Surgery 11/23/11

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brieyourbest

Cimzia Forum Monitor
Joined
May 8, 2011
Messages
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Hey All!

I will be having a laproscopic ileotic resection done tomorrow. I am a little hesitant about it because mostly everyone post that recovery is a lot but besides that I am a little anxious. I will begin to keep a journal [paper.blog.video] on my Crohn's Disease and on how this surgery went so that others who come after me might have less questions or more comfort. Also everyone please keep me in your thoughts and prayers!!!!
 
Hey all! Sorry for just posting again but I haven't been feeling the best. My surgery went okay. He took out six inches of my small intestines and six inches of my colon. He also took out my appendix because there was a mass on it. They said my sleep apnea kicked in during surgery but I don't believe them because the last time I had sleep apnea I was two. We believe that they gave me too much anesthesia and I just couldn't wake up from it. I finally passed gas right before midnight here do I'm excited about that...maybe I can leave soon. The nurses on recovery and in the icu were some witches and so mean.

I know I am rambling you guys but I just want to get it out. I am still on the clear liquid diet which means I just eat the jello and drink water. Hopefully they will advance my diet soon. I've been waking up and down the hallway twice a day. It takes all my energy but I have awesome parents who help.

That is really ask for now... Oh wait, they have been very stingy with the pain medicine. Very. I usually get more when I'm in here for a flare up and I'm not a druggie I'm just in pain. Well ttyl.
 
Hey Brie

Glad you're out from surgery and seem to be holding your own, despite the care you're getting. Ugh, it's amazing how some nurses can really ruin the experience of healing and recovery.

Demand pain killers. My nurses were stingy as well ("we don't want you to get addicted" which is such a load of crap), and I told my surgeon that I was in pain. He let the nurses know that I could have the 2mg of Dilaudid that I was taking at the time, and could go as high as 40mg. That showed them. You're not going to be able to start the road to healing as long as you're in pain.

Try to move around as much as you possibly can (which is why being relatively pain free is helpful!). It'll help, even though you may feel crappy.

Glad you have your parents with you to walk the halls...

Wishing you a good recovery,

Kismet
 
Hey Brie- hope you are feeling better. How long did they have you in the ICU? Do you know if this is standard after a resection or did something come up for you?
 
That sounds awful! All I've been hearing here in Finland considering meds is that nobody hasn't had to be in pain in the hospital after surgery. They get a pain pump which gives you immediate relief when you push the button. You just need to insist more drugs if you are suffering!

Hope you'll be feeling better soon! :hug:

I'm meeting my surgeon next friday and I'm starting to freak out. I'm going to have an open surgery and I'm terrified that I will wake up and the surgery has gone wrong somehow... Or that I don't wake up at all. :eek2:
 
I have just had a bowel resection which required open surgery due to an absess which caused fluid to build up around my bowel. I had a rough few days after surgery, (being sick) but that was 3 weeks ago and I feel better than I have in years! and everybody who knows me says that I look a lot better too.
The only downside is that I am still going to the toilet a lot, but I am told this is normal after this kind of surgery?
anyway, hope everything goes well for you
 
Malabsorption is one of the reasons why people after surgery still run (or in some cases they start running there for the first time in their history with IBD) in the toilet, especially when their small intestine resection has been made in the end of it. "Fat diarrhea" (fat doesn't absorbe and causes the diarrhea and also bile malabsorption causes frequent toilet visits) can example be a pain in the *ss but of course that doesn't happen to everybody! Be sure to ask your doc if the symptoms don't settle down.
 
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Hi Brie, it really sucks that you are not having the care you should be. My op was nearly three months ago and for a couple of days I was on a IV pump where I pressed a button and I was injected with a painkiller. When they ask you to score your pain from 1 to 10 tell them it's a 100, maybe then they will get a clue. Hi misfit-one, Suvi is is right about bile salts after an op not being absorbed properly sometimes thus causing trips to the loo, this has been mentioned to me by my IBD nurse due to my current symptoms. However I must say after my op the docs gave me a mild laxative to keep things 'soft' whilst the join healed so this did not help keep the bathrooms break down.....
 
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