So glad to talk to people who understand

[julesinfrance]

so glad to talk to people who understand

Hi all, Im Jules. I am from England but moved to France a year and a half ago. I have had real health issues for so long now. It all started with what seemed like a simple appendicitis in 2006. It was removed and I thought that was the answer to why i had felt so ill. Everything seemed to get so much worse: abdominal pains, joint pain, back pain etc.I ended up having a hysterectomy in 2009 due to endometreosis, again believing this would end all the problems! Then I moved to france and ended up being hospitalised several times, having adhesions separated and finally a diagnosis of chrohns and arthritis. I was started on Humira, ended up having an allergy to it and am currently on remicade ( three doses so far ) I think it helps, but not dramatically so yet, and my throat is constantly really sore and insomnia aswell...Is this normal? Im so excited to have found somewhere to talk about my ilness with people who understand what it is like to be chronically unwell1

 

[Nica]

Hi! Welcome to the forums.

I have all that lovely crohns related arthritis as well. The theory is that remicade and humira will treat that pain as well as the crohns.

Are you on prednisone as well right now? that can cause insomnia. It can also come on from stress, running to the loo all night and being in pain.

I would have your doc take a look at the sore throat. Being on remicade can make infections rather difficult, just make sure what that is.

 

[julesinfrance]

Used to be on prednisone but not now. Just on painkillers, 25mg Amitriptyline and the remicade. The Doc looked at my throat some time ago, tested it and said it wasn't an infection. It does tend to be worse when the arthritis and chrohns are in flare up or about to be....the last few days have been really bad though so will get it checked again , thankyou.

 

[Nica]

I hope you start to feel better soon.

 

[crazycanuck]

Welcome to the forums and sorry for your battpe so far. Im on remicade after 3 doses as well and fortunately havin great success but I too am having an extremely hard time getting to sleep. Ive been up well in the 3am and 4 am hours more often lately than ever before and I thought my pains were from the weird sleep patterns but having bad aches in my back especially but also legs and ab muscles. Those appear to be my only side effects. All more than worth it for me so far though so good luck with it and I hope you see some promising results soon.