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my brain scan just came back normal, I bet that surprised a few of you, I was hoping to find something causing the headaches and fatigue, ... this fatigue stops me in my tracks, and I am told it makes me a grumpy so and so, I prevents me posting on here as I sit here most times staring at the screen unable to think what to write, just waiting for it to kick in today. ...


This is for Trev......I'm great at multi-tasking.

I can waste time,be unproductive and procrastinate all at once.

I wish you and Trev would quit talking about me. But you have the process wrong, Trev. Nothing prevents this mouth from talking, even if it takes all day (sometimes two) to figure out what to say. And that is where my wasting time, being unproductive and procrastinating all come in.
:ghug:
 
I like to root for the Packers, but especially this week! I can't stand the Cowboys! GO PACKERS!!!!!!!

I totally agree. I've not liked the Cowboys since way before I met Doug. And I've also had a soft spot for many years for the Packers.
 
I just need a hug today. I think my grandma is going to die soon. Last month she had a cardiac arrest and stopped breathing - she has a "do not resuscitate" order, so the staff at her facility weren't allowed to do CPR on her. An EMT literally yelled at her to wake up, and she did. I'm not sure how that worked, but she came back to life. So that was last month. Today it happened again, she turned grey and stopped breathing. Once again, she came back on her own, but still, it's so scary. She's in good spirits, I just saw her on Saturday and she seemed okay and happy. But her body is seemingly giving strong signals that it's time to go. I'm just scared and worried and emotional right now. Ugh ugh ugh. I just lost my grandpa back in May. I'm not ready to lose another grandparent so soon. I just cannot deal with this right now. Please send me some happy thoughts (or Jammer/Allie/other pet photos).
 
I just need a hug today. I think my grandma is going to die soon. Last month she had a cardiac arrest and stopped breathing - she has a "do not resuscitate" order, so the staff at her facility weren't allowed to do CPR on her. An EMT literally yelled at her to wake up, and she did. I'm not sure how that worked, but she came back to life. So that was last month. Today it happened again, she turned grey and stopped breathing. Once again, she came back on her own, but still, it's so scary. She's in good spirits, I just saw her on Saturday and she seemed okay and happy. But her body is seemingly giving strong signals that it's time to go. I'm just scared and worried and emotional right now. Ugh ugh ugh. I just lost my grandpa back in May. I'm not ready to lose another grandparent so soon. I just cannot deal with this right now. Please send me some happy thoughts (or Jammer/Allie/other pet photos).
Hope your Granma pulls through Cat ,
as requested heres a link to my golden retriever when he was young , this should make you smile ,
https://www.youtube.com/watch?v=Lv3qhvFXsZI


https://photos.google.com/share/AF1...?key=ajFQd04yUW1uTm1wWkxoU2tIeUpwZ3dYSEp2WXlR
 
Aw, Tony, your dog is gorgeous! Thank you so much for those links. I love golden retrievers!
 
Today I was in a tiny garden area at the motel with Jammer, when I was walking and my knee gave way, as did both ankles and I ended up on my back on the ground. Not very elegantly at that, tomorrow I catch the ferry back to wellington as I have endocrinologist on Thursday, then I sail back Thursday evening. We have 31'C here tomorrow ☀️[emoji274]☀️
 
I'm so sorry Kirst! I hope you're able to get around ok now.
I told Allie to send you some luvins, Cat, but I think she misunderstood which kind.
2017-01-10_2-28-1-1_zpsuyci8w4b.jpg

Many virtual hugs are coming your way though. 💛
I hope everyone has better days ahead.
 
So many lovely dogs,love your golden retrievers Tony,wish I could give them a hug very therapeutic watching them play
Kirsty...sorry about your mishap...you will have to get a good consultant for that knee...very dangerous..and I e
xpect Jammer was very concerned too.
Sandy who could resist ithose lovely eyes and beautiful face such a gentle looking pooch..
Would be nice to have a doggie tea party..
More snow today...good that I don't have to go out in it today...might try later...
Sorry to hear your news Cat...so hard to endure....
Feel better Everyone
Trysha
 
Kirsty,sorry about your fall me darlin', but I've told you not to put gin on your cornflakes !!! Did Jammer stand and look at you in amazement or did he jump all over you ? Dogs seem to love it when we fall over,all mine did.
 
Hi all...appears i spoke too soon . Updates gone west again 😕
Cat big hugs to you hun 💕💕💝
Kirsty sorry to hear about your fall. Hope your ok hun. 💖💕

Ron hope you feel better soon and its not a bad flare 💞💕
Doug so glad you are still getting the humira..way to go mr gi ☺💕💕

Tony best wishes to you. Hope theres no major issues for you. 💕💕
Trysha watch out in the snow hun. Hope your knee is improving. 💞💝
Sandy hope you are doing ok hun. yes thank you my cold is pretty much gone . 💝💞
Shanen hope your well hun.💕💕
To anyone i missed out :ghug: 💞💝
 
Thanks for your support, I appreciate it. Jammer was to busy sniffing lavender he has a thing for herbs. In Wellington now ready for endocrinologist tomorrow. Just at chemist getting antiflam
 
Today was a good day for me, after having a terrible flare up yesterday, and I just want to share some of the positivity and joy on this forum. :smile:

1) I got back my results for a national examination that I sat for in November last year, and I was glad that I improved from the usual C grade to a B grade. I know that there were many people who got an A grade in my cohort in my school (>50%), but I'm really satisfied with my B grade, with Crohn's and the absenteeism and all that. I feel that I don't have to prove myself to anyone, because I know that I've been through way more in the past decade than they can ever imagine.
\(^○^)/

2) I also celebrate my fourth week of Modulen as part of my EEN treatment today. I'm already halfway there! Can't give up now. Even if EEN fails to put me in remission, I feel that I should at least have something to be proud of. That I stuck to this rigorous regime despite all the judgement that I'm facing in school from my classmates and teachers.
\(*^▽^*)/

I'll be leaving for the hospital for an appointment with my GI and an infection specialist, and hopefully there will be more good news when I arrive. I don't want to get my hopes up too high, but I'll update everyone on how it goes as soon as possible.

Hope everyone has a wonderful day today! Stay strong everyone! Don't let Crohn's get you down! < (^^,) >
 
Today was a good day for me, after having a terrible flare up yesterday, and I just want to share some of the positivity and joy on this forum. [emoji2]

1) I got back my results for a national examination that I sat for in November last year, and I was glad that I improved from the usual C grade to a B grade. I know that there were many people who got an A grade in my cohort in my school (>50%), but I'm really satisfied with my B grade, with Crohn's and the absenteeism and all that. I feel that I don't have to prove myself to anyone, because I know that I've been through way more in the past decade than they can ever imagine.
\(^○^)/

2) I also celebrate my fourth week of Modulen as part of my EEN treatment today. I'm already halfway there! Can't give up now. Even if EEN fails to put me in remission, I feel that I should at least have something to be proud of. That I stuck to this rigorous regime despite all the judgement that I'm facing in school from my classmates and teachers.
\(*^▽^*)/

I'll be leaving for the hospital for an appointment with my GI and an infection specialist, and hopefully there will be more good news when I arrive. I don't want to get my hopes up too high, but I'll update everyone on how it goes as soon as possible.

Hope everyone has a wonderful day today! Stay strong everyone! Don't let Crohn's get you down! < (^^,) >
Glad for your good news.
 
CYY.....that's a good start to the new year,I hope you go from strength to strength.

And of course,everyone else who has been struggling lately,you know who you are.Hugs.
 
Just got back from the GI and the infection specialist. Turns out, I don't have TB. Whew! Didn't waste all that money on Modulen for nothing.

The GI said that flares and green coloured diarrhoea in the middle of EEN were perfectly fine, as long as the flares have been decreasing in frequency, I don't feel so tired anymore, my inflammation levels are going down and I'm gaining weight. My CRP has dropped from 49 to 27 in this one month, and I've gained a total of 1.4kg so far. It's great news for me, but my GI wants to keep me on observation for about 1-2 weeks more, despite my protests. If all goes well, and I'm crossing my fingers right now, I should be able to start Azathioprine by mid February. :)

Was reminded of how suckish Crohn's was at the hospital today, when I got a look at my road to diagnosis. Here are some fun facts that I've compiled:
1) I've got a total of 4 doctors caring for me, and had been on the verge of adding a fifth.
2) I've burned through 5 appointment cards in the last 1.5 years alone, 3 of which were in the last 3 months.
3) I skipped about a month's worth of lessons in total, due to my numerous medical appointments and constant absenteeism.
4) I've donated more tubes of blood than I've done revision papers for my end-of-year examination last year (30 plus and counting).
5) There have been at least 31 different medical students (out of a cohort of 300 plus each year) that have sat in during my consultation sessions with doctors and interviewed me during my hospitalisation stays over the past 3 months.
 
Today I was in a tiny garden area at the motel with Jammer, when I was walking and my knee gave way, as did both ankles and I ended up on my back on the ground. Not very elegantly at that, tomorrow I catch the ferry back to wellington as I have endocrinologist on Thursday, then I sail back Thursday evening. We have 31'C here tomorrow ☀️[emoji274]☀️

Hope you are ok after your tumble Kirsty , hopefully the nice weather will help you feel better , really jealous of those 31c temps .
 
Just got back from the GI and the infection specialist. Turns out, I don't have TB. Whew! Didn't waste all that money on Modulen for nothing.

The GI said that flares and green coloured diarrhoea in the middle of EEN were perfectly fine, as long as the flares have been decreasing in frequency, I don't feel so tired anymore, my inflammation levels are going down and I'm gaining weight. My CRP has dropped from 49 to 27 in this one month, and I've gained a total of 1.4kg so far. It's great news for me, but my GI wants to keep me on observation for about 1-2 weeks more, despite my protests. If all goes well, and I'm crossing my fingers right now, I should be able to start Azathioprine by mid February. :)

Was reminded of how suckish Crohn's was at the hospital today, when I got a look at my road to diagnosis. Here are some fun facts that I've compiled:
1) I've got a total of 4 doctors caring for me, and had been on the verge of adding a fifth.
2) I've burned through 5 appointment cards in the last 1.5 years alone, 3 of which were in the last 3 months.
3) I skipped about a month's worth of lessons in total, due to my numerous medical appointments and constant absenteeism.
4) I've donated more tubes of blood than I've done revision papers for my end-of-year examination last year (30 plus and counting).
5) There have been at least 31 different medical students (out of a cohort of 300 plus each year) that have sat in during my consultation sessions with doctors and interviewed me during my hospitalisation stays over the past 3 months.

I know that it feels suckish at the moment but at least you seem to be getting great medical care , the more doctors the better chance of recovery (i hope)
the medical students can be annoying at times but the way I look at it is that I try and influence them in a good way when they are taking medical histories ,
I try and tell them that the most important thing is to LISTEN to the patient , a lot of doctors don't listen and if I can get even one or two to listen more to their patients its worth the hassle ,
hope you feel better soon .
 
I always let medical students into the exam room, too. My doctors always tell me I'm a "tricky case" (I'm still not fully diagnosed, it's been 7 years and counting, they are pretty sure it's some type of IBD but they can't seem to figure out which one specifically or where exactly in my digestive system it's hiding). So, since I'm such a tricky case, I figure it's good to get every possible set of eyes on my case. Who knows, maybe someday a med student will have a good idea or suggestion that will lead me to my proper diagnosis. Probably not, but it doesn't hurt to have them take a look at my case anyway.

I'm in a mood today. Specifically a grumpy mood. I got a new fitbit because I lost my old one, and I'm not sure that I like the new one. I think my old one was more accurate. Also work has been really stressful and stupid, and the weather is very gloomy. Everything is just blah. It's one of those days where I wish I could just stay in bed.
 
Feeling the same way Cat. Can't seem to get warm, tired of cold and snow and work is stressful with coworkers acting stupid. I'm cranky and liking it. 👍
 
We've had more ice than snow here lately so the roads and sidewalks have been a slippery mess. At this point I'd happily take snow instead of more ice/freezing rain! Ugh. I tried taking a walk on my lunch break but I was going at a snail's pace because the walking path was so slippery. At least in snow I could walk in my snowshoes.

Ron, it is interesting, but I'm just not sure that this particular fitbit is super accurate. I'm tweaking some settings on it to try to get it to work better. My old fitbit seemed more accurate but I lost it somewhere and it seems to be gone forever. :(
 
Sandy,Happy Birthday......I hope I got the right date this time hahaha.I hope you feel well enough to enjoy your day.If not,sit back and be pampered.



:drink::rosette2::dusty::bdayparty::cheerss::birthday2::sun:
 
Grr....can't sleep with all the pain from the surgery...it will be nice when it all heals
.when the ache stops where does the pain go?
On the plus side friends are driving me to buy a new microwave... the other one I had three years old developed a fault with the timer... it switched itself on and kept running the numbers.Ghostly....
Also our temperatures have soared upwards of 2C...so the snow has turned to rain....for now....who knows what tomorrow may bring?
Currently listening to coast to coast ...ufos and all that space age can bring.
It's an all night radio programme which sometimes has some good scientists reporting.
Anyone else find the state of world politics somewhat foreboding....?
Looking at making my own bread...have done it before but it's a bit laborious...anyone have any success with this?
Hope you are feeling better Kirsty......
CYy...congrats on your exam results...that's very well done with all the obstacles you have had to face
Cat..hope you are feeling better
Sandy your pictures are so lovely....hope you are feeling better
Still a dark night sky...looking forward to the dawn and maybe some sunshine today....brightens everything
 
Trysha,is it "normal" to be in so much pain for so long ? Have they said why and how much longer you will have to tolerate it ? I know you're not one to complain and want to get on with your life, so you must be suffering.I hope you managed to get some sleep.Hugs.
 
Grr....can't sleep with all the pain from the surgery...it will be nice when it all heals
.when the ache stops where does the pain go?
On the plus side friends are driving me to buy a new microwave... the other one I had three years old developed a fault with the timer... it switched itself on and kept running the numbers.Ghostly....
Also our temperatures have soared upwards of 2C...so the snow has turned to rain....for now....who knows what tomorrow may bring?
Currently listening to coast to coast ...ufos and all that space age can bring.
It's an all night radio programme which sometimes has some good scientists reporting.
Anyone else find the state of world politics somewhat foreboding....?
Looking at making my own bread...have done it before but it's a bit laborious...anyone have any success with this?
Hope you are feeling better Kirsty......
CYy...congrats on your exam results...that's very well done with all the obstacles you have had to face
Cat..hope you are feeling better
Sandy your pictures are so lovely....hope you are feeling better
Still a dark night sky...looking forward to the dawn and maybe some sunshine today....brightens everything

Hey Trysha sorry to hear you are in so much pain , does your hospital have a pain management team? this day and age there is no need to be in so much discomfort , be more proactive(if you are up to it) and demand more help with the pain ,

Have you tried audio books when you cant sleep , I found them really helpful when I could not read in the normal way , really great for taking you to another place away from the pain ,
Hope you feel better soon .


PS HAPPY BIRTHDAY SANDY , WE ARE THE SAME AGE FOR ANOTHER SIX MONTHS :dusty:
 
Yep, I turned 56 today. I like being 55 a lot better, it had such a nice rounded number.
And I am inch by inch feeling a lot better physically than a while ago. That lung function study still has me coughing, but not as much, and the heart racing has slowly been getting back to close to normal also. Speaking of which, I got test results for the lung function test and my leg ultrasound back the day before yesterday, and Doug said I should have seen my eyes bulge out when they told me that my lung function study came back normal. It really did surprise me because of all the difficulties I have had with my lungs between asthma and pulmonary emboli, not to mention the fact that from patient portal records I know I have scar tissue and very small portion of collapsed lung mentioned in every radiologist report of the chest area since the PE. However, they also mention that though my lung capacity is diminished, I have "adequate" so I guess I shouldn't be surprised.
As to the leg ultrasound, no blood clots (YAY!) but I found out that my veins in my legs, both the deep veins and the superficial veins, are enlarged so now I have to wear compression socks for the rest of my life. (Apparently the veins will never go back to normal.) They suggested that I consider a vein ablation procedure sometime in the future, but will still always need the compression stockings. It turns out that my achy legs are caused from this and not from neuropathy as I have been told in the past. The good thing is that I was able to treat myself to a massage yesterday and that does help.
As to grouchy moods a couple of you talked about, I'll just say that you have had company. I try and try to make it better, but my neurologist said that it is just situational stress and depression and should lessen. Some it has, but it goes in spurts. Yesterday was exceptionally bad for me also.
Trysha, I am also very concerned about you. It seems to me that your pain should have been subsiding significantly by now. Things just never go easy for you do they? I hope your surgeon comes back quickly so you can get things under control. You are in my thoughts and prayers (as are many of you).
Happy day to everyone!
 
Madhu, I'm 37 and I feel somewhat similar. Some parts of adulthood are great - like, if I want to spend my money on stupid stuff like legos, or if I want to have cereal for dinner, I can totally do that and nobody's going to tell me I can't. All the immature impulses, I can totally act on them if I want to. :p But yeah, the other stuff about adulthood, like having to have a job and pay taxes and all that stuff, not so fun.

My most favorite part about adulthood? Grocery shopping. :) That sounds stupid but it's true. I love making a list and planning what I'm going to eat and going to the store and putting all the yummy things in my cart. I love walking down the coffee aisle and just inhaling deeply - I can't drink coffee but I love the smell of it. I love being able to buy whatever foods I want and trying new things. I don't like cooking, but I love grocery shopping.
 
Happy Birthday Sandy, I just turned 60 in Dec, I don't feel that old most of the time, then some days I feel 90 +
 
Happy Birthday Sandy, I just turned 60 in Dec, I don't feel that old most of the time, then some days I feel 90 +

Comparing health notes with my mother who is 87, other than her dementia, if I didn't know better, I would swear I have an older body. I know what you mean.
 
Happy Birthday Sandy [emoji253][emoji253][emoji253][emoji253][emoji253][emoji253] enjoy your day.

I'm doing ok just sore, very hot here today it's 6:15 pm and 26'C
 
HAPPY BIRTHDAY Sandy 🎉🎂🎁💐.

Guess where iv found some of my low updates..in my spam box!!!! Have marked them not spam so heres hoping i get them back to my inbox .

All of you having trouble with aches n pains etc i pray they are short lived 🙏💕 and soon things are much better.
Sending everyone my love n best wishes 💕💞💝💖💋💋
 
Oh just looked out of my window...and snow has fallen not much but still il bet the roads come to a stand still as per norm in this country if half an inch falls 😯
 
Hi I've just come back from after hours doctors. They said I've got 2 sprained ankles, sprained collateral knee ligament, sprain in a should ligament, sprain wrist and a headache. I just got to rest ice compress elevate and start taking my pain meds. And stop falling over.
 
Ah Kirsty,I'm so sorry sweetheart but I had a little giggle at your expense.I know that's not nice or funny but I imagined you as a cartoon mummy with Jammer tugging on a loose end......feel better soon x
 
The funny thing is when she asked about pain. I said it's about a five. It's annoying but nothing compared to my bowel cramps at a 9/10 or my skiing accident or car accident they were my 10/10.
 
Hi I've just come back from after hours doctors. They said I've got 2 sprained ankles, sprained collateral knee ligament, sprain in a should ligament, sprain wrist and a headache. I just got to rest ice compress elevate and start taking my pain meds. And stop falling over.
I hope you get better soon.
 
Aura, holy cow! You are the sprain queen (and that's not a crown anybody wants!). I agree, stop falling over! And feel better soon.

Sandy, I can relate, when my grandpa was alive we'd compare our illnesses too. He was 84 and really sick and in a wheelchair, but we still had a fair bit in common health-wise. Like, a few years back, my grandma was cooking us lunch, and she asked if we wanted any vegetables. I automatically said no, and my grandpa added, "No, we don't want any, because then we'll have to go to the bathroom seven times!" I guess grandpa had dodgy guts as well.
 
Hi I've just come back from after hours doctors. They said I've got 2 sprained ankles, sprained collateral knee ligament, sprain in a should ligament, sprain wrist and a headache. I just got to rest ice compress elevate and start taking my pain meds. And stop falling over.


Hope you feel better soon .
 
Aw Kirsty...you poor thing you are in the wars hun. Worry not as im on my way over to wrap you in bubble wrap,so if you fall over again you wont injure yourself. With luck n enough bubble wrap you may even just bounce right back up.
:hug:💕
 
Mandy, bring enough bubble wrap for me too! Hubby and I did some remodeling last weekend, and at one point a shelf fell on me (I'm naturally very klutzy). Long story short, I'm covered in bruises. I had a GP appointment on Tuesday, and he took one look at my bruises and asked if I'm being abused. :p No, unless you want to arrest the shelf that hit me! ;) So maybe I need bubble wrap too.
 
Oh dear Cat..il pop by and wrap you too hun. Im a clutz myself and you could do dot to dot pictures on me most of the time. I should probably wrap myself while im on this mission 😃. Xxx
 
Ron, I seem to recall you saying that your father has Alzheimer's? I think I've read that that's a symptom of the illness, gradually the ability to speak starts to go away. :( Even if he can't/won't speak to you much, you can still go and talk to him. My grandma has some type of dementia that is probably Alzheimer's as well, and she likes it when I talk to her. Sometimes she says that she must have done something right as a grandma for me to come and visit her, so I tell her all about the wonderful things she did for me when I was little. Maybe you could talk to your dad like that? About nice memories from the past, things he might remember or at least might enjoy hearing about?
 
Ron i agree with Cat. Its a good thing to keep talking to him. Its such a hard and upsetting thing to deal with for the familys of suffers of dementia. I sure that your being there for him and talking to him, will be of great comfort to your father. Big hugs 💕💕
 
Bubble wrap is a good idea for a lot of us. Kirsty needs a double dose. Trysha needs hers extra tight until she can't feel anything anymore, ... well, maybe not such a good idea. Maybe with pain patches built inside. Extra strong and non addicting. And while I'm dreaming, everything else will be cured that needs it. And all brain fog and dementia will disappear. And a Hawaiian vacation is in there somewhere, along with a million dollars (tax free) each.
 
Lovely quiet Sunday here very hot, heard the rural fire service sirens three times today. Steve played golf and I rested. I did go to farmers market for coffee and bacon egg bap.
 
Insomnia strikes again...glad im off work. Nice one Cat glad your packers won..☺
Im now trying to decide if i stay in bed or get up !!!😕

Big hugs n love to all 💕💕:ghug:
 
Dave, where have you been? I see you came back when I posted everyone was getting a million dollars.
:ylol2::rof:
 
Thought for the day.......Did you know that humans share approx.50% of their DNA with


..........a banana !!!! It's true and I know Trysha knows it's true.
 
I think I'm speechless Carol, So am I eating a relative when I eat a banana?
 
Yes,and it does say a lot about some people hahaha.

How's your aches and pains Kirsty.Do you want me to pop over and see to the chooks and walk Jammer ?
 
Carol, I recognize your effort to stir me from a state of inertia and rise to the challenge.thank you for this
DNA is the blueprint for life and is found in all living things
It can be used for ID of people involved in crime,parentage of people and also plants and animals.,and to check for genetic defects.
So one might say all living things are somewhat connected but differentiated by the type of DNA.
Hope all of you who have been below par are on the way to feeling better...distractions are a good thing
On Wednesday I will be meeting with the orthopaedic specialist to find out why I still have
Pain issues...hopefully there will be solutions.That said ...things are improving during the day but not so good at nights.
Still getting physiotherapy and going for short walks plus doing five pages of exercises daily
I think our snow disappeared to England....today is sunny but freezing rain forecast for later.cannot win all the time.
Cheers!
Trysha
 
Carol, I recognize your effort to stir me from a state of inertia and rise to the challenge.thank you for this
DNA is the blueprint for life and is found in all living things
It can be used for ID of people involved in crime,parentage of people and also plants and animals.,and to check for genetic defects.
So one might say all living things are somewhat connected but differentiated by the type of DNA.
Hope all of you who have been below par are on the way to feeling better...distractions are a good thing
On Wednesday I will be meeting with the orthopaedic specialist to find out why I still have
Pain issues...hopefully there will be solutions.That said ...things are improving during the day but not so good at nights.
Still getting physiotherapy and going for short walks plus doing five pages of exercises daily
I think our snow disappeared to England....today is sunny but freezing rain forecast for later.cannot win all the time.
Cheers!
Trysha
Hope you get some answers.
 
Me too Trysha.I bet you've forgotten what it's like to be pain free.
I think we might as well forget about us all running in the London Marathon this year.
So,relax those of you who can't, and stop smiling those of you who were pretending to be enthusiastic,SANDY !!!! ;)
 
Does rather seem like that Carol...but
Never give up and never give in...
Hoping to take part in the Marathon...... later
 
Me too Trysha.I bet you've forgotten what it's like to be pain free.
I think we might as well forget about us all running in the London Marathon this year.
So,relax those of you who can't, and stop smiling those of you who were pretending to be enthusiastic,SANDY !!!! ;)

I'm not enthusiastic today. I'm going to go find a hole to climb in.
 
Still in Blenheim awaiting for a summer storm to hit. That's an oxymoron for sure. I'm stiff and sore in mornings but slowly getting there. Still can't bear weight on my knee. Very hot today 29'c
 
Kirsty....I know how it feels with painful knees
Ice packs can be helpful to ease the pain....I also find doing the prescribed exercises helps ...as well as the physiotherapy sessions but these can also be a bit exacting...today as a finishing touch the physio places a huge ice pack on my aching knee...initially I wanted to say he was mad...but after a little while the aching stopped so he was right
Tomorrow we are expecting ice rain...just when I am getting my hair restyled ....ready for the orthopaedic surgeeon on Wednesday morning...I prefer not to appear like the wreck of the Hesperus schooner that sailed the wintry seas....you get my drift..
If you are short on sleep maybe this email will have you dozing in no time
Sleep well and feel better
Trysha
 
Hey there
Ron I'm back on fortnightly Humira now. Only got weekly for three months.
Trysha I haven't qualified for physio yet. I need to go back to my doc when I get home to get referral
 
Hello everyone! Hope all of you are feeling great today! And if you aren't, here's sending some encouragement and comfort over to you. (づ。◕‿‿◕。)づ

Just got back from my (new) cardiologist and my dietician. I've clarified with my cardiologist about the possible relationship between my supraventricular tachycardia (heart palpitations) and Crohn's, since I was diagnosed with SVT about a year before being diagnosed with CD. Apparently, he thinks that there isn't much link between the two, and I shouldn't be too concerned about it. I think I'll just take his word for it and leave it at that, so as not to create more trouble for myself.

The previous patient before my consultation with my dietician was late today, so everything had to be pushed back and it was quite apparent that my dietician was rushing for time. Anyways, she was glad that I've been gaining some weight, although not as much as she had hoped for, but some nonetheless. I guess the next step for me would be to consider going on a LOFFLEX diet after I'm done with Modulen and start Azathioprine.

I know it's probably too early to talk about this, but I really wish that time flies for me while I'm on Modulen. Anyways, I'm keeping my fingers crossed that I'll achieve remission soon. Have a good day everyone! ●‿●
 
Kirsty....I know how it feels with painful knees
Ice packs can be helpful to ease the pain....I also find doing the prescribed exercises helps ...as well as the physiotherapy sessions but these can also be a bit exacting...today as a finishing touch the physio places a huge ice pack on my aching knee...initially I wanted to say he was mad...but after a little while the aching stopped so he was right
Tomorrow we are expecting ice rain...just when I am getting my hair restyled ....ready for the orthopaedic surgeeon on Wednesday morning...I prefer not to appear like the wreck of the Hesperus schooner that sailed the wintry seas....you get my drift..
If you are short on sleep maybe this email will have you dozing in no time
Sleep well and feel better
Trysha

most athletes are using ice now for recovery , ice baths in fact , can you imagine having to get into a bath full of ice ,
did not hear the expression "the wreck of the Hesperus " in a long time , hope you do better soon Trysha you really have been through the wringer lately , as have a lot of people on here .
 
Well hello peeps. ☺
Sorry to hear of those of you with troubles right now...keep your chins up. Im sure improvement is just around the corner.💕
Hang in there folks💞

Everyone who is doing well keep on doing so 💕
 
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