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Much Ado About Nothing! eh!

Just the snow will feel like home. Last winter (Nov-Mar) we had snow banks of four feet! Your current temps will feel like our fall and spring weather - nice.
 

crohnsinct

Well-known member
O has been filling out questionaires and health history forms a bit lately. She tells me in the car, "ya know when this whole thing started I used to have to check off the other box but now Crohns has it's own box" Sad commentary:ymad:
 

DustyKat

Super Moderator
A great big Happy Birthday to you Jacqui!!!



I hope it is choc full of love, laughter and surprises! :):heart::):heart::)
 
Okay gurus, I have a non IBD kid/non IBD related question.

My daughter is the nanny for an 18 mos old boy on her off days from class. Today the child(who has been sick all week with some type of viral infection) like flung his head forward with his mouth open toward her face so it busted his lip and his teeth made a small cut on her nose. The Mom is there(works from home) so they cleaned the boy up and she said the cut on her nose was barely bleeding.

So now 6 hours later little bubbled blisters are coming up on her nose where the cut is. I told her to peroxide on it and all she had was neosporin as far as ointment. Now I'm wondering if she should get this checked out at an urgent care clinic or go to the pharmacy for a different ointment?

Ideas?
 
Hmm...I don't know? It is on the bridge of her nose just a small cut from the baby's teeth(looked like a think scratch) but now these little blisters are popping up on the cut.
 
Thanks so much MLK, I feel the same way. She is keeping the baby while the parents go to a fundraiser tonight so she can't leave until 10pm also I know the uni she attends has a clinic so maybe she can go there. If not hopefully an urgent care center. It looks freaky! This child of mine, I swear she had the weirdest catastrophes befall her!
 
She is on the way to urgent care. All facilities were closed last night so she had to wait. She sent a pic, it looks icky, ughh.

Also hubby has a summer cold so C and I are avoiding him since surgery is Tuesday. What a week!
 
Doc said it was nasal cellulitis, px antibiotic, ointment and instructions that is she gets a fever or headache she is to head to ER.
 
So is cellulitis of sort contagious and if so by contact or air or?

She has mentioned coming home for the night but I need to know about this in regards to C. I mean if they don't share anything and avoid physical contact?
 
Ok my parents live only a block away so we can swing the no contact thing even if one has to spend the night there. I would just prefer that she be home if we are watching for fever and headache, kwim.

Thanks for all the info, my little penguin, you truly are a guru and a blessing!
 

DustyKat

Super Moderator
How is your daughter Clash?

Way late to this and that’s stating the obvious :lol:…

Cellulitis isn’t contagious but certainly avoid contact with the infected area if you have any open wounds and don’t share towels/flannels.

Dusty. xxx
 
The meds worked really well, the ointment almost overnight. But the antibiotics have wreaked havoc on her female system, she had already taken one diflucan to no avail and has another one px'ed for after she finishes the antibiotics.

Hey, but here is something interesting since the third day of antibiotic her bms have gone from D to normal and back to once or twice a day instead of five.
 

DustyKat

Super Moderator
Thanks for the update Clash. :)

Fab news and so good to hear that the meds have worked well! As for the bowels…hmmm…that gets the mind ticking!

As to the the lovely antibiotic side effects…:voodoo:…I hope things soon balance out for your lass, bless her. :ghug:

Dusty. xxx
 
Thanks Dusty. She is supposed to schedule her oscopies as soon as we get C settled at home so I can go with her as well. C is so amicable about most procedures I have a feeling J will be a bit more dramatic! Yay me!
 

Tesscorm

Moderator
Staff member
Pre-dx, cipro may have helped alleviate S's symptoms. He started to have on and off again symptoms for a few months, he'd have d, fever, nausea, etc. for a few days, then they'd go away for a few days, then back... over the couple of months we were seeing his GP and testing, etc., the symptoms were gradually lasting longer and the 'good' periods were getting shorter. Finally, when the GP didn't know what else to try, she prescribed cipro. I don't know if S took enough to make a difference as he had an allergic reaction after two doses but, after those two doses, his symptoms went away for 2-3 weeks and we thought whatever 'bug' he had was finally gone. Obviously, you/we know it was not a bug but, for whatever reason, the cipro seemed to take away the symptoms for the longest period since he started having them.

Also, when S was admitted, his only treatment was Flagyl for a week through IV (EEN was started after the week of flagyl) and his symptoms cleared up almost immediately on flagyl (and then the EEN took over).

S seems to have responded really well to antibiotics??? Not sure how it works but seemed to cause a positive reaction for S.
 
Totally non-IBD related... but y'all always have great advice.

Anyone have experience with nasal cauterization for daily nosebleeds in kids?
 
I had the cauterization done at about age 15 and it worked. Hurt like hell. I still get occasional nosebleeds though, not nearly so severe. It helps to use Aquaphor lip repair daily.
 
Yeah, he's already doing the gel, saline and allergy meds. Still having nightly nosebleeds, except the last two nights. Maybe we're good for awhile again.

Cauterization was suggested to us a year ago and I let it go because the nose bleeds tapered off and like Jenn said I keep reading how painful it is. We saw the allergist last week and she thought cauterization is next up for him as well. So, two drs have now recommended it... *sigh*.
 
Could I ask you lovely people a question? I have had bad joint pains which the rheumatologist has no answers for. I am just living with it, but the thing that is completely freaking me out is my body feels like it's vibrating hard. I feel it more in the upper body but I do feel it in my legs a bit. It is an awful feeling and I am worried there is something really wrong. I have told the GP and rheumatologist but they kind of nod and say "oh right", and that's it.
It doesn't help that I feel really ill in general. I know a lot of you have experience with rheumy issues, just wondered if anyone had heard of this body vibrating feeling? Much appreciation for any help
 

Tesscorm

Moderator
Staff member
Sorry, Sascot, no idea on the vibrating. But, that must feel awful. :( If the rheumo doesn't have an answer, I would keep pushing your GP to send you to a different specialist... maybe neurologist but just a complete guess?!? Can you try to narrow down a cause/trigger? ie when you are tired, when you stand/sit/or lie for a period, hot/cold, etc. Maybe also ask to check vitamin levels, perhaps it's related to a deficiency?? Lots of hugs!! :ghug: :ghug:
 
I think my GP wants to run and hide when she sees my name :lol:. Onto my third specialist - due to have an endoscopy and small bowel MRI if my insurance gets sorted. Will wait and see what they say before trying a neurologist next :ybatty:
 

Tesscorm

Moderator
Staff member
:lol: Well, your GP should have learned by now, it's easier to just start on the referral process right away!! :D But, really have no idea if a neurologist is the right specialist... it's just a thought! :)
 
I'm going to have to show Izz...I am sure her brother will be delighted but I think she will get a laugh as well. Thanks for sharing!
 

crohnsinct

Well-known member
Seriously? What was the desk lady at the lab thinking when she told me results would be to doc within three days? Don't they cover this at employee orientation first thing?


Rule #1: NEVER Under any circumstance give a patient an estimate of when lab results might be available.

Rule #2: Never talk to pediatric patient's parents and NEVER, EVER make eye contact! Avoid all interaction at all costs!

Rule 3#: If you have broken above rules resign your position as the phone will be ringing so much you will get no work done. Leave town immediately and hope said parent did not get your name. Further pray this parent didn't let the GI know what you said. If this happens consider another career choice.
 

Catherine

Moderator
They printed on our copy of the lab request form. Ring dr for results in 3 days.

They like to give themselves an extra day, and most results are here the next day.
 

crohnsinct

Well-known member
That's nice Catherine...we typically don't get an estimate but this woman must have slipped....or did I shake her down for an answer?:shifty-t:

Wow is it really the end of Tuesday? I hadn't noticed...results were to be at doc on Monday...silly me. Perhaps they will call tomorrow...hope I remember to bring my cell phone with me so I can catch the call. :tongue:

You know us city girls...so relaxed and laid back....
 
Setting records here.... We usually get a couple of inches and then it melts within the next couple of days. We got 9" a week ago and it's snowing again right now. Supposed to have freezing rain this weekend followed by snow all next week. Glad my mom and out Thanksgiving plans are only a mile and a half away.
Hope everyone stays safe and warm in this crazy cold weather!
 

Tesscorm

Moderator
Staff member
I'm with Pilgrim!!! We've got a bit but only a couple of inches. But it is frigid and windy!!!

Is it too early to start the countdown to summer?!?!? :lol:
 
Let's see, if there's a countdown to summer, and you live in NW Ontario, then summer starts in June. Only 209 days to go :rof:

But we can then cast off frigid and full of wind for hot and sultry.:ycool:
 
Let's see, if there's a countdown to summer, and you live in NW Ontario, then summer starts in June. Only 209 days to go :rof:

But we can then cast off frigid and full of wind for hot and sultry.:ycool:
CIC tries for "hot and sultry" but is just full of "wind". :tongue:
 
We had about 6" of snow in MN, then it was 50 F yesterday so most of it turned to slush. Overnight the temps dropped to freezing and it snowed again so today we have sheets of ice hidden underneath the snow. Both of my boys wiped out going down our driveway. Not a great way to start a Monday!
 

crohnsinct

Well-known member
Seriously? What was the desk lady at the lab thinking when she told me results would be to doc within three days? Don't they cover this at employee orientation first thing?
:rof::rof:Maybe she meant this Monday? :rof::rof:

Yes dears...I sent an email to the GI nurse...at this point I am thinking there is more missing poop in the world! :ylol2:

Mehita: I hear ya! Your poor boys! While we didn't have snow we had the freezing temp and today it is 70 degrees f. What is going on?
 

crohnsinct

Well-known member
70 degress F here yesterday. My daughter did her run in shorts! Mid 50's today. Forecast for a foot of snow tomorrow! Mother nature s really a joker!
 

Catherine

Moderator
Yes it a cool week should get to 30C on Sunday.

Wednesday - 15C cloudy, going for top of 20C
Thursday - 18C sunny
Friday - 21C
Saturday - 23C
Sunday - 30C
 

crohnsinct

Well-known member
In honor of so many here who always look and act more than fine. You amaze me and I pray every day for a cure. If there is one thing this disease has taught me it is NEVER to judge anyone because there are so many silent struggles we don't see and will never understand.

silent struggles.jpg
 

Tesscorm

Moderator
Staff member
Question... but not about crohns...

Two nights ago, my daughter (no crohns) was up 5, 6 times because she was itchy all over. In the morning, she was covered in raised, warm hives (eyes, torso, arms, legs, feet). They still haven't gone away and she was up again last night because she was so itchy. She hasn't eaten anything new (actually, follows a fairly strict diet for fitness reasons so eats pretty much the same things every day), no new clothes or bed linens, no new detergents or soaps, hasn't gone anywhere unusual, etc. No confirmed known allergies (although nickel is questionable).

Any thoughts at all on what could cause this kind of reaction? While she doesn't have what's generally considered 'sensitive' skin, she does seem to sometimes develop random skin rashes, etc. that just disappear after a few days. But, never to this extent...

Couple of things... she gets itchy and red (and sometimes isolated hives) when she gets stressed. She's in the midst of tough exams - do you think stress could cause these all-over body hives? Also, she had the flu shot on Friday - could this be a reaction to the vaccine, 3-4 days after the vaccine?

If it doesn't go away by the end of the week, after she finishes her exams, she said she'd go to the doctor (but says she's just too busy now).

And, any advice on anti-itch treatment (creams??) - she tried benedryl last night, said it made no difference at all.
 

my little penguin

Moderator
Staff member
My mommy non doctor experience
Localized hives - allergic reaction -typically contact -benadryl helps .
Systemic hives ( full body ) typically needs oral steriods plus benadryl
Benadryl needs to be given every 4-6 hours for days for Ds when he is reacting.
As far as cause
We have found for Ds even if the food is the same the brand the same doesn't mean no new Allergen was introduced .
Manufacturing lines change and cross contamination rate is very high so it could be anything
Keeping a food diary of brands etc and calling to determine if they clean between line runs .
Fruits /veggies sprayed with stuff

Has she cleaned her house or appt?
Visited a new house /library etc???( dust )
Taken any new meds vitamins supplements ??
Do the hives appear with 2 hours of eating anything?
Hives can also be caused by stress or viruses

I told Ds he needs to color code his
Food
Outside
Drugs
Because it's Tuesday etc....

Try to minimize things as much as possible
Dove scent free soap
Scent free laundry soap /dryer sheets
Watch top eight allergens
Milk wheat peanuts treenuts eggs soy fish and shellfish
Some add sesame
 

Tesscorm

Moderator
Staff member
Thanks MLP. She eats mostly a clean diet but, you're right, even with no 'prepared' foods, chicken, fish, veggies, etc. are still processed as far as cleaning, separating, cutting, packaging, etc.

Was just about to say no to all you suggested might trigger, and just remembered she just started a new job at a car dealership. Worked all day Saturday...??? Although hives didn't start until overnight Mon-Tues. But, certainly something to watch - she works again this evening.

If it is stress, today didn't help... on her way to her exam, train shut down, everyone sent out for buses, traffic, she jumped off bus and grabbed a cab, totally stressed texts coming to me about missing exam, etc. In the end, she made it only a few minutes late but... :yfaint: Only one more exam to go...

You might know?? Any reason why hives would worsen as the day goes on? She said it's horrible at night but, by the time she wakes, they're much lighter but then, have gradually gotten worse through the day.

And, hubby and her were debating her diet... he said her body can build up intolerances to her food because she varies it so little, eating the same thing day after day; she said the opposite, that, if anything, her body will build intolerances to the foods she's not eating...
 
Tess,
New exposures at work makes sense but also a reaction to the flu shot, or stress. Even though she has not had time to go to the doctor I would give them a call and se if they think it could be fro. The shot and like MLP a said to make it go she made need a short course of steroids. By the way my sister in law had sudden onset of hive outbreaks for several years no explanation ever found and finally they seemed to come less often
 
I just went to the GP and overheard the nurse telling a patient that they had a number of people having a reaction to this years flu shot. So, you know, I was all about asking her about it.

It turns out the patient had reacted before and the reaction were coming with the elderly and the high dose shot they receive. The nurse said in their GP group as well a several other in the county this was happening. I asked is it just the elderly and she said that was who the high dose shot was recommended for and that haven't had any reactions this year to the regular one. Weird huh?

I broke out in hives all over and the derm gave me a pred burst, told me to take benedryl and gave me a cream that I've seen MLP mention before. The derm said it could've been anything and I should've come in sooner for the pred. I had waited almost two weeks. I thought it was poison ivy but she said nope some type of contact dermatitis.
 
A gets random hives occasionally. They're pretty severe, with large welts and swelling. We give Benadryl and have a prescription cream from dermatologist. We would only resort to prednisone if the Benadryl didn't help. For A we think the hives are more of an autoimmune issue than an allergic issue.
 

Tesscorm

Moderator
Staff member
Thanks all. :)

She did end up going to a walk-in clinic after her exam yesterday - said dr wasn't concerned, told her to use Reactine during the day and Benedryl at night (not sure why?), didn't recommend/prescribe any creams. I didn't know she'd decided to go, so never had a chance to mention any steroids. But, she did ask about the flu vaccine and was told it wasn't a reaction to that. Dr is probably right but, sometimes, the doctors at the walk-in clinics seem to give only cursery looks at these sorts of things.

For now, she says the reactine helps more than the benedryl... we'll see how it goes over the next few days.

Thanks again! :)
 
Location
,
I just heard on the news 3 people had been released or escaped.

What a horrible time for the hostages and their families. My thoughts and prayers are with them.
 
My friend, living usually eats there with a group of her photog friends but they had chosen the Guilluame chocolate cafe that day for a change.
 

Catherine

Moderator
Question regarding by non Crohnie.

I'm looking for ideas to keep cool while exercising in extreme heat.

My youngest in competing in 1 km swim tomorrow.

I know water is not enough, so will be using sport drinks. Lots and lots of zinc sunscreen.

I know crohnsinct posted a formula for water requirements. She is approximately 99lbs.

The forecast is 38C (101f) winds 35kmph.
 

crohnsinct

Well-known member
Hi Catherine. The formula we use for regular hydration is half body weight in ounces so for her about 50 ounces of water a day. That is without extreme heat and exercise. I would make sure she gets at least that for days before the swim. When I has summer meets we also use one of those frog tog's. Basically a towel type cool thing you put on your neck. Also squirt bottles that have the fans on the end.

Another big swim! She is incredible! Good luck!
 
Ok so has anyone happened to catch that show that came out this season, titled Red Band Society. I've actually read that it is probably cancelled for next season.

Anyway, the show takes place in a children's hospital or ward and each of the kids are dealing with difficult diseases or illnesses. I caught a few of the episodes. Strange thing is these kids live at the hospital practically, but there are rarely parents around, at least not in the episodes I watched. Well, a long lost Mom showed up for one of the kids and two Moms whirlwiinded through on another.

The hospital life can be boring but they make marshmallow krispies with stolen stuff from the nurses break room, they are up and down the halls. One leaves to check out a keggar at a close by sorority.

So mildly entertaining but not at all representative of hospital life or what I've lived of life at the Children's Hospital. But, I happened to mention all of this to C the other day(apparently he watches the show) and he just gave me this look and said "Yes, it is Mom." Seriously? If that show's representation of those kids' experiences are similar to his own then either they are over medicating him or I'm not medicating myself enough!!!!
 

crohnsinct

Well-known member
Clash: I read your post as I sit in the hospital caf next to a woman talking on the phone explaining that she has been here a week with her son in ICU and the doctor says he is probably going to die. So sad what people find entertaining and how the media can distort real life!

Dancemom: please tell me that Dance Moms show is not any where near the reality of the dance world. Those women are vile!
 
Our studio is relatively peaceful, but we've had the occasional whacko as well. I think it comes with most competitive things involving kids. Our directors are pretty good about running off the ones that cause problems. But any time you have a group of women spending far too much time together there is bound to be drama of some sort! lol
 
Jack loves that show and is so upset they are cancelling. But totally agree with it not being realistic of hospital life. And some seriously absentee parents what you only show up for surgeries (maybe) and to bring them home. And the doctor is a surgeon and specialist in everything because they're all his patients
 
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crohnsinct

Well-known member
Lol! Well lest you think I don't have time for realty tv I did catch a marathon showing of Secret Prince one rainy Sunday. Now don't tell me any of that is fake :p. Heard that show is cancelled also
 
Never heard of Secret Prince, but I'm pretty ticked that Parenthood is being cancelled! I love that show! That family is so real and I've loved crying and laughing with them every week. Majorly bummed.
 

Maya142

Moderator
Staff member
I loved Parenthood! I was sad about that too.
I saw an episode of Red Band Society and thought it was very unrealistic. That's funny that C thinks it is realistic Clash! Makes you wonder what he's doing when you're not looking ;)(keggar from a sorority?! Really?!!).
 
CIC, I read an article about what you are describing. There was a group protesting the fact that the show tries to make being sick chic and trendy and really falls short of what kids with these illness truly have to go through and leads outsiders to believe that it is not as devastating as it can truly be.

I loved Parenthood the movie but never got around to catching the series.

DanceMom, I've had to stop watching Dance Moms since Chloe left the show, that kid was so adorbs, the Mom was slightly insane acting but that kid was just awesome.
 
Chloe does seem like an absolutely sweet girl. I'm glad she left though, for her own self-esteem and well being. Just wasn't a good fit anymore. I bet most of the girls are actually very down to earth and friendly. We've seen JoJo around since she was a toddler at our National competition. She's really that loud and silly, lol. And A has competed against and taken Master Classes with the Stars kids (Dance Moms Miami). So always interesting to see familiar faces (Moms included) on TV.
 

crohnsinct

Well-known member
Secret prince: these princes from other countries come to the U.S. and live as regular folk and try to find their wives. It was hilarious and we love the girls reactions when they think they have fallen for joe blow and he is really loaded but they have to move to a far off land.

Parenthood😢. Love that show!
 
Ok I'm sorry to be flipping the script again but I've had my hr fairly under control then recently had to start flagyl. And now my body is doing some funny things and hr is higher again. I don't think it's the flagyl since I've taken it before but I looked up side effects. There was nothing pertaining to my issues but I found this

Crohn's disease patients are known to have an increased incidence of gastrointestinal and certain extraintestinal cancers. There have been some reports in the medical literature of breast and colon cancer in Crohn's disease patients who have been treated with metronidazole at high doses for extended periods of time. A cause and effect relationship has not been established. Crohn's disease is not an approved indication for Flagyl (metronidazole) .
This link:
http://www.rxlist.com/flagyl-side-effects-drug-center.htm

Now I figure it must be, as most are, very rare but I had never seen this before. I wonder what they consider long term and high dose.
 

DustyKat

Super Moderator
But any time you have a group of women spending far too much time together there is bound to be drama of some sort! lol
What? Like here? :shifty-t: :ylol2:

I haven’t seen it before any literature either Clash but I figure it this way…

Like you say, I imagine it would be a rare side effect…But if Flagyl helps achieve and/or maintain a state of remission then I think its risks would likely be less than that of the increased risk of dysplasia that chronic inflammation has the potential to cause. Sheesh! I sound like I am doing a deal with the devil! :eek2:
 
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