Mini-vents

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Haha, Cat! I did THE EXACT SAME THING today except, it was at the gas station. I swiped my card twice before I realized I was supposed to use the card swipe machine on the far left side of the gas pump. But, I still had to use the pin pad on the right side of the pump to type in my debit number! Talk about confusing, haha.

I felt pretty stupid too. ;)
 
This is more of a rant for my husband.

They're doing construction near my husband's work and the power went out while he was working on typing up some hw assignments due for his class tonight. Then the internet went out, so he had to text me the script for his assignments so I could type them up and submit them for him. Work got cancelled early, but then he had to wait around even longer for his class to start. And he left his umbrella at work.

Then we had some really bad storms roll through and got worse just as his class got out, so he had to walk to the train station in a downpour. Then all the trains were stopped due to power outages, fallen trees, and wind gusts--including his train that was supposed to get him home by 10:30 pm.

With still no word when trains might depart, he called a cab and found out it's going to cost him at least $100 for the hour and a half drive from downtown to here.

Did I mention he hasn't had a chance to eat any dinner?

He's had a rough day and I feel bad for him! Poor guy.
 
Marisa, what a nightmare for your husband! Did he take the taxi home? At that cost I would think it might just be better to find a cheap hotel room and spend the night where he was! We had storms blow through here yesterday evening too - it was probably the same storm, actually - and it looked just horrible outside. Our power stayed on but it flickered here and there. I kept a candle and a lighter next to me just in case!
 
Yeah, he ended up taking the taxi. It wouldn't have made sense for him to stay in a hotel because he still had work this morning, which was not downtown, but 30 min. north of where we live. He actually heard this morning that they never got things working last night and many people slept on the train and they were all running at least 30 minutes late this morning. Nuts!

Thankfully we didn't lose power here, but it was scary being here by myself as all the warnings kept going back and forth between severe thunderstorm and tornado warnings. It was super windy and we had hail a couple times. The power flickered a few times as I sat on the kitchen floor with my weather radio and my cats. What makes me nervous about where we live is that there's no basement and the lower floor is completely open with vaulted ceilings and skylights. We don't have an interior room with no windows. So, the only place we could think of to seek shelter if we had to is the laundry room, which is between the garage and the kitchen. Not sure if it's the best, but there's really nowhere else. We don't even have a big enough closet on the lower floor!
 
Marisa, scary! I have a friend who lived in Oklahoma City for a few years, and they get a ton of tornadoes down there. My friend lived in a 2nd story apartment with no basement and not even a place to go on the ground floor during a tornado. Their landlord basically said "it's not my problem." So whenever it looked like there was going to be a tornado, she'd get in her car and drive to a nearby mall or Walmart and huddle in their tornado shelter. But I would think it'd be better to stay on the 2nd floor than to get in a car and drive! Either one is scary. Makes me really glad I have a basement!
 
Yeah...I just worry about my cats. Silly, I know. Most people probably wouldn't think of such things if they were about to be blown away by a tornado, but I can't help it.

I don't know if I'd have the guts to get in a car either. I'd probably just take my chances in the laundry room and pray it worked! I can't wait to have our own place though. A basement is on the must have list, haha.
 
I totally understand, I worry about my pets too! We had a tornado warning a couple of weeks ago, and I brought the dog and cat down into the basement with us. It was funny because my dog had actually never been in our basement until then - she's a corgi, so she has very short legs and she doesn't do well with stairs. She seemed absolutely fascinated by this new place in the house, so much so that she was too distracted to be scared of the thunder, which normally terrifies her. Now, whenever one of us goes into the basement, she follows us up and down. It sometimes takes her a few tries to get up the stairs though. She usually needs to get a bit of a running start. ;) Such a funny pooch.
 
My mini-vent today is about my Mum. Much as I love her, things like this make me mad. For ages I have been hearing about how great this clubbing night out with her friends is going to be (even though I have asked, and she agreed, that talk of her social life be very limited as I find it too upsetting to be reminded of what I can't do). Now she's decided she's in a mood and may not go. I could not believe it. Never mind she not only got to go out during her youth and now having a second go (when I had barely one), she just does not realise how lucky she is to have the choice. I have had the choice taken away from me and it's awful, at 24 I have to watch my mother have a social life, second chance too (not that she is not entitled- just unfair you know??), and she doesn't even seem grateful for it. She doesn't get the irony or sadness when I tell her "everything seems better after a night out" either, goes right over her head.

On top of that forgetting/ being erratic with my contraceptive pills means I am now having a bleed and that horrid ulcer/mass in my throat is not going away. It's better than it was but still there- one morning I got up, took a swig of water and had to spit it out, it wouldn't go down! Much hacking up of saliva/ warm liquid later (sorry if TMI), there was a gap again! I won't seek help in the hope it's still there for upper endo but in the meantime it's awful. Also a right pebble sized little stinging one on the underside of my tounge which keeps hitting my teeth, gums and bottom mouth!
 
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Star, that thing in your throat sounds just awful! Your upper endoscopy is still about a month away, right? Poor thing, if you're intent on not treating it so that it can be seen on scope/biopsied, I hope the next month goes by very quickly for you! If it gets worse, please do seek immediate help. Not being able to get water down sounds terrifying!

My mini-vent today is that I hate car mechanics. They charge soooo much and they play up how badly repairs are needed. I had my car in for an oil change & tire rotation a couple of weeks ago, and while the tires were off they checked my brakes. They said my back brakes are down to almost nothing, my front brake pads only have 30% left and my front rotors are totally shot - total cost to fix it all, $600! I said I'd come back later to have the brakes done. Today, hubby jacked my car up and took the tires off and looked at the brakes himself - they're not nearly as bad as the mechanics said, although they should be done sooner than later. Hubby said he can do my brakes himself, and when we looked at how much the parts cost, it looks like it'll be just under $100 for everything. Hmm, $100 or $600? Did I mention I hate mechanics!
 
Thanks Cat, yes scope is on the 12th. Not going to make the test any easier either! lol, yes the water thing was not very nice, happily it only happened once. And it may heal on it's own.
 
Starr I know exaclty what you mean. I cant take it anymore when everyone complains about the most trivial of things when I have all of this. It just seems unfair! When this happens to me and my sister and cousins go out I just remind myself that I am taking care of my body and that I am resting so that I can eventually get better. This keeps me from going insane at times. I still try to go out with my boyfriend where i know there will be somewhere to sit and that is not to tiring. I also visit my cousins and talk to friends on the phone when I am feeling really bad.
Cat: Mechanics suck! I hate dealing with cars. With your husband able to fix it it will cost way less.

My mini vent: Just when things started to look up and my doc decided to give me steroids to treat my symptoms, i get a new one and its an embarassing symptoms so I feel like I cant tell anybody besides my doctor. I am doing good on the medicine but now my butt hurts and m doctor told me to stop looking on google and my other doctors nurse didnt even know what a fistula is! how the heck do you work in a GI office and not know what that is. It seems like even my GI doc doesent know much about chrons. So frusterated with all of this.
 
I'm glad you have a boyfriend Dayz, it's very very lonely going through this alone. Last time I made it out socially was around a year ago. After that I have just become too ill. I go out to the Hospital or to do essential errands now, is all I can do to manage that honestly. I coped well with things but it has been going on so long now that I am sliding downwards, my hopes for the future are not always enough to keep me going now!

Re Mum's night out, what do you know, asked for advice on outfit today, now I need to find a tactful way of saying I don't want to hear all about it tomorrow (or next weekend when she is going out as well!), she seems to have forgotten our agreement.
 
Well...I'm going in for another interview this week. With the same person I interviewed with last month. A position opened up in the same department and he e-mailed me to see if I was still interested in full-time employment. It was exciting to hear that they thought highly enough about me to inform me of the position, but disappointing to find out they still posted the job on their website. Guess they want to see if they can find anything better than the "top" candidates they had for the other position. Trying not to feel insulted by that just a bit ;)

So, yeah. All that pre-interview anxiety is coming back. I'm supposed to be meeting with people who are "directly involved with the position," but I'm not sure who those people might be. So, of course I'm wondering what sorts of questions they might ask me. Or of it's more of me just meeting with them and them telling me how they interact with the position rather than them asking me questions. Can anyone think of some situational questions they might ask? The position is for Assistant Registrar of Non-Traditional Students (adult part-time program).

And I'm interviewing with the same guy who interviewed me for the other position, so I don't know what other questions he may think to ask me since we talked for an hour last time.

I guess I should also have some questions of my own to ask, just in case. I already asked "What do you like about working here?" So, any other suggestions, feel free to throw them my way.

I could come in as early as tomorrow morning for this interview, so any help advice, encouragement is much needed. I'm just hoping if I'm not the one to get the job that it's not as drawn out of a process in letting me know that. I don't like to be left waiting in suspense.

I'm really hoping they take me more seriously as a candidate. This position opened up a few days after I interviewed for the other position last month and they filled it with their 2nd choice candidate, based on the fact that this woman worked in the records office of a high school for many years. After a week, she quit and said the expectations for the job were too high. But basically, my husband found out it was that she wasn't comfortable working with computers and wasn't willing to learn. So, that's why the position is vacant again. Hope that goes to show that lots of experience does not always mean you're the best candidate for the job. Maybe they'll be willing to take a chance on someone with a clean slate who is dedicated and willing to learn. :)

Ok, sorry...this is more of a huge vent than a mini vent. Basically...I'm NERVOUS!
 
Good luck Marisa!!!!

My mini-vent for today.......found out I will NOT have my birthday off from work this year....boss just had to change our schedule so that the extra time worked on July 4th (for a fireworks detail) will be overtime (which I have NONE of so fart this year!)....but that means I have to be back at work by 815 after getting home somewhere around 12-1am.....UGH!
 
Marisa, good luck! As far as them posting the job on their website, I think that's just the nature of the job market right now. There are few jobs and many unemployed people looking for work. The more candidates an employer brings in, the more and better options they have to pick from. It's not that you're not the best person for the job, it's just that employers have a lot of choices nowadays so they can afford to be choosy. Anyway, best of luck! If they called you and let you know if this opening, that must mean that they think highly of you and got a good first impression! Try not to stress too much, you've already interviewed there once so you know the basics of what they do.

My mini-vent today is that I don't understand silly rules. There's this arboretum in my city, it's basically a big gorgeous park. It's got woods and meadows and orchards and it's just beautiful. My friend told me about how her fiance never goes on picnics with her, and I said my hubby doesn't like to picnic either, so she and I decided we're going to have a picnic together this weekend, and we thought the arboretum would be the perfect place to go. We're both terribly excited aboug going on a picnic together! I looked at the arboretum's website today to scope out the perfect picnic spot, and what do I see under their rules & regulations - No Picnics Or Food Allowed. Argh! It's a park that doesn't allow picnics??? Really? How annoying is that! It's the best park in the city too so now we have to find an inferior spot to picnic. That just makes me grumpy! I was so looking forward to this and now I feel like it's been ruined. Stupid nonsensical rules!
 
Another mini-vent- STILL NO WORD on the transfer position I interviewed for!!! GRRRR.....I can't plan ANYTHING this summer because I don't know what is going on.....our office put out a press release last week detailing the agreement which is the reason for the new positions.....but still nothing on any new hires or transfers!
 
Why does every sodding medication for this evil disease list dioreah as a side effect (which Oli now has) - that's one of the things we are trying to stop!!


Aaaaaagggghhhhhh!
 
my "mini" vent ??

I wish justifiable homicide was legal right about now !!
LOL...doctor's push me to this point now and then !:voodoo::voodoo::voodoo:
 
oh boy - which to choose this morning?!?!?!?!?!

Went to the ENT to have my ear checked (which is BOTHERING ME today - vent #1).....the exterior part looks good, so now it may be an issue with my eustacian tube?!?!?!......guess what he has me starting on...20 mg PREDNISONE for 7 days!!!!! (vent #2!)...joy oh joy.....

#3 - STILL no word on the transfer.....
 
Cat - You're right. Guess I shouldn't be so selfish. There are probably people out there who need employment worse than me. So, I'll just remove my foot from my mouth now. ;)
 
Well I *thought* I made it to the bathroom in time... looked down and there was some liquid dripping down the toilet and on the floor. Gross!
 
been there - done that!.....hope you were home at the time!

Why is it you can THINK you are all nice and clean, then an hour or two later things feel 'squishy' and sure enough, YUK!
 
Well, this is a follow-up about my interview.

It went really well. He actually told me right before I left that technically he didn't think I would have a problem doing the job. The only things he has reservations about is my maturity and ability to empathize with students for the job. He said he was leaning towards yes, but he wanted to have the weekend to think about his decision and pray about it and would try to let me know by next week what the decision was. so, it was nice to actually hear the reasons I would or wouldn't be hired. I think regardless of the decision, it helps to know the reasoning behind it. And I appreciated his honesty.

My husband was helping me find e-mail addresses for the 2 other people that met with me in the interview, so he was asking a co-worker in another office the last name of one of the women I met with was and she ran down to his office to tell him she had talked with one of the women in the interview (after the interview) who said they had just met with a younger girl who she thought would be really good in empathizing with students and because she had a background in psych. and wanted to do counseling, but was looking to help people in a diff. way. Well, this co-worker hadn't realized at the time that the woman was talking about ME. So, when my husband told her that I had interviewed for the job that morning, she realized the woman had been talking about me and ran down to his office to tell him what she said about me. Haha.

So, that was pretty nice to hear. And that was literally immediately after I had sent my husband a text saying I was worried that something I said in my interview (deciding that counseling wasn't for me, but wanting to help people in a less direct method) could have been misconstrued! So funny.

So, it basically sounds like I'm the only person being considered right now and the decision will determine whether they call in more people from the job posting that's online right now.

So, yikes! I REALLY hope I get it!

My mini vent is that I've had a headache ever since I got home fomr the interview. I don't know if it's allergies, my contacts, or lack of sleep/having to wake up early. Rargh!
 
My vent for today-I need pain meds and pred so badly and yet every time I take Tramadol I feel horribly nauseated and dizzy, which requires Zofran, which makes me constipated and dizzy....WTH?

Vent #2 My dumb-a$$ neighbors shot off their illegal M80 fireworks last night, scared the hell out of me, my husband, and my 82 year old grandmother (who doesn't need anything scaring her) and now one of my cats went missing. I hope that neighbor blows a few fingers off!:voodoo:
 
Marisa, good luck with the job, I hope you get it! With regards to your headache, is it still hanging around? There have been some storms blowing through here lately, so they're probably in your area as well, and I always get headaches when storms come through. Apparently they're called "barometric pressure headaches" because of the pressure change when a storm front approaches. I have many sinus issues and I've found that Tylenol sinus it the only thing that can take care of these headaches for me. Hope you're feeling better!

Jeannette, hope you find your cat soon! My dog hates loud noises too - between the thunder we've been having today and the fireworks that will be lit off all weekend, I'm sure she'll be a nervous wreck!

Paso, did you ever hear about the job you interviewed for? If not, I hope you find out soon - man, they really are keeping you waiting!

My mini-vent is that it's soooo fricking hot here today. The high temp is 97, and the "heat index" (not sure exactly what that is) says it will feel like anywhere from 100 to 110 degrees (fahrenheit). It's super humid too. I'm sure some of you in the south will think I'm a wimp, but I'm from Wisconsin, we can't handle this kind of heat here! I like the summer, but not this hot. Makes me nostalgic for snowy weather, ha ha.
 
Heart Healthy?

I am 27 yrs old and not getting older. Im trying to figure out what to eat to protect your heart?
If you cant eat nuts or seeds, How can you protect your heart and from getting heart disease?
 
Cat - Thanks! No, my headache is gone. It could have been a headache due to the weather. It was super windy yesterday. We did have some storms in the area, but all we got where I lived was wind. But, that certainly may have been the cause. I remember one day, back when I was in college and still living in Florida...a tropical storm blew through and school was cancelled. I was so excited, but then could not stop sneezing and blowing my nose. I was like "Oh great, I get a day off and I'm sick." But then the next day I was completely normal. I remember looking it up and realizing it was all the weird weather screwing with my sinuses. So, it could have been possible. I didn't realize there was a storm in the area until my weather radio alarmed last night. So, without realizing it I could have had a headache due to that.

My cat, Daphnis, hates loud noises too. It's actually gotten so bad that the faintest sound of the trees blowing in the wind over the skylight freaks him out because he thinks a storm is coming, I guess. I felt bad for him anytime holidays came around that involved fireworks. Hed be hiding the whole night. Thankfully, where we moved to, people don't do fireworks at home. Everyone goes to the big displays they have. So, at least he only gets scared once as opposed to a week before and a week after when most people usually buy fireworks for these sorts of occasions.

It's really hot here today too. I would say this is pretty much like how it was in Florida, except I'm not accustomed to it anymore plus I have the extra heat sensitivity now that I'm on medications. Today we were supposed to run, but the last time we went running when it was hot, humid, and the heat index was supr high, I thought I was going to pass out from overheating. So, I'm pretty sure we'll be postponing it until tomorrow! I hate humid heat. That's one of the main reasons why we didn't like living in Florida. ;)
 
Some of this crap, I am doing to myself

My vents for the day.
My daughter went to the shore with my grandson. They live with me and didn't even bother to tell me. How rude. I am glad they are gone but How rude!


My other vents are my bones hurt, my butt hurts and my back and shoulders burn. My bones hurt because, well they just do. Maybe it's from years of prednisone. Because my bones hurt, I am not moving around as much, which makes my joints hurt and my butt hurts because it has been sat on all day. I wish I could just roll over and be in a large warm pool. Pools always help my joints. However, because my bones hurt, I don't want to get to a pool and I don't want to deal with having to possibly have to change my wafer and bag again anyway.
I came on this site because I remembered a happy thing that I wanted to say about my grandson but it took me forever to find the right place to write it and now I am not in the same frame of mind and did I mention my bones hurt. It is hard to be happy when I get like this. Oh gre:redface:
 
OT rant. I may have been a wee bit drunk last night at the BBQ but I swear I was told by a so called friend to walk on my broken foot to realign the bones. This same person had one of those footbath things that turned ferric chloride into iron oxide as a sign it was sucking the toxins from your feet. She now has a laser that heals bones apparently. And charges people to use them. And obviously knows the human body and anatomy better than doctors and surgeons. I despair.
 
yay for finding your cat!!!!!

I have one licking my foot right now...gettng ready to head back outside to the icky, nasty yukky humidity to get some more yard work done!.....

At least I didn't get stung by the hornets whose nest I disturbed this morning!...Die hornets, DIE!!!!!
 
Yay for kitty! :)

My male kitty is terrified of the fireworks going on outside. Apparently more people are setting them off this year. At least he hasn't resorted to running upstairs and hiding under the bed though. He's just crouched down low to the ground in the living room. Poor guy.

Getting nervous about hearing the decision about that job this coming week!
 
A very mini-rant, I promise...

I feel so much better, AMAZING really, since I got out of the hospital. Just getting fluids and putting a little bit of weight back on has really helped. I don't know how I was managing to get out of bed before because I am still so tired now. I literally have to rest or take a nap after I do anything because I wear out so easily. That's not too bad though. Before I was admitted, my bowels were so messed up and I had D constantly. Nothing stayed in my body for long. Now I am on an appetite stimulant, and it is really working. I am always hungry, and think about food constantly. I still have to be super careful about what I eat. Soft foods only, otherwise it will come up (found that out the hard way). :(

I guess everything is working normally now, because I am having normal, formed BM's! I got so excited the first morning I actually mentioned it to my husband! My problem is that everything is working at "normal" speed, instead of in and out immediately like I'm used to. I have been feeling so full and bloated, almost to the point of pain, while I wait to process everything, while I'm still so hungry I could eat more. Not the biggest deal, I know, I'm so glad I can finally eat without pain, it just feels like if it's not one thing....:lol2:

I don't want to have to trade off one uncomfortable or painful symptom for another, I'm ready just to be done with it and be able to eat without analyzing everything I take in, what comes out, and how it feels in between.
 
Hey SarahAnne!

Glad things are better for you. This may be obvious advice to you already, but it really helped me to remove all skins and seeds from my veggies/fruits and overcook my veggies. That way, I'm still getting some fiber, but the parts that tend to produce more gas have been removed/broken down. Also, dairy can constipate/produce gas. Before my meds started working I was gassy and bloated all the time after I ate. I had to be super careful what I ate. And I know what you mean about constantly being tired. Once I was feeling better, it was weird thinking about how tired I would become doing the tiniest things. Once you have your energy back it will be amazing!

Hope things continue to improve for you! :)
 
@SarahAnne-my dear friend gave me this tip-Try eating just a few spoonfuls, or whatever you can tolerate before you feel uncomfortable, then wait like 10-20 minutes, then eat more, and so forth...til you can tolerate more food at once. I do this whenever I'm flaring, and it works out really well for me. She also recommmended a talespoon or two of coconut oil-the Spectrum Organic kind-in an Ensure or other shake type drink-in the blender. It helps with inflammation and also weight gain.

@Marisa-Best wishes on the job-hope you get good news soon! Sending positive vibes your way!:thumleft:
 
Thanks Jeannette!

I'm super antsy about when/if I'll get a call today. He said he'd have a decision reached by Monday (forgetting it was 4th of July), so I'm expecting to hear something today, I hope. I feel like I can't do anything because I don't want to miss my phone ringing!

I have no idea what the decision will be. At the end of my interview, it sounded like he was leaning towards yes, but who knows what he's thinking now having 4 days to mull over it.

All this up-in-the air stuff is interfering with my doctor's appointment scheduling too. My GI appointment will definitely interfere with work hours because their office closes at 5 and the latest appointment they take is 4:30, so I'll definitely have to leave early (especially if they do the late schedule 10-6, like they were mentioning). I'm trying to wait to schedule my women's doc appointment until I know if I got this job or not. There are multiple sites and later hours, but I don't really want to schedule a later appointment closer to work if I end u not getting it when there's a location 5 min. away from my house. AND it's a new doctor because our insurance changed and I had to switch. So, I need to get my records faxed over, but I can't do that until they have a record that I'm a patient! Wah!

I just need that call... ;)
 
Yay Marisa!!! Congrats on the job! I'm glad to hear you got some good news finally! :D

And Jeannette, I'm glad to hear you found your cat! The mini-vents thread is turning into a happy celebratory thread. :)

I gotta be a little bit of a downer, so my mini-vent today is that my GI is sooo slow about returning phone calls. I called him at 8 this morning and still no answer from him and it's 3 PM. I'm getting really sick of being undiagnosed and now he can't even be bothered to return calls in a timely manner. I'm thinking of dropping him and getting a new GI. I have a fantasy where I get a new GI who is fantastic and diagnoses me right away and then I take written proof of my diagnosis to my old (current) GI and rub it in his face! Ha ha. I don't think things will work out quite that well in real life though. ;)
 
Aww, Cat...could you at least look into a new GI and "test drive" one before dumping your old one? I think being able to stay in touch with your GI is just as important as treatment.

You never know....maybe your dream could be a reality! :)
 
Marisa, I felt it was rather urgent that my GI return my call ASAP - as I told the nurse this morning, for the past week I've had nausea and some vomiting. I vomited early Thursday and I nearly did again yesterday - it took all my willpower to keep the contents of my stomach in my stomach. That's not really the kind of thing someone should be kept waiting to hear an answer on, especially since vomiting is not one of my normal symptoms! It's probably side effects from a new med that my GI put me on a couple of weeks ago. But he still hasn't called me back to confirm or to say if I should be seen. That's just not right. And he hasn't bothered trying to get me a diagnosis for quite some time. My last diagnostic test (besides blood work) was the pill cam, which was in Sept 2010. It's been 10 months since he's bothered to try to figure me out. I'm just getting sick of it. At every appointment I ask about what other tests we can do, and he just says something like there's no need to do more tests now. I won't dump him outright, I probably will look for a new GI though, and I really am losing my patience with his attitude and lack of action (and lack of diagnosis).
 
@Cat, you defintely need to upgrade your GI. I was in the undiagnosed club for 15 years; I met plenty of doctors who thought I was a hypochondriac and wouldn't even bother to hide the fact they didn't care. The last loser I had let me have too high of infammation markers for so long w/o treatment that I developed Stage 1 colon cancer. When I found a good doctor he saved my life.

You owe it to yourself; life's too short for you to suffer so much and be ignored.

@Marisa-:congratualtions: YAY! Doing the happy dance for you!:mario2:
 
Yipes, Cat. You are right. Your doc dropped the ball on not taking your urgent matter seriously. I think agree with you and Jeannette now about looking for a new doc ASAP!

Holy moly, J! Your last doc sounds awful. Stage 1 colon cancer?? Sheesh. So glad you found the right one. Thanks for the happy dance! I am SO happy too!
 
OK, my turn to vent-I feel sick that so many people get taken advantage of by these "natural cure" people who claim they can cure (fill in your disease here) by taking (fill in ridiculously expensive supplement here).
 
Had a really ****** day at work yesterday - co-worker (and I use the term loosely!) pissed me off big time - got so upset my boss actually let me leave work early.....got a headache - almost fell asleep at dinner due to headache meds, talked to my dad for my birthday, then again about 20 minutes later because he forgot he had already told me something.....

Still hurt today - stopped the pred 2 days ago, ear/cheek/sinus went from feeling better to bothering me again - don't have a doctor visit for another 2 weeks.....will see how things feel tomorrow/next day before calling again.....

Have a wedding to go to this weekend, and need something to wear!

On a good note, I think I lost 5 lbs!
 
well - had a meeting with my boss and his boss - I did NOT get the transfer position - 'because I am needed where I am'.....one co-worker is leaving for Afghanistan in the fall, and apparently I can't be 'spared' - AND no one else can be assigned this detail....

Off to check with the Union to see if this is allowed!
 
I've been out of the hospital about a week and a half now...the appetite stimulant is working, but I have discovered through my own trial and error that if I eat something that isn't a "soft" food, it comes back up. I was so happy to eat that I told my hubby I didn't care if all I could have was bananas, pancakes and scrambled eggs.

Well, whatever voodoo magic they were working in the hospital (dilaudid, anyone?:ytongue:) has suddenly worn off. Just like before, like clockwork my guts tangle and rip up about 2 hours after I eat. I'm still eating soft foods, then doing the writhing fetal position tear up the sheets because it hurts so bad. I've had formed (very thin) BM's, then a formed one this morning and D since then. I have been bent over double on the toilet trying to pass gas in hopes that it will help. So tired of this!!!:voodoo:

My follow up with my GI is on Monday, but I'm still going to call the office in the morning. It hurt so bad earlier, I almost called my husband home from work. Now I'm back to being scared to eat anything. My abdomen is very distended, I look a good 4 months pregnant, but it doesn't feel hard anywhere. Very tender in several spots. GI said I didn't have any inflammation, and I had a stricture that was NOT obstructed. So WTH is tearing me up so bad after everything I eat? I can not live with this level of pain every day anymore.:frown:
 
Bloody trolls....
Just wish they would p*ss off back under their bridges and not bother us.
 
My mini-vent is about purses. I wish I could be one of those women who carries a cute tiny dainty purse. But nooo. I need to carry wet wipes, calmoseptine, a bag of meds (tylenol, zofran, lomotil, rehydration tablets, tums, etc), arthritis cream, safe snacks, a change of undies, you name it. Along with my other normal purse stuff like lip gloss, comb, pens, kleenex, etc. All that stuff will not fit into a cute tiny purse. My purse is about the size and weight of a bowling ball bag.

My husband and some other people are putting on a scifi/fantasy book convention thing this weekend. I plan to stay away, as it's not really my thing (I'm a geek, but I'm definitely more of a video game geek than a scifi or fantasy books geek). But, there's a fancy banquet dinner, and I get to go for free - free fancy food! And I can actually eat it, there's going to be a baked chicken dish. So excited! I'm going to put on my new dress that I just tailored and doll myself up... but I'll still be lugging around my big giant fugly purse. *Sigh!*
 
Cat-a-Tonic said:
My husband and some other people are putting on a scifi/fantasy book convention thing this weekend. I plan to stay away, as it's not really my thing (I'm a geek, but I'm definitely more of a video game geek than a scifi or fantasy books geek). But, there's a fancy banquet dinner, and I get to go for free - free fancy food! And I can actually eat it, there's going to be a baked chicken dish. So excited! I'm going to put on my new dress that I just tailored and doll myself up... but I'll still be lugging around my big giant fugly purse. *Sigh!*
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Oooh fun! My OH might get to run an event at Gencon. If we pay my way I can go to Indianapolis but I'd be left to my own devices the whole time. Hm.
 
Cat-a-Tonic said:
My mini-vent is about purses. I wish I could be one of those women who carries a cute tiny dainty purse. But nooo. I need to carry wet wipes, calmoseptine, a bag of meds (tylenol, zofran, lomotil, rehydration tablets, tums, etc), arthritis cream, safe snacks, a change of undies, you name it. Along with my other normal purse stuff like lip gloss, comb, pens, kleenex, etc. All that stuff will not fit into a cute tiny purse. My purse is about the size and weight of a bowling ball bag.

My husband and some other people are putting on a scifi/fantasy book convention thing this weekend. I plan to stay away, as it's not really my thing (I'm a geek, but I'm definitely more of a video game geek than a scifi or fantasy books geek). But, there's a fancy banquet dinner, and I get to go for free - free fancy food! And I can actually eat it, there's going to be a baked chicken dish. So excited! I'm going to put on my new dress that I just tailored and doll myself up... but I'll still be lugging around my big giant fugly purse. *Sigh!*
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Oh I know the feeling Cat! But as you're just going out for the dinner, see if there is anything you can safely leave behind. Like, you could leave the pens and take a couple of loose Kleenex instead of a pack. And use a smaller money purse, I tend to use a coin one in those in instances, and I shove the notes in and any cards I may need. And for the pills you could snip off a day's worth instead of a bigger strip. One or two safe snacks if any as you're going to eat out anyway. Every little helps!
 
Cat-a-Tonic said:
My mini-vent is about purses. I wish I could be one of those women who carries a cute tiny dainty purse. But nooo. I need to carry wet wipes, calmoseptine, a bag of meds (tylenol, zofran, lomotil, rehydration tablets, tums, etc), arthritis cream, safe snacks, a change of undies, you name it. Along with my other normal purse stuff like lip gloss, comb, pens, kleenex, etc. All that stuff will not fit into a cute tiny purse. My purse is about the size and weight of a bowling ball bag.

My husband and some other people are putting on a scifi/fantasy book convention thing this weekend. I plan to stay away, as it's not really my thing (I'm a geek, but I'm definitely more of a video game geek than a scifi or fantasy books geek). But, there's a fancy banquet dinner, and I get to go for free - free fancy food! And I can actually eat it, there's going to be a baked chicken dish. So excited! I'm going to put on my new dress that I just tailored and doll myself up... but I'll still be lugging around my big giant fugly purse. *Sigh!*
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What Cat, you can't get behind Game of Thrones?I'm no fantasy chick either, but Khal Drogo is yummy!
 
Jeannette, I don't know what Khal Drogo is. The geekiness my hubby is into is called Discworld. I hadn't heard of it until I met hubby. Apparently it's a very popular series of books but I think it's mostly popular in the UK. Anyway, so the convention here is for that. I don't really like Discworld. Hubby's been super stressed because he's one of the people in charge for this con, and his stress is affecting me too - I've had lots more stomach pains this weekend and hardly any appetite. I have no idea how I'm actually going to manage to eat the free food tonight at this rate. My best friend, who is also a crohnie, is going to the dinner with me so at least we can not eat together. Ha ha. ;) (Her purse is huge too! So I won't be alone there either! :D.)
 
Prednisone is helping me so much, and I`m so grateful for that. But my heart is racing, as is my mind, and I feel so weird. I know all about the side effects, and I`ve been heavily warned about them, but I wish it would stop. My doctor gave me an anti-psychotic to combat the manic feelings, but even if I only take half, it knocks me RIGHT out for like, 15 hours. I also have ativan for when I have to drive and stuff, but I find myself taking quite a few of them just to calm down every day.

Also, I feel like I might be getting a bit blocked up. That really worries me because I have a few strictures and my doctor told me to be VERY observant of my bowel movements and pain level, because I`m taking codeine. I haven`t experienced any diarrhea in almost a week, which is amazing, but now I find that I only go once every two days or so. And it`s a very small amount. I have alot of symptoms of an obstruction, besides the fact that I`m still going every couple days. Hard, rigid stomach, pain in that area, nausea.. I have an appt with my GI tomorrow, so I`ll ask him about it. I`m really only typing all this because my brain won`t stop.
 
Cat-a-Tonic said:
Jeannette, I don't know what Khal Drogo is. The geekiness my hubby is into is called Discworld. I hadn't heard of it until I met hubby. Apparently it's a very popular series of books but I think it's mostly popular in the UK. Anyway, so the convention here is for that. I don't really like Discworld. Hubby's been super stressed because he's one of the people in charge for this con, and his stress is affecting me too - I've had lots more stomach pains this weekend and hardly any appetite. I have no idea how I'm actually going to manage to eat the free food tonight at this rate. My best friend, who is also a crohnie, is going to the dinner with me so at least we can not eat together. Ha ha. ;) (Her purse is huge too! So I won't be alone there either! :D.)
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Khal Drogo is a character in Game of Thrones. He's played by Jason Momoa and is total man-candy lol!

Here's a pic :http://drogodanyfan7.tumblr.com/post/6462566680/khal-drogo-daenerys
 
had a blow-out with hubby tonight.....something has to give......and/or change.....how to do it with 2 type-A personalities?????
 
My mini-vent is a little gross today. So, I often carry a banana in my purse. I like to have a safe snack with me and bananas are always safe for me. The bananas would always get bruised in my purse though, so a few months ago my mom gave me a banana carrying case as a gift (yes, that is a real thing that exists!). But, that also carries its own set of problems - on ocassion, I'll put a banana in the carrying case and then just forget about it for awhile and then get an icky surprise when I open the case. That happened today. I don't know how old this banana was (it wasn't totally black or anything like that), but when I opened the case, there was like this gross stinky banana juice dripping out! Ewww. Note to self, stop doing that!
 
i have to vent here cause my wife says shes heard enough. went to the doc 2 days ago, had 2 wd40 injections in left rotator cuff, and one in right for tennis elbo. why couldnt they be on the same side so i could at least use one arm. then had pins and neadles in fingers alnite, very painfull. then last nite had reflux. i wish some one would find a cure as ive had enough of this crohns crap after 20+ years. if someone is poking pins in a Trev doll, please stop as enough is enough, that includes the red hot poker up the ass. i feel better now ive vented so i can return to being a grumpy old man with a short fuse. im sure my friends and family would like the return of the old Trev, who couldnt give a crap about anything and never got woundup. thanks for letting me vent, not that you had any choice.
 
He speaks! I'm sorry Trev. That's awful! I can relate to the reflux and pains. My hip and elbow have been driving me up the wall. Hang in there friend!
 
Well, until my brother developed it and I found this forum, I was in the same situation. I was being a wus, wimp, and hysterical.
 
You can always vent here trev! I like knowing other people are in the same boat as me. It makes me feel like less of a wiener haha I'm always complaining. Not in a "oh poor me" kind of way. More of a "**** this sucks, I hate this disease" way. But I know my friends and family are getting sick of it. Plus, they can't really relate, as much as they would like to. At least here, you guys know what it's like, and when you tell me "I feel your pain" I know you're not just talking out of your ass (pun intented haha)

My mini vent for today: I'm scared I'm starting to flare again. I had blood in the stool again, for the first time in about a month, and my stomach pain has come back a bit more. My knees hurt, my back hurts, and I think the diarrhea may be starting to come back. I'm not down with this. I don;t get to see my GI again for two months, so if anything gets too painful or scary, it's back to the hospital. I started my pred taper on tuesday, went down by 5mgs. All of this started yesterday, so I have to think it has to do with that. I know it's common to start flaring again after you taper down, so yeah. I'm worried. Also, my boyfriend has a really, really bad chest cold. I know if I catch it, it's going to be so much worse because of the pred and imuran, and of course, the crohns. I don't wanna end up in the hospital with pneumonia. I just wanna get better. Waaaaaaaah :(
 
@Trev-So sorry to hear you're suffering! I've had injections of pred right into the joint and it is PAINFUL! Hope today's a better day for you :)

@Samantha-I was in your shoes a month ago, couldn't even think of tapering til my infusion of Remicade today, triple the usual dose. Just hang on Honey you're almost there!

My vent today, I've got a big bruise where they put the infusion needle, and the whole area is swollen and hurts like the devil. The nurse who put in the needle jammed it in like she was trying to reach my elbow, mean witch!
 
Yestrrday we suffered two deaths in the family.....the car battery (4 jumps to start the car) andand my computer. The mother board died.
 
My mini-vent today is that I have a UTI. Oh the burning, I hate it! The anti-biotics have started kicking in but I'm still uncomfortable. Not fun! Just when my nausea finally went away too. I felt good for literally 3 days - still nauseous Monday, felt good Tues - Thurs, and Fri I get a UTI. Yuck! Wish my body would give me a longer break before the next thing hits!
 
Today I'm having an "I have prednisolone moonface and acne and I feel really unattractive" kind of a day.

:(

Still, only three more weeks and I'll be off the damn stuff.
 
Yeah, if one of my family gets a tummy bug, they say to me "I don't know how you cope with it everyday!!"... and then 2 days after they are back to normal, they totally forget the empathy, because their "suffering" is already a distant memory.
 
Cat-a-Tonic said:
My mini-vent today is that I have a UTI. Oh the burning, I hate it! The anti-biotics have started kicking in but I'm still uncomfortable. Not fun! Just when my nausea finally went away too. I felt good for literally 3 days - still nauseous Monday, felt good Tues - Thurs, and Fri I get a UTI. Yuck! Wish my body would give me a longer break before the next thing hits!
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Seriously! Is it a crime for things to just go well for a little bit? Argh.
 
My throat satrted getting sore this morning. By noon, I could barely breathe. So I went to my GP. Apparently I have a bacterial chest infection, and if I hadn't come in, I would have had pnuemonia by Monday. I guess I'm lucky i went in, but he put me on antibiotics, which might bring back my c-diff. Uggghhhhhhhh. Does it ever end?! I'm coughing up a lung every ten minutes, can barely breathe, full of nasty phlegm that I can't cough up without swallowing. I took a nap when I got home from the pharmacy today, since the pred had kept me up all night and I hadn't slept since the day before, and when I woke up my eye was swollen! I have no idea why or how, but it hurts and it looks stupid. Moonface, bloated pregnant looking stomach, little red pimples all around my mouth, ****** gross hair, and now a swollen eye.
Plus, there was blood in my stool again today, my pee is all cloudy (?) my stomach is starting to hurt more and more, my joints feel like they're dissolving, I'm nauseas from who the hell knows what... It doesn't even seem to matter that I'm following all the dr's orders, eating as well as I can, taking all the supplements, resting and not working.. I can't seem to get better. And to top it all off, something made me hallucinate today. It was really scary.
Days like this make me really, really appreciate days like yesterday, when I felt "good."
 
Just having the need this morning to shout this out loud..I hate this bloody disease and what its doing to my children!!
Nic x
 
so my mini-vent is not that I am in the hospital right now, but that the room I'm in is a double room that i have to share with somebody. Her bed is right next to the toilet and mine is on the other side of the room. I asked if they would swap beds since i have such an urgent need to use the loo and the fact that I'm going to be starting golytely prep in four hours and they said no. So about an hour ago i used the bathroom and was pissing out of my butt and i havent even started the prep yet, just from all the liquids i guess. anyways so my "roomie" and the stupid nurse assistant are sitting there complaining in front of me about how bad i stunk up the bathroom and how it's torture for her to use the restroom after me. I'm sorry you have to smell my ****, but how about having to smell it and be the one delivering it while in agonizing pain. I just can't believe the NA of all people had the nerve to complain in front of me. ISN'T IT YOUR JOB TO DEAL WITH STUFF LIKE THAT? aghhifhak;l
 
Jen, seriously?? I would have told the nurse that I understand the patients lack of caring and understanding but what is her problem? Aren't nurses supposed to help preserve the dignity of their patients even in horrible situations? What a couple of *******!

My vent is that I am also in the hospital right now. I have pancreatitis and it is violently painful. I can get 1mg of dilaudid every 4 hrs. It stops working at about 2 to 21/2 hours. I asked my GI when he came by if we could bump it up a little because the pain was so bad. He said, we don't want you addicted to pain meds. AAAAARRRRGGGGGHHHHH! Guess it's preferable to be in pain.
 
GI also said we would talk about doing an ERCP when I get out. Has anyone had one? What is the purpose? And most importantly, do I have to drink anything violent? GI is not very good at telling me what's going on. I am making an appointment at Shands in Jacksonville. It's a good 5 hour drive, but it is a great hospital. They are doing all kinds of trials and Crohn's research there. I'm tired of small town docs who just can't help me.
 
Ooooh that pisses me off. It is so unprofessional, disrespectful, and ******* RUDE for an NA to make ANY comments like that about a patient. Whenever I'm in the hospital, I ask for the medical grade room spray because I fart alot and obviously, I have alot of diarrhea. I like to be a good patient, as much as I possibly can. So I don't to gross out my nurses with the smells I'm creating. But everytime I express my concern for their noses, they tell me not to worry about it. That's their job, and and they're used to it.
As for sharing a room, and dealing with other patients, I know how you feel. When I first went in, I had a double room. The other lady was this little old woman who also had crohns, I believe. About a day after I settled in, I was told I had C-diff and had to use a bedside commode. I felt so bad for the lady next to me. I drenched the air in that poop spray, and I always let her know when I was gonna be using the "toilet." She was so nice about it, and I was so relieved when they put me in a private room. I would have completely lost my mind if the patient next to me was openly complaining about my condition with an NA, who was openly agreeing. That's disgusting behaviour. You can't help that you have diarrhea! You can't hold it in, and you can't make it smell any less. They're gonna have to shut the hell up and deal with it. You're in the hospital for a reason. If I were you I would **** as much as possible and give her a huuuuge smile as I left the bathroom. Let her enjoy it. Stupid bitch. And definitely make a complaint about this NA. You don;t deserve to feel embarrassed about your illness. Screw that.
 
That is totally insane! So rude-but I guess we've all had that experience. Even my sis in law (who's an RN) has said in front of me that she hates getting Crohn's patients because we "smell so bad". I told her when you're kid takes a crap you think it's cute, but when people who are sick that you are paid highly to take care don't smell good, you b*tch about it...nice.

My husband writes letters of complaint and files paperwork against every b*tch nurse I've ever had. He's like, just get them fired and spare the next sick person.

So sorry you guys are going through so much- sending hugs!:hug:
 
I'm sorry for all the tacky and rude things that I've read so far. People can be so STUPID and thoughtless!

My babies are both sick with ear infections in both ears. My son has strep throat. I haven't had that since I was 20 years old, a few months before the cut out the tonsils. I can't swallow. It feels as though I'm swallowing razor blades. I just feel yucky! I'm allergic to penicillin (I never used to be). The doctor will probably need to find an antibiotic that I can tolerate. I feel like upchucking most oral antibiotics. I dread the horrid waves of nausea.
 
Andi-maybe the doctor could prescribe Zofran with the antibiotics for the nausea. Your poor babies! It so sad when little ones are sick!

Hang in there!
 
oh geeze! These pretty much deserve a new - not-so-mini-vent thread!

The nerve of some people!!!!!!!!!!!!!!!!!!!!!!!!!!

on to my mini-vent - we got new computers at work yesterday - the keyboard is smaller and a royal pain to use, we are on a different server so all shortcuts etc have to be re-mapped, email doesn't work the same - old email account has to be accessed through the internet and contacts appear to have been lost........

On a GOOD note I have a 4 day weekend coming up starting at 415pm today!!!!!
 
Went to see a new gyno yesterday as my medical group changed and I was required to change docs. Arrived at 5 pm for an appointment at 5:15 pm. Didn't get called in to a room until 5:45 pm. Doctor didn't come in until 6:05 pm and was out by 6:10 pm. We talked for about 5 min., which consisted of me telling her I wasn't planning on having children for the next 2-3 years and I wasn't having any problems currently. She wrote me a new Rx and said "See you in a year!"

I definitely heard her chatting up one of the other patients about their Las Vegas trip for a good long while before coming in to see me, not to mention she wasn't very gentle with the speculum (whatever it's called). She also didn't seem to be very familiar with Imuran or Humira, citing that the latter was a "newer" drug. She also said that Crohn's doesn't affect pregnancy at all. I'm thinking next year I might make an appointment with one of the other doctors at the practice.
 
This should probably be under a 'aaaaahhhhhh kids' or 'a kids do the funniest or cunning things' thread!

So... I was cleaning living room, moved sofa and found 9 Asacol tablets under it! Yep, if Oli had trouble swallowing a tablet he'd shove it under the sofa and then call "Mum, it's gone!"

Had the big "you need to take your medicine to keep tummy well chat" and now I have to watch over him until he has swallowed it, making sure it's gone and not under the Tongue?

Had to have a bit of a private chuckle though.

Treena x
 
Kids are so funny. Before I got sick I worked as a nanny for two years, and I'm planning on doing it again once I go into remission. I worked with two kids, 8 year old boy and 10 year old girl. The little boy was HILARIOUS. Always kept me laughing hahaha. The girl was going through that attitude stage, and sometimes I swear I could have just beat her all day, but I never did haha. They were awesome kids for the most part, and I really miss them.

So, I went back to the gp today. I'm being retested for c-diff =(
I'm so upset about this because my birthday is next thursday and I really wanted to have a couple drinks and be feeling good for my party on Saturday. Plus my boyfriend is taking me out for all you can eat seafood on my actual birthday, then he has something planned for friday too. If I feel the way I have lately for my birthday, I'm going to be SO mad. The dr I saw gave me some real painkillers, finally, but he bitched at me for asking him. i don't care, at least I've got some relief now. But I guess I was off narcotics for so long, that I'm getting some pretty bad side effects from them now. I took one percocet when I got them and by the time I got home I felt so nauseas I couldn't stand it. Last night sucked because I was either super nauseas or in alot of pain. Can't I just be alright? All night I would just start yelling "UUUUUGGGGHHHHHHHHHHHH" because I'm just so sick of it! And it's only the beginning.
Wednesday I had blood work done and I googled the tests my GI ordered. he's testing me for lupus?!?!? and celiac.. Which I know I don't have. I can eat all gluten products with no problems, always have. But the lupus thing scares me. :(
 
ER doctors did a great job with me. Lots of scripts to HELP me, took me off the Pentasa my GI put me on for some reason. Got a script for a few Lortabs which makes me feel better just having them for when the pain is so bad, GI thinks I'm a drug addict and won't prescribe any pain meds. I got my Remicade so I can eat for 3 weeks now (GI won't shorten dosing schedule, so I'm doing every 8 weeks. About 3-4 good weeks, then 4-5 pain filled weeks). For the most part I'm doing pretty well, but the ER docs also put me on Flagyl, which I despise, for 15 days twice a day. The nausea and nasty taste it gives everything is killing me. If I feel like eating lately, I'm ravenous, and then nothing tastes right. Had some sweet tea today that I actually thought was bad, but hubby said was fine. I realized it was the meds. The nausea first thing in the am is awful, never had morning sickness with my 2 pregnancies, but I feel for all the women who do. As soon as I sit up I feel like I'm going to die. Had to keep crackers by the bed for the mornings!

Is there anything else I can do for the constant nausea? I could call my doc for a script for phenergen or zofran but the first makes me loopy tired and the second gives me a wicked headache.
 
Love this idea!! Who doesnt like a good vent sesh!!
Id like to whine a little about the millions of medications that drs expect me to take for this stupid illness a day - like 10-12 tablets a day +the other weird granule things - Im sure some people are taking a lot more than that for this a day but Im really sick of it and thought I would rant - Im sure most of you know what Im talking about
I also am sick of going to drs for matters completely unrelated to ibd and them turning down my valid claims of pain or illness because they decide that its related to ibd when its incredibly clear that its not
Im sick of not having enough time to do things I like to do as well - like hair colouring (although I did manage to fit that in a couple weeks ago) but just in general - Id love to just go shopping for a day with girlfriends again, but who has time for that at the moment??!!
Also, cabin fever - like vactionitis - need to go away somewhere because I hate winter and hate being cold and really hate staying in one place for too long haha
Finally, Im sick of studying for exams - Im bored and stressed and wish that there was a place to vent on every website because its great just to let off some steam!!
 
Cat-a-Tonic said:
I thought I'd start this so we can vent about all the little things that might not necessitate their own individual threads but are still worth addressing.
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great idea for a post btw, heres my little vent


I cannot shine beneath your sky.
You leave me tired and confused.
You have taken many years from me,
polluted me and made me weaker.
You have isolated me from the ones I loved.
You have strained my bond with those who stay.
You sabotaged me in the dawn of my life
before I even knew your name.
You made me bleed and you eat away at me,
remind me always of your presence.
You were there in all my memories it seems,
you are the doubt in all my attempted plans.
You are the the end and beginning of my known reality.

They tell me that when you are gone I will feel as I never before have,
they say when you are gone I will be able to live.
When you are gone there is only thing I will know for certain, I will never get back what you have taken from me.
http://www.abctales.com/story/rebus/ibd

wanted to subject somebody somewhere to my "attempt" as vocalizing something at crohns, here seemed about as relevant as anywhere.
 
@SarahAnne and Samantha-I actually think Compazine works best for the nausea that comes from pain meds, and I get so sick I vomit the entire next day after one dose of Tramadol. OTC options that help some people are Benadryl and Drammamine, which is for motion sickness.

My non-drug options are Peppermint Altoids, peppermint tea, and the Sea-Band nausea bracelets (also in the motion sick section of the drug store.) They have acupuncture balls on the inside of the bracelet that presses on a place on the wrist that stops the nausea signal from your brain to your tummy. They work great, really help with Flagyl nausea, as well as from chemo and pregnancy, too.

Hope this helps-feel better ladies!
 
Peppermint! I totally forgot about that one, I used to suck on peppermints all day in high school to help relieve nausea before I knew I was sick. I'm not much of a tea drinker, but I've considered peppermint or ginger tea.

The motion sickness pills are a good idea, never thought to try that. May have to give it a go. Nausea has let up considerably the last day or two, so maybe my body is getting used to the drug. Hope so, cause there are a lot of pills left in that bottle. Blech.

My vent now is that it is 7:45am, and both of my kids are still asleep. I don't have any reason to be up this early. Hubby works his second job tonight too, so we will see him for 10 minutes while he changes clothes, then leaves again. So I have the kids, ALL DAY, by myself. I'm a stay at home mom, and that is my job, but some days I'm so tired! Just the thought of the day stretching out, hoping the kids behave, hoping I feel okay all day....They go back to school soon (yay!) but I feel so guilty that they haven't been able to do much this summer because I've been sick.

I will say I'm thankful I can eat real food again. Had some chicken alfredo yesterday and it was so good. And good to eat something besides scrambled eggs. Hooray for Remicade!
 
The nausea has left the building. For now. I am taking gravol (motion sickness drug) to help with it, so that could be why it's gone, but even when I don't take it I don't feel too bad. I'm very grateful for that haha.

But, of course, I wouldn't be here if I didn't have something to vent about. I HATE PREDNISONE. I'm at 30mgs right now, tapering by 5 every week. I won't be off them til September, and that's if nothing goes wrong. Anyways, I'm done with the ******* side effects. The insomnia. I sleep from about 9am to 12pm. Unless I have an appointment early in the morning, which is about once or twice a week. Then I don't sleep til about 1pm to 4pm. I'm tired, but not sleepy. My brain won't shut off. I'm uncomfortable. I can only get a good nights sleep if I take a sleeping pill. Then I sleep for about 15 hours straight. I take one once a week, when I have nothing to do the next day. So I can deal with that.
Next, the appetite. I am always hungry. But I'm always full. But I keep eating. It's the most vicious of circles.
Ok. Here it is. You've been waiting for me to mention it. The weight gain. OH MY GOD. I've gained like ten pounds alone in my face. It's almost a perfect circle. I have the CHUBBIEST cheeks! And jowls! And my beautiful double chin is coming in nicely. And then there's my faux-pregnancy. My stomach is so bloated I literally look about 5 months pregnant. Sometimes it gets so bloated that I don't think it could physically get any bigger. I'm shocked I haven't gotten stretch marks yet. And this happened over about a week and a half! I just bought a bunch of new shirts, and I can't wear them now because they don't fit. My arms and legs are still skinny. My ribs are still sticking out. You can still see my spine (except where I have my buffalo hump) so I just look like I'm pregnant. It's so bad. I'm so happy that my crohns is getting better, and I wouldn't trade that for anything. But holy crap. I'm scared I might explode soon. I don't know how much bigger I can get without having permanent "damage," like the weight not coming off after, stretch marks, loose saggy skin..
I know it's just water weight, because I've only gained like, 7 pounds back from the 50 that I've lost since March. But it looks like 20 pounds. I just can't stand it. And of course the prednisone is making me very anxious and manic, so that doesn't help. UGH. Get me off this ****!
 
Oh God, Samantha!

I have been on small doses for short periods of time, but when I was first diagnosed my GI was trying to reduce my inflammation enough for me to have surgery. I was on very high doses right after too, up to 60mg a day and I tapered so slowly. I couldn't have been more than 90-93 lbs but my face looked like a pumpkin! And I had acne so bad I just refused to go outside, I was 20 at the time. I'm sure I must've cried about 2 hours a day just because of how bad I looked.

I know it helps little, but there will come a day when you're off the pred. Shortly after you'll start to lose the weight and the moon face. Not shortly enough, I know. I have such a love/hate relationship with pred. Sometimes it makes my gut feel so good, but it makes me feel awful.

Good luck with everything. Vent away if you need to, we certainly understand!!
 
My vent today is Hollywood movies and sickness. Totally removed from reality. Hot actresses lay on a hospital bed and look pale and interesting (Kate Hudson), or have one angry outburst and limp a bit a few times (Anne Hathaway).

I guess they don't want to show all the sh!t we literally have to deal with. Not just us, most sick people go through all kinds of gross stuff.
 

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