- Joined
- Apr 1, 2018
- Messages
- 160
I left my commemorative cup of water on the roof of car. Plastic and I damaged, I picked up in the middle of the road. I was then on the wrong side of the main road separating a mall where I was meeting a wonderful friend I’ve know since I was 6 years old. We both wanted a Valentines night not alone, as she said, “Crying by myself watching another happy ending Hallmark movie.”
I had a wonderful 14 hours of sleep, temporarily relieved of the stress my father having a tumor removed, then rebuilding his lost section of spine. Cancer never starts on the spine. He’s in the ER under stroke protocol. I am hoping it’s the morphine and OxyContin that he’s been on for three plus weeks. No physical signs, responding to touch and speech. CT on brain just done. Now the ever long waiting game.
His liver bile ducts are infected. Still waiting on biopsy results with type of cancer and what stage he is in. Managing setting up radiation treatments, insurance, getting bills paid and all that fun.
All the details like laundry, food shopping, the dog and clearing the sidewalks and car after a snowstorm last night. All of those things need to be done, but no room to worry or punish myself for what I don’t get to.
I was three days in the hospital last week, the stress tied my intestines into knots, at lest it feels that way still. Endoscopy threw my stomach and deep into my intestines where they found a slightly partially obstruction, which thankfully was just scar tissue. My GI doc was thrilled after the procedure, “You have great anatomy down there and I was able to go farther than I ever expected.” So I got that going for me.
Very luckily, Skyriza is working. The is the first time since diagnosed in 2018, that the stress didn’t put me in the hospital with a flare. I’m still on lovely Prednisone, which I just realized here in the ER, not able to leave anytime soon, I forgot to include it in my morning meds, hence the headache and empty of bodily functions feeling.
All in all, no matter what I need to stay positive and on point like I’ve not done in years, since my daughter was a toddler.
I just have to focus what’s going right and take care of everything else the best I can and accept the help of family and friends.
I had a wonderful 14 hours of sleep, temporarily relieved of the stress my father having a tumor removed, then rebuilding his lost section of spine. Cancer never starts on the spine. He’s in the ER under stroke protocol. I am hoping it’s the morphine and OxyContin that he’s been on for three plus weeks. No physical signs, responding to touch and speech. CT on brain just done. Now the ever long waiting game.
His liver bile ducts are infected. Still waiting on biopsy results with type of cancer and what stage he is in. Managing setting up radiation treatments, insurance, getting bills paid and all that fun.
All the details like laundry, food shopping, the dog and clearing the sidewalks and car after a snowstorm last night. All of those things need to be done, but no room to worry or punish myself for what I don’t get to.
I was three days in the hospital last week, the stress tied my intestines into knots, at lest it feels that way still. Endoscopy threw my stomach and deep into my intestines where they found a slightly partially obstruction, which thankfully was just scar tissue. My GI doc was thrilled after the procedure, “You have great anatomy down there and I was able to go farther than I ever expected.” So I got that going for me.
Very luckily, Skyriza is working. The is the first time since diagnosed in 2018, that the stress didn’t put me in the hospital with a flare. I’m still on lovely Prednisone, which I just realized here in the ER, not able to leave anytime soon, I forgot to include it in my morning meds, hence the headache and empty of bodily functions feeling.
All in all, no matter what I need to stay positive and on point like I’ve not done in years, since my daughter was a toddler.
I just have to focus what’s going right and take care of everything else the best I can and accept the help of family and friends.
