don't be impatient with it. For some people Humira is an overnight miracle, with others it takes time to start working. We are all different, remember?

With me it took 8 weeks before I noticed any improvement (sleeping thru the night most nights, instead of being awake and in pain), and now, 9 months in, it's like a miracle.
Back at work again (part time), still on a restricted diet, but slowly expanding the list of "normal" foods that I can eat again, very little pain and fairly normal bm's.
If I'd given up on Humira after 6 weeks, I wouldn't have experienced this transformation.

So hang in there, keep taking your shots, give it a fair trial, and hopefully it will work for you as it has for so many others.

Gra

2
 
lblair said:
Hi Everyone!!
Last night I took the last 2 shots from the Starter pack. Today I'm so tired muscles aches and dizzy a little headache is this normal I didn't have it when I took the 1st 4 shots!!

Also yesterday 22 trips to the bathroom today 1 and it was semi normal which is scary lol!!!!

Is this normal??

Thanks
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Loss of people have headaches, tiredness and altered bm's soon after starting Humira. As your body becomes accustomed to it these should settle down. The tiredness is particularly common, lots of people get that, I had it too, as well as increased bm's for a while. You'll also notice that some injections hurt more than others, make sure you leave the pen at room temperature for 30 mins before use, and ice the area that you are going to inject for 1 to 2 mins prior to injecting. Remember that even if it hurts, the pain usually fades very quickly.

Gra

2
 
Alexmom said:
Hi everyone:) I am new here and I have a couple of question that maybe you can answer. I have crohns for about three years and I am finally starting on humira, since nothing else seemed to help. Since I have had crohns I can't put on any weight. I am usually at 125 pounds and I am now weighing 113 pounds, my question is after you started humira where you able to gain weigh again and if it helps with diarrhea? Sorry this is so long.
Click to expand...

Alexmom, it's typical that people lose weight, and find it hard to pt back on again. Humira can help by stopping the inflammation in your gut, which will enable you to eat better, but if you have a stricture (like me), it will possibly eventually require surgery

2
 
lblair said:
Thanks I went to my family dr today and she said that these were common side effects or it could even be part of the Crohn's I did call the GI today and he didn't seem to alarmed about it. i just wish that I had more good days then bad.
Click to expand...

The aches can definitely be Crohn's-related. I get joint aches somewhat frequently. I've attributed them to the Crohns, though, because they come and go with no connection to the Humira injections, and started before I went on Humira.
 

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