On vacation and Sooo hungryy

Crohn's Disease Forum

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Aug 9, 2009
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Hey guys.

I'm 3 weeks from having a proctocolectomy and ileostomy and had to go off my humira for the op. So for some reason this time seemed like a good time to go on holiday to get away from everything? Mum has taken me to Vancouver and at first it was awesome, my crohns not too bad, but after a few days I just got sooooo bad, weak, in pain all the tme and teeeerible diareaha. We really should have thought thru this holiday as i am just bedridden i cant even go out (except for dinner - where i nibble a bit of bread and feel like im going to die.). I don't know why I thought I would be fine on holiday I find it hard going out for an hour at home ! Mum and my sister and I got very emotional last night, it's really taking a toll on them and mum is so worried and feels useless... And my sister feels bad and she has always felt left out as I get all the attention :( anyway I don't know what I am trying to say. I just feel so pissed off and annoyed with myself at the moment. I wanted to see stuff and go sightseeing and shopping but I am some bloody invalid who is a burden on everyone around me. I hate it.

I haven't been able to eat and started on ensure yesterday. It kinda helped but man I am feeling so hungry. I have been craving a hotdog or a nice sausage and bread. Does anyone have any food that doesn't hurt them when your crohns is super mega bad? Rice seems to be the only thing at the mo... Or lollies (but I am just feeling like salt..).

Anyway I go home on the 4th which isn't toooooo long... I just bloody miss my boyfriend and want cuddles.

Oh also... Odd question, but I keep having this horrible feeling... On my V... That is like a long paper cut. I've had it for ages on and off and the dr thinks it may be humira side effect , but I've been off it for about a month. (was on it weekly).:yrolleyes:

Anyway sorry this was probably just a jumble of words. I'm so knackered lol.

Thanks :)
 
Oh you poor thing you sound like you're having an absolute nightmare. I cant imagine being anywhere but my own bedroom when I'm feeling really bad and I'm sure the stress of the situation is making things worse for you.

The only thing I can suggest is to just take things as easy and you can and don't worry about the things you're not doing. I went on holiday last year for the first time in 8 years and the stress of dealing with passports, suitcases and a tantrumming toddler made me that stressed that by the time I got to have something to eat I was running to the toilet. Luckily the holiday was really relaxing and it eased things.

I really hope you're feeling better soon :hang:
 
Hi Charlotte - I am sorry your vacation turned out to be a bust! I hope the trip home isn't too horrible for you. Hang in there!

Good luck getting thru the next few weeks til surgery. If you're like me, you'll have a burst of feeling great right before you get cut open! Kind of like having a great hair day the day before you go to the stylist!

- Amy
 
Hey aw thanks for that I dunno I just needed to vent!
I'm feeling a lot better today and could eat! So happy about that as I actually could do some stuff, plus we had a pedicure :) I've been loading up on tramadol and panadine (codeine and paracetamol for those who don't know, not sure if you have it in the states or Canada?) and that seems to be helping a bit! Its so weird how you can go from feeling horrid to okay the next day.
Hopefully this good patch will last till after the plane trip (14 hrs!), I hate pooing on airplanes! Lol. At least you don't get splash back tho.
Anyway thanks tons, you guys are seriously such good support and I am thinking of getting mum on this forum, as she is having a rough time thinking about my op, worse than me! She crys every time I mention it!

Xxxxxxx
 
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