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You're awesome,Trish. Never forget it for even a minute! You make me smile my good friend. :) We even have our darn messed up shoulders to match! (different sides don't count) We both did a good one...;)
 
Hi Izzie,

Izzie said:
Today I cried on the phone with a healthcare professional. A first, for me :p
I cried in the office with my gastroenterologist last month when I realized that I would no longer be able to manage my Crohn's with diet and supplements. Surgery and drugs were always the last resort in my book, and it took alot to accept my new "life". My heart goes out to you.

Trying to get into a routine lately. I'm bad at routines, they bore me, but it's helpful to actually get things done.
Yes, I agree! And the older I get, the more I seem to need that routine!

Anyone read any good books or watch any good movies lately. I could use a nice distraction right now....
Click to expand...
Just finished a quick amazing read called "Brain on Fire" by Susanna Cahalan. This amazing lady suffered an attack of a rare autoimmune disease that strikes the brain and causes symptoms of schizophrenia and other mental disorders. She lost an entire month of which she has absolutely no memory. Made me think alot about autoimmune diseases in general and glad I didn't have to go through that!
Hang in there!
 
Trysha said:
Hi Chris.....how are the fires and smoke settling down.....hope you are not being affected by
it still.
Carol.....the shops here are displaying all the Halloween stuff...thought you might like to know this just in case you need anything........just saying....
Anyone have any tips on eating.....I find it impossible right now.....off dinners ...can’t get through them...most I can eat is Rice Krispies...with lots of milk(skim)at breakfast time.
I never feel hungry and often go the whole day on water,tea and milk....
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I've just had my lunch after a peddle along the coast and it's 3-45pm.I had porridge with coconut and fat juicy raisins made with unsweetened almond milk,although I did sprinkle some crunchy brown sugar over it which defeats the purpose,of course.I was really hungry, which is unusual for me.I will have Miso soup and cheesy crackers this evening.I never eat dinners although I do cook from scratch for himself every day.
 
Many thanks to all of you for your warm welcomes! I felt so isolated when I found out that surgery and drugs are surely going to be a part of the rest of my life. These two options were, at one time, the last resort-end of the line- almost death sentences, in my mind. After getting through some tears and pain, I am finally reaching a stage of acceptance. Reading all the stories in this forum has helped me so much-you all are an inspiration!
This weekend I will be backing off on the prednisone from 20mg to 15 mg a day- this will be for a two week period so I can get a Hepatits A and B vaccine, and a flu vaccine. (Apparently the prednisone can make the vaccines ineffective.) I am also on 100mg a day of azathioprine, which apparently doesn't affect the shots. A week after the shots, I start on Remicade infusions. I was scared to death to start, but lots of people are finding relief and remission, so I am not so frightened any more. Doc thinks surgery is still in my near future, due to strictures, but we are going to wait and see what Remicade does first.
My hugs to you all!!!
 
Welcome nuttyguts ☺.
I hope you know you have joined a band of nutters here 😃😃😃.
We enjoy a laugh and flights of fancy ie xmas parties and get togethers that take place only here😃
We are also very supportive of each other through the good the bad and the downright ugly parts of our lives. So again welcome to the mad house 😃😃
Some here will say they are not mad but dont believe them :rof:

Love n hugs to all my fellow nutters ;)💞💝
 
Hi everyone, I skimmed through the last 2 days posts and was going to say to Izzie my husband has crohn's too, and then realized this is crohnsforum. Oh stupid pregnancy brain. I'm not allowed to make any major decisions on my own anymore. Lol.

Hugs to you, Izzie. And hi, nuttyguts. It is very very hard to accept this reality but please know you are not alone and we are here for you. Nuttyguts, remicade was the life saver for my husband. He has been on it for 3 yrs now and currently we are going through a stage of uncertainty where we see if it still works for him. I hope it works well for you [emoji173]
 
Carol...wish I could breezily cycle through the country lanes....eying book sales as I sail through the wind enjoying sea air.......if wishes were 🐎 horses 🐴 beggars would fly...
Looks as if you are also a vegetarian like me...though I’m not dyed in the wool one...I just don’t like meat...
Chris...wish I could transport you to a fresh air seaside resort with no air pollution....
Mandy...I feel challenged by your grouping of nutters and wish to state ...being a rare bird 🦅 that
I am not one.....but fully sympathetic to those who are.....
Madhu....hows the babe....and how are you....wont be long before you are a threesome
Stay well as you you can everyone and look forward to the balmy Fall weather...
 
The woods are lovely
Dark and deep
And I have promises to keep
And miles to go before I sleep....

Tom Dooley? I think....
 
I love poetry and that's one of my favorites. I think of it often. I thought I'd post the whole thing. :)

Stopping by Woods on a Snowy Evening
-By Robert Frost

Whose woods these are I think I know.
His house is in the village though;
He will not see me stopping here
To watch his woods fill up with snow.

My little horse must think it queer
To stop without a farmhouse near
Between the woods and frozen lake
The darkest evening of the year.

He gives his harness bells a shake
To ask if there is some mistake.
The only other sound’s the sweep
Of easy wind and downy flake.

The woods are lovely, dark and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
 
Hi Trysha, we are both doing good. I had a scan today and she is right on track. Can't wait for Dec, but it also scares me. Lol. Hope you are doing much better now [emoji173]
 
Aw good to hear the scan went well and things are going as they should ☺☺.. i bet you cant wait!!! I cant wait never mind you,i am just that pleased and excited for you both. Yes its scary but once the wee baba pops out all will be forgotten, as you will look upon the baby and the joy and love you feel will wipe the pain youve just gone thro away. One thing to remember when in labour...it doesnt last forever and their are drugs available USE!!!them thats what they are there for. 💞💕💝
 
The first computer dates back to Adam and Eve. It was an Apple with limited memory - Just one byte then everything crashed......
 
I had setbacks after lifting too much which scrunched and aggravated my gallbladder. Just resting and letting the worn parts find their place. Bad time for this as there is much to do around here before the snow flies. Just checking in.

Good to see everyone alive and kicking.
 
Hope you soon feel better Bufford.......maybe the gallbladder needs removal...
On the other hand all my problems started with gallbladder...it was removed....and gradually.. insidiously .....Crohn’s crept in....undiagnosed for a few years then all hell broke loose
familiar story to many....
We are gradually sliding into 🍂 🍂 Autumn.......
Still too hot here to contemplate it..
 
Our Autumn arrived yesterday but nobody told the weather unfortunately.I can't wait for crisp fresh air and dark cosy evenings with the lamps lit. Surely it can't be long ?
Oh,season of mists and mellow fruitfulness.

Still,only two months to Halloween.The shops are full of trash already.I'm so excited I could crush a pumpkin...…..NOT.!!!
 
Soon it will cool off ....and pleasantly cool weather to follow.....after which comes the crunch
Of icy winds and snow transforming landscapes.
Then we will want the warm weather back......
Happy Sunday Everyone.....
 
Carol I too am looking forward to those cozy long evenings of fall and winter. My favorite part of the day is usually past sunset when the rush of the day has passed.
 
Have you heard about the drummer who gave his four daughters the same name ?

Anna 1,Anna2,Anna 3,Anna 4...…...:dance::dance::dance::dance:
 
Do you really make these up Carol.....I look forward to these at breakfast time...(ie..our time zone)......I know you are already into lunch as we get up in the morning...
Really fed up with cronies symptoms...up half the night.....bit better now.
Scopes scheduled for Thursday week......not sure if I can go through with it all....may talk to the GI about it.Things have not been good throughout August....very hit and miss.
It is already unbearably hot and sticky here...brilliant 🌞 sunshine ..wouldn’t mind a spot of rain..
 
Trysha, I never look forward to the scope, the miserable prep and the inconvenience of it all. However, it may show up what ails you. My nights have been hit and miss, more miss though trying to get into a comfortable position that may last for more than a few moments or minutes instead of tossing and turning like the wash only to wake up foggy and tired. One of the reasons for why I am not posting. I read the posts but they make no sense to me despite the black coffee.
 
Bufford..sounds as if you are a lot worse off than me.
I know what you mean when things don’t seem to make sense...sleepless nights do that causing all sorts of problems.
Feeling a bit better since the storm and a short walk in the fresh air....
 
Hi all. Hoping for improved health for you all and that which ever weather you prefer you get. Me im a warm weather girl. My mum is being moved to a rehabilitation home dont know when just yet but hopefuly soon. We want her back on her feet asap.
Love to all x
 
I hope Mum will be close enough so that it doesn't cause you too much aggro Mandy.Tell her she's an internet star and we all wish her a speedy recovery.
Trysha and Buff.Sorry you're both struggling.Feel better soon.And Trysha,as much as we dread scopes,it's only two days upset and it might be beneficial.I'll pop over on Little Blackie and take you for a spin in the front basket (my hubby has plants in it just now,but I'll willingly tip them to cheer you up).And no,of course I don't make them up.silly.I've got a library don'tcha know ?
 
PS.I've been taking cider vinegar and honey (Honeygar) twice a day for a couple of weeks and my digestion has improved noticeably.Of course it might just be a fluke,but I'll take what I can and gladly.
 
The roast chicken sat well on my stomach, and had a better sleep last night. The kids go back to school today, it makes me thankful for retirement.
 
The kids over here went back today too.The thing is, I remember moaning about the onset of the hols but I'm blowed if I can remember what I've done for the last seven weeks. So that's another seven weeks of my life wasted...….
 
Wasted maybe not. My memory often fails me, but perhaps some things are not worth remembering. The main thing is that we are alive and kicking in the present.
 
Carol i will give her the best wishes and tell her of her internet stardom ☺. Well she was told this morning she would be moving to today. To a place iv been told by a friend at work is really nice and good. I also pass it each day going to & from work. Result...only thing is the place doesnt accept transfer paitents after 5pm n mum was kept waiting in discharge room, from lunchtime waiting on her meds till gone 6pm so it will now be tomorrow. Nothing has gone to plan since she went in 3/4 weeks back.
At least she is moving out of bed abit now and is not in as much pain. Hoping she will be back home in a few more weeks.

Hope everyone feels better soon those of you who are not up to par. Those doing well keep on doing so. Big hugs n loves :ghug:💝💞💕
 
Lachanophobia.....A fear of vegetables
Deipnophobia...A fear of dinner party conversations
Nomophobia...a fear of being out of mobile phone contact
Metrophobia...a fear of poetry
 
Bufford things are finaly moving forward ☺ . She is now settled in the rehab place. They have done a basic assessment today and will do a more detailed one tomorrow. The place is clean tidy and modern. The staff so far seem helpful and nice. Mum also enjoyed her lunch so thats good. Wasnt keen on the hospital food.

Hope you are all doing well toďay. :ghug:
 
fuzzy butterfly said:
Bufford things are finaly moving forward ☺ . She is now settled in the rehab place. They have done a basic assessment today and will do a more detailed one tomorrow. The place is clean tidy and modern. The staff so far seem helpful and nice. Mum also enjoyed her lunch so thats good. Wasnt keen on the hospital food.

Hope you are all doing well toďay. :ghug:
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Bufford is right- mothers are precious! Treasure yours while she is still here. I lost my Mom in 2013, and Dad in 2014. I still miss them both every day, but I am grateful that they never knew of my Crohn's diagnosis or the pain I have been through. They both died thinking I was healthy as a horse!
 
Nutty guts i know how precious they are or were in my dads case list him in 1997. Still miss him 💕
Oh il try n keep my mum as long as poss. I dont know how il cope without her she is my rock💝💝.

I get what u mean regarding them not seeing you pain with crohns. My dad didnt see mine but my poor mum did. Her sister had it too so shes had the double whammy.

You take care 💕

Carol alcohol is always the solution ;) ;)
 
Good to hear the news Mandy....hope Mum stays settled in the rehab for as long as it takes.
It is so hard when our most loved ones are facing adversity of health.
Remember to take care yourself......a little tipple now and then is relished by the wisest men.....
Wish I could tolerate it myself...just doesn’t agree with me..under the table at the first sip...
Bad headaches afterwards.
One week to go before the scopes.....
I wish there was another way to evaluate systems.
The GI feels I am not up to the rigours of 4litres of prep....so I have to do the Fleet enema route..one 4hours followed by another at one hour prior to procedure....
Never done this before...think I’d sooner drink a solution.....
Any suggestions to ease things would be most welcome..
At least the heat is less today...balmy 23C.....storms in the forecast.
Returning the cardiac monitor today after a lengthy two weeks....the company makes it so easy to pack in their prepared container box 📦 which goes into a mailing envelope back to them through the postal services.
Now I’m off to Physiotherapy.....always feel better after that....even though some exercises
are painful....still no pain no gain....
Cheers Everybody
Hello from Canada 🇨🇦 to Mum. 🇬🇧... Mandy....
 
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Thanks Trysha...mums been down to the dining room for lunch today. And had a sit outside in the sunshine with my sister this afternoon. She is still having some pain but at least she can walk abit again. She wants to rush things but iv told her to play the long game,otherwise she will get home and maybe fall then she would be back to square 1. Better to be safe than sorry you rushed to get home. Il will send Canadas(your) hello when i see her next. Re the grog i rare as rocking horse poop drink since crohns as it goes right through me. Tho i can manage 1 or 2 small wines now n then. ☺💕💕
Hope all goes well the the scope . Im due one soon 😨

Take care everyone. Love n hugs 💕💞💝
 
Owls are 70 times less likely to hoot when it's raining and in the 1800s ducks were called 'arsefeet' because their feet are so close to their bottoms.And...camel spiders move so fast they are called Kalahari Ferraris.And...Ants yawn and stretch their legs when they wake up....Happy Friday All.
 
I would be quite lost without the important information you post Carol...Very thoughtful and
impressive lessons for our enlightenment....
Mandy.....sounds as if Mum is beginning to settle a little......however there’s no place like home....
One day closer to d-day......
Winning......
 
I'm not sure whether or not you're being "tongue in cheek" Trysha. Just tell me if you want me to stop,but you never know when these little snippets will be useful. I mean,during a lull in the conversation while dining with friends ? They will either be amazed at your level of knowledge or chuck you out (for making them feel inferior interlectually).
I know your counting the days until THE TEST,the best way is to tell yourself this time next week it will all be over..

Here's a good one for you...….In Inuktitut

iminngernaveersaartunngortussaavunga means

"I should try not to become an alcoholic "

And yes,I have spelled (spelt?) it right.:rof::rof::rof:
 
Carol I enjoy your posts immensely and look forward to seeing them...sorry if I may have given the wrong impression...I sometimes wish I had your resources.
Sadly the native Indians here are quite susceptible to the horrors of alcohol....their systems
do not handle it very well and it is so sad to see them succumb.
They have so much to offer in their ways of life.
You are so right I will be glad to get this week over....every scope sets me back a week getting over the after effects and interferes with the plans I have.
At least the cooler weather is arriving and last night I was able to sleep without the ceiling fan on.I do not like air conditioning in the apartment which usually stays cool on the hottest days with just a fan or nothing.
It is a sobering thought that the year is three quarters over and nothing much to show for it
The world is in a terrible state..economies on the rocks ...hurricanes devastating....etc
The greatest achievement is surviving another month in hospital and now all the specialist follow up appointments.
Oh for the days when the GP handled everything so well ......
Shouldn’t complain there are so many people in the world suffering for lack of medical help.
Now for a walk in the fresh air to blow away the cobwebs.
Have a good day Everyone
Winning
 
I know one thing, I am far from being alone living with issues when I see all the misery going on around the world in one form or another. I see from this thread some drinking at the keyboard. I'm fine with it, there are times when we and for that matter the whole world could stop for awhile and enjoy a stiff drink or two. Maybe the intensity would lessen a bit.
 
I hope to repeat yesterday's effort. Coffee in the morning, followed by a productive afternoon stacking 3 loads of firewood. The Scotch felt like a good reward at the end of the day. I'm at the point now that I could get through winter with what I have, but more is always wise given the weather, and life with Crohn's.
 
Bufford said:
I hope to repeat yesterday's effort. Coffee in the morning, followed by a productive afternoon stacking 3 loads of firewood. The Scotch felt like a good reward at the end of the day. I'm at the point now that I could get through winter with what I have, but more is always wise given the weather, and life with Crohn's.
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Amen to that, Bufford! I have been busy trying to keep up with our pear and apple trees and the garden. Since I have a stricture, I can't eat most of this produce raw, so I have been pickling, freezing, and making jams in hopes of one day enjoying this bounty. I never know from day to day if I will have the energy, so when I do, I must go for it! And by the way, my reward is a glass of good red wine at the end of the day! :)
 
Hi all hope to find you all well..
I got a bottle of proscecco for my birthday on the 4th its still in the gift bag. It maybe there a while yet.. iv really got to fancy a drink these days.

Love to you all 💕💝
 
fuzzy butterfly said:
Hi all hope to find you all well..
I got a bottle of proscecco for my birthday on the 4th its still in the gift bag. It maybe there a while yet.. iv really got to fancy a drink these days.

Love to you all 💕💝
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Oooh, what a nice birthday gift! Hope you are feeling well enough to enjoy it soon. And Happy Belated Birthday!!
 
I used to enjoy a drink and a cigarette.Managed to stop the dreaded weed 25yrs ago,after many,many,many attempts.Last alcohol was at least 8yrs ago and that was a small tot of whiskey while visiting friends at Christmas. I also don't eat meat or processed food,except cheese and chocolate.I can't believe I'm the person I am today.Maybe age has made me more aware of life's downfalls and struggles.But I could never imagine life without a dog either.I don't miss the cigs & drinks and meat at all,but I miss my life with dogs every single day.Such a joy,but such heartache.
 
scottsma said:
I used to enjoy a drink and a cigarette.Managed to stop the dreaded weed 25yrs ago,after many,many,many attempts.Last alcohol was at least 8yrs ago and that was a small tot of whiskey while visiting friends at Christmas. I also don't eat meat or processed food,except cheese and chocolate.I can't believe I'm the person I am today.Maybe age has made me more aware of life's downfalls and struggles.But I could never imagine life without a dog either.I don't miss the cigs & drinks and meat at all,but I miss my life with dogs every single day.Such a joy,but such heartache.
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Oh no! Why did you have to give up dogs? Did you develop allergies?
I, too, struggled for years to get free of cigarettes, and finally quit for good in 1999. I still enjoy an occasional glass of wine, but I can't imagine life without our Daisy Dog! We brought her home from a local shelter in 2009 and she has been a very important part of the family ever since! I am still a newbie here and haven't posted any photos yet, but I will work on finding one of her to post- she is a wonderful doggie!
 
That’s almost the story of my life Carol
Never could enjoy alcohol....tried a few times just made me ill....
I also miss my lovely dog...a miniature French 🐩 poodle....always knew what we were thinking before we did.....we had adopted her from the pound when she was One to three years old...they guesstimated the age...she was sixteen to nineteen years old when she
succumbed to several illnesses.She is now in the beautiful pet cemetery here in her own plot of land...where I can visit.
Brings back so many memories.She could sing standing on her hind legs...quite operatic.she often did this in the kitchen while I was cooking...looking for treats.
I will not have another dog since I live in an apartment now...they need a garden to run and be free...although I would dearly love one.
Mandy ..hope Mum is doing well..probably anxious to get home.Take care of yourself.
Winning.....
 
Carol's words speak for many of us. I look back on videos and pictures of BBQ's and the huge 'kill' cooking on the grill. Enough steak for one family and I ate the whole thing, smoking cigars as large as utility poles and ice cream the size of glaciers.

Life was good prior to the ugly rising tide of Cron's.
Today, no more smokes, my plate is empty boring and would offend me if it were served to me back in the good old days. I find comfort that I can still enjoy a Scotch, but with in moderation.
 
Failing out of school (again) due to illness... Not sure at this point whether to drop out or keep trying. Exhausted.
 
Oh,Izzie.You must do what you think is best for you.BUT...how will you feel in the future if you drop out now ? Have you found our "Young Adults " thread ? I'm sure you'll find better advice on there than I can give you.But like I said,your decision must be what's best for you.....Re; my dogless life.I don't now feel able to give a dog all the exercise I used to be able to. Also saying goodbye never gets easier (8 dogs) only harder.I now exercise by cycling, so replaced four hairy legs for two wheels but I don't get the cuddles.
I hope things get better for you Izzie.Sending hugs to you.
 
Trysha my mum is coming home tomorrow if the home assessment goes well. She cant wait to be back home. She has come on leaps and bounds the last few days. 💕
Thanks to you all for the care and support you have given me. 💝
Izzie i do hope your feeling better soon. Its a hard road this crohns but you do whats best for you . Is it something you can get back into a little further down the line?. If so then all is not lost if you decide to bow out for now.💞

Love to all. 💝💞💕
 
Good to hear that Mom is coming home, news like this doesn't come much better. My mother is 94 and had a bit of a set back after a fall last month. However, she's pretty tough at her age and once again uses her cane and refuses to use her walker now that her strength is back.
Izzie, hang in there, if the pressure gets too much, perhaps you could work something out with the professors. I had to take time out from work at times, it was sometimes awkward, but it worked out in the long run.
 
Izzie. Hang in there...never give up...never give in....maybe the profs would be willing to give you a break...sending you lots of support.
Taken by the yard life is hard...taken by the inch life’s a cinch
Mandy..that’s really good news about your mum...onward and upwards...
Carol...eight dogs..you certainly did your bit...I only had two but it’s still very hard..wish I had my bike back used to go everywhere on it..couldn’t do it now and the local terrain would not support it.Whats the scopes phobia called ? just asking———
Bufford ..I’d love to join you for a tipple but I wouldn’t survive it....you also wouldn’t want to pick me up from the floor ....
Winning.....
 
Hi everybody. I wish I had better news. I've been experiencing bloody stools and lower right abdominal pain. Went to the GI today and, after the examination, was told that I am in a Crohn's flare. No longer in remission. I have been put on budesonide (entocort) and have been scheduled for a colonoscopy. Not having a lot of fun. I guess that is just life with IBD.
 
Doug,it's lovely to see you, but I'm really sorry it's not better news.At least you don't have to worry about work now.Sandy will look after you.I hope she's doing better than you are and that you both had a great summer.
 
The breaks never last long enough, Doug I hope the flare is not going to be severe. I had a good day yesterday, but the nights have been difficult, getting up every hour, or more likely on the half hour. Noon time snoozes give me a better rest.
 
Hi folks ....
Nice to see you Doug but sorry you are in a flare. Hope things are soon back under control. Love to you n Sandy. 💕

Buff you take it easy fella 💕

Right now as i said my mum came home on tuesday ☺☺ but that night going up to bed at midnight she fell down the stairs top to bottom . My sister found her at bottom of stairs at 8am. She is now back in hospital with a hip fracture fractured ribs and neck 😢😢. They should operating on her tomorrow. Im afraid trysha that it was more a case of upwards n downwards. Not slept since 7.30 am mon morning. I had a no sleep tues night with toilet issues and just got back from hospital. Im dun in and as you will know very upset.

Bless you all with better health. 💝💝💝
 
Mandy...I’m so sorry to hear this bad news and my heart goes out to you.
Hope things will start to go better for you in the near future.
I think you should have been made aware of the danger of a second fall happening....
perhaps she was released too soon from the nursing home..it did seem to be a short stay..
Could it be possible that a mini stroke is causing this to happen? Or is it the balance mechanism gone awry...or just trying too much too soon..
Do take care of yourself ....be a little selfish if you can..it is a very tense time for you all.
Doug ...very sorry to hear you are out of remission....hope it’s caught in time and that you’ll
soon be back on your feet.
 
Oh Mandy,I could weep for you sweetheart,and your Mum of course.That's such bad news.
Can't add any more except you TAKE CARE OF YOURSELF.It looks like it's going to be a long job.
 
Mandy that is a tough break, one can only hope for a good outcome. At this point all one can do is let nature take its course. When your mother is strong enough it could be you will need to arrange to have her bed on the main floor and keep her away from the stairs.
 
Hi guys thanks for your kind words. Mum has had hip n leg issues for some time now. My sister and i thought it was to soon for her to come home but they said she passed the tests no problem. Mums a stubbon old gal n wanted to be home... my sister n i have been to her house today and moved her bed down to the dining part of her through lounge and cleaned up and moved things around to make her acesses clearer. If we had had more notice of her coming home tues n not been in work we could have done this before she came home. Any way she will be all on 1 level when she comes home after this. Her operation due today was canceled till tomorrow ☹. Still she is bearing up well bless her. Tough old bird our mum,piggin good job really..
Oh well least work said i could have this week off as holidays to be there for her.

You all take care. Much loves 💕💞💝
 
Awww Mandy I feel so sad for you and your poor Mum.....it is so unacceptable for them to cancel surgery for today they should be put in theTower...
Unless there was a good medical reason...
Hope Mum is a little bit better and hopefully will soon benefit from the surgery.
Take care of yourself..we don’t want two casualties...
When the going gets tough the tough get going....
The scopes went well today...didn’t know a thing from start to finish.
Unfortunately the GI found strictures ...oesophagus and intestinal.....he has stretched them.
and now the prep is really working after the event...!!!
It was such a problem that I thought he might reschedule but he pulled through for me.
He also found an ulcer in the stomach plus inflammation....have to wait for the pathology results..
Other than that I’m ready to go.....?.
I do feel better now that it’s all over and he has prescribed some drugs so it’s onward and upwards....
Hope everyone is having a good day...
 
There you go Trysha,all done and dusted.I expect you're still at the clinic.
but it wont be long before you're home.Take it easy over the weekend.

Mandy,it's good that you've got time off,hopefully it will stop you getting in a tizzy. Try to have some "you" time if you can.
 
Trysha the tower is a good option ☺ they just run out of theatre time yesterday. She has been and had a large pin put in her hip today so that op is now done. She seemed ok when we went to she this evening. Though she is struggling with the neck brace its doing her head in she says. Oh dear n she needs it on for a few months. I fear she will try to take it off if no one is there to keep a very beady eye on her...
Glad your scopes were not painful but sorry you have the issues you mentioned to deal with. Hoping things are better soon. 💕

Carol im in a tizzy all the time. Everytime i think right well alls ok at the mo i can start to have some me time something or someone throws a spanner in the works. I try to get some time out but i dont get enough. Need to be firmer n say no to more people me thinks. Xx

Hi all sending loves to everyone 💞💕
 
Hi everyone. So sorry many of you are feeling under the weather. Mandy, blimey, I'm so sorry for your mom. I hope she recovers quickly. Hubby had his routine follow up today and things seem to be hanging in there. But his dr is moving to a veterans only hospital, so we can no longer see her. Now the daunting task of finding a good IBD GI. Sometimes I wish we never moved from new york. We at least had the best of doctors there, even though life slapped us in the face everyday.

Feel better soon, everyone.
 
Mandy...next time I visit I’ll bring a big bottle for you and it won’t be water...
You need a quiet place on a high mountain to relax undisturbed.
These are very tense times for you and you must find a way to relax...even if only for one minute at a time.
And when you find it please let me know...
Good to see you Madhu...it can be hard to find a good doctor that you can get along with.
Best way is word of mouth...but you could take a look through the web.
Carol I’m a bit weak kneed at the moment so staying close to home base.....but I’m happy
that things went so smoothly.
Wish I could find something really appealing to eat.Might go to the vegetable garden in the apartment grounds which are huge.....the garden is across from the swimming pool
I am not a swimmer being allergic to the chlorine and stuff they put in the water.
Tenants grow the veg. and different tomatoes and we can all help ourselves.i don’t need much.
There is a line of huge barbecue machines ...not that I use them ...and also a summer house to sit in and eat or picnic.
Mostly I stay in my apartment apart from going for walks shopping and numerous appointments.
It is sobering to watch the terrible storms in the States,.....
Currently we have clear skies and warm weather...but sooner or later it moves up the coast to Canada to blow itself out.
Winning...
 
Thanks Madhu...glad hubby is hanging on in. Sorry that a change of doc is happening but im sure you will find a good one. Take care 💕

Trysha im having a day out today to Derbyshire. The lovely countryside will calm my soul. Hoping to visit the druids caves near Matlock and maybe a coulpe of museums in Chesterfield ☺.
Be careful you dont end up in the veg beds by reaching over to far.💕
 
Trysha,I'm really enjoying Miso soup / drinks lately,with cheesy biscuits dipped in.I dont't eat "proper "meals now.I don't think it has much to do with Crohn's though.I seem to have lost the taste for all the stuff I once loved.I do eat fruit,cereals,yoghurt etc.My main meal for the last few years has been a peeled apple,a chunk of cheddar and a handful of crisps (chips)Now it's miso etc. ….and chocolate.

THOUGHT FOR TODAY.....The blast furnace,the @ sign,pretzels and genetics were all invented by monks
 
Mandy...it’s good to hear you are taking a day off...wish I could join you..would love to visit the druids caves but why do they own them?
I really like museums ..good choice
Carol sounds as though our diets are similar.....I make different soups with Vegs and also like fresh crusty bread when I can find it plus different cheddar cheeses.....cereal Rice Krispies...
I am eating a little better since the scopes...hope it lasts..
Madhu I was thinking you might google docs for your area and see what comes up...it’s very hard to get the right ones so all the best for your hunt.
Another hot day.....but nice for walking right now before the high heat
Winning.....
 
Mandy hang in there, its been a long rough row to hoe. As Trysha mentioned I too would like to stop by with a big bottle of the good stuff. A good cry over the glass can ease off the stress.
Finally I got a night's rest, at least a partial after several days of restless nights. I was literally bouncing off the walls two nights ago and I feared going into the bedroom last night. I expected to start getting the restless leg syndrome that turns into the toss and turn cycle, followed by simply bouncing off the walls. Don't know what's up, I changed nothing in my diet or meds. During the last couple of weeks I am overtired during the day, it becomes hard to cope with even small things.
 
Aw bufford nowt worse than restless nights..do my head in. Hang in there pal 💕

Trysha the caves were great tho not very big but its was very calming and beautiful. Only did 1 museum small but interseting.
Take care 💕

Carol those monks seen to be responsible for alot of things ...mmmm maybe they have to much time on there hands ??:hug:
My sister says mum seems a lot better today ☺ even been having a laugh so that good news 💕💕
 
Bufford said:
Mandy hang in there, its been a long rough row to hoe. As Trysha mentioned I too would like to stop by with a big bottle of the good stuff. A good cry over the glass can ease off the stress.
Finally I got a night's rest, at least a partial after several days of restless nights. I was literally bouncing off the walls two nights ago and I feared going into the bedroom last night. I expected to start getting the restless leg syndrome that turns into the toss and turn cycle, followed by simply bouncing off the walls. Don't know what's up, I changed nothing in my diet or meds. During the last couple of weeks I am overtired during the day, it becomes hard to cope with even small things.
Click to expand...

Bufford, do you take magnesium every day? I used to have restless leg syndrome and leg cramps pretty bad. I now take 400mg magnesium every night before bed. Even though the prednisone usually wakes me for 2-3 hours in the middle of the night, I can rest quietly thanks to the magnesium. Haven't had cramps or restless leg in a long time.
 
I take it too, Magnesium Bisglycinate, it helps muscle pains. May God bless you all at this time. I've been under the weather myself. I wish us all the best. Mandy, I really care about you. I'm so sorry about your mum. I wish I could give you a big hug.
 
Chris nice to see you ☺. Sorry you have been poorly. I hope you are feeling much now. I care about you too and wish the best for you. Thanks re my mum and i can feel the hug from here 💕:hug: you take care 💞

Nutty glad your cramps n rls are better for taking it. Shame the pred is causing u to lose sleep. :hug:
 
I also take Magnesium as a supplement.I also have an oily spray containing Mag.and herbs that aid sleep.I use the spray as soon as I feel restless leg twinges and rub it into my calves.RLS is a curse,and I absolutely dread it.
 
Thanks for the heads up about magnesium. I cut out my calcium magnesium supplements a couple of months ago and it seems to be helping with my gallbladder issues. The thought here is that I am overloading my gallbladder with calcium.


I am going to cut one tablet in half this evening and go back on it. Then I will buy a bottle of straight magnesium and see if that helps.



It would appear that my symptoms may correlate with my body tapering off too far down, and now my body needs some extra mag. Thanks for the heads up, some of my nights have been excruciating which may be why I sometimes post less.
 
97 days 'til Christmas in case you were wondering.
What did the buffalo say to his son as he left home ? Bison.
 
Ha!Ha!Ha!.....good for a morning laugh...thanks Carol
Another warm and sunny day...will go for a walk by the shores of Lake Ontario this afternoon...blow away a few cobwebs.
Still getting over side effects of the scopes and feeling dead beat without exerting any effort.
Was tired just doing the dusting...think I’ll leave the vacuum till tomorrow...rather hard with only one arm and that’s beginning to ache a lot too.This afternoons Physiotherapy will help.
Seeing all your posts has reminded me to keep taking the magnesium..
A walk in the sunshine will help..usually does.
Winning....
 
Let the housework go Trysha, those cleaning jobs can wait when one is not up to it. I forgot to take the other half of the magnesium calcium tablet last night which would explain why I was up walking on the ceilings again last night. :(
 
Hi all ☺
Oh Doug i feel for you..that stuff ìs the drink of devils👿. Hope the results are good. 💕

Carol you are a joke legend :) :)

Trysha no rush on housework love...it never goes anywhere ☺💞

Bufford dont forget the tablets...im not sure how much more of you being on the ceiling the ceilings can take ☺. Joking aside i hope you can get some good sleeps in my friend. 💕

Love n hugs to all :ghug:💕💞
 
You can do this, Doug! I'm sorry you have to do it though.

I'm officially in the last day of the 2nd trimester today. 3rd trimester starts tomorrow. Can't believe we made it this far this time. I'm very grateful for all the support I have got from you lovely people [emoji177]
 
There maybe more going on than just a magnesium shortage. Last night I was able to eat the meat on my plate. Prior to that for days I had a hard time getting the meat in my meals down, like my body was rejecting it. Last night I had a good sleep for a change.
 
I hate to sound smug,but I slept for ten and a half hours last night.
Doug,I hope your test is over by now.I'm waiting for calprotectin results.I've also been to the dentist today with toothache.Had an x-ray and have anti-biotics.Will need either an extraction or the dreaded root canal.
There was an article on last nights local news regarding a local football club which has placed sanitary products and bins in the gents toilets.A lot of men with prostrate and bowel issues are missing out watching their teams play,due to leaks and embarrassment

Good news all round.Hope it goes nationwide..
 
Doug hope the test results are good..
Carol...sorry to hear you are enduring dental adversity ....hope you will soon be better.
Thank you for the report of your local news ...important erudite information ...
contributing to our knowledge base...
Mandy..hope things are well for you today....
Madhu..not much longer before I we celebrate your big event...
Lovely sunny day perfect temperature...
Now I am off to the lab for blood work...
Winning...
 
Hi all ☺
Buff glad u slept well. Sleep is a much needed comodity. Hope you get more of it. 💕

Carol sorry you have tooth trouble ouch!!! Hope the antibiotics help. :hug:

Trysha hope the bloods results are good and you enjoy the sunshine 💕

Im ok. Mums doing ok but struggling with the neck brace and trying to get out if the bed.

Take care everyone big hugs 💞💕💝
 
Just got done with the colonoscopy. They found a friable area in the terminal ileum, which is where the blood is coming from. Also found that appears to be a benign polyp in the transverse colon. The dr. Is not really worried about it so I will try not to be either. It has been sent for a biopsy. They took several biopsies because of the Crohn's. Will get results in a week to 10 days.
 
Just got done with the colonoscopy. They found a friable area in the terminal ileum, which is where the blood is coming from. Also found that appears to be a benign polyp in the transverse colon. The dr. Is not really worried about it so I will try not to be either. It has been sent for a biopsy. They took several biopsies because of the Crohn's. Will get results in a week to 10 days.
 
Last edited:
Sleep was so so last night, at least I am functional for the day. Carol I hope the doctor can save your tooth with a root canal. There is no substitute for the original teeth.
 
So this site was sold and is now used for advertising? I see someone is earning money by using Amazon links. I'm not posting if this site is for profit and I'm only a volunteer. Can anyone tell me if this is the case? I feel deceived, my posts are earning indefinite advertising commission? I'm a little concerned and confused. I wish everyone the very best. I care about all of you, from now on I'll be popping in here only until I figure out who I'm work for. If the money is for charity I'm fine with it, but I want to know who is receiving the money brought in by the advertising. I'm here because I care about people, not to pad someones wallet with advertising links. Sorry guys and gals. You know I care, but this doesn't seem right to me.
 
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