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I forgot to mention Ron that I lived in Charlottesville Virginia for several months. I also love Virginia.
 
ronroush7 said:
You would probably love Alex
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I'm sure I would.
New Jersey is on my list now too! Gotta go get some chores done, if I can get thus old body to move. They added a couple of exercises to my physical therapy, since they didn't have to take some of the time with orientation. On the way out, I ran into my former Foster daughters current host home parents.
 
Sandy, that makes sense about Doug's allergies - I've read elsewhere on the forum that the guts have the second-highest amount of histamine receptors in the body, so presumably his surgery removed at least some of those histamine receptors. It's weird how the body works! Seems like everything is connected to the gut in one way or another. A guy at work once broke his foot really badly, and after he came back to work he was trying to tell me about how the foot is connected to everything else in the body. And I was like, dude, no. :p You can live without a foot, you can't really live without your guts!
 
It's good to read all your posts. You make me smile when I've had a hard day. My uncle died and I tried to arrange flights online for mum and I. But I kept making mistakes, like wrong month, then going their one month coming back another and $400 later I got one flight then I couldn't get mums one done. I phoned airline in tears and mums flight was $600. I'm hoping I may get my mistakes refunded on compassionate grounds.
 
Kirsty...I am very sad for you and sorry for your loss.
It's too bad the reservations clerks could not be more helpful to you so that no mistakes occurred.
Hard enough to lose our loved ones and my heart goes out to you all.
Go straight to the top of the airline,the chairman if you have to...this usually gets good results
Wishing you some calmness in the next few days....God be with you and guide you
Lots of prayers for you Kirstie
Trysha
 
I can't possibly read all the posts since I was last here. Sorry for your loss Kirsty. I think of Carol table dancing in your back garden,and cigars for some reason,as I type this. Hmmm...pardon my irrereverent words. It must be my doddering mind.
 
The dense fog we had is now cleared and down comes the snow.....ah well it is winter
Carol...where are you?.
I wandered lonely as a cloud
That floats on high o'Er vales and hills
When all at once I saw a crowd...a host of golden daffodils
Beside the lake beneath the trees
Fluttering and dancing in the breeze
William Wordsworth
Patiently waiting for springtime.
 
Aw Kirsty so sorry for your loss. I hope you can get some refund from the airline. Prayers love n hugs 💕💕💕
 
I wish I had something I could add to help Kirsty. All I can do is send virtual hugs and, like Trysha said, wishes that everything works out, and you find some peace and comfort. Dave, though you called your words "irreverent," sometimes this kind of humor can really lighten things up. About twenty years ago when a sister died, I couldn't stop cracking these kinds of "jokes." Everyone has their own way of dealing with things.
Hugs to you and your mum, Kirsty. 💛💛💛
 
I'm still here my friends and ok.
Dave I don't know whether to be flattered or to smack you one,but at least you were thinking about me hahaha.
 
Our landlord woke us up at 3 am to tell us that the storm is eroding the road and the fire department is assessing the situation to see if our building will collapse!! We are at a hotel now and I can't seem to get a wink of sleep.
 
Cat-a-Tonic said:
You guys make me want to travel more! Tony, Ireland is definitely on my bucket list, it looks like a gorgeous place from your photos. Sandy, I've been to Utah but your photos are always so beautiful that it makes me want to go back - I love the Southwestern US in general, it's so pretty and so different from my area of the US. CYY, is Singapore beautiful as well? I have traveled to Japan and absolutely loved it, and that made me want to explore other parts of Asia as well. I think South Korea is first on my Asia travel wish list just because I speak a few words in Korean and can read it as well, but I'd also like to go to Singapore. Now that I'm finally (hopefully) getting back into remission, I've got the travel bug! LDN is doing good things for me. :) Now I just need to scrape together the money for traveling, easier said than done...
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Hey Cat-a-Tonic, I'll be more than glad to have you here! Singapore is not beautiful in the scenic sense, but it's unique in its own way. The streets are clean, there's vegetation almost everywhere, and we've got a whole series of tourist attractions here. Never mind that Singapore is only a small island nation, which you can travel from east to west in about an hour, but there's really so much to discover. :)

If visiting tourist spots and shopping is not your thing, you can travel to the heartlands and indulge in the Singapore culture. We Singaporeans love food, (not to a Crohnie's advantage), and you can stuff yourself full with local delights for really cheap price. Only the heartlanders (people who don't live in the city and the posh areas) will know where to get the best bargains XD

I know having money to travel overseas may be an issue to many Crohnies here, so here's a link about tourism in Singapore: http://www.yoursingapore.com/en.html. Feel free to explore more about Singapore in your own free time! :D

And yes, to answer your question, Singapore can be quite beautiful (sorry for terrible picture quality).
 

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Aura, I'm so sorry for your loss. Big hugs to you. If it helps, you may want to write a letter or email to the airline rather than calling. I personally have a hard time getting across what I want to say when I'm emotional, so writing things down works much better for me.

Madhu, oh my goodness! Stay safe! I hope your building is okay, how scary!

CYY, that photo and your description really reminds me of Japan (in a good way!). Everything was very clean and lots of lovely gardens and vegetation there as well - I went to Japan during cherry blossom season last year so it was absolutely gorgeous everywhere I went. I love tourist spots, I went to all the big ones in Tokyo and Kyoto (Shibuya scramble crossing, Hachiko statue, Meiji shrine, the bamboo forest, Fushimi Inari, etc). And I love shopping, probably a little too much, ha ha. ;) I am definitely putting Singapore on my travel wish list! And thank you for the link as well, I'm going to check that out now.
 
Madhu i so hope your home stays in one piece hun. More importantly that you two do too. Big hugs 💕💕

CYY...singapore looks so lovely. I guess there are so many lovely places we could spend a lifetime visiting them all...oh what a lovely thought☺☺☺

Love n hugs to all 💕💕:ghug:
 
fuzzy butterfly said:
Madhu i so hope your home stays in one piece hun. More importantly that you two do too. Big hugs 💕💕

CYY...singapore looks so lovely. I guess there are so many lovely places we could spend a lifetime visiting them all...oh what a lovely thought☺☺☺

Love n hugs to all 💕💕:ghug:
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Ditto to what Mandy said.

Wouldn't it be nice if we could all have a little less drama in our lives?
 
SandyUte said:
Ditto to what Mandy said.

Wouldn't it be nice if we could all have a little less drama in our lives?
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I know right?

Thanks everyone. I hope the building is ok too. I love that apartment and it took me 1.5 yrs to find it. My landlord said he doesn't think we can go back for atleast 2 days. There are a lot of engineers coming over and inspecting.
 
So sorry for your loss Kirsty. I hope everything works out for you Madhu. The rest of you...get well and behave. At least get better. 😉

My daughter has just told me she is pregnant. Yay! (Although I'm not quite sure I am ready to be a grandparent yet.)
 
Shanen said:
So sorry for your loss Kirsty. I hope everything works out for you Madhu. The rest of you...get well and behave. At least get better. 😉

My daughter has just told me she is pregnant. Yay! (Although I'm not quite sure I am ready to be a grandparent yet.)
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Congratulations on becoming a grandfather.
 
I'm having a bad belly day and I'm not sure why and I just hate that. Like, if I obviously ate something I shouldn't, I would expect to have a bad belly day. But I'm not sure if it's because I drank a Boost this morning? I haven't had Boost in months but it didn't bother me the last time I tried it. I tapered my pred from 6 mg to 5 mg yesterday but this doesn't feel like a taper fail, it's mostly just some cramps and nausea and bathroom trips but there's not that sharp pain that I've come to associate with taper fails. I hate not knowing why my belly is doing this. It's so frustrating.

Sorry for whining. I haven't had a pity party for myself in some time now, I've been doing so well lately, so that's frustrating too. So the pity party is happening in full force today! Like, pity party hats and pity party streamers and everything.
 
Sometimes Cat
these things happen out of the blue...no rhyme or reason....just hope it goes away soon...like immediately
Tomorrow will be better
Hugs
Trysha
 
Thanks all. I'm a bit better today but I'm still really tired. My current theory is that it's my adrenal glands, because I'm tapering off of pred and I'm down to 5 mg, so my adrenals have recently had to start working again. That can cause tiredness and gut issues, so I'm thinking it's that. So I'm resting and going to talk about my taper with my GI next week when I see him.
 
Sorry for your loss Kirsty ,and as for the airline just let it go it will only upset you more chasing it , and remember karma is a female dog , what goes around comes around

Madhu Hope your home is still intact , that must have been very upsetting , hope you are ok .

Shanen congrats on your daughters good news ,

Cat ,sorry you are under the weather , I'm also doing a pred taper , I'm down to 2.5 at the moment and my stomach is not at its best either and I am tired a lot at the moment ,
Hopefully when we are fully off the pred we will get back to normal quickly ,

CYY nice photo of Singapore .

I got good news today , the biopsies from the gastroscopy came back clear with only a little inflammation .
 
Thank you all for your support it's truly appreciated. It was great to be there with family.
Tony you are a wise man. We fly back home this avo and tomorrow will be a pyjama day. Just to relax and chill out.
 
Aura said:
... We fly back ... and tomorrow will be a pyjama day. Just to relax and chill out.
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I get to go to a pajama party tonight. :biggrin: Actually it is a sleep study at the sleep clinic so they can adjust my CPAP to a setting so I'm not low on oxygen. They emailed me a long list of instructions and the first thing on the list was "you must wear pajamas." It gave me a good laugh.:rof:
 
Wonder why you can't wear day clothes instead of pjs.
Looking forward to your account of this adventure Sandy...waiting with bated breath....
It's a Pearl White cliffhanger.....silent movie era..
Hope you had a good journey back to home Kirsty
Taking the win Doug...
Winning.....
 
Shanen how lovely that your daughter is expecting...i know that being a grandparent can be abit of a "oh crap that makes me feel old "☺ but it is truely lovely being one. Our Jaxon has brought such joy and happiness to my life.
The best bit is being able to give them back when you've had enough of them 😃😃
I pray all goes well through the pregnancy and your daughter has no problems and breezes through it.
Please pass on my congratulations and best wishes 💖💕
 
Hi to all.. hope if life is bringing you lemons ...your busy making lemonade ☺
Wishing all those not too well better and those feeling good stay good.
Biggest hugs n love 💖💕💟💞💝💋💋💋
 
Back off guys,the champs here......

THOUGHT FOR THE DAY.......I don't want to get technical or anything but according to science alcohol IS a solution.
 
Our home has been cleared safe. We are back home. Can't begin to explain our relief. Thank you guys for all your support. Happy to have sweet friends :)
 
Madhu, I'm so glad to hear it! What a relief that must be.

So I'm still feeling horrendous. I guess at this point it must be a taper fail, so I went back up to 6 mg pred. Ugh. I see my GI on Monday so I'm going to ask him what the best way to go about getting off this darn pred is, since even tapering by 1 mg isn't working for me anymore. (I had gone from 6 mg to 5 mg as of Monday.) A friend recommended I try doing 6 mg one day, 5 mg the next, then 6 again, 5 again, and alternate like that for a little while. Anybody else try that method for tapering? If my GI doesn't have any other ideas then I am going to try that, my friend said it worked well for her.
 
Yay, Madhu! I can't imagine the stress that must have been. And Carol, Ron was thanking Dave because he was making lemonade.
Chumps, champs, bah humbug! And maybe I like lemons. After all, with lemonade, how would I post my gripes? (Like below.)
Regarding wearing pajamas at the sleep study,
giggle, I should have explained better, we could use day clothes or pajamas (as long as not silk because it interferes with the electronic equipment.) The point is we had to wear something.
And aarrrrgggh, I never want to do that test again either. It's just a torture device. At least this test won't have consequences like a forever racing heart or setting off my asthma -- I just needed a nap. For those who have never had a sleep study done or don't know how it works, I found a pic on the Internet which looks like the same as the kind of equipment as they used on me (attached to larger machines in the bedside cabinet.)They hooked me up to several electronic leads onto the scalp, face, chin, legs. The whole underside of my chin was taped up to hold the sensors in place. The sensors in the hair area are attached with a thick paste like substance that hardens into place and then has to be taken out with a special solvent in the morning. The electrodes are same kind as used in EEGs to measure seizure activity or brain function, but in this case they are looking to see what state of sleep I was in, to track eye movement, leg movement, snoring sensor, etc. They also have an oximeter taped to my finger as well as an air movement sensor in the nose. The box with all the leads coming out of it (like shown on the chest of the girl in the pic) was strapped together in a "ponytail" like contraption behind my head, except when I had to go to the bathroom. Of course I needed to, more than once. When getting up it had a strap and I wore it around my neck like a necklace and it sat on my chest like the pic. Every time I turned over, I had to make sure all the wires coming from everywhere (both behind me and in front of me) moved synchronously. In addition, It seemed that every time I turned over the leg leads came off and then and the technician had to come in and reattach them. Even though I currently use a CPAP, they started the night out without one as insurance companies want to get a "base line" and see how I did without it. The technician told me they would be adding the CPAP at two in the morning, if needed, which, of course, they did. They then would ramp up the CPAP periodically until it was at the correct pressure for how I was sleeping. I don't know how anybody sleeps well with all of those wires everywhere. But of all weird things, they didn't even have to ramp up the CPAP to the pressure I have it set at currently at home, so obviously my oxygen was fine at the lower dose this time. I just don't want to do this test again. Ever.
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Sandy, I saw the picture first and thought it must be a joke picture, like I figured maybe you had some wires but not that many! Then I read your post. :( The horrible things we have to go through to even get a chance of getting some answers. Ugh. Sometimes my hubby watches Star Trek, but it makes me mad - they can just wave a little handheld scanner thing in the direction of the sick person and immediately get all the answers with no long, uncomfortable, invasive tests needed. I want to live in Star Trek times! We already have so much incredible technology nowadays, just look at how amazing modern cell phones are - why do we not have that magic Star Trek scanner thingy? Or at least less horrible medical tests?
 
I have to add, Cat, If you ever saw the Star Trek movie "The Voyage Home" where they came back to our day and time to save a couple humpback whales, there was one scene where Doc McCoy calls the medical people of our time, with venom dripping from his mouth, "barbarians!"
(Hope your tummy troubles settle down. Ron too. And Mandy, and anyone else currently having problems.)
 
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Sandy, I have seen that one! My dad used to watch it regularly when I was a kid. I don't remember that line but that sounds about right!

I was just thinking about my great-grandfather. I never met him, he died in the early 1950s. He had UC (he also had TB and lung cancer, poor guy). He's the only known person in my family besides me who has/had IBD. I always wonder how his UC got diagnosed. My grandma of course has bad dementia and can't tell me much about her father anymore, so I don't know. Did they even have colonoscopies back then? He probably got sick in the late 1940's or so, so we're talking 70 years ago. I guess I shouldn't complain too much, because back in my great-grandfather's day, he was so very ill and medical science was probably not good at all back then. I don't know how they even determined that he had both TB and lung cancer? Xrays?
 
SandyUte said:
I have to add, Cat, If you ever saw the Star Trek movie "The Voyage Home" where they came back to our day and time to save a couple humpback whales, there was one scene where Doc McCoy calls the medical people of our time, with venom dripping from his mouth, "barbarians!"
(Hope your tummy troubles settle down. Ron too.)
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Thanks, Sandy. Best wishes for all
 
I just did some googling and discovered they didn't start doing colonoscopies really at any level until 1969, so I suspect the diagnosis of UC was from symptoms and history and listening to bowel sounds (like they did allie). Maybe confirmed post mortem. X-rays would be able to detect lung cancer. (My grandfather died of that also.) As for TB, I'm pretty sure that was diagnosed from symptoms, tho wonder if TB or lung cancer ever was not correct diagnosis because quite a few symptoms overlap. TB has been around for ages and ages, and has gone by many different names. It was called "consumption" for many years because people would waste away and be "consumed" or "white plague" because of palor people developed. Did he ever have to live in a sanitorium as was the practice of the day?
BTW, my dad had an IBD also (confirmed through colonoscopy eventually.)
Ron, though I haven't seen that movie in years, I really liked it too, tho not a Sci-fi fan generally. But that one I genuinely liked. Learned to appreciate Star Wars and Star Trek thru Doug, and like them now more than I did. For "Trekky fans," I like to joke that I am "Seven of Nine" because I am the seventh of Nine children in the family I grew up in. Ok, time for me to let someone else win (for awhile at least.):ybiggrin:
 
Sandy how did you ever get to sleep with all that on you? I'd need sedation
 
Sandy...we have something in common...I was the seventh child of twelve children....
 
I've only watched the newer Star Trek movies before. Haven't seen the old series at all. Damn, Cat, Sandy, Ron, I feel so young :D

Anyways, the Lunar New Year is coming, which means lots of goodies and yummy treats like pineapple tarts, egg pastries, candy, etc :p

On the other hand, I still have 3 and half more weeks to go on Modulen (hopefully), and by then the Lunar New Year would be long over, and the goodies would no longer be on sale. First, Christmas. Now, the Lunar New Year. What have I gotten myself into? ;_;

Oh god, the goodies are right in front of me. Within arm's reach. They're calling out to me now. No, I must resist. CRAP, THE TEMPTATION IS REAL \Ö/

UPDATE: Sorry guys, I just ate a pineapple tart. Now I feel so bad :(
 
Back already. Kirsty, I did take melatonin and my night meds are quite sedating in themselves. Still didn't sleep very deep ever or very long at a time. :( And now have a headache to go with it. :( :( :(
Wow, Trysha, it's very uncommon to find anyone who came from a family bigger than mine. I also say I'm one of the seven middle children, but I guess you are one of ten middle children.:eek2: But still, we are both lucky #7. :)
CYY, I love your sense of humor. It is nice to see someone with such a bright outlook on life. It will serve you well.
Off to rest and bed now (unless I can't sleep.)
 
Happy Lunar New Year, CYY! I hope you can enjoy some yummy treats.

Sandy, yes, he was in a sanatorium. That's one of the things that my grandma currently gets confused about with her dementia, in fact. Her father was in a sanatorium and also dying of lung cancer, while her mother was elsewhere (home or hospital?) dying of breast cancer. So her parents were kept apart and couldn't see each other while they were both dying (they died just a few months apart, when my grandma was 19). But now she gets confused and thinks that my grandpa was kept apart from her while he was dying, and she gets angry and sad about it even though it's not true at all.

Anyway, so yes, my great-grandfather was in a sanatorium, and awhile back my grandma told me that her father was a tinsmith and that his lungs got sick because he was breathing in fumes related to that profession. I'm still unsure though as to how all his ailments got diagnosed.
 
Not to wake Sandy,but,when I was a kid,I was friends with a girl who had 12 siblings. Yup,13 kids.
 
Hi ya all.. my father was one of 13 kids too 😨 i thought having one was bad enough 😃

Oh Sandy looks like you had more wiring going on than the national grid girl. Hope it helps sort things out for you hun 💕
Big hugs to all 💞💞:ghug:
 
Wow, I feel like a weirdo because I only have one sibling. It's just me and my younger brother. We don't come from particularly large families, either. My dad has 2 siblings and my mom has 3 siblings.

My mother-in-law is one of 7 (I think!) siblings. She and her twin sister are the only girls, the rest are boys. At a party, I once overheard her describe her twin to somebody. My MIL is very short, brown hair, blue eyes. Her twin is very tall, blonde hair, brown eyes. This person that MIL was talking to asked, "Oh, are you identical twins?" Um... no. :p Seriously?

I will say, I do not understand what mindset someone has to be in to want to have tons of kids. My sister-in-law had 5 kids in a span of 10 years. The oldest is now 13 and the youngest is 3, and their house is complete chaos and pandemonium 100% of the time. I don't even want one kid! 5 kids, holy cow, my energy is completely drained after spending about 3 minutes with those children.
 
I have no siblings. I'm the only one for my parents :) I never felt alone though, coz I grew up in a big family with cousins around
 
It's interesting to see the family connections people have. A lot more of you have at least connections to large families, more than I would have expected. Doug's dad was also the youngest of 10 children. He has a zillion cousins. Cousins are nice to have, aren't they Madhu? His maternal grandparents had similar situations to your great grandparents, Cat, one lived in a nursing home at the end of his life when ill and in anticipation of his passing, while his wife was unable to take care of herself and lived with a daughter. When the daughter (Doug's aunt) got the phone call that her dad had died, she wondered how she was going to tell her mother. Her mother came out of her room after just a bit and said something to the effect of "don't worry, I already know about your dad. He came to see me and said he would come get me to take me home shortly." (They were not particularly religious people either.) She was frustrated when she didn't die for another three months. Thought it would have been sooner.
My parents both came from average to small size households for their time (two siblings in one, three in the other.)
I think I better go wake Doug up from his La-Z-Boy chair, because I want him to take me to lunch before one of my "girls" gets here. I should have a very nice tidy house by tonight. I'm also teaching them some minor cooking skills, which is more work than help right now, but I like it and eventually they will be able to take over some cooking chores when I need it. (I also had to wake Doug from his La-Z-Boy chair to go to bed last night. :lol:)
 
Sandy, sometimes chairs are more comfy for sleeping in than a bed is! At least that's my grandma's opinion. She has a bed in her room and I don't think she's ever slept in it. She sleeps in her big comfy chair every night - it has an ottoman so she can stretch out, and she throws a quilt over it and that's her bed. And as for me, I have a chaise lounge and it is wonderful for napping in. So I can definitely understand that!

As for cousins, I also don't have many of those. My hubby has tons, I think he has cousins we've never even met. :p But I only have 6 total, 4 on my dad's side and 2 on my mom's side. On my dad's side, my cousin J is the oldest and I'm the second oldest. At my grandpa's funeral, J was introducing himself to people as "grandchild #1" and then he'd point to me and say that I'm grandchild #2. So now in emails or on facebook, we refer to each other as such. :) We joke that we don't even know what number our younger cousins are, ha ha.
 
My mother is #14 of 15 children. I have many cousins and lots of great memories growing up. Remicade day today for me.
 
I am the youngest of five children. Three older sister's and one brother. I never really knew my brother,he was killed in a car accident when I was eight. That had a major impact on the family. We weren't allowed to talk about it at home at all. Our parents would get very angry if we did. No dysfunction there,huh? Dad literally stopped doing anything with us kids and mom spent more time with her drinking buddies than at home. I spent a lot of time by myself. This is when I found my love for reading,the outdoors and animals. My sister's,being older,left home as soon as they could so we never got very close.

Funny thing is two of my sisters and myself are now taking care of my 84 year old dad. Funny old world,isn't it?
 
Wow, it seems that you guys have such large families. Family gatherings must seem very lively :)

On the other hand, I'm on the other end of the spectrum. I've only got one younger sibling and no cousins. It may seem quite boring at times, but I find that this gives me more space to indulge in my solitary hobbies without having many people disturbing me. Yes, I scored 30/30 for introverted-ness (if there's even such a word) on the MBTI scale.

My dad has two younger sisters, one who died of leukaemia before I was born, and the other who was once married but now divorced. She has no children from her previous marriage, and is terrified of remarrying.

My mum has an elder brother, who is too busy caring for my wheelchair-bound grandfather to even bother looking for a girlfriend. He has never dated anyone in his entire life before, so having children seems pretty much out of the question.

My mum was telling me the other day, the reason why my birthday was a mere day ahead of hers is because she initially wanted to have her child share the same birthday as her (maybe to save money on birthday cakes?). Unfortunately, I thwarted her well-laid plans by coming out of her womb a day early. XD
 
Well my hubby and I have no one except each other.Our son and his family live in Australia.I honestly don't feel I'm missing anything,except of course all the loved ones we've lost.
 
we just had a family reunion last w/e, about 50 people, mostly cousins and their kids, I hadn't seen any of them for over 20 years, and then that was at my grandmothers funeral. we used to be close and then we had kids and life took over.
 
Carol you also have all of us hun...:hug: and we all have you :smile:

Trev life over takes all our lives n plans.. how we ever get anything done amazes me 😃😃😃

Keep well all, big hugs :ghug:💖💕
 
Doug came from a family with only one brother and one sister also. His brother is somewhat disabled (aspergers syndrome) and lives with his sister and hubby. Doug's sis is only one who ever had kids (unless you count our foster kiddos). Doug's sis, however, is youngest of about 60 tight knit cousins.
Trev, I haven't seen a lot of my cousins for about the same time or longer for same reason, though we also did a lot together as kids. In fact, I even have a brother I've only seen once in about 20 years. Dave, my family is as dysfunctional as yours, but in different ways. My mom, who had nine kids, basically ignored us and we raised ourselves, (ironically, she never liked kids) and didn't (doesn't) have a protective bone in her body. To say my dad was a tyrant is an understatement. My parents divorced when I was 17 because I told a school counselor what home life was like, and my dad blamed my mom (and me). My Mom subconsciously blames me too (hence, her always telling me "you always did have a big mouth, didn't you?") Police were even involved. My dad was a genius (literally, very high IQ), was a physicist and electrical engineer, put himself thru school as a carpenter and was excellent at anything he built, and very talented in many other ways including musically. He was also charming to most other people (until he got older but especially aft he had his stroke when he turned mean to everyone). He died last March from old age (90) and complications of a stroke about three years back, but his body was donated to science (his request) and we won't get his creamated remains back (which will be buried) for a few more months. Nobody in the family had anything nice to say about him (tho some stayed in contact with him -- I didn't), so we didn't even have a memorial service.
I'm grouchy today so probably sharing more than I should (my big mouth at it again), as former foster kiddo Oto came (an hour early) and has been spending the day with us, but he also has been having a difficult time and had a couple melt downs. The good thing is (though it is draining), I feel like we have developed some skills at dealing with his kind of problems, and we can usually calm him down when nobody else can. I think he gets a lot more life things because of us (and has improved trust issues, one of his biggest problems because he was abandoned so much as a kid). And not just with us but with everybody. He has actually grown a lot. I'm patting ourselves on the back. That feels good. (And I'm glad he's going home in about 30 seconds. YAY!)
Winning!
 
I have to add I am really sorry about your brother Dave and your family's response. And Carol, you just aren't going to earn the wages you deserve because we already took the winnings. :biggrin:
 
Sandy the pats on the back re Oto are so deserved and some. Oto has been so lucky to have you n Doug in his life. Its so nice to hear how he is doing and that all your love n kindness is paying dividends in his life.
☺💖💕

Hi to all, hope today is a good day for everyone . 💕💕💋💋
 
Can't win. Since Doug's humira dose got moved back to every other week he has been slipping back into a flare. He also has a big headache today. We had to leave church early today when he had to suddenly run to find a restroom and throw up. Said he didn't even feel nauseated prior to that, just hit suddenly. Poor guy. He took some tylenol for the headache and is asleep on his chair now. :(
 
SandyUte said:
Can't win. Since Doug's humira dose got moved back to every other week he has been slipping back into a flare. He also has a big headache today. We had to leave church early today when he had to suddenly run to find a restroom and throw up. Said he didn't even feel nauseated prior to that, just hit suddenly. Poor guy. He took some tylenol for the headache and is asleep on his chair now. :(
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Send him my best. Prayers for him.
 
Oh hells bells Sandy...poor Doug 😯
Its so unfair that he cant have the humira weekly. Surely it should be available as needed in proven cases of need oh it makes me mad😠...maybe its time you americans had a revolt on getting a free n decent health care system. Our NHS aint great but at least when i was on infliximab at £1000.00 an infusion n it didnt work they doubled the amount of infusion no questions asked.
Hope Doug can get back under control real soon . :hug: 💕💕
 
fuzzy butterfly said:
Oh hells bells Sandy...poor Doug 😯
Its so unfair that he cant have the humira weekly. Surely it should be available as needed in proven cases of need oh it makes me mad😠...maybe its time you americans had a revolt on getting a free n decent health care system. Our NHS aint great but at least when i was on infliximab at £1000.00 an infusion n it didnt work they doubled the amount of infusion no questions asked.
Hope Doug can get back under control real soon . :hug: 💕💕
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I will contact my G.I. tomorrow. Last appointment we decided to try Humira every other week one more time. If things get worse I am to contact him and we will change to a new biologic. I did pretty good for the first week, but the second week I have been on a slide.
 
I hear you Doug. I was only allowed Humira weekly for three months. I'm back to fortnightly. I notice the difference, bowel cramps are back, frequency increased. I see my GI on Wednesday. We had Brittany Morrow staying here she's from California, she is also known as the road rash Queen and has her own YouTube channel. She is an advocate for riding motorbikes with all the gear on. She was lovely. Steves motocycle event had 2200 people attend so he is wrapped, lots of bikes too. It was called Shiny Side Up, check it out on Facebook, Steve is there in one of the pics.
 
Well,just spent the last 10+ hours in the ER. I visited my dad after work today,my sister's turn for overnight,and had a good visit. I get home and,literally,sit down to a wonderful beef stew Joanne made and...My sister calls me. Dad fell,called ambulance and on the way to the hospital. I rush back and after the obligatory period of waiting in pain,my dad gets x-rays and he broke his left hip,admitted and will have surgery later today.

He may not have been much of a dad to me but I won't leave him alone in a hospital. Those of us who know what that is like can relate. I treat him like I would like to be treated. I like to make him laugh,the crusty 'ol bastard that he is. I figure every chuckle I can get out of him is positive health points,akin to positive thinking. I can't let what he didn't do prevent me from what I can do. Huh? What? Go to bed...o.k..
 
Ah i see...i really hope you can back on track Doug. Good luck 💕💕

Im seeing my Gi tomorrow hope to get results of last scan in dec as iv not had them yet...
 
dave13 said:
Well,just spent the last 10+ hours in the ER. I visited my dad after work today,my sister's turn for overnight,and had a good visit. I get home and,literally,sit down to a wonderful beef stew Joanne made and...My sister calls me. Dad fell,called ambulance and on the way to the hospital. I rush back and after the obligatory period of waiting in pain,my dad gets x-rays and he broke his left hip,admitted and will have surgery later today.

He may not have been much of a dad to me but I won't leave him alone in a hospital. Those of us who know what that is like can relate. I treat him like I would like to be treated. I like to make him laugh,the crusty 'ol bastard that he is. I figure every chuckle I can get out of him is positive health points,akin to positive thinking. I can't let what he didn't do prevent me from what I can do. Huh? What? Go to bed...o.k..
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Hope you had a good sleep , bless you 💕
 
Aura said:
I hear you Doug. I was only allowed Humira weekly for three months. I'm back to fortnightly. I notice the difference, bowel cramps are back, frequency increased. I see my GI on Wednesday. We had Brittany Morrow staying here she's from California, she is also known as the road rash Queen and has her own YouTube channel. She is an advocate for riding motorbikes with all the gear on. She was lovely. Steves motocycle event had 2200 people attend so he is wrapped, lots of bikes too. It was called Shiny Side Up, check it out on Facebook, Steve is there in one of the pics.
Click to expand...

Wow that was a great turn out Kirsty..il bet Steve was over the moon 🌙💕
 
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