Sister's 10 year old boy

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Liam has now had a month on 40 mg p/day PPI & 30 mg p/day of Motileum. On this combo he is gaining weight but still has bad bouts of upper stomach pain each week.

We saw a new pediatric GI earlier this week who we liked. We went in simply expecting him to review where we we're at and issue new prescriptions for medications however he really wasn't comfortable with Liam's ongoing symptoms.

He has ordered prometheus testing for indicators of IBD and UC but said he has seriously doubts this is a gastric issue.

He was concered that Liam was still having severe heartburn at this medication level and said that he is concerned that this isn't reflux. He talked about needing to check out other organs more carefully.

We gave him a summary of Liam's history to date and he asked us to come back next week when he's had time to absorb the information and consider what the next steps should be.
 
Will add it to my list of things to ask about.

Liam's strongest symptom is moderate to severe pain behind his breathbone.
Moderate can be triggered by eating, severe always by exercise.

When it's severe he complains of pain in throat and sometimes of liquid from his stomach coming up into his mouth. Last week we had an episode where he also talked about difficulty breathing. Severe bouts also seem to trigger headaches and dizzyness.

The GI expressed concern that because his bouts of severe pain, are always exercise triggered that it might be angina. He suggested we stop all exercise, which we're very reluctant to do with our sporty little boy who adores his football.
 
Maybe he could do a cardio stress test just to be sure. You here about kids dying playing sports because of undiagnosed heart conditions! Sorry, don't mean to sound scary but you just never know!
 
We had the heart tests for the problem Dexky mentioned due to faint while exercising.

Also have his blood pressure checked out.
 
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I really hope he doesn't have to give up sport! Hopefully you will find a cause for all his discomfort and reflux.

Thinking of you guys xxx :ghug:
 
Sarah was cleared for sport after ultrasound of her heart and 11 led ECG

She was dx with Orthostatic hypotension due low body weight.

As Dexky said you need to get this checked out, neuro had Sarah tested with a ECG straight after the appointment even although he was sure it was orthostatic hypotension. The ultrasound had already been performed.
 
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Last football fixture of the year tonight, and his dad has told him he can play.
It's a five aside round robin event and I think they'll be short games.

Currently 37C/99F and 50% humidity, my weather app is currently saying feels like 44C/111F.

Its forecast to get to 42C/108F but as it warms up the humidity is burning off which should help.

Will definitely be keeping a real close eye on him.
 
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To answer questions, the idea he shouldn't play sport was raised by GI at last medical appointment, and my husband said no, not at this stage, I think because the heart issue idea seemed like a very left field idea to him and so far no test results to support that idea.

Liam has not yet had any non IBD related testing order by new GI, I believe we'll be seeing him later in the week to discuss, the next set of tests he wants to run.
 
Holy Moly, In that heat even being a spectator sounds dangerous! I'm sure hydration is high on everyone's radar but still! I assume it's getting on up in the afternoon/evening there so I hope it goes well!! Go Liam!
 
Two hours to football. We have lots of drinks including rehydration fluid

Temp dropping 36C/97F now but humidity rising 60%
Weather report now claiming feels like 48C/118F and it really does.

Hoping temp will drop a bit further but forecast overnight minimum is 32C/90F so it's not going to cool down very much.

First time two times we had to take Liam to hospital with abdominal pain we're both days hotter than this when they had 2pm tryouts or games.
 
We seem to have got through tonight's games with no ill effects, which is a huge relief. Glad we let him play. It was a internal club tournament and at the end they had presentations.

Liam won Player of the Season for his U12 development squad (selected from top players from 13 schools), which is really impressive because he hasn't been at all well this year and because he's the youngest kid on the squad, Liam was born on the cutoff date, one day younger and he'd be still playing U10's. All the other kids on his team and that they play against are much bigger & stronger.
 
I'm glad it went well and that he had no ill effects. That alone should be a negative stress test! :)! Congratulations on the high recognition. You can be proud of him for sure!
 
Maree. said:
Liam won Player of the Season for his U12 development squad (selected from top players from 13 schools), which is really impressive because he hasn't been at all well this year and because he's the youngest kid on the squad, Liam was born on the cutoff date, one day younger and he'd be still playing U10's. All the other kids on his team and that they play against are much bigger & stronger.
Click to expand...

Woo hoo!! Way to go Liam!!!
 
Wow, what a fab update Maree! :dusty::dusty::dusty:

Mega congrats to Liam for his award! Well done! :award2:


:mademyday:

Dusty. xxx
 

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