Thanks, Crohnsforum

[fenway1971]

Every once in a while, I find myself taking things for granted. And, then, I sit back and realize how blessed I am.

A year ago, I was struggling. Lots of lonely times in the bathroom. Fatigue and an inability to get out of bed some mornings. Shame (how does one tell friends that I can't go out because I'm tired from pooping too much?). Angst (am I gonna get better?). Confusion (how do I know what drugs or supplements to take? how do I know what to eat and what not to eat?).

Those close to me would empathize. But, none could offer me real advice. And, then, I found you.

After weeks/months of searching for answers beyond what my GI could provide, I discovered this site. At first, I trolled anonymously for nuggets of useful information (like side effects of prednisone, whether it's normal to have certain pain, etc.). But, I kept finding myself drawn in to the love, humor, realness and feeling of community in the responses. So, I “officially” joined last August. Because of you, I feel comfortable talking about my poops, my good days and bad days, my worries and my “woohoo” moments.

Thanks, all. Now that I’m pooping like a champ and feeling good about myself, I want you all to know that I appreciate how you help me cope and get through this disease we all share. You’ve become more than just an outlet, you’ve become real friends. If only there were an easy way to get us all together for a live meet.

PS: Can we organize a fund raiser to subsidize tickets for a crohnsforum reunion?

PSS: Am I really this much of a sap?

 

[Cookie]

Can you imagine the number of port-a-potties we'd have to rent for that thing????

On a serious note, Fenway. I am willing to bet that just anout everyone here can relate to your post. Thanks for putting it all into words for us...

 

[Guest]

i agree.. i don't think there's one of us (well, maybe with the exception of George the Spammer lol) who hasn't gotten a helluva lot from this forum. it's like a family - dependable, comfortable, safe, and sometimes when our worlds and our thoughts take us to scary places, this is the one corner of the world that makes us feel okay, and not alone with it all anymore.

 

[Guest1]

 

[JillianB82]

Awwww Fen, you're too sweet!!! If I had not of met you, I would not have anyone to make fun of when it comes to the Sox

 

[GoJohnnyGo]

Hey fenway!

You and I came in at about the same time.

 

[drew_wymore]

Even though it may turn out that I don't have Crohns when I found this place back in 2007 after months of searching I feel the same as you Fen. At the time I was really struggling and this forum offered me not only a place to research but to bond with others who understood what I was going through at the time.

I honestly think this place saved my life at least once when I asked whether stopping Pred cold turkey was ok .. turns out it wasn't (something my GI didn't relay to me) and I was able to get help so I didn't get really ill from going from 60mg to 0mg overnight.

 

[SpoonNinja]

oh i agree with everything!! i love this forum its the best thing i think ive ever came across in all my random google-ing ^-^ it lets you vent and not worry about puting your stress on others becaus they all no whats happening first hand, and they can give advise when you need it, and it would be great for us all to get together somewhere it would be amazing lol

 

[farm]

Can you imagine the number of port-a-potties we'd have to rent for that thing????

Thanks shady, you owe me a laptop since mine is now covered in Mt. Dew!!!

 

[farm]

This is a great place. I've had crohns for 15 years but after my surgery back in December I got pretty depressed and happened upon this site. It was something to read and I had a lot of "oh I know that feeling" moments reading.
I joined in June because nothing has been working for me and I was somewhat lost. Now I will start Remicade tomorrow (matter of fact) and I got a LOT of insight on what to expect.

I am a member of another forum and a lot of us have met in different states/times and I can honestly say it was amazing to meet these people. Note: I did meet one that I could not give 2 spits for (all others agreed) but now I have friends from WA to NY down to FL up in Canada. It's great. We try to meet at least every other year if things work out.

 

[Nancy Lee]

Fenway, I think your post is the most heartwarming
I have ever read on this site.

You have managed to put into words what most of us here feel...
and the reason why we stay.

Thank you so much for making me smile tonight...


I for one would love to have a Crohn's meetup
if at all possible.

 

[Lisa5326]

Warms my insides to read yeah I agree, altho i'm still a newbie. Great post Fenway.

Can you imagine the number of port-a-potties we'd have to rent for that thing????

I personally think...screw the port-a-potties! How about the best most comfortable king and queen chair private toilets with a built in computer or white board and all sorts of reading material, a (sanitary of course) calmoseptine dispenser and moist wipes galore. I mean who would appreciate (and deserve!) it more?

 

[danman]

I'd love to have a subsidised ticket to the Americas, North or South....

Joking aside, I've lived with this for a long time too, alone for 99% of it. Friends and family sympathise, but generally leave me alone with it. That's how I like it.

CF has given me the chance to see that I'm not alone in my experiences.

 

[farm]

I'd love to have a subsidised ticket to the Americas, North or South....

Joking aside, I've lived with this for a long time too, alone for 99% of it. Friends and family sympathise, but generally leave me alone with it. That's how I like it.

CF has given me the chance to see that I'm not alone in my experiences.

Dan we'll have to swap. You can come visit redneckville and I'd love to come to your part of the world. Mmmm, real beer by the pint!:ycool: :ycool:

 

[GirlFriday]

Fenway that is such a lovely thing to say! It is so true - I find if I ever have those 'panic' moments where I am thinking about Crohn's and the future, and what can go wrong too much, just remembering this place is here gives my brain a sigh of relief

Although you may not know me very well yet, I really like you guys.