Take Steps and family frustration

[afidz]

Even though I'm fighting with most of my family right now, they are taking part in a take steps walk this weekend. I looked at their page and all together the team raised over $1500. It should make be happy, but it in fact pisses me off. My mom's best friend's son was dx after me. So when my mom started seeing her friend get involved in things like take steps, my mom did too so she could play mother of the year. I have ALWAYS been scolded for being sick. But around her friends its "I wish I could go through it for her". It's just so fake. She isn't walking for anyone but herself.
My sister joined her this year. I'm not necessarily fighting with her, but we've never been close. I talk to her maybe twice a year. But her fiancé has UC. So she is walking for him. Not for me. ( there is a lot more to it, but I figured I already sound petty enough)
I know that its all part of the big picture. I'm glad that they raised money. I just don't want my name thrown around if they don't mean it. No one in my family knows what my life is like and how hard it truly is. No one in my family knows how sick I really am. They live in this happy ignorant bubble where they acknowledge the disease and acknowledge that I'm not well. But they have no idea what they are talking about or pretending to know about. Is it to much to ask for my family to genuinely care with out an agenda?

 

[Jennifer]

Thanks for the money I guess but ya I agree, terrible reason for your mom to do it since I know your history with her a bit. My families never done it and likely never will. They all pretend to understand as well yet their ignorance shines far too often. Makes me sick. uke_r:

 

[afidz]

Its incredibly frustrating
The sister mentioned above is the one that said " No offense, but are you ever going to be normal" Her fiance has a mild case, that he doesn't treat, because the meds didn't work after a month. He then continued to say "I just stick it out when I have to"
Gee, thanks for discrediting my pain

 

[Jennifer]

Not just your pain but everyone who suffers from IBD. Hopefully he actively sees a GI.

 

[Orchid]

Its incredibly frustrating
The sister mentioned above is the one that said " No offense, but are you ever going to be normal" Her fiance has a mild case, that he doesn't treat, because the meds didn't work after a month. He then continued to say "I just stick it out when I have to"
Gee, thanks for discrediting my pain

Your family just sounds vile and this guy like the worst of them. It continually amazes me that people can be so bad at empathy. The best thing you can do is act like they're completely sincere, it confuses the hell out of them.

 

[Jennifer]

Eat yogurt in front of his face.