Thank-you all for your responses. I am doing okay., actually had a great night because the person I nominated for an award won. It was a lot of work (I needed to gather 5 letters of support, write a letter of nomination myself and also write a profile of the person.) This person has done a great deal for the community and has touched many so I was very proud to see her win. Her husband even teared up
So...ya, I am pretty sure the thrush is back b/c I havent been eating and when I do, it is smoothies with sugar and juice and I also went to a friends place for the week-end and we drank several beers so the alcohol likely has to do with the mouth sores and thrush I think. The sore throat/sinus's is likely from me chasing her 1 year old around with a kleenex - he had a bad cold. I dont typically get colds or flus but I do get congested sinuses and sore throats...thats about it.. I rarely get them. I took some very expensive pills that werent covered Marisa and also took nystatin on top of that and also dex suggested a mouth wash without alcohol.
I did look up the symptoms of HIV and officially scared the **** out of myself. The symptoms really do overlap and I can see why they may think that. Especially with my sore throat/swollen glands, etc. It is going to be a long 2 weeks.. and I have been scared ever since they took it. I had the lecture about having to have the health department involved, etc and how if it comes back + I need to tell them who my last partner was. He did cheat on me so the fear is there but I dont think it is the problem.
Rapid weight loss
Dry cough
Recurring fever or profuse night sweats
Profound and unexplained fatigue
swollen lymph glands in the armpits, groin, or neck
Diarrhea that lasts for more than a week
White spots or unusual blemishes on the tongue, in the mouth, or in the throat
Pneumonia
Red, brown, pink, or purplish blotches on or under the skin or inside the mouth, nose, or eyelids
Memory loss, depression, and other neurological disorders
fever
headache
joint pain
rash
yeast infections that last a long time or occur frequently
I dont have a cough, pneumonia (the chest x-ray would have picked it up), I do have a brown mark by my right eye but that is from the sun (came right after I was in Hawaii for a month and hasnt changed at all)
other symptoms are rashes, gynae problems, pains in stomach... etc..etc... so the list goes on and on..
they still haven't explained the thickening of the bowel wall or strictures. I dont think HIV causes that..lol. (Im not laughing at HIV, I am laughing at the fact that I am not getting anywhere with these people and they are running me around the block, scaring the crap out of me and then telling me to "reduce your stress levels".
In my next appointment on the 18, I will get the results...couldn't get an appointment with my doc but she is supervising interns that day and she did put in her schedule to pop in. She also put in her schedule that I will be seeking a new doctor.
I consented to the HIV test just so they can stop asking me the questions about my sex life. They ask you certain questions as if they think they are being non-challant...as if you dont know what they're getting at.
@logansmom, yes, I had my surgery and it really wasnt that big of an ordeal for me. It took a few days to move around ok but they prepared me for MUCH worse and it wasnt as bad as they thought. One hand I am grateful the endo isnt that bad but on the other I was sort of hoping that I could blame everything on endo... not the case. I only had 2 implants. The worst part for me was the medication they gave me. I was on a lot of drugs for pain and once I was able to get of them, I found it a lot easier to move around without nausea etc. Im not too big on pain pills.
I am glad your doctors will both be there - I asked for that and they said no. If it were an emergency situation he would have been able to been called though as they were in the same hospital. Doctors make me shake my head - they seem so counter productive.
Im not giving up Dex. I am a little low key just because of my throat and sinuses. I have been taking Buckelys non drowsy capsules for sinuses and congestion but I am far from giving up.
You guys were right about the Dilaudid and milk. I stopped and now I am back to D. It is explosive. At the awards ceremony tonight I was able to hold it in until I got home. I think about an hour. I ate a good dinner though
first time eating food in awhile.
I was proud of the way I told the intern how I felt. I dont think she was very impressed but did agree that I have been seeing far too many doctors and she made the appointment with my team. I also told her that I have thought many times about saying f-it and giving up but I cant... its my health and its not like Im going to magically get better if I do that. I have a lot of things I want to do. I still think I have IBD and I told her that but she gave me the impression there wasnt anything she could do. That I would have to wait for the GI doc on June 20th. Thats when I asked for my records. All these months waiting; add up to waiting years, and I am not able to do much in between. Ive had it in a good way meaning I am starting to push back. I dont care if I hurt anyones feelings and Im not so concerned with saying something wrong anymore.
My brother has severe crohns, I smoked for 10 years, I have strictures in the jejunum and thickening of the bowel wall (ilium), endometriosis, gastritis, GERD, hiatus hernia, oral thrush, and the list goes on. Sounds like IBD to me.... Im not sure why they are having a hard time coming to terms with that.. lol...usually it is the doctors trying to snap the patient out of denial. I dont get it either diesandhur...are steroids really that dangerous that they wont stop with the testing and theorizing and just let me try them to see what happens? I need my life back.
Im going to be okay though... I have a lot of good people on my side. I just need to find the good doctors.
