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Me too Trysha.I've been in touch with the Palace and they've agreed to postpone the wedding until you're feeling better.That which you will be watching on TV is only a rehearsal......so please don't sit on your hat.

The family have been here less three days and I'm shattered.Can't wait until they all clear off camping in Scotland on Sunday and I can have the place to myself for a few days.It's not that I don't love them dearly, but like most families,they're far more tolerable at a distance.
 
And then piggy ended up on the BBQ for dinner slowly turning on the spit to culinary perfection.
I havn't been here in awhile, sometimes I get this brain fog and nothing I read makes sense. Better today after a good sleep. Yesterday I managed to not only tarp the roof at the cabin, but I sawed down a monster of a dead birch tree that had become a widow maker with the dangerous limbs that kept falling onto the trail below.
 
Glad the fog lifted, Bufford... That tree sounds like a technical one to fell. I'm happy it was a success.

Good to hear from you, Trysha. Sending you big hugs.

I wish all of you the best! :)
 
Nothing like the peace and quiet of the place to yourself Carol...I know the feeling well being from a large family.
Thank you all for the kind thoughts and support it really helps.
Feeling a bit better today with lovely sunshine may take a short walk and see how the fresh air feels.
Looking forward to the great day tomorrow...another historic event.
Winning.....
 
Glad your feeling a bit better Trysha ☺. Take it easy and relax with a bundle of goodies to eat and watch the wedding 💞
Hi bufford glad to see you again. Oh dont mention brain fog ... im like constantly fogged up. I think im turning into a robot at times as i cant think straight. I muddle through life like its a box of chocolates,never knowing what each day will be like . Then forgeting half of what went on yesterday. I guess my own little bubble aint to bad because if i get offened by someone iv forgot about it within hours ☺💞

Hi everyone else ..sending love hugs and gratitude to you all. 💞💝💕
 
Thank Mandy...
I think our states of mind are similar at the moment.....I keep forgetting things..so I’ve started practising being in the moment...to retrain the filing system in my brain.
Too soon to tell if it’s working.....
Some of it could be due to medication....I long for the days when I took nothing and breezed through life....before it became a merry go round with the crohns+ ........
Now it’s a gale force with Meds and specialists coming out my ears.....you all know the drill.
Not a good night last night......daytime not much better...
Saturday has to be better.....always seemed that way when we were kids.......
Hope everyone has a good weekend with lovely sunshine especially for the royal wedding.
Think I’m
Winning......
(maybe!)
 
10am and I'm watching the lead up to the wedding as I potter about getting the camping "stuff" listed and ticked.It's a lovely day here and also in Windsor, which is more important.Spectators have been camping at the road side in Windsor for two days and I noticed some opening the booze already !!! Thought for the day.....how many portaloos
are available ? They're obviously out of sight or draped in the Union Jack, and when you need to "go" you're sure to lose your prime spot at the roadside.
 
That brain fog affects my decision making, I held off on that tree not being sure of myself. Finally my brain gets a clear day and I can understand better what to do. Chris it was a bit technical given how brittle dead birch can be. One eye on the saw, the other looking up to see if any branches start breaking off as the tree began its fall, and ready to run as an old dead tree can be unpredictable. Few things bring more satisfaction than dropping a big bad dead tree.
 
Who decided to name a day with that title Ron......and who wants to be reminded of it.....
It’s causing a lot of trouble for me right now....
Spent the day watching THE wedding.......how lovely it was...and all those expensive dresses and those silly fascination hats.Used to be beautiful hats years ago ...why are they not around any more..
I had some lovely hats...don’t know what happened to them..
So sad that Diana was not there to see her youngest wed......
Carol are you going camping?
Or using the equipment in the garden....
I am lying in bed stargazing and trying to relax.....
It is a warm night...I think it’s early summer but this morning was cold..
Winning....
 
The men left at 6am to get ahead of the weekend traffic.They're driving through Glen Coe as I write.My most favourite place to be.I'm on my own until Thursday evening but I've got things to do and places to be,so it will soon pass.My hubby and I haven't spent a night apart since I had surgery 29 yrs ago.....at least I'll be able to spread out in bed..
 
Chinese scientists are testing a battery operated capsule that treats constipation.
It vibrates through the gut to stimulate a bowel movement.......Great job,I hope it all works out.
 
Sandy and Doug I'm / we're getting really concerned about you both.....Kirsty you too sweetheart,let's know how you're doing..........:(.......:ghug:
 
scottsma said:
Chinese scientists are testing a battery operated capsule that treats constipation.
It vibrates through the gut to stimulate a bowel movement.......Great job,I hope it all works out.
Click to expand...


I've wondered if there would be a way to make a pad or seat that could stimulate the bowels using electric current. Who ever figures this one out will become rich.
 
I thought that when my hubby,son and grandsons went up to Scotland camping that I would enjoy the solitude and empty house.It's only been 29 hours and 6 mins and 14 seconds, and I hate it.Every thing is clean and tidy,the laundry's done,I can't enjoy a TV prog.because there's no one to share it with,I couldn't sleep last night,there's only one cup and plate to wash......When are you all coming to the party ?????
 
Operation Orange. I save up the used kitty litter from my big orange cat to fool the beavers into thinking that there is a lynx or cougar lurking in the area. Beavers fear the cats and stay away. I don't want them to build a dam in the area flooding the trail. I started doing this years ago with the litter box offerings coming from late Jake, an insecure cat that was afraid of its own shadow and wouldn't hurt even an injured bird. If the beavers only knew.
 
That's a good idea Buff.It obviously works if you're not under water and chopping your firewood with your snorkel on.
 
Carol : Sending you hugs. 💕

Bufford : Glad that old tree is out of your way.🙂

Ron : It looks like you are going to have to do your own laundry 😕

Trysha : Hope you start feeling better soon. ( yes, you are winning 😊 )

Tony: Your puppy avatar warms my heart. 🐶

cmack: How are you ❓

Fuzzy : Thank you for your caring thoughts. 🙏

Wishing everyone a great summer.🌞
 
Well I did sleep better due to...placing hubby's pillow lengthwise next tp me,so it felt like he was there,Amytriptilyne,CBD oil,magnesium and herbal sleepy time oil,rubbed in not drank,and a good long read.Off to the hairdressers soon.Guts not good today,so will walk up to town and if I'm not improved I will cancel apt.and come home......and wear a hat instead. It's only a 10min walk and I should make it to the library loos in an emergency.Have taken Loperamide too.
 
Feel better soon Carol.....you are in good company.......
It’s such a rainy day today......looking for sunshine ....
Winning...
 
scottsma said:
That's a good idea Buff.It obviously works if you're not under water and chopping your firewood with your snorkel on.
Click to expand...
Your not far off the mark. There was the year when I got back from a two week vacation only to find the ATV bridge floating and the trail under 1.5 meters deep in the water. Beavers are clever invasive critters, they even made it onto the back of our 5 cent coin.
 
I'm ok folks,thank you.Mornings are always a problem,some more than others.
You all know how it is,alas.
 
To all the ailing ducklings in the pond...get well soon. We need you back swimming 🦆

To those ducklings who are well..keep on swimming 🦆🦆

Big hugs and loves to all :hug: :kiss:
 
You have my support, Madhu. I will listen or help in any way I can. I hope whatever troubles you is something that can be helped. Speak openly if you want, you can decide what feels right to you. Hugs.
 
Thanks Ron and Chris. My husband is showing a lot of symptoms but we don't know if it's a flare yet. We feel that his new Dr is not being as proactive as we would like, and we have to push for everything. I have posted full details in the Remicade forum. But in short, he wants to do a colonoscopy and if it shows active crohn's, he wants him to stop Remicade and switch to another one. We are in the process of looking for a second opinion because we feel like we are not on the right path.

On top of all this, I'm sick as well. Both of us being sick at the same time is really taking a toll on us and we feel like the universe is against us. Why in the world can't we just be healthy? Argh!
 
I really feel for you two, try to get some rest so you can feel better. Those doctors can be really, really frustrating! I'm so sorry you have to struggle with this new guy, hang in there and go for the second opinion.
 
Madhu i really hope that things get better for you both very soon. Its always worth a second opinion and i hope that it helps get things back on track. :hug: xxx
 
hugs to everyone hope ye feel a little better soon , im doing really well apart from a few joint pains and hope everyone can show the improvement that im getting at the moment
ddd298e7b4502e75101a691ff18e78a7.jpg

just a pic of Alfie climbing on my foot support /chair , I think he wants his own chair
winning in the sunshine
 
Its with hope today is going to be a better day for everybody. Yesterday I was feeling the blues, trapped in a lousy body when I'd rather be at the cabin. I picked up my Ukulele and plucked away at a few tunes out on the deck helped dispel the gloom.
 
Tony he's just gorgeous BUT........a properly trained pooch should lie still while YOU rest your feet on THEM.....
 
Wishing good things for you, Bufford. Getting a new phone today.
Bufford said:
Its with hope today is going to be a better day for everybody. Yesterday I was feeling the blues, trapped in a lousy body when I'd rather be at the cabin. I picked up my Ukulele and plucked away at a few tunes out on the deck helped dispel the gloom.
Click to expand...
 
What a lovely picture Tony...I feel he is right beside me and such a loving cheeky look on his face.
Madhu sorry you are going through such a bad time and hope you will soon feel physically better.It can be such a drain when doctors fail to be compatible with optimal patient care.
A second opinion can be a good idea...never hurts...and it certainly saved my life doing this.
It makes it doubly hard for you if your health is suffering right now...and you are also in
unfamiliar terrain having made a big geographical move.
We tend to under estimate the significance of a big change in our lives but it can
have surprising effects...different food,water etc.
Feel better soon.
 
I was up at 7am today.I'm expecting an engineer to do the annual gas / heating service.
Trouble is my insides are iffy AGAIN. The Happy Campers are still that, and I'm on my own.So when I need to run to the bathroom I have to look out of the window to see if he's pulling up,then hope he doesn't ring the bell and leave while I'm busy.....it's the little things that make crohns so special hahaha.
 
Bufford said:
Great family addition Tony. A good pet goes a long way to promote wellness.
Click to expand...



he’a a good addition all right but he is going through a really annoying phase at the moment , he will not stop playing so we are crating him to control his mad times , I forgot how much hard work a young dog can be ut if you can get through the first two years the next 10 or so should be great
 
Here's a bit of interest for you.....The Victorians were a little bit obsessed with their bowels (aren't we all) and had a common remedy for clearing or purging....A "pill" made of antimony,which is a poisonous white metal,was swallowed when needed.It passed through the bowels causing vomiting and diarrhea (purging).The "pill" was then fished out of the bowl or wherever,washed and put in a jar on a shelf.Anyone in the family (or even anyone who called in for a coffee haha) who needed to purge,would then swallow the same pill and repeat the process.The pill was often handed down through the family like a nice piece of art or jewellery....
 
I have heard of that pill before. Sounds like a good idea.NOT!!!
I WOULD NOT like to re swallow my own pill never mind some one elses 😨😨

Hope to find you all well...if your not up too the mark i hope you are very soon. :ghug:💞💝
 
Carol...where do you get all the essential ..must know information from,,,,.?
We are becoming a well educated group with exclusive access to much needed information.
Watch this spot Everyone.
Tony....your dog sounds a lovely boisterous companion but needs his own room if he’s tearing up the place...
Yesterday we went to Niagara Falls...close to where we live and attended a special Requiem for my brother at the Carmelite Monastery situated above the Falls but within walking distance.
The grounds were so tranquil in contrast to the busy busy thoroughfares of sightseers
thronging the Falls.
We sat in the silent contemplative grounds for awhile amid the lovely flowers and beautiful shady trees..... before driving past the Falls on the way back home.
Made me feel so much better since I could not get to England for his funeral.
Last evening outside the local supermarket I saw a lady with two dogs one of which looked like a grey and white shiatsu mix and the other her brother I was told was jet black and twice her size with a smooth coat...very friendly but impossible genes by the look of it.
She said she had only intended to adopt one dog,the smaller ..but the black dog pleaded with her so she ended up adopting both...a lovely story.
Winning....
 
scottsma said:
Here's a bit of interest for you.....The Victorians were a little bit obsessed with their bowels (aren't we all) and had a common remedy for clearing or purging....A "pill" made of antimony,which is a poisonous white metal,was swallowed when needed.It passed through the bowels causing vomiting and diarrhea (purging).The "pill" was then fished out of the bowl or wherever,washed and put in a jar on a shelf.Anyone in the family (or even anyone who called in for a coffee haha) who needed to purge,would then swallow the same pill and repeat the process.The pill was often handed down through the family like a nice piece of art or jewellery....
Click to expand...

WHAT 😳. Yikes.
 
Trysha what a lovely place to remember your brother. Sounds idylic for contemplation and memories to be best done. Peace and quite to infuse those thoughts and get pleasure from the surroundings. 💞:hug:
 
Looks like im winning for once ☺

We seem to be a few people short here at the mo. Sandy Doug kirsty to name a few. I hope you are all ok and just busy. Sending my love to you all. 💞💝💕
 
Yesterday was a slow one, kinda like a down out, but it could be that I will win a round today to make up the difference. Hoping everyone will win one or two.
 
Suddenly it’s summer....could be the heat wearing us all out...
Maybe everyone is travelling to a quiet spot!,,,.?...
I’m glad it’s only 28C today with a slight breeze cooling the air...
Seems dull now that THE Wedding of the year is over and the happy couple enjoying
deepest darkest Africa.......maybe.......
Winning.......
 
Had lovely day at the seaside with jaxon his mum and dad and his mums friend with her little boy ...mmm jaxon is not keen on sand. Then neither was my son (his dad). To be fair im not a great fan of sand but its got to done eh !!!☺☺☺💝💞
 
Fuzzy : Sounds like you are having having a great time. I am glad that you have this opportunity to spend time with your family. 🙂
 
Top of the morning to you Carol and all my fellow cronies
Hope you are now sleeping well Lynda
Mandy how lovely to be beside the seaside...beside the sea..even though the water is cold.
Trouble with sand..it gets everywhere and it can be hard to walk on it...but it all spells summertime which can be so short.
It is very hot here...you can fry an egg on the sidewalk...but I prefer the conventional 🍳 frying pan.
So we are hosting the royal newly weds ...they are coming to Alberta...very scenic and has isolated areas to enjoy away from madding crowds.
We have stayed in the same area....how lovely for them.
Might stay indoors today till it cools a bit....plenty of chores to do
Appointment with doc tomorrow....doubt if he can stop the perpetual ache though....
acupuncture helps maybe it will all go away someday....but I just caught a pig flying by the window...
Winning.....
 
Good day to everyone xx

Thanks for all your support. We met another doc for hubby and she seems really nice. Like she knows her stuff. She wants to do scopes for him and run a few more tests to see if remicade is still working.

If we find out it's not, she spoke about entyvio and stelara. I'm hoping it doesn't come to that. Keeping my fingers crossed [emoji173]
 
Aw glad you have found a doctor you like Madhu. May all go well for you both now. 💞

Trysha they are coming over your way because you couldnt get to the wedding. 💕

Lynda thanks...i sometimes feel i get to much time with my family haha😃😃. I feel im due 6 months on a desert island 🌴 💞

Carol i you are causing trouble anywhere....i know what you are like haha. Hope you are feeling well. Xx

Love n hugs to all :ghug: 💞💕
 
Lynda Lynda said:
Chris, how are you ❓
Click to expand...

RANT ALERT!

Things aren't great at the moment, I try not to complain though. I'll be okay, I just need some time. I need to rest and regroup. I have a lot going on right now with my disability appeal, (yes I have just been denied) and the arbitrary deadlines, appointments... another appointment today, not nearly enough sleep, haven't eaten in three (or is it four) days. To put a huge cherry on top of everything, my buddy who recently died likely offed himself. I will really miss him... I honestly am kinda upset and disappointed with him if he took that way out. I wish he had told me how he felt, maybe something could have been done, what a week! If you aren't disabled enough when you start the application for disability you will most likely be legit mentally disabled by the time you ever get accepted. There is no legal aid here locally, I have no way to drive to see legal aid in another town and I can't afford a lawyer. I don't travel well due to accidents and I could fry an egg on my head right now I'm so steamed! I have had it up to my eyeballs with this junk! The people who need help the most just get treated like a damn pile of manure.
 
Oh Chris, I'm so sorry about your friend. Why do they keep denying disability? Geez, as though you don't have enough to deal with. I hope they take care of it soon. Rant away. I hope it makes you feel better
 
Chris...I’m so sorry for all the pressure and sadness you are going through.
Regarding the disability allowance ..just don’t give in.
Get in touch with your MP and MPP and send copies to Mr Trudeau.....well you never know your luck...if you can call it that.
It is possible your friend may have died from other causes and information not yet released
May throw some light on it..
It is certainly quite a burden for you that you must release otherwise your health will suffer.l
Lots of prayers for you.
Take care...
 
Madhu...so good to hear you have found a better doctor and she is certainly going about things the right way.
With the scope she will be able to do a good evaluation and if necessary change the medication.
It is so vital for us all to be cared for by doctors we respect and who respect us and listen to our concerns.
Winning...
 
Chris,sending big hugs your way. It is very sad you've lost a friend, no matter what the circumstances.We none of us know what tomorrow will bring,but I really hope things will begin to get better for you.You've brought a lot of good things to your crohnie family,and you're much appreciated here.
 
Chris,
As Trysha said going to your MPP if its provincial or to the MP for federal (thinking CPP disability). This would be a good step. Before my retirement I had to apply for CPP disability and was declined several times. It took close to 3 years to get approved and i had to get a legal aid lawyer or else I would not have been able to win.

Losing a friend as you did is not easy to accept. My nephew in law took his life many years ago. It came as a lightning bolt out of the blue, and has been hard. We live in troubling times, in many ways I believe we are living in the most difficult and challenging of times in human history. The cost of living is going through the roof, the governments are not helping, but rather are the root of the problem. Then to top things off the government is not there for those of us with needs. Instead they just jack up the taxes, squeeze our choices, and make life difficult. Yes, indeed it felt good for me to vent, I share many of your concerns.
 
Aw Chris how awful. I hope your friends death was natural causes. Not that that makes the loss any better as such. When its their own life taken it is so much worse for those left behind. It causes us to think things like ..if only i knew how bad they felt,i could have helped if id known,why could they not have come to talk to me. Sadly many dont tell anyone anything and thats the saddest part.
As for getting your disablity..what a farce the governments make of that. Its just down right bloody cruel. Its the same here. If you can wipe your own behind n make a brew, you get sod all. Unless you know how to work the system. Which most of us genuine people have no idea how to do. Makes me so mad😠😠.
Wishing that things could be simpler and easier for us to get the help we need. Maybe its time for a revolution to wake the powers that be up to how bad our lives can be.
Sending love n hugs 💕:hug:
 
Just wanna say...you people are awesome! It's so great to have such kind and supportive friends that understand. You are all amazing and truly one of a kind. Thank you all so much for your support, I can't even express how much it means to me. :) Crohnie fam 4 life!
 
An idiot maintenance man was trying to replace my shower fixture ( the part that turns the water off and on in my shower. ) He broke it !! He flooded my kitchen and bathroom. !! A gusher of water. I couldn't believe it. A small bit of my living room carpet near the kitchen got wet too. I was having a panic attack and took two .05 Clonazepam pills !! Then I had to remove everything out of my closet, my closet is located in my kitchen because this is tiny apartment. I had stuff stored in cardboard boxes in my closet. My computer was in its case on the closet floor. I removed everything from the closet and put it in the living room. Maintenance men not even apologetic. Two maintenance men just as acting like it's no big deal. This apartment is a ghetto. And they just raised my rent by $50 a month. After the fixture was fixed the guys just used a shop-vac and were gonna leave!!!! One guy did actually wipe down my floors with a dirty rag after the shop-vac, big wow. My floors and shower and toilet were all hit by this gusher of water. They were gonna leave it to me to clean it up. I said I want to see the manager!! This is like at 5pm. Manager was not even apologetic. I have lived in apartments almost my entire adult life and have never seen anything like this. I am not cleaning up THEIR mess. I'm disabled. Manager has arranged for the cleaning gal to come to my apartment at 7am tomorrow. Carpet cleaners will be here by noon tomorrow. The manager made it sound like it was a big deal to give me me free carpet cleaning coupon. I have lived here 8 years, pay my rent on time and and I am a quiet and clean and respectful tenant. I knew that this flood was going to happen because that shower fixture is possibly 45 years old. My stomach hurts so much !! Now I have to go to Target and spend my own money replacing my cardboard boxes I used for storage and get plastic containers just in case it happens again. Lucky for me I am organized and have no clutter. I know that no one got hurt or died. It was °100 out this afternoon and I had my front door open to hopefully dry stuff up. I just got that new kitchen and bathroom floor tile last year. Now I am sure all the kitchen and bathroom floorboards are soaked and also under the flooring. My original plan was to relax tomorrow. The part that bothers me most is the maintenance men and manager making it sound like it wasn't a big deal. I am so physically tired right now. I'm just so tired. I just want to be treated with respect by these people. I gotta go relax now, maybe.
 
Last edited:
Lynda...I think that is so awful....those maintenance guys are responsible for properly cleaning up the mess they made and the building manager should ensure your property is secure.
At least there is a crew coming tomorrow and I hope they do a really good job.
Trouble is these days the work ethic has flown out the window.
If I lived near you I would help and also bring you a big bouquet and a nice box of chocolates....
Try and keep cool about it all ...tomorrow is another day and I hope it will be a good one for you.
Till then sleep tight and gather energy for tomorrow’s events.
Big hugs.....
 
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