Job? Can you hold one?

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Hi Crohnadian, I do have a job but am quite often ill and in pain. Luckily they are quite nice (at the moment at least!) with letting me have time off for hospital appointments and always say it's ok for me to go home when I am having a bad flare up.
I only work in an office anyway so can spend all day sat down which helps, especially with my tiredness!

Rachel.
 
I started this job at the same time I started this flare (coincidence?). They've been very good at working with me for doctor's appointments. I haven't missed any work due to just being sick, though. I can put up with a lot sitting at my desk. I have an arsenal of meds in my drawer and a heating pad under my desk. And a restroom nearby.
 
Before remicade, yes, I was able to hold a job...HOWEVER I did start out with things that were fairly flexible - such as working for a wholesale distributor where I made my own hours 'packing out' and stocking shelves at local big-box stores.....I got my first real-full-time (Civil Service) job back in 1994, and at the time I was pretty much in denial and worked through my flares for the most part.....been holding a full time job (and then some) since then.......
 
I had worked for the first 3 years, but I eventually got to weak. I resigned in March 2011. I am very sad about it, as I LOVED my job so much! But I know where I need to be. My goal: get healthy enough to go back and stay back!
 
I just got a good job at a worldwide logistics company in April and had my first flare last month. I had to resign. My doc told me straight, that the physical nature of the work is not good for my condition. :(
 
I started working in march after taking a break in December and I've just handed in my notice again :(

Its been stressful there which hasn't helped my situation, but I've had to take off a lot of time (usually my holidays) to go hospital/doctors visits.

I am now being put onto Azathioprine, Budesonide and my usual Penthasa as I have 'relatively bad' narrowing, I will need to have blood tests every fortnight etc, and so have left the position as the company won't be able to accomodate all my time off.

I am not going to try and find a part time job I can keep, or do some temping during the times I feel well.

I have never had a problem working or keeping at my work, until I was diagnosed with CD. Now I have had to take time off occasionally due to weakness and lack of energy, I'm hoping once everything gets better I can go back to full time work, but at the moment, health comes first.
 
Haven't worked for ages. Everytime I went back I started bleeding. Since then I've had more surgery & @ 52 I rapidly approaching a time where I may well have to give it a go again. Not sure I could stomach being @ home until retirement age. Then again with Crohns you never know whats around the corner.
Rgds
Grant
 
I am lucky enough (kinda?) to work with family. Because of this, there is no arguments when I have to go home, doctors, tests, or just need a break. Well, minimal arguments at least.

I'm able to work a desk job as Controller. I have someone under me who is able to help with filing and printing. Keeps me off my feet most of the day. I'm sure the stress will kill me soon enough though. Oh, work is full time 40-50 hours per week steady. sometimes 60 depending.
 
I haven't worked since December. I was working at a bookstore, basically putting new books out before we opened in the morning. I would spend 15 minutes at a time doubled over in pain, hiding behind bookshelves. I lost so much weight that I almost passed out at work a few times. I just couldn't do it anymore. I'm lucky enough that my husband has a job that can support us without me having to work. I don't know how I did it for so long when I was so sick.
 
Hey Crohnadian,
Sorry to hear about your work woes. I think the key to living with our disease is to be optimistic. Go into every new job with the hope that you will be able perform to your full. There is no point starting something new if you already think it will fail. I am a student too and am currently completing a double degree. I have two jobs at the moment, one as a researcher's assistant at my university for about 12 hours a week and the other working as a casual waitress at a restaurant 1 or two nights a week. I agree with the others on this thread that a desk job is preferable in our condition. At my university job I sit and type, have a bunch of meds in my bag for when I feel off and am close to a toilet.
I hope that you can soon find a line of work that suits you and you begin to feel in a better position to hold on to it. If it helps to know, one of my GP's is a crohnie, and she seems to do just fine.
 

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