Undiagnosed someone please help

[Sunbun22]

Hello, i am 27 years old and have suffered with bowel problem for the last 10 years. The drs have said it is ibs and so i went on a healthy diet and cut out food that caused symotoms. However Iwouldbe okfor alittle while and then suffer until i was vomitting and sitting on the toilet far too often. the gp said it was in my head and referred me to a psychiatrist and prescribed anti depressents. I refused both. A few years of trying again i was referred to a gastroenterologist who listened to my back and chest and said you have ibs. I had a private food tolerence test that showed lots of intolerances and so i limited mt diet further, again for a little while I was slightly better. The last few years have got so much worse I can be ok for 2/3 weeks and then i struggle to eat anything, feel sick most of the time and am often sick. I am constantly bloated and can fall asleep anywhere anytime, I dont remember the last time I wasnt exhausted. My bones hurt especially joints and my fingers have swollen and are very painful. I have lost 3 and a half stone so now weigh 7.12 my hair has thinned by half I suffer extreme headaches and it all makes me not want to go out or see anyone. I dont suffer diarrhoea like I used to as I avoid almost everything however there is still blood everytime i use the toilet. My muscles feel like imworking out evenif i amsiting down I have only had blood tests which have all been normal other than low iron and b12. I cannot go on like this I amreally struggling please help

 

[DJW]

Hi and welcome,

I'm sorry you've been suffering with nobody really investigating.
I'd suggest getting a new gastroenterologist and push for proper investigation. Colonoscopy with biopsies, full blood work, upper GI investigation.

Sending you my support.

 

[Salad_Shooter]

Wow, that's a lot to go through over a very long period of time. I agree, you need a new GI doctor. This does not sound like IBS at all.

Please see another GI.

 

[ronroush7]

I agree with DJW and Salad Shooter.

 

[DEmberton]

Wow. IBS doesn't cause weight loss, blood, or low iron and B12. Go back to your GP, or find a different GP, and tell them this is a significant change from how it was when you saw the gastroenterologist.

I had 18 years of thinking I had IBS as that's what they told me. Then it got worse: lost weight rapidly, was tired and achy all the time, felt sick all the time, hair thinning from anaemia, etc. So you certainly wouldn't be the first.

Unfortunately here you always have to convince a GP to refer you; not as simple as getting another GI.

 

[Scipio]

Did any of these doctors do a colonoscopy? If so what did they see? The presence of blood in the stool strongly suggests this is something more than IBS (although it's certainly possible to have both Crohn's and IBS at the same time).

If they have not done a colonoscopy then you need to change doctors. I'd search for a GI who specializes in inflammatory bowel disease and consult with him/her.

 

[scottsma]

If you have more than one GP at your surgery make an appt.with one you don't usually see.It's allowed.Make a list of symptoms and dates,if possible,as you remember them,including weight loss and thinning hair.If the GP is doing their job,they will make sure you get to see a GI asap.Do not be fobbed off.Tell them that this has gone on long enough.You at least need a colonoscopy and calprotectin test,to start with.Please keep us updated,and I hope you get results very soon,and start to feel better.