Hi poppets mom
I would go ahead with the scopes. My son's symptoms included weight loss, loss of appetite, tiredness, fever, pale, backaches, night sweats, canker sores and diarrhea. The symptoms weren't constant, they would come and go, sometimes all would be present, sometimes just a few... His GP ran a number of tests (now, I'm not sure all of what she was ruling out - hepatitis, mono, parasites, etc.) and all came back normal (except iron levels). Even our first trip to emergency, with more tests and ultrasounds, all came back normal (or just 'minor' indications of inflammation). When we finally took him to our children's hospital's emergency, he was admitted and by that time his CRP and sed rate were elevated (not sure if his GP ever checked these???). However, there are many members/children who's inflammation markers (CRP, Sed Rate) are normal even while the inflammation is active.
Do not give her nsaids (i.e. ibuprofen, etc.) for her backaches as they will aggravate intestinal inflammation (my son has been told Tylenol only and he uses Tiger Balm ointment to help his backache).
You can also ask her GI re Enternal Nutrition (EN) - regardless of IBD or IBS, EN for a time period may help alleviate some of her symptoms as it is very easily digested, provides bowel rest, is anti-inflammatory, will provide her with her necessary nutrition and has absolutely no side effects (and, if it is Crohns and dependent on location, has a comparable success rate at inducing remission as steroids). However, compliancy is a bit difficult as the usual course of treatment is approx. 6 weeks with formula only (no food). But, in Amy's case, as you do not have a diagnosis yet, perhaps just a week or two will just help to alleviate symptoms.
I'm sorry she's struggling now and, as a parent, it's so heartbreaking to see them suffering and not be able to help! :ghug: I hope some of this info is helpful...
Good luck!