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Portugal is the only country in the world where all drugs are legal......form an orderly queue.

Prince Charles valet irons his shoe laces....doesn't everybody ?

It's impossible to hum and whistle at the same time......I know you're all having a go !!!
 
Some clever person could succeed by placing a whistle in the mouth and then hum at the same time.....Just thinking.....
I gave up shoe laces long ago...slip ones,buckles a lot easier and more stylish
The mind boggles at ironing shoelaces....does anyone notice,,,,or care.?
Hope you are feeling better Carol..
Chris...I haven’t seen anything about websites and profits....where did you find it? And does it really happen....can’t think of anyone buying my posts....
Hope you don’t leave us...
Bufford ...hope you had another good sleep..
Mandy...hope Mum is feeling a bit better..
 
Thanks Trysha,the anti-biotics are working but still having to eat on one side of my mouth.I thought of you when I wrote about the shoe laces.I also read somewhere an age ago,that the Royal families personal dogsbodies put the paste on their toothbrushes for them.I hate to think what else they do.
 
I know little about how the internet and these websites interact with advertising. I don't see any advertising, but I do use add blockers to manage content.
 
Hi all...
I dont know much on how ads work but i think they pay a website money to advertise on it,which in turn helps fund the site and keep it running. I agree with Chris that if its for charity all well n good. Though i also think that if its to fund the continuation of this site and or maybe some to charity all the better.I could be wrong and stand corrected if i am.

Trysha thanks mum is doing ok . She is have trouble weeing when they take out the catheter so back in it goes. Been there n done that. Im going to see if she can have one fitted that she can empty herself via a valve or tap or whatever its called. I had one of those when i came home from hospital and it did the trick for me so it might for her. 💕

Carol many moons ago the royals had people wipe their bottoms... now thats a right royal arsewipe if you ask me :):)
Lots of love to you all 💞💕💞
 
Hi guys, Not sure about the adds, but a while ago, i was searching the net and found one of my posts from here, i didnt know what we say here can be seen on the net by anyone, it put me off posting, thats also why i removed my pic. I dont wa nt friends knowing whats wrong with me as we post a lot of personal stuff. The good news is i am having an iron transfusion next week and hoping it will move the fatigue, oh to have my brain working again.
 
I'm not sure about the advertising but I think it is paying for the site. The other option would be to charge a subscription. I use to receive some ibd news site for free but they changed to a subscription service a few months ago. They do not have ads.

I would rather not have to pay.
 
Hope you're feeling a wee bit better Doug,and how's Sandy ? If she's ever going to post again she'll have to do it in instalments.You know how carried away she used to get even when posting a couple of times a day.Please give her a hug from me.

Trev.I hope the iron infusion does the trick for you.Hugs to you too.

Mandy,I knew that,but I was too polite to say.You know me,I'm a proper Laaaydeee but I don't have anyone to help in the bathroom.
 
scottsma said:
Hope you're feeling a wee bit better Doug,and how's Sandy ? If she's ever going to post again she'll have to do it in instalments.You know how carried away she used to get even when posting a couple of times a day.Please give her a hug from me.

Trev.I hope the iron infusion does the trick for you.Hugs to you too.

Mandy,I knew that,but I was too polite to say.You know me,I'm a proper Laaaydeee but I don't have anyone to help in the bathroom.
Click to expand...

Nope. Not going to post again. :kiss:
 
I will be back more either later today or tomorrow with my installments (he he), I have a legal obligation I'm helping a friend with, she has a hearing tomorrow, finishing a complicated email to her attorney. Hugs to all.
 
Wow Sandy...good to hear from you
Carol I knew you would be too ladylike to give further detail regarding royal habits
Mandy...good news about Mum....too bad about the catheter need ...but what has to be....
Maybe it will be a temporary item...hope so..
My views are similar to your re website...
Trevand Bufford...thanks for the info...
Winning
 
Hey there Sandy girl..oh boy have u been missed!!
Good to see you hun🙂🙂.
Hope things are good for you and hope Doug results show nothing to untoward. 🤞.
Best of luck to your friend re the hearing ☘.

Bufford i also am the same here as in public work home n any other place i frequent. Tho i do feel that this should be a members only viewing site. Still the cats arse(big brother) most likely knows more about us then we know about ourselves. Unfortunately thats the world we live in.

Carol did really think that i thought you didnt know that??:)
I know you are too lady like to say it, even if you thought it, i on the other hand am not :rof:
I shift enough shite about at work all day i could do that job,be a piece of cake...;)

Hi everyone else 🙂 you all take care. :ghug:
 
🙋

I've just read all of the Septembers posts here.👁👁
I am so overwhelmed by it. 😢

I am sending hugs and prayers to all. ❤🙏

I am tired right now and will post something on another day. 😴

I am glad you are all still here. 🙂

Lynda 🌻
 
Sending hugs to you Lynda.
Looks like I'm going to have to buy a new fridge freezer today.It's making a heck of a racket while it's re-booting and it's been going on for ages.Far better I replace it than worry about it.
Sandy you gave me a fright when you posted you're finished with us all,I almost booked a flight !!!
 
New fridges are nice, I went slightly larger with the new one and can now stock up more and make fewer trips to the grocery store saving fuel in this remote part of the world.
Lynda, I can fully relate to the fog of fatigue, its a rare day that the fog ever lifts for long.
 
Anyone want a dog? Bentley escaped from our front door, chased kids going to school, would not come when called, and got caught by an animal control officer. They just issued a warning, no fine. Bentley knows he's in trouble. I was trying to chase him down wearing pajamas.
 
DougUte said:
Anyone want a dog? Bentley escaped from our front door, chased kids going to school, would not come when called, and got caught by an animal control officer. They just issued a warning, no fine. Bentley knows he's in trouble. I was trying to chase him down wearing pajamas.
Click to expand...

Why was he wearing pajamas Doug ?:lol2::lol2::lol2:
 
Freezer coming Thursday.Trying to keep the other one alive 'til then.I've got stuff in there that I've become very fond of over the years.Some of the fish are like family pets...
Feeling well below par today.Up and down with Restless legs last night,although the rub in oil did help.Back and forward to the bathroom since five am.Got a hairdressing apt. at one but will see how I feel later.
I was just thinking the other day.....I've had the same hairdresser for 33yrs,the same dentist 30yrs,the same utilities supplier for 50+ years and I had the same window cleaner for 50yrs until he retired.I was glad to see him go,I got a bit fed up holding his ladders steady......wink.
 
Carol. Have you tried putting a bar of soap in the bed...it has been reported some people with restless legs benefit from this...
It has also been suggested that a low iron blood level can cause it.....perhaps you need a full Blood check up...
Gloomy rainy weather today.....
Winning....
 
Maybe restless leg syndrome is contagious and Carol got it from me through the internet and the antivirus didn't catch it. The magnesium has helped me some, but there are times when the legs want to run at 3Am.

Over a lifetime we tend to collect a lot of things. I have been getting my firewood delivered by the same family for 38 years now. The father of the son delivered for 25 years before passing away, and his son took over since then.
 
Trysha said:
Carol. Have you tried putting a bar of soap in the bed...it has been reported some people with restless legs benefit from this...
It has also been suggested that a low iron blood level can cause it.....perhaps you need a full Blood check up...
Gloomy rainy weather today.....
Winning....
Click to expand...

I hadn't heard of that Trysha.Would it be Carbolic or Camay ?
As to Iron levels.I've never had a test but I've notice RLS is becoming more regular than it used to be.

Made the effort to go to the hairdressers and wandered around the shops,wasting money until it was time for my appt.,only to discover I wasn't in the book.:frown: so better luck next week Carol.It's a good job I'm even tempered.:ybiggrin:
 
Bufford said:
Maybe restless leg syndrome is contagious and Carol got it from me through the internet and the antivirus didn't catch it. The magnesium has helped me some, but there are times when the legs want to run at 3Am.

Over a lifetime we tend to collect a lot of things. I have been getting my firewood delivered by the same family for 38 years now. The father of the son delivered for 25 years before passing away, and his son took over since then.
Click to expand...

we're nothing if not loyal Buff.Some people might say I was silly not to search the market for maybe cheaper options,but if it ain't broke why fix it.?
As to RLS,going for a bike ride has often crossed my mind but hubs would have a blue fit.It's ok for him,snoring away in the land of nod.
 
Well as long as it’s not liquid soap any bars will do....Carol....
You pays your money and takes your choice..
Mine would not be carbolic......nor camay.....more likely Dove then I could fly fly away to the moon.....O for the wings.......warbling all the way...
Such a gloomy wet day today
Winning.....
 
Ps Maybe you should have a blood check up.....low hemoglobin can cause memory lapses....
In the meantime try the soap trick......
 
There are times when RLS could be connected to my gut. Seems when my system is overloaded or something like mild constipation can aggravate it.
Last night I was bothered by it, got out of bed took a drink of water and proceeded to walk about on the ceilings for awhile before finally getting some sleep only to wake up tired.
 
I took two tramadol,one amitriptilyne and rubbed some magnesium / herbal oil into my calves.I was taking no chances.I slept a solid ten hours and didn't even get up to pee,which is extremely unusual for me.I can get up 2-4 times as a rule.


I took out a loan today to pay for an exorcism...if I don't pay it back I'll
be repossessed...:rof::rof::rof:
 
Very funny Carol.......
That’s a lot of medication to take......but desperate times call for desperate measures..
I still think it’s worth putting a bar of soap in the bed.....doesn’t cost much and it could be successful who knows....an interesting experiment.
I am quite shattered right now to hear family news that my sister has terminal cancer...
hoping they are wrong.
The medics are arranging for home care ...her request....and a team is already in place...
a hospital bed has been ordered by the team ..
It won’t be long before I make the transatlantic journey once more but have to get through
four specialist appointments first...and then permission to travel..
It’s a cloudy sunny day and very windy...the building manager put a notice at the front door
and side exit that it’s too windy for people to go out...there are frail elderly in the building.
I have been out and lifted by the wind ..walker and all....scary...I don’t like fairgrounds...
Won’t be going out again till the wind subsides
Winning....
 
More sad news for you Trysha,I'm so sorry.We heard last week that our friend,who had 90% of his stomach removed two years ago,now has a tumour on his pancreas.Going for an MRI (an emergency one) in 3-4 wks.We've lost so many friends and neighbours the last couple of years there's hardly anyone left.So worrying.
Have moved the old freezer into the spare room,with great difficulty.Now waiting for the new one,between 1 + 5pm,I've got no where I need to be but I hate waiting for people coming.
 
Thanks Carol..it’s hard to accept but is part of life cycle.
That is so sad for your friend.....it’s a long wait for emergency treatment though...
Hope by now your new frig freezer has arrived.....do you have to let it stand 24 hrs before using it?
Or do they fill it with groceries before 🚚 ...delivery.......just asking.....
It’s a cloudy sunshine day and soon I will be leaving for physio/acupuncture session.
Winning....
 
Carol n Trysha. So sorry to hear the sad news you have both had. Sending hugs n lots of loves :hug:♡♡ 💕💝
 
Hugs to you both, Carol and Trysha. It's so hard to be on the receiving end of such bad news. I wish you and your friends and families peace [emoji177][emoji173][emoji120]
 
Such sad news Trysha! Big, but gentle, hugs. I hope you can keep your feet on the ground as well. Carol, you definitely need to get your blood levels checked!!! Hugs to you as well. Hugs and well wishes to all of you. I'm going to be doing some back reading from LOW the next several days, I have missed so much. I missed ALL of you so much, I don't know what possessed me to not check on what was going on here lately before a few days ago. (Maybe I didn't pay my exorcism fees, lol? :biggrin: )
Tomorrow I got coerced into helping a pregnant friend (by her mother, who bailed out on helping, knowing she wasn't going to help, grrrr) help clean her house and do some laundry. In the mean time, my house and laundry needs help desperately also (too much to do lately and not enough energy, so it's been neglected), but it will have to wait. In the mean time, I should be grateful that at least I'm not restricted from doing much like my very pregnant friend. I'm happy to help her, it was just the way the mother went about arranging this.
Saturday Doug and I get to go fishing with some kayak buddies, looking forward to that. Hope Doug is feeling a little better then. I sure like our GI, tho, know he honestly cares about Doug and how he is feeling, plus he's very competent. I'm holding status quo for now, so can't complain.
Have a great day or night everyone. 🙂
 
Nice to have you back Sandy,we were worried.

The new f/f is now insitue and restocked.Alas we had to keep the old one going until it has stood for 24hrs.This means we have to dispose of it responsibley ourselves.Have booked the council but it has to be on the ground floor for collection.We are on the second floor,(we do have private access).It was so heavy it took us two hours to haul it from the spare room and lower it with a rope down the stairs.We don't have anyone we can call on to help.Anyway,it's done now.Off for a long hot bath....
 
Carol i would have waited till the council came to pick it up...then tipped it over the balcony on their heads..lazy beggers. Hope you enjoyed the soak and feel better for it. ♡♡

Sandy hiya hunnie. We have really misssed you here, glad you are back🙂. Dont over do it on the cleaning. When is your friends baby due ? Hope all goes well for her. 💝💕
Iv just got an appointment to see my GI for a follow up appointment in piggin march!!! Jeepers il have forgot about that by then.. its been a good while since i last saw him n thought id be due an app anytime now not 5 mths away. Oh well good job im doing ok then is'nt it. 🙂
By for now n love to all. Keep on smiling...with any luck they will think we are insane send us to a nut farm n we will have no bills to pay 😀😀😀
💕💝
 
In the 19th century tobacco was used for "rectal inflation" blowing smoke up the anus to resuscitate the drowned.....
 
Blowing smoke for healing is still done. Years ago the neighbor blew smoke into their son's ear when he had an ear ache from swimming too much. Don't know if it helped, but they swore it worked.
Been busy the last few days, and not much new to say. My sleeps have been somewhat better. Ice is forming in the watering can during the nights, and there have been flurries.
 
“Smoke gets in your eyes”......... Bufford.........we are still warm and 😎 sunny.....but any time now due for the annual surprise.....
Everyone with restless legs how’s your hemoglobin levels.?
It’s a great life if we don’t weaken..
Winning.....
 
Hi guys and gals. I have been experiencing a new symptom during this flare. Night Sweats! I wake up in the middle of the night soaked to the skin. I googled it and found that people with IBD have increased incidents of this.
 
DougUte said:
Hi guys and gals. I have been experiencing a new symptom during this flare. Night Sweats! I wake up in the middle of the night soaked to the skin. I googled it and found that people with IBD have increased incidents of this.
Click to expand...
My husband has that when he flares, Doug. I hope you feel better soon. Is your Dr changing any treatment protocol?
 
Madhu said:
My husband has that when he flares, Doug. I hope you feel better soon. Is your Dr changing any treatment protocol?
Click to expand...

He added Budesonide in order to get this flare under control. The night sweats just started a few days ago. The Doc doesn't know about them yet. Could that med bring on the sweats?
 
DougUte said:
He added Budesonide in order to get this flare under control. The night sweats just started a few days ago. The Doc doesn't know about them yet. Could that med bring on the sweats?
Click to expand...
It's possible. My husband was put on prednisone to control his flare and it certainly gave him night sweats. Not frequently but at least once a week. He mentioned it to his dr and she said it could be the pred but he has a history of night sweats without it as well. It's just a part of IBD for some people. He is still not fully into remission yet but he is off pred now and on methotrexate in addition to remicade. Hopefully we should get more answers soon.
 
Hi Everyone....where are you all hiding and why
Is it the weather or what...
Maybe the current political scenes have made you rush into hiding...
It has been windy and raining all day today.
Not a lot of incentive for going out...
Winning.......
 
Sandy,Kirsty Cat,Dave,Trev,Tony,Ron.Grumpy….all missing without permission,and very much missed.....If I've missed anyone out,I'm having a senior moment.(yes,another one):ghug:

As a young man in London in 1914 ,Ho Chi Min worked for Escoffier as a trainee pastry chef.
 
My thanks to you all for posting, even when you don't quite feel like it. When I wake up with belly pain and wonder how I will make it through the day, I do enjoy reading everyone's thoughts...
It's a beautiful fall day here in Oregon so I am hoping to spend some time outdoors. We have lots of apple trees here on the farm, and if I don't go pick some soon, the elk and deer will have them all...
Cheers to all of you!:drink:
 
How lovely to have all those apples on the doorstep....wish I was there I’d really enjoys walking through the orchards and sampling the different 🍎 🍏 apples......regardless of dire consequences.
Carol...I miss all those people too and hope they are not ill.....or too ill...
Imagine Ho Chi Min working in London.....wonder what changed him....would have been
better to stay a pastry cook and not a war monger...
Had my routine two monthly check up with my GP today.....liver enzymes up..repeats ordered...plus other blood work..also arterial checks
More X-rays and ultrasound for my shoulder and arm..
Think I’ll consider taking up residence in the lab.......
To think I wore my shamrock socks for luck......just have to keep trying...
We had quite a lot of fog today...but unusual and early.
I am feeling quite tired after the hectic morning in the medical building.
The fog had me wheezing..took me by surprise
Now I’m sitting in the warmth of my apartment and relaxing while writing ....watching the clouds roll by
Winning......
 
Hi all. Im currently waiting for my son to return from a job interview,with my fingers crossed . Wish you all well and sending hugs :ghug:💕💝

I once knew an italian chef...but sadly he pasta away 😀😀😀
 
Trysha,when was the last time you had "good" news ? Seems like a while.
Mandy,I hope it's good news for Niall....

The rules of getting older, ( or Ode to Trysha)

Be careful what you eat
Take good care of your teeth
Your eyes,your hip joints and your feet.
Always try to exercise,it's vital for your heart
Don't laugh too hard in case you pee
And never trust a fart.
 
Quick update . Niall has a trial shift on Saturday evening. If he cracks that he should be working again. Crossing everything in hope he is 🙂💕
 
Keeping fingers crossed for Niall Mandy..
Carol..thank you for the encouraging verse....today the physio said my arm is improving..after he half killed me with the aggressive exercises ordered by the plastic surgeon for my healing broken finger and also the orthopedic surgeon for healing shoulder and arm.
I can feel it has started to heal and I am beginning to to be able to lift a small empty stainless steel saucepan ...lidless....quite an achievement..but still a way to go...
Other than that I am feeling better and ready to go for walks again..
Where are all the other folks....a bit worrying with failure to appear...hope it’s busy-ness
and not illness.
We are getting plenty of weather around here...
Winning........
 
Hi All,
In spite of the belly pains, I have managed to gather some of our outstanding "Wolf River" apples- these apples are so big that it only takes two to make a pie! Their skins are nice and soft so you don't have to peel them for pie or apple sauce, or even dehydrating them- I just wash em, slice em and cut out the centers and bad spots. The weather is still beautiful, and I am hoping to bake some pies tomorrow (if the prednisone doesn't keep me up all night...). Next Remicade infusion is next Tuesday...
Scottsma, I loved your little ditty- today I learned why one should never trust a fart...:stinks:
 
Wish you weren’t so far away Nutty...I’d be on your doorstep for some 🍎 🍏 apples..
Cool evening here tonight
Expected to increase to 21C tomorrow...
Sorry to hear of your symptoms
Feel better soon
 
You could put Nutty's apples in your empty pan Trysha.Just a small portion at a time.I think I might bake some apples stuffed with sultanas,and a drizzle of honey.Of course by the time I pop to the shops I'll have gone off the idea.We have an apple tree out back but it's too near to the pond and hubby is afraid dropped fruit will shock the fish,so he picks them too soon.

I too had a dreadful night.Up and down every 10 mins.The good thing is,I must have been 10lbs lighter this morning.I certainly felt it.
 
Sorry to hear you are under the weather Carol ..it can be so vicious ..feel better soon
My nights improve after acupuncture for a couple of days then it’s back till the next session.
I go twice a week and find the symptoms gradually improve.
It definitely works for me and I was lost without it when in hospital.
Not a cure though....but I prefer it to taking drugs
Nutty you are so lucky with those apples...I rarely see huge apples in stores and yours sound 😋 delicious.
Mandy ..hope things are well in your neck of the woods.
Back to the heat of summer today..tomorrow back to deep autumnal days....we are more fortunate than our Canadians out west in Alberta who have heavy snow.
Southern Ontario usually has better winters..but heavy snow can put in a sudden appearance at times.Nowhere near that yet.
Winning.....
 
Hi all..
Carol hope u sleep well tonight. Oh how i remember those nights. Still have a very odd one now n then. Thankfully few n far between. Take care♡♡

Trysha thanks. He has another interview tomorrow morning at Asda. Then see how that goes. He may end up with 2 part time jobs yet 🙂. Glad things are getting better for you hun. 💕

Nutty mmmm those apples sound good. Im open to apples coming by post if u have spare 😀😀. Take care 💕

Love to all 💝💕
 
Hey, Scottsma, what's a sultana? I am busy making apple pie and turnovers today, even tho' the prednisone kept me up from about 1:30 to 4:30. I figure I'm gonna crash around 3 pm...
Does anyone here know about the specific carbohydrate diet? It sounds like it has been really helpful to Crohn's patients but after reading about it, I don't know if I can do it! I can pass on sweets like candy and cakes such, but, oh, how I love bread, potatoes, rice and pasta. When I am feeling well, I love to have my cheese and crackers and a glass of wine in the evening- how can I do that without the crackers??? Maybe I am crackers....:drink:
Fuzzy, I would love to send you some apples but by the time they got to you, I don't think they'd be very tasty!
 
Nutty...a Sultana can be the wife of a Sultan.................................
OR
Like a yellow raisin used in baking.........
I am no longer keen on baking because the apartment oven is quite old...not like the new smooth top stove I had to leave when I sold my house.
Plus I have little to no appetite and waste more food than I eat.
I think I could manage a fresh piece of home baked apple pie.......
Dreaming......
Winning.......
 
Thank you, Trysha, I had never heard of that before! I am so sorry that you don't have much appetite any more! I have days like that every now and then, and my weight has gone from 130 down to 112. Now that I am on prednisone, I am back up to 122, which is good, and most of the time I am hungry. But I just got the latest blood test results, and my glucose is sky high. Has anyone else here had that happen? Is it the prednisone or maybe the azathioprine?
Trysha, do you drink any of those protein drinks like Ensure? The GI doc wanted me to drink three of those a day, but along with the 20g of protein, they have 22g of sugar! That's 66g of sugar every day just from those drinks! I found a 0g protein drink sweetened only with stevia but it made me nauseous. Same with one with 2g of sugar. So I have compromised with one called Evolve- it has 20g of protein and 6g of sugar. So maybe that's high enough to jack up my glucose reading on the blood test. Nevertheless, I am going to eat one of these apple turnovers I just made....:ylol:
 
The only meal replacement I agreed to in hospital was Glucerna...I can keep it down
At home ...none of that stuff...but I will drink skim milk.
Sometimes I make milk shakes with banana and a dash of vanilla.
I’m tired with buying food items and throwing it out.
Likewise with hot food.
My appetite just got up and went.....someday it might return.
The latest endoscopy and colonoscopy revealed Barrett’s Esophagus and strictures...that was the news from my GP....two days ago.My blood pressure is sky high..GP wants the nephrologist to advise.
Next GI appointment in a couple of weeks..
Small wonder my BP is up since my sister is very seriously ill and has been hospitalized.
We only just found out that she has terminal cancer...I’m unable to travel right now but other family members are with her.
I plan to go to UK once appointments are out of the way....but will reschedule if necessary.
Nutty enjoy the apple turnover....sounds delicious..
Carol hope you are feeling a bit better today
Weather a bit foreboding today....will go for a walk after the clouds roll by
Winning"........ a
 
Oh, Trysha, I am so sorry to hear about your sister. I hope you can get away to spend some time with her. And I hope there is something that can be done for the high BP and Barrett's Esophagus without taking yet more drugs...is that something that can be caused by Crohn's disease?
 
Slept better last night...Nutty,when I'm on pred. I make sure to take it early in the morning so that it doesn't interfere with my sleep.I set the alarm for 5 or 6am and take it with half a glass of milk,and go back to sleep.That way it's gone through my system by bed time.It's worth a try.

Trysha..more issues to add to your list !!! Just how much is one person expected to cope with ????
 
Nutty... I don’t think it’s related to the crohn’s....I have had a recurring duodenal ulcer for many years plus an incompetent gastric valve which allowed the stomach acid to back flow into the esophagus
and setting the scene for acid erosion.
I have been taking proton pump inhibitors at intervals but after the latest endoscopy results take it daily....and hope it’s helping.
Just hoping to keep the Barrett’s away..
Carol..glad to hear you had a better night
Mandy...thank you....my sister is better for IV therapy plus antibiotics...she had an infection
but won’t allow any more tests ...she needs endoscopy but refused..
Sun has got his hat on here....at last.....it was a cloudy morning....at least we don’t have snow like some folks....
 
Glad to hear your sister is a bit better Trysha..i can understand her refusing more tests. It can be very wearing n worrying.💕

My mum is on the move to another hospital. Slightly near home by about 5 mins car drive. Not much improvement in her state of health still cant walk n is uncomfortable sitting. Tho i dont think the physios are doing enough with her to be honest. Catheter still in, its a bloody joke should be long gone by now. Told them to put a flip flow one in weeks ago but no they havent. So she cant wee for herself yet.
I dispair sometimes with the nhs system. I know its overloaded but basic stuff is not being done!!!
Rant over....
Take care all much love n hugs xxx
 
By the way ...has anyone else had these emails going into spam folder of late. Mine have so just wondering ?? 💕
 
That’s terrible news about your mum Mandy
The person to speak with is the doctor who is the one who writes the orders ....usually the nurses follow them.
What she is enduring is neglect of clinical duties,
Hospital care varies so much...not like it used to be.
Fortunately I have received excellent care....hospitals are so varied and some do not
deserve our trust.
I hope she will soon get better care and I’m sorry to hear she is not doing so well.
Take care
 
Thanks Trysha. .the only thing on seeing doctors is that with working both my sister and i can never catch them. On our days off the visiting hours prevent us being there when doctors are around,at weekends theres none around at all. . I got a call from a nurse last night to say she had arrived there safely. Im seeing that as a good sign as iv never had that before when she has moved.Good news is that the visiting times are open on that ward and we can go between 8am n 9pm. So i may be able to catch a doctor now on my day off (next day off mon) at last.
Glad you get really good care hun. It should be that way for all all around the globe, sadly its not the case. Take care and keep safe 💝💕
 
Hi all. Some good news my son has got a job working at Asda/Walmart . Has an induction day on weds 🙂. He will be working nights so gets extra money than if he did days.
Winning for a change 😀
Hope everyone is well 💝
 
Congratulations on your son getting the job, Fuzzy! This morning I am heading out to a local flea market to set up a booth, one of my favorite things to do. I get rid of some of the clutter around this farm, and make a few dollars, too. The market takes place once a month on the first Sunday, and this year I have missed three of them due to the Crohn's pain. My husband wants me to stop going because of fears of picking up a flu or cold bug (I have been lucky so far) but I feel great this morning after getting a full night's sleep! Thank you, Scottsma, for the tip on taking the prednisone early in the morning- I sleep a full night once every three nights or so now! Best wishes to all...
 
fuzzy butterfly said:
Hi all. Some good news my son has got a job working at Asda/Walmart . Has an induction day on weds ��. He will be working nights so gets extra money than if he did days.
Winning for a change ��
Hope everyone is well ��
Click to expand...
:dance::dance::dance::dusty::dusty::dusty:
 
NuttyGuts said:
Congratulations on your son getting the job, Fuzzy! This morning I am heading out to a local flea market to set up a booth, one of my favorite things to do. I get rid of some of the clutter around this farm, and make a few dollars, too. The market takes place once a month on the first Sunday, and this year I have missed three of them due to the Crohn's pain. My husband wants me to stop going because of fears of picking up a flu or cold bug (I have been lucky so far) but I feel great this morning after getting a full night's sleep! Thank you, Scottsma, for the tip on taking the prednisone early in the morning- I sleep a full night once every three nights or so now! Best wishes to all...
Click to expand...

Enjoy your day.If you feel good then you have to make an effort.Plus you get to see folk and chat to customers.I love flea markets and auction houses.Get rid of the clutter and make room for more,I say....:wink:
 
I have been away from here for a bit, and there have been a lot of ups and downs. Too many downs, Trysha and Mandy I hope things improve. I am procrastinating too much, here it is after lunch and I have got nothing done yet. It might be the only good day this week, so I am going to force myself outside, change the oil in the truck and move furnace oil into the tank. So many other things to get done before the snows, but I can only do so much. The impassible trail blocked by fallen trees to the cabin will simply have to wait, I just don't have the strength.
 
Don't beat yourself up Buff.I know there's a certain amount of urgency to get things in order for the winter,but you can only do what you can.

I've had restless legs two nights on the go and I'm dreading tonight.(I have put soap on my bedside table Trysha.) I felt it creeping up at about 9pm last night and I seriously considered having a very large glass of hubby's Scotch.
 
It's that I am so much slower and weaker this year, making me question how much longer I can hold on to this house I have lived in for 35 years and the rural lifestyle that comes with it.
The fear of the unknown when it comes to making a big move, leaving the familiarity of my surroundings for the new unknowns, one that will be downsizing which is the sad reality for those like me who are retirees.

Next year I will spend some time looking around into a smaller community, and look at options. Making the commitment is an entirely different thing, not looking forward to it.
 
That’s happy news Mandy.....hope he will enjoy the work...
Carol...you are supposed to put the soap bar into the bed with you...keep it near your feet..
although I’ve read it doesn’t matter where in the bed you place it.
Won’t help if you leave it outside on the nightstand........feel better soon.
That’s happened to me Bufford....I became too sick to maintain my house and sadly sold it....I do miss it....but not the work that maintained it...and for which I paid outside help.
I chose to live in a beautiful apartment...bus stop almost outside....not that you see it since the grounds of the apartment building are huge front and back.Church next door..well across the road..
The back has a swimming pool. And a building with change rooms..alongside..I don’t use it can’t swim allergic to the chemicals in it......to one side there is
A huge area with an outbuilding to sit in ...railed off...has a barbecue and a vegetable garden managed by tenants,a green area with trees 🌲 🌳 where tenants can walk their 🐕 🐶 dogs...
Only small dogs allowed.
People can stroll through the gardens at will..some play bocce ball whatever that is...
There are large underground and above ground parking lots.
It has been a good move for me.....but it bothers me a bit since with a house you earn equity.....no return on rent
Apart from the surroundings...grand double entrance..
good for meetings...
There is a party room....and further down the corridor a huge laundry room...washers dryers and a library to use while the washing gets done.
So there are pluses.
Since living here I have been in and out of hospital so many times,sometimes months at a time.... but at least I can feel assured that the apartment is safe while I am away plus friends keep a watchful eye.
When life hands you lemons ....you make lemonade...
All that said...I do miss my 🏡 🏠 house.
I fully understand how you feel and it’s a big decision to make.
So now we are into the season of mists and mellow fruitfulness.....it a thick fog out there tonight..
Winning........
 
Welcome, Vanphuccity!
Hang in there, Bufford- you do have some major life adjustments coming. You sound like such an independent person, living in a rural area and used to dealing with life's problems on your own. But we all reach a stage where we need to acknowledge that we can't do it all on our own anymore. My husband and I are beekeepers- we used to have beef cattle- and we are approaching that time of life soon ourselves. We have no children locally and I see us getting weaker and slower each year. The strictures had me so weak this year that I could not help with the honey harvest and extraction. Surgery is on the near horizon. But we do the best we can, and part of that is sometimes accepting that a change of living accommodations is necessary. Thanks Trysha, for sharing your experience objectively. There are definitely some pluses to down sizing and maybe even assisted living. We are right behind you, Bufford!
My best to all you wonderful folks and your positive attitudes...:rosette2:
 
vanphuccity said:
Yay, I’ve found you all :smile:[/QUO

Hello and welcome again.You won't win a prize on this thread no matter how you try,but we're a good bunch of crohnies and we talk about anything that comes to mind,usually rubbish from me.(I thought I'd get that in before somebody else did ):lol2:
Click to expand...
 
Bufford said:
It's that I am so much slower and weaker this year, making me question how much longer I can hold on to this house I have lived in for 35 years and the rural lifestyle that comes with it.
The fear of the unknown when it comes to making a big move, leaving the familiarity of my surroundings for the new unknowns, one that will be downsizing which is the sad reality for those like me who are retirees.

Next year I will spend some time looking around into a smaller community, and look at options. Making the commitment is an entirely different thing, not looking forward to it.
Click to expand...

I can understand that completely Buff.When age creeps up on us,then we all worry what's in store.I once said to my son,years ago ""Promise you won't put me in a home Scott" and he replied "Mother,when it gets to that stage,you won't know or care what's going on".My plan is to barricade the doors and lower a bucket on a rope from the window so kind friends can put cigs and whiskey in it,and chocolate.:rof: Hopefully this is just a "winter blues"thing and you'll cheer up come spring.:ghug:
 
So this is where you're all hiding :) I just voted in the municipal election online, which was so much more convenient. No more walking to the polling station. They even had a box for "spoil this ballot" lol.
Buff I'm in the same boat. I like my little house, and I'm very close to a hospital, which I now appreciate. But the yard work is a bit much. I'm thinking that maybe next year I will hire someone to help. My new neighbours from Cameroon have been wonderful, when they mow their lawn, they do my little one at the same time.
Anne
 
Thanks for the support. This is the time of year I anticipate the coming of snow, and I am busy doing many things getting ready for winter, but still embracing nature with time outs at the cabin. But with age/pains its getting to be more of a challenge, and this year with my gallbladder issues it can be a bit too much at times. Perhaps once my gall bladdder is removed, fixed or whatever I may return to a better state of normal.


I have looked at a few older adult apartment buildings. I think I would enjoy it at first, but I may find life too confining due to the predictability of daily living and the confines of downsizing from a property of sizable acreage of a lifetime. Having said that, there is a good opportunity to meet people and make friends who are of a similar age group.

Carol, that scotch can be a near cure all for many things including restless leg syndrome. Scotch; a therapy I don't hesitate to use :)
 
Hello Vanphucity and Tuff...welcome to the forum.
It’s a tough decision Bufford but you will know for yourself if and when to take action..if ever.
I have settled for apartment living..I feel comfortable ,not confined .....but will always miss my house but not house upkeep that goes with it all.
Good news today...my sister is recovering and will be going to a nursing home for respite care...for a few weeks.....I was shocked at how much it costs over there...you pay in pounds sterling what we pay in dollars for a higher end nursing home..
I think the government should take a look at this and put a cap on fees.
She is unable to walk because of stroke damage to her spine and is less able to do very much....she needs help into a wheel chair plus any transfers.
I also had some good news today. The nephrologist says I am quite stable with no obvious progression of the renal failure.....so I can return to the care of my GP thank goodness.I have no love of hospitals...she warned if any change occurs then it’s back to the nephrology
department...hoping for a miracle with acupuncture...but I just saw a pig fly by the window....
Can’t win them all..
Just had a thought Carol...did you try Palmolive nickname balm olive.......and don’t forget to put it IN the bed.....good luck...keep us posted with good results...
Mandy...hope Mum is progressing well and that your son likes his job..early days yet I know..
We have a heat wave today ..Fels like 200 degrees...but that would be a slight exaggeration
It’s hot as Hades...81 degrees....
Winning
 
Carol...if you go to
peoplespharmacy.com
You will find an excellent article on restless leg syndrome and the use of soap in the bed
Apparently you should place the soap under the lower sheet near to your feet.
 
Trysha. Niall has his induction day today and will get his shift rota,so hasnt started job as yet. I hope he likes it too but if he dont its tough we need the money. Struggling on that front badly at the moment.
Mums doing ok but no sign of being able to come home yet.💕

Everyone else hang in there.
Love n hugs 💝
 
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That’s a misery for you Mandy...nothing worse than money shortage...hope you soon come into a fortune or enough to live comfortably.
Money should be more evenly spread around so nobody goes without but we have not yet reached that Utopian world.
I well remember those days coming from a large family....all the make do and mend hand me downs.
Seldom had anything new being in the middle.
Our weather has turned crazy...unbearable heat for this time of year but I also know it can be dramatic in change..forecast for a cold weekend..so sign of it yet.
Can’t sleep tonight..well at first I did but then woke up after a few hours..thought I’d do better going to bed early...forget it.
So I have resorted to my faithful iPad to hopefully induce some sleep...
I was relieved to be assigned back to my GP from the nephrology appointments...she said no need right now since condition is stable....if any change have to go back to the clinic..
Nice to have good news for a change.
I was in luck yesterday...made a mistake with the vascular lab appointment and was almost three hours early but the ultimate professional who was at the front desk when I arrived said he would see me right away.I was quickly taken care of with the scan and away I went.
Today I have to get an ultrasound on my arm...playing up.
It’s all appointments this month...but it will clear the path for Christmas..hopefully.
Morpheus is beckoning me back to the land of nod....
Winning....
 
Trysha if i come into a fortune i will spread it around 🙂. Comfortable living would be great tho. Spent a lifetime scrimping n scraping so it would be a welcome change 🙂💕
 
Good to hear better news concerning you and your sister Trysha.Mandy,I hope Niall sticks with the job,at least for a while.Gone are the days when we could pick and choose who we work for,alas. Trysha,I did put the soap in the bed by my feet,but you were a wee bit late telling me to place it under the bottom sheet so obviously it went missing.....BUT no RLS for two nights.Don't know if it was the soap wot dun it,or it had run it's course for a while,nor do I care as long as it's gone for a while.I will read that thingy you posted about it soon.Warm here to today.Have had a tooth out, but may still need a root canal on another....oh deep joy !!!
 
I've been scraping by these last few years as well. I had to switch to part time work after my Crohn's put me in the hospital. Now I'm just waiting for my full pension to kick in next year, and things will be much more manageable. It's a good thing that I'm a good cook, you can save a ton of money that way. I even make all my own bread. A wholesale store has flour for 7.99 for 22 kilos, that goes a long way.
 
When I don't feel well I feel very vulnerable, I don't think I am alone but rather a condition many of us experience, the glass we look at becomes half empty. Today I am having a better day, and I become more like my regular self. Good health is such a fleeting thing, I try to hold onto it when a good spell comes along.
 
Thanks for all the good wishes and support. Much appreciated 💕.

I know im not alone in lifes struggles. We all have them what ever they maybe. I only wish i could disperse our troubles and we could all live with less worry. Alas i cannot but i can and will always offer love comfort and support to you all as best i can.
Sending you all blessings,hugs n love :ghug: 💝💕💝
 
Hubby and I went for a peddle earlier and while we were having a break and looking out to sea he told me a bit about a book he's presently reading.A chap from London fed up with his daily toil decided to cycle around the coast of Britain,which of course includes Scotland and Wales.While in South Wales he met some people who invited him to a "Happy" party that evening.Every one was banned from being negative and must only talk about happy things,or out you go.There were about forty people there and despite thinking "what have I let myself in for ? " he had a great time and stayed for four days.My question is this......How long would you all last ? Me,about 20mins then complete silence for another 20,then I'd leave quietly and voluntarily before I was ejected.Hubby would have been waiting outside for me for 39 mins and 30 seconds....
 
It wouldn't be for long that is for sure. Having said that, I think we have all become pros due to shortcomings of health at making the best of what can be a difficult row to hoe.
 
I'm sure if all us on LOWs, and the absentees, got together,we would have a great time.We all have that sense of humor to carry us through.We'd even laugh at each other when we started whining,withought being offended.

Well I think we would,or we might end up having a good old punch-up.
 
I might last ten minutes if feeling lucky
Carol hope the soap continues to work for you...many people swear by it.
I’m a bit worried about my sister right now...I hear she is not so well since the transfer from hospital to nursing home.
The nursing home has taken such good care of her since she arrived and whenever my niece visited her she said there was a nurse and a physiotherapist with her
trying to ease her pain plus she had had her hair done which... bugged her in hospital since they did not bother.....perhaps she was too ill for that,,,,I can
appreciate their caution with a GI bleed.
Wish I could be there ...not possible yet.
Mandy feel better....you too Bufford
We still have summers heat...looking forward to it being a bit cooler...
Cheers Everyone.....
Winning...""
 
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