New member

[dette]

OMG OMG OMG OMG check this place out... i was thinking it would only ever be OAP's with this shi**y disease, how amazing that im not alone and there are more people with complicated bizzare stories about their illnesses here online!!!

I only started looking online for support because yesterday (christmas eve) i started my E028 diet to rest my colon, and if i see one more person whinge online that they have belly ache from eating too much christmas dinner... i actually want to punch my loved ones every year as i realise i cant stand meals with more than one other person present!!..... seriously , moaning about sprouts..... i have 8 cartons of synthetically flavoured minerals for six weeks, brussle sprouts sound like luxury right now!! ...... guys i NEED you lot, the healthy people out there right now are making me feel like i need to eat... quite honestly im feed up passing blood mucus and wind, i NEED to rest my tummy but at this time of feasting and glutony im struggling!

If you know any members in my area that you could pop me in touch with pleeeeease do pass my details on!! Love health and peace to you all! xxx

 

[David]

Hi dette and welcome. I just moved your post from the UK forum to here. You kinda got lost in the Local Support groups which we need to fix, I'm really sorry about that.

It's great to have you here

 

[dette]

Thanks so much David! And for the FB link today, i had a little breakdown online today and its nice to know i now have fellow crohnies to talk to on facebook rather than my friends and family that just dont understand xx

 

[David]

Oh thank goodness you're still here. I feel terrible that you didn't get a response until now. More people will be in to welcome you soon. I'm SO GLAD you joined us!

How long are you going to be on the E028 and how do you like it so far?

 

[rygon]

Welcome to the forum, Not sure what the E028 diet is. Can you explain? Hope its going well for you (guessing by the breakdown maybe not )

Its sure a hard life having crohns but this place certainly has helped me a lot, hope we can help you too

 

[dette]

Thanks guys!

Rygon and David.... many thanks for the warm welcome! I was busy nosing around trying to work out how the forum works etc
its 3.41am here in Cornwall Uk , the elemental028 liquid diet is, well unsaticfying lol
it could be worse, im just struggling with the not eating side of it!

Im on day six and have very little energy and i am still so surprised by the lack of understanding people are showing!
My friend has started blending her meals and asking friends and family to sponser her for the charity NACC , i love her for doing it but being told every time she eats something is starting to grate on me, especially from my favorite restaurant!
Im really hoping she'll join this site and do a little 'light reading' and at least try and get with the programme hehe

I sometimes feel like im living with specialist knowledge in my head and im an untaped resource, here i actually feel like im at home... im amazed and so grateful that this site even exists 11 years ago i felt isolated, a few days ago i still felt isolated and marginalised because im misunderstood. the more i read on here the more i know im not mad, im not being a hypercondreact, and im just in feeling down sometimes.

FINALLY some understanding.

I'll be back... ive so gotta sleep right now, which will be hard as im actually excited to have found a new comunity where i DO belong! night everybody! :heart: Xx

 

[David]

The lack of energy, is that from the diet or something that started prior to going on the elemental diet?

Goodnight

 

[dette]

Oh David im 6days in and im on it for 6 weeks in total. i then have to re introduce food one new item every four days and wait for the guts reaction. new food intolerances are the reason for this one. remicade complications have sped up the process of flaring and i was struggling to eat anything that wasnt making me worse!
Baby steps!

Catch you soon! Night night!

 

[Angrybird]

Hi there, I have also posted on your other thread but just saw this one about the E028 diet, is this the one where you are given loads of pre made stuff in cartons? If so I have been on this and had the purple and orange cartons - YUCK. If you are finding this stuff as disgusting as I did ask about going onto Modulen instead, you mix the stuff up yourself and you can chose from 5 different flavourings. I chilled mine and it actually tasted like having a milkshake.

 

[dette]

hey AB im managing on the Elemental 028 now im settled in, im on the purple (synthetic summer fruits) and orange (plastic pineapple and oribble orange) flavours... im coping ok as long as i drink loads of water,

im now realising the importance of keeping the acidity of the GI track down by drinking loads of water, it really does help , and with the absorbtion of the liquid feed itself too!

 

[Angrybird]

Yep, these are definitely the first liquid drinks I was given, 8 a day - YUMMY!!! If you want also try Ribena as this is on the approved list and it helped me with my sweet tooth.