Sick of it..

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Joined
Jun 24, 2015
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I am so ****ing sick if this!! I was diagnosed last month and I have been on Lialda, doesn't work; now I need infusions.. WTF??!! I'm just pissed. Mad as hell. I'm sorry for bitching but I'm pissed!!!!! Why me??!! How the hell am I going to afford this ? I am already up to my neck in hospital bills !
 
You've got legitimate reasons to be upset. It's my daughter that has the diagnosis and I've spent a lot of time with the same feelings you're having. In time, and one step at a time, I got to a better place. Lean on those around you. Honor your feelings and then try to move forward, one step at a time.
 
Ive asked the Why me question a lot in 30 years of Crohn's You will find a way to pay for it. A lot of hospitals have patient assistance for those who cannot afford treatment. The drug companies have assistance for those that cannot afford there medications. Do some research ask for help! There is the Humira patient assistance Program. Pentasa has program Lalida has a program. Goto your pharmacy explain the situation they can put you in touch with the right people. Don't give up!
 
Stay strong man. I'm very thankful to be in the UK, where we have the NHS. It will still cost me to pay for the prescriptions, but nowhere near as much as the US. I hope that it changes - chronic illnesses need to have free medication, its a no brainer.
 
I feel you. I was on lialda and prednisone for months and didnt work now do humira injections. Just try to remain possitive. It will eventually get better.
 
I wish I could say that these feelings will go away, but that would be a lie. Just do your best to get through one day at a time. I hope once you start remicade you will start to feel better. 8 years later I still go through why me moments, I get angry and sad. I let myself have my moment but then I find a reason to be happy again. Thats all you can do. Try not to look at the big picture so much, look for the small milestones.
 
Yeah I hear ya.. Have lots of ups and downs lately and yesterday was a downer.. I'm hoping the infusions will help. I've heard a lot of positives on it. Thanks for the support!
 
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