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Out of the blue DS just told me that berry flavored Propel reminds him of Volumen... so he's not going to drink berry Propel anymore.

Mmm, okay.
 
Well the nurse told Jack it tasted like blueberries so I guess I can see that. Jack says it tastes like no blueberry he's ever had but I could see that it's pretty sickly sweet.

I've seen the flocking idea with a toilet, they painted it purple and same thing pay to have it removed/moved to a friends or just protection. There was a sign as well so it brought awareness to Crohn's. I'll see if I can find the pictures/site again.
 
96f4def6d5f2050d211fc5c07e7181bf.jpg

Well this one's for cancer but you get the idea.
 
:rof: I DO like a man in uniform but shirtless works just as well!

But geez! I think I could have babysat half those kids! A little too young for even a dirty old geezer like me!

The mop pom poms was too funny! Nice to see them having fun!
 
Hey guys, totally non-CD related but lab work for me just came back. We were testing my potassium, it's been a bit low a couple times.

Anyway, all was well except osmolality was 269 NNR 275-293. And my ALT/SGPT was right on the lower limit at 12 with NNR of 12-78. Anybody know what these are? I mean I know ALT deals with liver but exactly how not sure. I'm assuming the doc wasn't concerned as I didn't get a call.

A lot of my levels were on the very low end but these stood out to me. Oh and since this was a CMP what would I have to request to get my cholesterol checked?

Tia to anyone who can shed some light.
 
Clash said:
Hey guys, totally non-CD related but lab work for me just came back. We were testing my potassium, it's been a bit low a couple times.

Anyway, all was well except osmolality was 269 NNR 275-293. And my ALT/SGPT was right on the lower limit at 12 with NNR of 12-78. Anybody know what these are? I mean I know ALT deals with liver but exactly how not sure. I'm assuming the doc wasn't concerned as I didn't get a call.

A lot of my levels were on the very low end but these stood out to me. Oh and since this was a CMP what would I have to request to get my cholesterol checked?

Tia to anyone who can shed some light.
Click to expand...

ALT is a liver enzyme. I wouldn't be concerned about a low normal. That is very good. Cholesterol screen is called a lipid panel. You'll want to fast 12 hours before obtaining it.
 
Thanks, CarolinAlaska. I see no reason for my cholesterol to be high but I don't think I've ever had it checked.
 
You never know. Some tiny little salad eating women have incredibly high cholesterol numbers due to bad genes.
 
Yep, my Dad has bad cholesterol but it was definitely due to his eating habits. But, you are right, you never know besides the diet I have to follow now doesn't lend itself to healthy:(
 
Lipid panel. I'm 5'2" and 115 lbs with genetically high cholesterol - lucky me. My last check was the highest it's ever been so I started tracking what I eat in My Fitness Pal where you can specifically see cholesterol and I eat almost none. I don't smoke or drink and I run or walk several miles almost daily. It's frustrating.

DS's 23 and me report indicated a possibility for high cholesterol too.

Even if your clinic says you don't have to fast for 12 hours before, I'd still do it. Just to be sure. If you do end up with high numbers, let me know and I'll share all my cholesterol secrets.
 
It was free for DS with their IBD study. Were you thinking of it for yourself?

It's a little tricky because they can't give health info anymore, but you can send the info to another company who extrapolates the data and gives you a health run down for $5 more. I found the data interesting and somewhat helpful, but the big thing to remember is that even though you carry a genetic predispsition doesn't mean you will get disease x. A lot of the info still confuses me, but overall helpful and confirmed many of the genetic family health issues we already knew about.
 
We really liked 23 and me - it was right on target for M - showed many genes for Crohn's, AS (20x greater risk for AS, not a surprise since she already progressed to AS from JSpA) and even lactose intolerance. Showed heart disease that runs in my family.

She also has genes for every other autoimmune disease that exists - Lupus, RA, Scleroderma, MS - but I'm ignoring those for now!

Our rheumatologist and the researcher we see both said to take it with a grain of salt - that it doesn't account for gene to gene interactions or something. But it was still pretty cool.
 
Mehita, would love to know your cholesterol secrets! ;) My cholesterol was a bit high last time, doctor is giving me six months and wants to retest... if not lower, wants to add meds. :( So, would love to know what you've found that might work.

Re 23 and me... that just scare me. :( Totally sticking my head in the sand but not sure I'd want to know about genetic predispositions... :eek:
 
I'm still a work in progress. I'm supposed to get follow up labs run in May, but here's what I've been doing:

- tracking food intake in My Firness Pal. In the settings you can specifically track cholesterol and fat. In the US, an ok amount is 300mg, but my dietician said I should try and stay below 200mg. I've read several articles indicating high risk people should shoot for less than 100mg. Without much thought, I have typically been in the 75-80 mg range, which makes the high labs annoying. :(
- diet is critical. No fast food, lots of good fats, fiber, etc. I eat homemade oatmeal every morning from this link http://www.theyummylife.com/Instant_Oatmeal_Packets. Admittedly, getting a little sick of oatmeal, but I'm sticking with it until the next labs. Needs to be steel cut oatmeal.
- exercise! I either run for 30 minutes or walk 3 miles every day. The kids got me a Fitbit awhile ago and my goal is 8,000 steps a day. Type A personalalities and Fitbits....
- I take a cholesterol reducing supplement from a company called Melaleuca. http://www.melaleuca.info/ContentImages/WebContent/psDoc/PIB_Phytomega_enUs.pdf
- I can't find the link, but I read something recently about the change in thought on high cholesterol and how it's due to inflammation. The article suggested increasing vitamin D to reduce inflammation. I take 2000iu.
- fish oil. My dietician recommended increasing either fish intake in meals or supplementing. Right now I'm hit and miss on supplementing. I take it in a liquid form and simply forget a lot since its in the fridge and not with my Vit D on the counter.

Hope that helps! If my numbers aren't down in May I think I'll go nuts after all the changes I've made... and probably have to start meds. :(
 
Mehita
Unfortunately some folks have high cholesterol regardless of weight and diet due to genes.

One thing I did was no meat or dairy the week before my draw
Numbers dropped drastically
Good luck
 
Mehita,
I also have genetically predisposed high cholesterol. Mine was borderline but I totally turned it around in six weeks time without changing anything else and it was totally by accident. All I did was start taking turmeric. Turmeric has amazing effects on cholesterol. Everyone should take it.
I buy the one from viva labs, curcumin c3. It is the best one. My cholesterol in six weeks dropped and my HDL the good cholesterol went up to 74. The best it has ever been.
The one thing to know about turmeric is if you need to have surgery stop it two weeks prior as it is a mild anticoagulant.
 
For some people, alcohol raises cholesterol. A friend of mine lowered her cholesterol dramatically by excluding all alcohol - but, for another friend, it made absolutely no difference.
Dontknow.gif
 
Thanks! Great info!

Really need to start (re)incorporating some of the suggestions! I was doing the oatmeal but, I did get sick of it... but, I should stop thinking that 'this is lifelong' and just focus on a shorter time period (ie eat oatmeal everyday only 'until' test ;)... deal with later, later!).

I was also adding cinnamon to my diet... again, have fallen out of the habit but, I have brought a cinnamon shaker to work and was adding a few shakes into every coffee... I couldn't find any real studies confirming it's benefit on cholesterol but did find lots of anecdotal info and there are other health benefits so... nothing to lose.

I'm on the same 'deadline' as you, Mehita... have to go back for testing in May :yfaint: ughh, I'd better get more on the move here! :ack:

Mehita, do you know if your supplement includes turmeric? I was looking it up and found lots of good reviews but couldn't find a list of ingredients. Wondering if it would be okay to try your supplement and also add turmeric?? I already take fish oil, vitamin D and a multi. (Not every day but probably manage to remember 4-5 days a week...)
 
Tess - I just checked th label and don't see turmeric anywhere. Here are the ingredients from the bottle:

Vit c
Vit e
Phytosterol esters
Fish oil
Coenzyme Q10
Alpha lipoic acid
Lecithin
Bromelain
Sorbitan oleate
Triethyl citrate
Gelatin
Glycerin
Water
Lemon oil
Lycopene

The oatmeal recipe I posted above is nice because you can create different flavors to avoid boredom. Also, you can sneak in the good stuff like cinnamon, chia seeds, flax, etc. Plus, since you're making it yourself, there's no junk and you know exactly what's in it.

Have you looked into the curcumin that kimmidwife suggested? Isn't curcumin a form of turmeric? I just started reading about curcumin last night. I think that will be my next step if my labs still suck.
 
Yes, that's exactly what I was considering... adding a turmeric/curcumin supplement. But, I'd wondered if your supplement already included that in it's ingredients. :)

Haven't looked at your recipe yet... But, yes, a bit of variety helps. :) I also once found some savoury oatmeal recipes - haven't tried any yet but I'll try to find the link and add it here.
 
Curcumin is the beneficial compound that is found in Tumeric. Bear in mind when purchasing a Tumeric supplement that it also contains black pepper to aid its bioavailability.

This is what Matt takes as an example of ingredients:

  • 700mg per capsule (standardised to contain 590mg Curcumin)
  • 100% Organic Curcumin extract
  • Contains 100mg Bromelain and 10mg Piperine to aid absorption
 
That is not my home town! We don’t have a traffic light let alone an escalator! :nonono:

But…I did travel to Canberra to attend said event. Is my arse one of those in the picture? No, simply because the sun that shines out of it is so blindingly bright that it can’t be captured in a photo.

Dusty. :kissgrits:
 
Apparently, ....where the sun don't shine... doesn't apply to you! :lol:

Some of the comments in the article are hilarious...

"I believe that many of his works are best suited to the nude viewer, because your whole body can partake in a colour experience."

"Once you're there... you go, 'Oh I could look at all art like this, for the rest of my life'. (I guess it all depends on who you're standing next to... :lol:)

"He has a room which is called the Gansfield room. It's coloured light and it was really quite beautiful to see people exit," he said. ('Fess up Dusty - this bloke was obviously blinded by your light! :sun:)

Another art lover said for him, the naked viewing had changed his perspective on art entirely.

"We loved it... we did a naked cartwheel together, in the National Gallery of Australia," (Again, Dusty... 'fess up! :dusty:)


"You don't have the clothing distracting you." (Really? It was the clothed bodies that were distracting in the past?? :lol:)
 
We are very creative lot 'down under’ :lol:

Don’t know if any of you guys have this version of ‘I won’t let go' but these kids…wow! I reckon the song pretty much sums up how we all feel…

[youtube]4M1__0GEiBo[/youtube]
 
Haven't clicked on this thread for a while. The diet stuff is interesting. I am trying Mark Hymans diet - basically gluten, sugar and dairy free :ywow:. I have managed well and after the 10 day detox I am able to eat a few extras like gluten free crisps. It really seems to be helping, I feel a lot better and am losing weight.
Unfortunately it can't heal everything and I will be having a hysterectomy in a couple weeks. Bit is a shock but definitely not planning any more kiddies so that's okay :)
 
I'm glad you're feeling better! ... you've been struggling for a while now! Good luck with the hysterectomy! I hope all goes smoothly and you have a quick recovery :ghug:
 
I read the article and apparently the bus is a real thing in England! But they say and I quote, "don't worry the seats are not toilets and a deposit will not be required for a ride". LOL!
 
Farmwife said:
:eek2: who knew their were so many names but #39 is my new fav, pooplets. :)
Click to expand...

Not that I'd admit to watching it... but Southpark had a really funny episode where one of the boys was pooping in the urinal, and they made a point of using every euphemism in the book. (Or on the web, as it is here!)
 
Thanks to those checking up on me. I am over 5 weeks post op and feeling "almost normal". Still getting tired easily and aching by the end of the day. I suppose I am doing too much - hard not to go back to full mom mode and try do everything myself!
 
Questions for my friends who understand cold weather and sport.

Do hot drinks before activity help?

What is the best method for re-warning the body? Do you try and warm very quickly?

Is dizziness a sign of a low core temperature?

I am hoping to be better prepared for next weekend swim. The swim will be 1.2 kms. The water temp should be around 10C and air temp 12C. So a little warmer than today when air temp was 6C.
 
I know DS has trouble regulating his body temp in his lower legs
Besides blankets ( so the body doesn't have to try to keep up.
Massage the area keeps blood flowing easier
And
He told DS to drink warm herbal ( non cafenared tea)
Warm fluids let the body again not have to work so hard
I would assume similar for cold sports
Good luck
( exactly why are they swimming in such cold water ??)
 
There are two events on the Open Water Swim calender.

Kerry has elected to swim both. They are both Ocean Swims.

She does train outdoors once a week, the water is heated to 28C.
 
LOL Tess, I was thinking the same thing.

I haven't caught the news lately. I haven't even heard of the forest fires in Canada.
I hope y'all stay safe.
 
:) I've been so busy lately, totally out of the loop!... have barely seen the news! Hope everyone near the fires, are doing okay!

S turned 21 over the weekend and we had a surprise party for him! The running around picking up stuff and hiding it has been keeping me so busy. But, turned out really well - he had no idea! :D Anyway, guess there's no denying it... both my babies are all grown up! :eek: (At least, most of the time! :lol:) But, must admit... :blush: as much as I sometimes miss their younger years, I am truly beginning to settle in and enjoy the freedom that comes with having 'grown-up' children! :dance:
 
There are wildfires burning on the Saskatchewan prairies, and forest fires north of Vancouver, BC. My SIL lives in Vancouver and she said the city is cloaked in smoke. I don't think she's had any exciting encounters with firemen though. I'm pretty sure she'd have mentioned that!

Stay safe!
 
Don't you just love it when DH comes home and tells you his diabetes specialist has declared that he is mystery. He has only one patient who diabetes has been harder to control and he has lots of patients.
 
Thanks far wife.

DH lost 5 kg :rosette1:but had to increase insulin to 90 units per day.:frown: He is a puzzle.

Still gets reads of 15-16 :frown:but HbA1c is down to 9:ybiggrin:
 
Hmmm it isn't my hubby's diabetes that is hard to control it is him! Doesn't take the condition seriously:ymad:

Hugs to you and hubby though :ghug: Is he under a lot of stress? There was a time my dh was doing great with diet and exercise but he was under extreme stress and his sugar numbers were high. Stress releases something into the body to give you the energy to keep going (can't remember the name of it for the life of me) and the body sees that as sugar.
 
hmmm, the connection with stress makes sense for my family... my mom has never had high sugar, however, she's been under a fair bit of stress for over a year - taking care of my dad, lots of things being thrown her way. And, recently, her doctor has warned her that her sugar is rising. Certainly could be other factors but, interesting that you mention stress and that has been the biggest change in her life recently.
 
LMFAO! :rof: I bags being the CEO! :worthy:


Hospital to replace doctors with parents who have done their research
Published on July 17, 2015 in News by Doktor Spudd

SYDNEY, AUSTRALIA – A large tertiary care center in Sydney, Australia is pulling out all the stops to try and cut their expenses. As of next month, all doctors and nurses currently on staff will be replaced by parents who have done research on the Internet.

“I can’t tell you how happy and relieved I am when a patient tells me they have done some research on the internet” said head of neurology, Dr. Eric Sheppard. “It’s only topped by a patient telling me they have a family member who is a nurse.”

The hospital is excited about how much money this move should save them, not to mention the overwhelming support from parents everywhere.

“This is a great move in my opinion” said anti-vaccer Meryl Dorey. “Most parents know more than doctors anyways, so this is a huge step in the right direction.”

The current staff are in the process of being moved to other less innovative health centers.

http://thespudd.com/hospital-to-replace-doctors-with-parents-who-have-done-their-research/
 
DustyKat said:
LMFAO! :rof: I bags being the CEO! :worthy:


Hospital to replace doctors with parents who have done their research
Published on July 17, 2015 in News by Doktor Spudd

SYDNEY, AUSTRALIA – A large tertiary care center in Sydney, Australia is pulling out all the stops to try and cut their expenses. As of next month, all doctors and nurses currently on staff will be replaced by parents who have done research on the Internet.

“I can’t tell you how happy and relieved I am when a patient tells me they have done some research on the internet” said head of neurology, Dr. Eric Sheppard. “It’s only topped by a patient telling me they have a family member who is a nurse.”

The hospital is excited about how much money this move should save them, not to mention the overwhelming support from parents everywhere.

“This is a great move in my opinion” said anti-vaccer Meryl Dorey. “Most parents know more than doctors anyways, so this is a huge step in the right direction.”

The current staff are in the process of being moved to other less innovative health centers.

http://thespudd.com/hospital-to-replace-doctors-with-parents-who-have-done-their-research/
Click to expand...


:rof: :rof: ............... and :rof:
It's bloody brilliant!!!
 
My middle daughter started working as a swimming teacher yesterday.

Students: Why did we have to change teacher. It was so hard to remember J name so we just keep calling her Sarah.

Teacher: I'm Sarah's sister

Students: Did she get fired?

Teacher: No she in England with boyfriend

Students: is she on her honeymoon?
 
Last edited:
Unbelievable, eh? :lol: Apparently, our politicians truly are scr...wing everyone! :rof:
 
Any help would be great!

Tomorrow is my husband's 40th birthday!
For all you party planners is there anything that would be funny to do to him.
I want it to be funny.... ya know, lasting memories. :thumleft:
We're having a surprise party tomorrow,
which isn't easy to keep it surprise when Grace almost gives it away everyday for the last two weeks.:yfrown:
 
I am pretty much figuring that seeing my 21 year old daughter order her first legal drink is justification for the three I needed to get through the night :drink:

...the waiter carded her and didn't even have the decency to ask if she was out with her sister! :ymad:

But LMAO...she ordered a trio beer tray...I said I will have the same...O was up next and she said, "same". That's my girl!
 
21! You could have already had 3 years of drinking excuses by now if you lived in Oz! :ylol:
 
Haven't watched the second one CIC because it's late and I need to go change out of my yoga pants and into my jammies. :D
 
Can I vent?

General Mills recently made changes in the U.S. to make their Cheerios line gluten free. They're not using certified GF oats, but came up with a way to mechanically separate the protein out. Problem is that many Celiacs are getting sick from the new Cheerios, DS included.

I'm so frustrated because the boxes are all labeled gluten free, yet there is this chance that they're really not. A friend has a gluten detecting dog who passed one box, but not the second one she gave him. Why does GF labeling in the U.S. have to be so difficult?? How am I, as a consumer, supposed to know who and what I can trust? Argh!

DS was so excited about Cheerios and now is totally disappointed.

There is a chance that he simply can't tolerate oats (some Celiacs can't), but even for that, how are we supposed to know? Is there a test?

Vent over. Thanks.
 
Mehita
Bummer on the new label
That said most parents of kids with food allergies
Do what I have done in the past
You just call the companies and determine how they label things
Wash lines etc...
Most have standard practices
So the big companies are good at giving the info
So just a pain but not that complicated
Keep a list of Main mfg
Note practice
Repeat in 1-2 years
Read every label three times
 
Food manufacturers here pushing at times for us to move to the same standard as the US.

We have lots of foods labelled that the may contain traces of gluten. Most of these foods will not contain any gluten.
 
Mr chicken said:
Mehita
Bummer on the new label
That said most parents of kids with food allergies
Do what I have done in the past
You just call the companies and determine how they label things
Wash lines etc...
Most have standard practices
So the big companies are good at giving the info
So just a pain but not that complicated
Keep a list of Main mfg
Note practice
Repeat in 1-2 years
Read every label three times
Click to expand...

Yes, I've been doing this since diagnosis back in 2008. I have a 3 ring binder full of phone numbers and notes. I'm just tired of doing it and spend way too much time doing it.
 
crohnsinct said:
Put the moonshine down Farmwife...I posted that same article last night...look above^!
Click to expand...

:rof: Great minds think alike.

Ha mlp, I don't drink alcohol, so my mistakes are simply my stupidity without any help from substance abuse involved. :tongue:
 
Well, this is just a huge vent, but I just found out yesterday that my younger daughter was exposed to lice a few weeks ago, so I did a thorough lice combing on her, and I found one louse and a few nits. Ugh! My kids have had lice once before, many years ago, so I know how to deal with it, but what a pain. Don't families dealing with Crohn's get a pass on things like lice?!!

My younger daughter was so upset about it. She just started middle school yesterday, and that's really not how she wanted to start the new year. :(

It looks like we caught it really early, so hopefully E and I won't get it. My husband shaves his head, so at least we don't have to worry about him.

I do have to say, though, that when my kids had lice before, I thought it was the end of the world. After dealing with Crohn's for the last year, though, lice doesn't seem like that big a deal at all.
 
LMAO! Nope! No pass. Both O and T got ice this summer and it took us forever to wrangle those little buggers...probably because the girls kept going to camp. Haha and you are right...after inspecting and playing with bloody and mucusy poo a few bugs are nothing! The girls and I rather enjoyed our quality time with the conditioner combing or hours. Actually helped with O's psoriasis as the comb picked up the flakes and sch. Their hair was never so tangle free. Silver linings.
 
Anyone have experience with concussions? I have the HUGE no no list, but looking for ideas to pass the "brain rest" time with my energizer bunny this week.
 

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