Prednisone is driving me crazy

[BLM]

ICK....I HATE prednisone. So Ive been doing ok...I have my ups and downs, but today is out of control. Every minute my mood is swining, and my poor family doesnt know what to think. I didnt sleep last night, my skin was crawling and I was sweating like crazy. I woke up fatigued and irritable. I hurt all over today, even to touch my skin is killing me. I have another week before they lower my dose again....but Im dying here. I started to get a really wierd twitch in my chest....almost like an increase heart palpatation...and its making me crazy. It came on a few days ago when I was awoken from a dead sleep with serious chest pain. It felt like someone was sittin on my chest and I couldnt breath. It went on for about an hour and then it was done....well now.....I have this wierd palpatation and Im not sure what to think of it. Its been happening for a few days, but today is really bad. Any experience with this?? I hope tomorrow is a better day....Im tired of the unpredictableness of this disease...I just wana be better again

 

[Jennifer]

It might not be you coming down from the Pred. It could be another medical condition and I'd get it checked out myself just to be on the safe side. Its also good to inform your doctor of what's happening before they lower your dose again just in case it is from lowering the dosage.

I didn't have that issue when coming down from Pred. I do however have an irregular heart beat and have been going to heart doctors recently for it. Most heart doctors say that palpitations are common among anyone especially when stress is involved but anything that lasts for a half hour or longer needs to get checked out because that's not within the norm.

 

[RedReiner]

I got that from pred...skin felt like crispy! like it had crawled through a fire lol. creepy crawling skin, sweats muscle tremors, shaking, some panic attacks and good lord dont anyone dare make a loud noise, I screeched in terror at the clink of glass. all sorts of stuff....no like prednisone. coupled with the sulfa side effects I thought I was going to die a slow death, the sulfa dropped my blood pressure like crazy.

 

[wild_one353]

make sure you are getting all your electrolytes, magnesium, potassium sodium and also calcium, they are all involved in heart rythms. not to mention the stress which could be another reason you may not be sleeping.

of course if you have have lots of diarhea, this is going to be a challenge.

 

[georgiegirl]

I already have high blood pressure, and a little while after I started the dreaded pred I started getting palpitations too. Luckily, I had an appt booked with my heart guy not long after, and he assured me it's the steroids. It's like my heart is beating way up at the bottom of my throat...and it does seem to have decreased (but not gone away) with the tapers.

If you're worried about it though, definitely mention it to someone, whether it's your GP or GI or whoever...

Best of luck and hope you feel better soon!

 

[BLM]

Today seems to be a better day. Those wierd palpataions have slowed way down, not having nearly as many today. So thats been nice....still not sleeping very well, my meds seem like they dont work too well with Prednisone....I sweat like crazy all night and toss and turn. I have a one year old who always ends up in bed with me...so my sleep is minamal as is. Looking forward to many more good days, and forgetting the bad ones~